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Neuroversity

67 episodes - English - Latest episode: 1 day ago - ★★★★★ - 26 ratings

Neuroversity provides a space to educate ourselves and others about neurodiversity, to elevate the experiences of the neurodivergent, to be a source of support for members and allies of this community, and to help move the culture towards valuing and including diverse neurological conditions. This is a space where questions are welcomed and encouraged and honoring individual experiences is the number one rule.

Society & Culture neurodiversity neurodivergent neurotypical autism add dyslexia apraxia tourettes dyscalculia neurodiverse
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Episodes

Synesthesia and the Color of Sound with Emily Barth Isler

April 26, 2024 09:00 - 39 minutes - 27 MB

Synesthesia is when your brain routes sensory information through multiple unrelated senses, causing you to experience more than one sense simultaneously. Some examples include tasting words or linking colors to numbers and letters. It’s not a medical condition, and not something to be cured, therefore it falls right under the neurodivergent umbrella.  Today’s guest not only has synesthesia, she also just recently published a middle grade novel about it, which is fantastic and called The Col...

SLD 101: Auditory Processing Disorder and Nonverbal Learning Disabilities

April 05, 2024 09:00 - 13 minutes - 9.6 MB

This is the second of a two part series where I will introduce you to the most common types of specific learning disabilities or SLDs. Part two is about Auditory Processing Disorder and Nonverbal Learning Disabilities Auditory processing disorder, APD for short, is when the brain has trouble interpreting sounds or language.  It is a central nervous system process as opposed to a deficit within the ear’s ability to hear.  APD impacts the brain’s ability to process sounds, which can cause co...

SLD 101: Dysgraphia and Dyscalculia

March 08, 2024 10:00 - 12 minutes - 8.68 MB

This is the first of a two part series where I will introduce you to the most common types of specific learning disabilities or SLDs. Part one is about Dysgraphia and Dyscalculia. Dysgraphia is a learning disability that impacts writing abilities.  And we’re not talking about just having poor handwriting, this goes well beyond that.  Dysgraphia can also impair spelling, and getting thoughts onto paper.   Dyscalculia is a learning disability that affects the part of your brain that process...

Inclusion 101 with Tim Villegas

February 02, 2024 10:00 - 46 minutes - 31.8 MB

"We don't need a handful of people doing inclusive education perfectly, we need millions of people doing it imperfectly." - Tim Villegas According to the Oxford Dictionary, inclusion is the practice or policy of providing equal access to opportunities and resources for people who might otherwise be excluded or marginalized, such as those who have physical or intellectual disabilities and members of other minority groups. And specifically when it comes to education, inclusion is the act or p...

How to ADHD with Jessica McCabe

January 19, 2024 10:00 - 47 minutes - 32.8 MB

In this episode of Neuroversity, host Jessica Kidwell chats with Jessica McCabe, the brains behind the "How to ADHD" YouTube channel and author of "How to ADHD: An Insider's Guide to Working With Your Brain, Not Against It."  Jessica started her channel as a way to understand her own diagnosis and it quickly became apparent that the information she was learning was helpful to a whole lot of other people too -over 1.6 million other people! In this episode we: Understand the unique challenges...

Engage Their Senses and Minds: Sensory-Based Learning for Preschoolers

January 05, 2024 10:00 - 15 minutes - 10.8 MB

From glitter bottles to yoga cards: here are some tips to stimulate all EIGHT senses. Yes, I said eight. Join me as I explore the world of sensory processing and share tips on creating a sensory-friendly classroom for preschool-aged children. Understanding the eight senses is crucial for enhancing the educational experience and well being for all children. In this episode, you will be able to: Understand the benefits of sensory-friendly classrooms for preschoolers. Review the importance ...

Navigating Social Media Safely: Dr. Devorah Heitner’s Expert Advice for Neurodivergent Kids

December 01, 2023 10:00 - 36 minutes - 24.8 MB

The digital world allows our children the opportunity to connect with people all over the place and all of a sudden they have a community. But how do we help our children find the line of privacy and how do we help ourselves find the line of privacy for our children? - Dr. Devorah Heitner Do you want your neurodivergent child to feel empowered and stay safe while navigating the digital world? Join me as I welcome my guest, Devorah Heitner, who will be sharing valuable insights and strategie...

