Invisible Not Broken - Chronic Illness Podcast Network
286 episodes - English - Latest episode: 3 months ago - ★★★★★ - 113 ratingsThe podcast network that speaks to people with chronic illness, invisible illness, disability, and chronic pain.
"Explicitly Sick Podcast" with Monica Michelle + "[Human]care Podcast" with Eva Minkoff
Be Kind. Be Gentle. Be A Bad Ass.
Hosted on Acast. See acast.com/privacy for more information.
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Episodes
(Explicitly Sick) When You Are Not Treated Like An Adult Because of Disabilities: Amy Gaeta:
March 30, 2020 05:30 - 1 hour - 130 MBSeriously the hot take here is ask the person. What they say goes. When You Are Not Treated Like An Adult Because of Disabilities. A discussion with Monica Michelle (Ehlers Danlos wheelchair user for Invisible Not Broken a chronic illness podcast) and Amy Gaeta about how people with disabilities both mental and physical are treated like children from society to travel to the medical establishment. Hosted on Acast. See acast.com/privacy for more information.
When You Are Not Treated Like An Adult Because of Disabilities. A discussion with Monica Michelle (Ehlers Danlos wheelchair user for Invisible Not Broken a chronic illness podcast) and Amy Gaeta
March 30, 2020 05:30 - 1 hour - 130 MBSeriously the hot take here is ask the person. What they say goes. When You Are Not Treated Like An Adult Because of Disabilities. A discussion with Monica Michelle (Ehlers Danlos wheelchair user for Invisible Not Broken a chronic illness podcast) and Amy Gaeta about how people with disabilities both mental and physical are treated like children from society to travel to the medical establishment. See acast.com/privacy for privacy and opt-out information.
3 Updates!
March 28, 2020 05:42 - 4 minutes - 9.15 MBHey everyone – Spoonies, Wellness Seekers, practitioners – all ya'll – Eva here. It’s a beautiful blue day up here in Rochester NY. I’ve been inside for 5 days straight and miraculously I'm not going crazy just yet. Ok…so 3 quick things: #1. For the next few weeks, Monica and I plan to publish episodes that focus on the “How to’s” when it comes to COVID19. Why? Well, it’s kind of tough to ignore right now for anyone let alone people like us with chronic illnesses and disabilities. Moni...
How to Live Unapologetically with Chronic Illness
March 23, 2020 05:28 - 1 hour - 129 MBYou are subject to change and that’s ok. You’re allowed to make a decision and then change your mind. Its about constant evolution. Be open to that within ourselves and in other people. In order to have good relationships you have to be able to grow with people. - Lauren Freedman ➡️ visit https://uninvisiblepod.com/ @uninvisiblepod What is @uninvisiblepod??? An award-winning podcast about invisible conditions and chronic invisible illness, featuring interviews with survivors, their loved...
(HumanCare podcast) How to Live Unapologetically with Chronic Illness: Lauren Freedman
March 23, 2020 05:28 - 1 hour - 129 MBYou are subject to change and that’s ok. You’re allowed to make a decision and then change your mind. Its about constant evolution. Be open to that within ourselves and in other people. In order to have good relationships you have to be able to grow with people. - Lauren Freedman ➡️ visit https://uninvisiblepod.com/ @uninvisiblepod What is @uninvisiblepod??? An award-winning podcast about invisible conditions and chronic invisible illness, featuring interviews with survivors, their loved...
How to Feed Yourself (Spoonie Edition) With Occupational Therapist Kimberlea Lemon
March 16, 2020 04:57 - 38 minutes - 70.1 MBFood shopping and meal preparation for spoonies with occupational therapist Kimberlea Lemon and the chronic illness and disability podcast Invisible Not Broken with podcaster Monica Michelle. How to feed yourself, some parenting with chronic illness tips, and an idea for the food box service Hello Fresh. Ehlers Danlos, Fibromyalgia, POTS, ME, and Chronic Fatigue. See acast.com/privacy for privacy and opt-out information.
