Latest Axia Podcast Episodes
What journalists want from your media pitch
On Top of PR with Jason Mudd - July 08, 2024 15:00 - 43 minutes ★★★★★ - 17 ratingsSend us a Text Message. Crafting winning media pitches, learning the elements needed to stand out and secure coverage. Five things you’ll learn from this episode: What doesn’t help your pitches Following up — NOGAS Use the phone to tell your story Exclusive/advance/embargo — know the diff...
Episode 106: Navigating Insurance Nightmares
Live Yes! With Arthritis - June 18, 2024 07:15 - 35 minutes ★★★★★ - 57 ratingsNavigating health insurance can often feel like walking through a mine field. In this episode of the Live Yes With Arthritis podcast, we hear real stories of three people living with arthritis and how they are using their health insurance to gain access to the care they need. *Visit the Live Yes!...
How AI is transforming strategic communications
On Top of PR with Jason Mudd - June 10, 2024 14:00 - 44 minutes ★★★★★ - 17 ratingsSend us a Text Message. AI strategist Kathleen Perley shares top recommended AI tools and how to optimize them for business communications strategies. Our guest Our episode guest is Kathleen Perley, professor of AI at Rice University’s Jones School of Business. Kathleen is an innovative heal...
Living with cerebral palsy and learning disabilities – with Aashna Parikh
Beyond 6 Seconds - June 10, 2024 10:00 - 27 minutes ★★★★★ - 109 ratingsAashna Parikh is a Diversity, Equity, and Inclusion (DEI) consultant and inclusive marketing specialist based in India. Living with cerebral palsy and learning disabilities, she has consulted and collaborated with Forbes-listed and Fortune 500 companies across diverse sectors such as Fintech, Su...
Season Three Finale
Neuroversity - June 07, 2024 09:00 - 5 minutes ★★★★★ - 26 ratingsSeason three has come to a close for Neuroversity. What were some of the highlights from this season and what is coming up in season four? Let's find out.... Do you have some ideas about what comes next? Email me at [email protected] Follow Neuroversity on all our social platforms: Ne...
Episode 105: Traveling Well With Arthritis
Live Yes! With Arthritis - June 04, 2024 07:15 - 31 minutes ★★★★★ - 57 ratingsTraveling can be exciting. But it can also create anxiety and new challenges to your everyday tasks. In this episode of the Live Yes! With Arthritis podcast, our experts explore tips, tools and techniques to make traveling with arthritis less worrisome and less painful, and provide practical solu...
Working in tech as a Black autistic woman – with Martina Kuzenski
Beyond 6 Seconds - May 27, 2024 10:00 - 44 minutes ★★★★★ - 109 ratingsMartina Kuzenski is a late-diagnosed autistic woman who received her autism diagnosis at age 28 near the end of her Master’s degree program. She is an IT Specialist for the U.S. federal government. She shares her experiences as a Black autistic woman in tech as a mentor for the Pathways in Techn...
255 - Season Finale - We’re Riding the World’s Highest Road
Two Disabled Dudes - Living with Urgency - May 27, 2024 07:01 - 44 minutes ★★★★★ - 107 ratingsIn the final episode of season 11, The Dudes discuss their major upcoming event: a challenging 200-mile bike ride in the Himalayas - to the top of the world’s highest paved road - over 19,000’. They talk about the logistics, the elevation challenges, and their preparation, including the use of a...
Episode 104: Calm Your Inner Critic
Live Yes! With Arthritis - May 21, 2024 07:15 - 27 minutes ★★★★★ - 57 ratingsYou know the old trope about a devil on one shoulder and an angel on the other. If you’re like a lot of people, you tend to listen to the devil when you’re already feeling down or insecure. But listening to your inner critic can spiral into a vicious cycle of more negativity, anxiety and pain. In...
254 - From Dad to Advocate to CEO: John Crowley's Continued Commitment
Two Disabled Dudes - Living with Urgency - May 20, 2024 07:01 - 50 minutes ★★★★★ - 107 ratingsThis episode (254) features an interview with John Crowley, who shares his journey into the rare disease space. John's involvement started in 1998 when his daughter Megan was diagnosed with Pompe disease, a rare form of muscular dystrophy. Determined to find a cure, John and his family embarked ...