Encore Episode in Honor of Grace's Birthday

November 17, 2023 10:00 - 37 minutes - 25.6 MB

November 17th is a pretty important day in my household because it is my daughter Grace's birthday.  And 17 years ago today it was Grace who started me on this journey of motherhood, and this journey of understanding neurodiversity more. This episode originally aired in April 2022-Autism Acceptance Month, but in honor of Grace, I wanted to re-visit this conversation.   Because she is amazing.   Because I wish more people could get the chance to see her for the insightful, funny, beautiful, ...

Down Syndrome 101

October 27, 2023 09:00 - 9 minutes - 6.27 MB

I don’t often see as much representation of Down Syndrome within the neurodivergent community, and since October is Down Syndrome Awareness month, I think that means now is the perfect time to expand our understanding.    So fellow curious minds, let’s get started.   In this episode we will learn: The three types of Down Syndrome The incidence of Down Syndrome Common expressions of Down Syndrome The medical conditions that have an increased risk of occurring in people with Down Syndrom...

WOW Series: Rejection Sensitive Dysphoria (RSD)

October 13, 2023 09:00 - 10 minutes - 7.22 MB

On this episode, it's a return to the Word of the Week (WOW) Series. In honor of ADHD Awareness Month, I'm focusing on Rejection Sensitive Dysphoria (RSD),  which frequently co-occurs with ADHD.  What is it? Why is it so frequently associated with ADHD? How does it impact individuals? How can you help? Additional resources to find out more: Dr. Megan Anna Neff Neurodivergent Insights  Dr. William Dodson, Psychiatrist and Adult ADHD Specialist Cleveland Clinic information on RSD Follo...

Dr. Lynn Koegel on her latest book, "Hidden Brilliance: Unlocking the Intelligence of Autism"

September 29, 2023 09:00 - 52 minutes - 36 MB

SEASON THREE PREMIERE!! What if the key to unlocking the brilliance of an autistic child lies in focusing on their strengths rather than their challenges? This episode, Jessica is joined by Dr. Lynn Koegel, a leading figure in autism education, who has passionately championed a shift from the deficit model to a strengths-based approach in teaching autistic children. Her latest book, "Hidden Brilliance: Unlocking the Intelligence of Autism," co-authored with Claire LaZebnik, is a testament to...

Encore Episode: “Back to School: Smooth Transitions for Neurodivergent Families

August 18, 2023 09:00 - 13 minutes - 9.1 MB

Summer school sessions are coming to an end, so why not re-visit a season one episode on “Back to School”? As the dog days of summer wind down, it’s time for many of us to turn our attention on to three dreaded words, “back to school”, or maybe they’re you’re favorite three words!  Who am I to judge?  One thing that is certain, it’s a transition, and transitions do not always go smoothly.  Especially in my neurodivergent household.  But regardless of the neurodivergence that is in your hou...

Summer Book Club: "Cassandra in Reverse" by Holly Smale

August 06, 2023 22:00 - 9 minutes - 6.75 MB

In this session of Neuroversity Summer School, host Jessica Kidwell reviews Holly Smale's 'Cassandra in Reverse'.  This book weaves the tale of Cassandra, a neurodivergent protagonist whose autism isn't her central focus, but a part of her multiple layers. From its take on autistic experiences to the author's own neurodiversity, this novel is a refreshing portrayal of the neurodivergent perspective.  This book is an essential read not just for the neurodivergent, but for anyone seeking a f...

Decoding Language Preferences: A Deep Dive into Person-First and Identity-First Language in Neurodiversity

July 14, 2023 09:00 - 10 minutes - 7.45 MB

Do you ever find yourself stumbling over the distinction between person-first and identity-first language? I certainly do. That's why the first session of Neuroversity Summer School is about the  nuances of these two linguistic approaches, particularly in the context of neurodiversity.  I revisited an interview I had from Season 1 Episode 5 with political journalist and author, Eric Garcia, who shares his personal perspective on these matters, shedding light on the importance of individual p...