(Explicitly Sick) How to Feed Yourself (Spoonie Edition): Occupational Therapist Kimberlea Lemon
March 16, 2020 04:57 - 38 minutes - 70.1 MBFood shopping and meal preparation for spoonies with occupational therapist Kimberlea Lemon and the chronic illness and disability podcast Invisible Not Broken with podcaster Monica Michelle. How to feed yourself, some parenting with chronic illness tips, and an idea for the food box service Hello Fresh. Ehlers Danlos, Fibromyalgia, POTS, ME, and Chronic Fatigue. Hosted on Acast. See acast.com/privacy for more information.
How to Feed Yourself Spoonie Edition With Occupational Therapist Kimberlea Lemon
March 16, 2020 01:30 - 70.1 MBFood shopping and meal preparation for spoonies with occupational therapist Kimberlea Lemon and the chronic illness and disability podcast Invisible Not Broken with podcaster Monica Michelle. How to feed yourself, some parenting with chronic illness tips, and an idea for the food box service Hello Fresh. Ehlers Danlos, Fibromyalgia, POTS, ME, and Chronic Fatigue.
(Explicitly Sick) How to Travel, Live Heart Body and Head, and Ask for What Your Spoonie Self Needs: Phoebe Howlett
March 02, 2020 06:38 - 1 hour - 111 MBWebsite/Blog, Twitter, & Instagram Handle www.thechanceofchoice.com Twitter @chanceofchoice Instagram @chanceofchoice Name * Phoebe Howlett Disorder Info What is your disorder? * Low blood pressure, POTS, EDS (previously ME) At what age did your disorder become a daily issue? * 20 Who were you before your illness became debilitating? * The sporty, outgoing, quick-witted, ambitious type. What would you do if you were not dealing with your invisible illness? * I am doing everythi...
How to Own Your Chronic Illness
February 27, 2020 07:24 - 59 minutes - 54.7 MB“Take care of yourself, trust yourself, be willing to be misunderstood.” -Raquel Hellenga Raquel Hellenga is a Life and Business Coach for entrepreneurs and creatives with chronic illness. Diagnosed with juvenile rheumatoid arthritis as a child, she has had chronic illness for over twenty years. She has an undergraduate degree and Master’s Degree in Organizational Communication and is a proud member of the LGBTQI+ community. Her practice involves working with people one-on-one to help them...
(HumanCare podcast) How to Own Your Chronic Illness: Raquel Hellenga
February 27, 2020 07:24 - 59 minutes - 54.7 MB“Take care of yourself, trust yourself, be willing to be misunderstood.” -Raquel Hellenga Raquel Hellenga is a Life and Business Coach for entrepreneurs and creatives with chronic illness. Diagnosed with juvenile rheumatoid arthritis as a child, she has had chronic illness for over twenty years. She has an undergraduate degree and Master’s Degree in Organizational Communication and is a proud member of the LGBTQI+ community. Her practice involves working with people one-on-one to help them...
Navigating Eating Disorders, Perfectionism, Disability, and Robotics Amy Gaeta Interview With Invisible Not Broken A Chronic Illness Podcast
February 23, 2020 14:30 - 66.5 MBTrigger Warning: Sexual abuse, self harm, and eating disorders. If you need help : NEDA National Eating Disorders Association Helpline: 1-800-931-2237 Hopeline Network: 1-800-442-4673 National Association of Anorexia Nervosa and Associated Disorders: 1-630-577-1330 Overeaters Anonymous: 1-505-891-2664 Multi-Service Eating Disorders Association (formerly the Massachusetts Eating Disorder Association): 1-617-558-1881 Crisis Textline: Text CONNECT to 741741 Thank you to Bulimia Center who had...
(HumanCare podcast) How to be a Diagnosis Detective: Achina Stein
February 16, 2020 17:24 - 54 minutes - 101 MB“If you do the work - and it really is work - and ask yourself ‘Do i still want to live this way?’, you have the power to decide how it goes” - Dr. Achina Stein ***BOOK RELEASED! "What If It's NOT Depression?" ➡️ For a free copy until the 18th, Email: [email protected] with the subject: I want to work with you! On today's episode, I interview the Sherlock Holmes of depression: psychiatrist and functional medicine doctor, Achina Stein. As a board-certified psychiatrist for o...