Hiring people with Down syndrome - with Joshua Hoskins
Beyond 6 Seconds - May 13, 2024 08:00 - 16 minutes ★★★★★ - 109 ratingsJoshua Hoskins is a 25 year old man with Down syndrome who lives in Tamworth, England with his parents. He loves his family and friends, and his hobbies are horse riding, boxing, musicals, supporting Newcastle United Football team, going out on trips and going on holiday. Josh has two jobs: he...
253 - Uplifting Athletes: Harnessing the Power of Sport for Rare Diseases
Two Disabled Dudes - Living with Urgency - May 13, 2024 07:01 - 34 minutes ★★★★★ - 107 ratingsRob Long shares his journey with Uplifting Athletes, an organization dedicated to leveraging the influence of athletes to support those impacted by rare diseases. Rob and Brett Brackett took over leadership in 2018, revitalizing the organization's mission. They have several powerful initiatives ...
NVLD 101 with Dr. Jessica Broitman and Dr. John Davis
Neuroversity - May 10, 2024 09:00 - 26 minutes ★★★★★ - 26 ratingsAfter first learning about non verbal learning disorder (NVLD) during my episode on specific learning disorders (SLDs) I wanted to know more. I kept finding myself having a hard time distinguishing between autism and NVLD. So I knew I needed to bring on some experts. The same names kept coming...
Episode 103: Switching to a Biosimilar
Live Yes! With Arthritis - May 07, 2024 07:15 - 38 minutes ★★★★★ - 57 ratingsSince a number of biosimilars to Humira became available in 2023, many more arthritis patients have become aware of these drugs, and many are being required by insurance to switch to one. In this episode, a patient and a rheumatologist will discuss their experience with biosimilars and how they a...
252 - NFL Plans Crushed, His Response Changes Lives
Two Disabled Dudes - Living with Urgency - May 06, 2024 07:01 - 47 minutes ★★★★★ - 107 ratingsIn episode 252, Rob Long, executive director of Uplifting Athletes, revisits his rare disease journey. He recounts his college football days at Syracuse University and the abrupt onset of symptoms during his senior year. Rob shares the initial confusion and fear surrounding his diagnosis of a br...
Episode 102: The Power of Giving
Live Yes! With Arthritis - April 30, 2024 07:15 - 24 minutes ★★★★★ - 57 ratingsWhether donating your time, money or committing simple acts of kindness, there’s no denying the power of giving. Altruism can help both the giver and receiver mentally and emotionally, which can ultimately translate to improved physical health — even reduced pain. In this episode of the Live Yes ...
Finding acceptance as an autistic biracial gay woman – with Grace Liu
Beyond 6 Seconds - April 29, 2024 10:00 - 29 minutes ★★★★★ - 109 ratingsGrace Liu is an autistic author, blogger, speaker and pet portrait artist based in the Midlands of England. Grace's book, “Approaching Autistic Adulthood: The Road Less Travelled,” was published in October 2021. She blogs about autism, neurodiversity, diversity and inclusion, as well as her life...
251 - From Canes to Canines: Linda's Path to Mobility
Two Disabled Dudes - Living with Urgency - April 29, 2024 07:01 - 54 minutes ★★★★★ - 107 ratingsIn episode 251 we welcome our dear friend Linda Snyder! Linda shares her personal journey living with a rare genetic type of ataxia and discusses how she discovered the benefits of having a mobility service dog named Cedric. She talks about the rigorous process of applying for a service dog, the...
Synesthesia and the Color of Sound with Emily Barth Isler
Neuroversity - April 26, 2024 09:00 - 39 minutes ★★★★★ - 26 ratingsSynesthesia is when your brain routes sensory information through multiple unrelated senses, causing you to experience more than one sense simultaneously. Some examples include tasting words or linking colors to numbers and letters. It’s not a medical condition, and not something to be cured, th...
250 - Thriving with Duchenne - Rare Disease Day with Jett Foundation
Two Disabled Dudes - Living with Urgency - April 22, 2024 07:01 - 1 hour ★★★★★ - 107 ratingsOur friends at Jett Foundation invited us into their community once again for a conversation with 5 panelists on Rare Disease Day. We were honored to moderate the discussion with these friends: Race Martinez - Architecture Student, living with Duchenne Kris Napper - Graphic Designer/Illust...
Autistic burnout and career change – with Shayonee Dasgupta
Beyond 6 Seconds - April 15, 2024 10:00 - 50 minutes ★★★★★ - 109 ratingsContent note: This episode mentions thoughts about suicide and self harm. Shayonee Dasgupta is a Mumbai-based freelance writer and editor who initially pursued a career in law, working with corporate law firms in India. She found out she's autistic and has ADHD in her 30s, prompting a transfo...