Neuroversity Summer School Sessions

June 30, 2023 09:00 - 2 minutes - 2.06 MB

***BONUS CONTENT*** It may be summer time for most of us, but the learning won't stop at Neuroversity! Join me as we get "back to basics" at Neuroversity with a special set of "Summer School Sessions" to get us through July and August and help prevent the dreaded summer slide of learning. Find out what types of episodes you can expect over the next two months AND how you can help guide the syllabus.   Follow Neuroversity on all our social platforms: Neuroversity Website IG Facebook Twitter...

Defying the Odds: How Ellen Busch Turned Her Dyslexia to Her Advantage

June 09, 2023 09:00 - 37 minutes - 25.6 MB

Have you heard these myths about dyslexia?  Myth #1: Dyslexia means you're not smart.  Myth #2: Dyslexia is just a reading problem.  Myth #3: Dyslexia is a childhood problem that you outgrow.  These myths can be damaging to individuals with dyslexia, causing low self-esteem and a lack of empowerment. The truth is, dyslexia affects reading, writing, and spelling, but it does not reflect intelligence. Furthermore, dyslexia is a lifelong condition that can also bring unique strengths and ta...

PDA: Shifting from ODD to Understanding, featuring Dr. Casey Ehrlich

May 26, 2023 09:00 - 59 minutes - 40.8 MB

Meet Dr. Casey Ehrlich, a mother and researcher delving into the little-known condition called Pathological Demand Avoidance (PDA).  As she explains the complex nervous system response that triggers PDA, we're left wondering how many more people are suffering from this condition without proper recognition or support. In this episode, you will be able to: ·       Identify the distinct characteristics of PDA and ODD diagnoses.  ·       Grasp the importance of building secure, trust-filled e...

Decoding PDA: Shifting from ODD to Understanding, featuring Dr. Casey Ehrlich

May 26, 2023 09:00 - 59 minutes - 40.8 MB

Meet Dr. Casey Ehrlich, a mother and researcher delving into the little-known condition called Pathological Demand Avoidance (PDA).  As she explains the complex nervous system response that triggers PDA, we're left wondering how many more people are suffering from this condition without proper recognition or support. In this episode, you will be able to: ·       Identify the distinct characteristics of PDA and ODD diagnoses.  ·       Grasp the importance of building secure, trust-filled e...

Supporting Neurodiversity in Public School Systems: A Conversation with Kristen Haynor, Neurodiversity Specialist for Fairfax County Public Schools

May 12, 2023 09:00 - 54 minutes - 37.5 MB

The public school system in the United States has historically been built to support the success of one type of student: a typically developing student with average intellectual ability.   And, unfortunately, any student who falls outside of this type has a much harder time thriving in a system that is not built for them.  Fairfax County Public Schools in Virginia, one of the largest school systems in the US, is trying to expand the success of more of their students by being one of the first...

Obsessive Compulsive Disorder: A Conversation With Award Winning Author, Emily Barth Isler

April 28, 2023 10:00 - 29 minutes - 20 MB

In this episode of Neuroversity, host Jessica Kidwell interviews Emily Barth  Isler, a writer and sustainability beauty journalist who has obsessive compulsive disorder (OCD) and synesthesia. They discuss Emily's experience with OCD before and after diagnosis, how she structures her life to live in partnership with OCD, and her neurodivergent identity under the neurodiversity umbrella.  It is the second of two episodes featuring Emily's insights. Highlights: [00:01:59] Understanding Neurodi...

A Conversation with Emily Barth Isler About Her Award Winning Novel, AfterMath, And Neurodivergent Characters in Media.

April 14, 2023 09:00 - 28 minutes - 19.9 MB

In this episode of Neuroversity, Jessica Kidwell interviews Emily Barth Isler, a former child actress and writer for YA short stories and plays as well as a sustainable beauty journalist.   Emily also has OCD and synesthesia.  In this first of a two episode conversation, Emily and Jessica discuss Emily's award-winning debut novel Aftermath which explores themes of loss, mental health, gun control and neurodiversity.  They also discuss the inclusion of neurodivergent characters in media, Emil...

