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248 - Everyone Holds a Piece w/ FARA CEO, Jen Farmer
Two Disabled Dudes - Living with Urgency
English - April 08, 2024 07:01 - 43 minutes - 60 MB - ★★★★★ - 107 ratingsSelf-Improvement Education emotionalintelligence ataxia beyondcircumstance disabilityawareness disease dudes friedreichs motivational overcomingchallenges rare Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
Previous Episode: 247 - Tenacity and the Power of Persistence
Next Episode: 249 - 20 Years in the Making: REATA's Story of Skyclarys
In this insightful interview with Jen Farmer, CEO of the Friedreich's Ataxia Research Alliance (FARA), we explore the evolving landscape of rare disease research and the journey towards treatments for Friedreich's ataxia (FA). Jen shares her experiences and challenges as a leader in the field, emphasizing the importance of community involvement and collaboration.
Also in this episode:
Sean travels to Vegas with a group of 30. Newsworthy: Viral ad challenges stereotypes about Down syndrome: ‘Assume I can drink a margarita’ Thank you notes: Jakob in Austria and Kelly at The Venetian.Links and resources:
Jen's Previous episodes: DD pt4: Why Sean Baumstark is Banned From Clinical Trials How a Mom Launched the First Drug Approval in FA Newsworthy music courtesy of Zapsplat.com