249 - 20 Years in the Making: REATA's Story of Skyclarys
Two Disabled Dudes - Living with Urgency - April 15, 2024 07:01 - 51 minutes ★★★★★ - 107 ratingsThis episode delves into the journey of Skyclarys, the first FDA-approved treatment for Friedreich's ataxia (FA), a rare genetic disorder. The discussion features Dr. Colin Meyer, former executive at Reata Pharmaceuticals, who shares his experiences from the inception of Reata to the acquisitio...
Episode 101: Living With Arthritis: Silver Linings
Live Yes! With Arthritis - April 09, 2024 07:15 - 28 minutes ★★★★★ - 57 ratingsIt doesn’t seem like there would be any benefits to living with a chronic disease like arthritis. It can upend your life, cause unrelenting pain, keep you from doing what you love and even change your plans for your life. But surprisingly, many people say it also has positive effects. In this epi...
248 - Everyone Holds a Piece w/ FARA CEO, Jen Farmer
Two Disabled Dudes - Living with Urgency - April 08, 2024 07:01 - 43 minutes ★★★★★ - 107 ratingsIn this insightful interview with Jen Farmer, CEO of the Friedreich's Ataxia Research Alliance (FARA), we explore the evolving landscape of rare disease research and the journey towards treatments for Friedreich's ataxia (FA). Jen shares her experiences and challenges as a leader in the field, e...
SLD 101: Auditory Processing Disorder and Nonverbal Learning Disabilities
Neuroversity - April 05, 2024 09:00 - 13 minutes ★★★★★ - 26 ratingsThis is the second of a two part series where I will introduce you to the most common types of specific learning disabilities or SLDs. Part two is about Auditory Processing Disorder and Nonverbal Learning Disabilities Auditory processing disorder, APD for short, is when the brain has trouble i...
Art, neurodivergence and self-discovery – with Nick Heaney
Beyond 6 Seconds - April 01, 2024 10:00 - 22 minutes ★★★★★ - 109 ratingsNick Heaney is a resident artist and co-founder of Artnova Gallery in Chatham, Massachusetts. Nick has always found art to be his most authentic way of connecting with the world around him. He was diagnosed with dyslexia during elementary school. He struggled with written language, but found a c...
247 - Tenacity and the Power of Persistence
Two Disabled Dudes - Living with Urgency - April 01, 2024 07:01 - 34 minutes ★★★★★ - 107 ratingsIn this episode, Sean and Kyle discuss the importance of maintaining discipline and focus, particularly in the face of distractions and competing priorities. The conversation delves into the concept of knowing what one wants and being clear about goals to stay motivated and driven. They reflec...
Episode 100: Gardening With Arthritis
Live Yes! With Arthritis - March 26, 2024 07:15 - 31 minutes ★★★★★ - 57 ratingsGardening is a great pastime. Research shows it benefits both physical and mental health. But what happens when painful joints from arthritis keep you from tending to garden tasks? In this episode, experts explore gardening tips and tools to help hone your green thumb with less pain. *Visit the ...
246 - Empowering Accessibility, One Review at a Time
Two Disabled Dudes - Living with Urgency - March 25, 2024 07:01 - 42 minutes ★★★★★ - 107 ratingsIn this episode, we discuss the groundbreaking work of Roll Mobility, a platform revolutionizing accessibility for people with disabilities. Roll Mobility functions as a Yelp-like app, providing users with vital information on the accessibility of restaurants, destinations, and sightseeing locat...
Down syndrome, leadership & advocacy – with David Egan
Beyond 6 Seconds - March 18, 2024 10:00 - 15 minutes ★★★★★ - 109 ratingsDavid Egan is a leader and advocate who promotes the causes of people with disabilities. He is the first person with Down Syndrome to serve as a Joseph P. Kennedy Jr. Public Policy fellow on Capitol Hill and with the National Down Syndrome Society (NDSS). As a Special Olympics athlete and Intern...
Related Axia Topics
- Dyslexia 6
- Dyspraxia 6
- Autism 5
- Health 3
- Ataxia 3
- Neurodiversity 3
- Neurodivergent 3
- Tourettes 3
- Adhd 3
- Nutrition 2
- Pain 2
- Parkinson’s 2
- Awareness 2
- Rare diseases 2
- Add 2
- Dyscalculia 2
- Neurodiverse 2
- Autistic 2
- Dyslexic 2
- Dyspraxic 2