"It's Already Autism Awareness Month Again?": An Encore Episode from S1

March 31, 2023 09:00 - 17 minutes - 11.7 MB

It’s April, which means Autism Awareness Month.  And April 2nd is World Autism Awareness Day.  So I thought it would be a great time to re-visit  episode 22 from Season 1, where I talk ALL about the complicated feelings this month can bring.  There is a lot of background and history surrounding this month-and this episode was my attempt to learn a little about at it all.    On this episode you will learn: The history of Autism Awareness Month and World Autism Awareness Day Reasons why Aut...

Season 2 Premier! Autistic Burnout with Dr. Megan Anna Neff

March 17, 2023 09:00 - 42 minutes - 28.9 MB

Welcome to Season 2! Today we are talking about "burnout".  Specifically autistic burnout, and how it differs from neurotypical understanding of burnout. Joining me is Dr. Megan Anna Neff, a clinical psychologist working in Oregon. She specializes in working with neurodivergent adults and provides neurodivergent affirming assessments.  And she has a special interest in autistic burnout. Key Moments: 00:06:32 Burnout can lead to depression. 00:07:03 Autistic burnout: exhaustion, skills los...

A Very Thankful Season Finale!

November 25, 2022 10:00 - 13 minutes - 9.03 MB

What better way to celebrate our first year than to revisit with our favorite guests!  And we open with my two favorite guests EVER: Grace and Charlie Kidwell.  But, I'm not just revisiting with the two guests that live with me, we hear from many of our incredible season one guests!  And we also heard from listeners about what  should be covered on season two. Come join us for a look back on the first season of Neuroversity!   Follow Neuroversity on all our social platforms: Neuroversity W...

🎉Coming Soon! A Neuroversity Birthday Celebration🎉

November 11, 2022 10:00 - 2 minutes - 1.7 MB

Neuroversity is celebrating ONE YEAR of elevating neurodivergent voices and experiences-and I think that is a call to celebrate!  And what better way to celebrate than with a special birthday celebration.  So coming soon, on 11/25/22, we will do just that! I will revisit some past guests, talk about episodes and topics I loved, as well as topics I hope to cover more in the next season.  And I want YOU to be a part of the festivities.  You can either fill out the google form linked below, ...

ADHD Awareness Month

October 28, 2022 09:00 - 13 minutes - 9.37 MB

Whether you are finding this in October, for ADHD Awareness Month, or just coming across this episode now; consider this a great place to start in gaining an introduction to ADHD. In this episode you will learn: What is ADHD The prevalence of ADHD in the US and among boys vs girls The three type of ADHD The most common behaviors found within each type How someone gets diagnosed Treatment options  **Neuroversity is not a place that provides diagnoses, just a space to provide informati...

What is Neurodivergent Masking?

October 14, 2022 09:00 - 10 minutes - 7.17 MB

What do you think of when you hear the word "masking"? Since it's October, perhaps your thoughts go to Halloween and costumes? Or perhaps, if you are into self-care, you may think of skin care? Or in our post COVID world, maybe you think of face masks? But none of those are the masking we are talking about in Neuroversity this week. In psychology, masking refers to changing one’s behavior or natural personality to conform to social pressures or expectations.   And for many marginalized com...

Tourette Syndrome: A Conversation With Tourette Association of America Youth Ambassador and High School Senior, Saira Nagda

September 30, 2022 09:00 - 40 minutes - 27.9 MB

Saira Nagda is a high school senior, looking towards her future and making a difference in her community. She is a captain of her Varsity Cross Country and Track Team.  She is on the leadership board for her school's One Love Club, which educates students on what are healthy and unhealthy relationships. She founded the non-profit organization, RePlay-It, which collects gently used and new sports equipment and distributes it to children globally to encourage more involvement of sport, especi...

