249 - 20 Years in the Making: REATA's Story of Skyclarys
Two Disabled Dudes - Living with Urgency
English - April 15, 2024 07:01 - 51 minutes - 41.7 MB - ★★★★★ - 107 ratingsSelf-Improvement Education overcomingchallenges ataxia beyondcircumstance disabilityawareness disease dudes emotionalintelligence friedreichs motivational rare Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
Previous Episode: 248 - Everyone Holds a Piece w/ FARA CEO, Jen Farmer
This episode delves into the journey of Skyclarys, the first FDA-approved treatment for Friedreich's ataxia (FA), a rare genetic disorder. The discussion features Dr. Colin Meyer, former executive at Reata Pharmaceuticals, who shares his experiences from the inception of Reata to the acquisition by Biogen.
The conversation offers a compelling narrative of resilience, innovation, and collaboration in the pursuit of groundbreaking therapies for rare diseases. Colin's reflections provide valuable perspectives on the challenges and rewards of drug development, as well as the transformative potential of scientific breakthroughs in improving patient outcomes.
Also in this episode:
Sean visits Golden 1 Arena Newsworthy: Athlete With Cerebral Palsy Finishes The Barcelona Marathon Thank you notes: Kyle's friends Blake & Dan and Sean's friend TaylorLinks and resources:
rideATAXIA Hometown San Luis Obispo, CA. May 11, 2024 Nic Novicki's 2DD Episode Colin's previous episode: 035 - Drug Development - LIVE at REATA Pharmaceuticals Team FARA Himalayas Fundraising page Alex Roca finishing Barcelona Marathon Newsworthy music courtesy of Zapsplat.com