Sensory Processing Disorder (SPD): Building a Sensory Diet and What's Next for SPD

September 16, 2022 09:00 - 15 minutes - 10.9 MB

*Disclaimer: if your child has been diagnosed with SPD, or you suspect they have SPD, the best place to begin with any type of diagnostic or treatment plans is with an Occupational Therapist trained in sensory integration.  I am not an OT, and the information in this podcast series should not be used in any way to diagnose you or your child.   In part three of our 3 part series on SPD, the focus today will be on developing a well rounded sensory diet and where the research on SPD is headed....

Sensory Processing Disorder (SPD) Part 2

September 09, 2022 09:00 - 13 minutes - 8.97 MB

*Disclaimer: if your child has been diagnosed with SPD, or you suspect they have SPD, the best place to begin with any type of diagnostic or treatment plans is with an Occupational Therapist trained in sensory integration.  I am not an OT, and the information in this podcast series should not be used in any way to diagnose you or your child.   In part two of our series on SPD, you will learn about: The three types of SPD The difference between under and overstimulation What is an "avoide...

Sensory Processing Disorder (SPD)

September 02, 2022 13:00 - 9 minutes - 6.36 MB

*Disclaimer: if your child has been diagnosed with SPD, or you suspect they have SPD, the best place to begin with any type of diagnostic or treatment plans is with an Occupational Therapist trained in sensory integration.  I am not an OT, and the information in this podcast series should not be used in any way to diagnose you or your child.   Today starts a special weekly series I will be doing on SPD - Sensory Processing Disorder.  What is it?   What are the symptoms?   What do you DO f...

Neuroversity: Back to School Edition

August 19, 2022 09:00 - 11 minutes - 8.12 MB

As the dog days of summer wind down, it’s time for many of us to turn our attention on to three dreaded words, “back to school”, or maybe they’re you’re favorite three words!  Who am I to judge?  One thing that is certain, it’s a transition, and transitions do not always go smoothly.  Especially in my neurodivergent household.  But regardless of the neurodivergence that is in your household, here are some helpful tips that could make back to school a little less rocky.   And be sure to let...

Anxiety, Depression, and the Neurodiversity Umbrella: A Conversation With My Son

August 05, 2022 10:00 - 51 minutes - 35.4 MB

Turnabout is fair play they say, so..... Join me as I have a conversation with the most important male voice you will ever hear on this podcast, my son Charlie. The day I recorded the Neuroversity episode with Grace, we came home from the studio and Charlie said, "Mom, when will you interview me?" And, in my mind, I thought to myself "He's not neurodivergent, does his voice and experience need to be elevated?" I mean, talk about a small umbrella! Charlie shares with us his experience wit...

Word of the Week: Hyperlexia

July 15, 2022 09:00 - 6 minutes - 4.37 MB

It’s time for another entry into the Word of the Week series-where I pick a word well known or often used among those in the neurodiversity community, and try to understand it more in the context of my world in hopes to build a bridge of understanding to a broader community.   This week we will learn: What is hyperlexia The three types of hyperlexia The prevalence of hyperlexia in the neurodivergent population Resources used in this episode and to learn more about hyperlexia: https://w...

Women and ADHD with Trina Hayes

July 01, 2022 13:00 - 36 minutes - 25.2 MB

Today we are talking about ADHD.  Specifically women and ADHD and why so many are not finding out they have ADHD until they are 30, 40, or 50 plus years old. With the help of Instagram creator Trina Hayes, a late diagnosed member of "Lady ADHD", I learn more about what ADHD can look like in women.   From time blindness to low self esteem, we take a look at why ADHD is more than hyper little boys. More about Trina Hayes: Trina started My Lady ADHD as a love letter to all the women like her...

Gatekeeping the Neurodivergent Umbrella

June 17, 2022 09:00 - 11 minutes - 7.87 MB

We are going back to basics, an introductory 101 level course, if you will, and taking an in-depth look at what it means to be neurodivergent.  The definition as well as who gets to decide if someone is, in fact, neurodivergent.  Because, much like many things, there is not one definitive answer on this.  Depending on who you ask, neurodivergence can look many ways.  Which has led me to the question:  what exactly is a neurodivergent brain?  who gets to gatekeep whether an individual “gets...

The Intersection of Race and Disability with Maria Davis-Pierre, President and CEO of Autism in Black

June 03, 2022 09:00 - 48 minutes - 33.3 MB

Today we are talking about neurodivergence in the black community and the intersection of race and disability.  And  when it comes to breaking down barriers related to autism in the black community, no one does it with more passion and clarity than Maria Davis-Pierre, a licensed mental health counselor, autism awareness advocate and founder of Autism in Black. As the parent of two autistic children, and being autistic herself, Maria understands firsthand the isolation, shame and stigma that...

ADHD and Women With Lisa Hicks, ADHD and Neurodivergent Coach

May 13, 2022 09:00 - 43 minutes - 29.7 MB

Today's episode is about ADHD.  Specifically though about ADHD in women, and with a later diagnosis.   We talk all about: diagnosis without context medical vs self diagnosis masking vs mirroring rejection sensitivity dysphoria  prevalence of queerness in the neurodivergent And so much more!  It's a great primer on ADHD and I'm looking forward to learning more. More about Lisa Hicks: Lisa is the owner of Lisa Hicks Coaching and has her Honours Bachelor of Arts in Psychology from the Un...

What's Wrong With Applied Behavioral Analysis (ABA) with Mari Cerda, BCBA

April 29, 2022 15:00 - 51 minutes - 35.1 MB

In this episode, Jessica speaks with Mari Cerda, BCBA, who is the co-founder of The Lighthouse Learning Center and The Leap Institute.  What follows is an important and nuanced conversation about: What IS ABA? What is the history of ABA within the autistic community and the field of Behavioral Analysis? How does the concept of "duality" negatively impact our culture, and more specifically the autistic community?  How can we increase our own "cultural humility"? What  does the term "neur...

Autism Speaks: A Conversation With My Daughter

April 15, 2022 09:00 - 36 minutes - 24.8 MB

Join me as I have a conversation with the most important autistic voice you will ever hear on this podcast, my daughter Grace.  This is not an inspirational story.  This is not a sad story.  This is Grace's story.    How she remembers finding out she's autistic.   How she sees herself as a neurodivergent teenager.  How she feels about this podcast, and what she is looking forward to in her future.  One story.  One autistic experience.  And I've never been more proud to put it out into...

Is It Foolish To Celebrate Autism Awareness Month?

April 01, 2022 09:00 - 16 minutes - 11.2 MB

Depends on who is doing the celebrating. it’s April, which means Autism Awareness Month.  And April 2nd is World Autism Awareness Day.  You’ll see landmarks like the White House and the Empire State building lighting it up blue.  And Neurodiversity trainings will be occurring all month long in businesses and schools promoting neurodivergent affirming practices.  And one would think, “this is a good thing”, right?  Well, it’s definitely a thing.  A complicated thing.  There is a lot of backg...

Is It Foolish To Celebrate Autism Awareness Month?

April 01, 2022 09:00 - 16 minutes - 11.2 MB

Depends on who is doing the celebrating. it’s April, which means Autism Awareness Month.  And April 2nd is World Autism Awareness Day.  You’ll see landmarks like the White House and the Empire State building lighting it up blue.  And Neurodiversity trainings will be occurring all month long in businesses and schools promoting neurodivergent affirming practices.  And one would think, “this is a good thing”, right?  Well, it’s definitely a thing.  A complicated thing.  There is a lot of backg...

Understanding the Updated CDC and American Academy of Pediatrics Developmental Milestones

March 18, 2022 09:00 - 11 minutes - 7.97 MB

For the first time in almost 20 years, the CDC has updated their child development milestone guidelines.  In cooperation with the American Academy of Pediatrics, a group of eight subject matter experts recommended changes to these guidelines.  So why is the American Speech Language Hearing Association and most of their 211,000 association professionals concerned? Well curious minds, listen to find out! Resources used for this episode: https://www.cdc.gov/ncbddd/actearly/milestones/index.htm...

Is it Anxiety or is it Autism? Dr. Megan Anna Neff Explains Why Girls and Other High Masking Individuals are Often Misdiagnosed

March 04, 2022 10:00 - 45 minutes - 31.1 MB

So many incredible insights during this conversation with Dr. Megan Anna Neff, PsyD. About Dr. Neff: Dr. Megan Anna Neff has a doctorate in clinical psychology and is currently a psychology resident in private practice where she specializes in working with neurodivergent adults and provides neurodivergent affirming assessments. They are a parent to two neurodivergent children and in an inter-neuro partnership.  She is a late in life diagnosed autistic-ADHDer who is passionate about educatin...

**Encore Episode in honor of Rare Diseases Day** Introduction to PTEN Hamartoma Tumor Syndrome (PHTS)

February 25, 2022 10:00 - 44 minutes - 30.6 MB

I’m doing a little something different this week.  Monday is the last day in February, and whether it is a 28-day February or a 29-day February, the last day is recognized world wide as Rare Disease Day, the globally-coordinated movement on rare diseases, focused on working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.  A disease is considered rare if it affects fewer than one in 2000 people.  Collectively thoug...

**Encore Episode in honor of Rare Diseases Day** Introduction to PTEN Hamartoma Tumor Syndrome (PHTS)

February 25, 2022 10:00 - 44 minutes - 30.6 MB

I’m doing a little something different this week.  Monday is the last day in February, and whether it is a 28-day February or a 29-day February, the last day is recognized world wide as Rare Disease Day, the globally-coordinated movement on rare diseases, focused on working towards equity in social opportunity, healthcare, and access to diagnosis and therapies for people living with a rare disease.  A disease is considered rare if it affects fewer than one in 2000 people.  Collectively thoug...

Word of the Week: Alexithymia

February 18, 2022 10:00 - 9 minutes - 6.7 MB

Another episode in the Word of the Week series! This week? Alexithymia Other than waking up my smart speaker every single time I said it in this episode, what is it?  And how does it relate to neurodivergent individuals, if at all? Resources cited this week: Dr. Nick Walker https://neuroqueer.com/neurodiversity-terms-and-definitions/ Examples given of Alexithymic traits https://blogs.scientificamerican.com/mind-guest-blog/the-emotional-blindness-of-alexithymia/ Description and usage of GA...

About the Elephant in the Room

February 11, 2022 10:00 - 10 minutes - 7.14 MB

This one is about your host.  Yep, even after she said she wouldn't make this podcast about her. It's the absolutely true story of Jessica's struggle with elephants and fear and how she saved herself from being stuck in a locked seatbelt.  (With an assist from @autismcafe, Tobe Nwigwe, and herself) Eileen Lamb https://theautismcafe.com IG and Twitter: @theautismcafe Facebook: https://www.facebook.com/theautismcafe Tobe Nwigwe https://www.tobenwigwe.com "Unfollow Me" https://www.youtube...

Word of the Week: Dopamine

February 04, 2022 10:00 - 9 minutes - 6.25 MB

The next installment of the Word of the Week series is out! WOW for this time is Dopamine What is it?  Where does it come from?  Why do we need it?  What the heck does it have to do with neurodiversity? Find out all this and how Jessica does her research in this episode. Resources Used: https://www.sciencenewsforstudents.org/article/explainer-what-dopamine https://kids.kiddle.co/Dopamine Hat Tip to Billy Joy "Me and Mrs. Jones" https://www.youtube.com/watch?v=NYOQDnWFXYI Support this pod...

Introduction to PTEN Hamartoma Tumor Syndrome (PHTS)

January 28, 2022 10:00 - 41 minutes - 28.8 MB

You just never know where a slice of pizza will take you. For me, and today's guest, it was the beginning of a beautiful friendship. Join me as I introduce you to one of the best humans around, Carla McDonald.  This is a conversation between two moms about parenting, advocating, learning, laughing, and more. Carla's younger son is autistic and also has PTEN Hamartoma Tumor syndrome (PHTS), which is a rare genetic condition that causes an increased risk for certain cancers, benign growths, a...

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