How to be a Diagnosis Detective
February 16, 2020 17:24 - 54 minutes - 101 MB“If you do the work - and it really is work - and ask yourself ‘Do i still want to live this way?’, you have the power to decide how it goes” - Dr. Achina Stein ***BOOK RELEASED! "What If It's NOT Depression?" ➡️ For a free copy until the 18th, Email: [email protected] with the subject: I want to work with you! On today's episode, I interview the Sherlock Holmes of depression: psychiatrist and functional medicine doctor, Achina Stein. As a board-certified psychiatrist for ...
How to: Travel, Live Heart Body and Head, and Ask for What Your Spoonie Self Needs With Phoebe Howlett
February 09, 2020 14:30 - 111 MBWebsite/Blog, Twitter, & Instagram Handle www.thechanceofchoice.com Twitter @chanceofchoice Instagram @chanceofchoice Name * Phoebe Howlett Disorder Info What is your disorder? * Low blood pressure, POTS, EDS (previously ME) At what age did your disorder become a daily issue? * 20 Who were you before your illness became debilitating? * The sporty, outgoing, quick-witted, ambitious type. What would you do if you were not dealing with your invisible illness? * I am doing everythin...
Navigating Eating Disorders, Perfectionism, Disability, and Robotics Amy Gaeta
February 09, 2020 06:25 - 48 minutes - 66.5 MBTrigger Warning: Sexual abuse, self harm, and eating disorders. If you need help : NEDA National Eating Disorders Association Helpline: 1-800-931-2237 Hopeline Network: 1-800-442-4673 National Association of Anorexia Nervosa and Associated Disorders: 1-630-577-1330 Overeaters Anonymous: 1-505-891-2664 Multi-Service Eating Disorders Association (formerly the Massachusetts Eating Disorder Association): 1-617-558-1881 Crisis Textline: Text CONNECT to 741741 Thank you to Bulimia Center w...
(Explicitly Sick) Navigating Eating Disorders, Perfectionism, Disability, and Robotics: Amy Gaeta - Part 1
February 09, 2020 06:25 - 48 minutes - 66.5 MBTrigger Warning: Sexual abuse, self harm, and eating disorders. If you need help : NEDA National Eating Disorders Association Helpline: 1-800-931-2237 Hopeline Network: 1-800-442-4673 National Association of Anorexia Nervosa and Associated Disorders: 1-630-577-1330 Overeaters Anonymous: 1-505-891-2664 Multi-Service Eating Disorders Association (formerly the Massachusetts Eating Disorder Association): 1-617-558-1881 Crisis Textline: Text CONNECT to 741741 Thank you to Bulimia Center w...
Kimberlea Lemon Occupational Therapist: How To Make Small Changes To Make Your Life Better
February 03, 2020 14:30 - 71.9 MBRecommendations Spoonie App Recommendations Fabulous Calm Dashlane I was wrong name is Dashlane Smartlights TV & Movie To Calm To: Big Bang Theory The Good Witch Hitchhikers Guide to the Galaxy Larkrise to Candleford Do you have any favorites? Comment below Name * Kimberlea Lemon Disorder Info What is your disorder? * Cfs, fibromyalgia, IBS, anxiety, depression. At what age did your disorder become a daily issue? * 12 Who were you before your illness became debilitating? * Co...
(Explicitly Sick) How To Make Small Changes To Make Your Life Better: Kimberlea Lemon, Occupational Therapist
February 03, 2020 06:28 - 52 minutes - 71.9 MBRecommendations Spoonie App Recommendations Fabulous Calm Dashlane I was wrong name is Dashlane Smartlights TV & Movie To Calm To: Big Bang Theory The Good Witch Hitchhikers Guide to the Galaxy Larkrise to Candleford Do you have any favorites? Comment below Name * Kimberlea Lemon Disorder Info What is your disorder? * Cfs, fibromyalgia, IBS, anxiety, depression. At what age did your disorder become a daily issue? * 12 Who were you before your illness became debilitating? ...
How to Advocate for Yourself
January 29, 2020 21:11 - 1 hour - 129 MB“You know your body better than anyone. You’re living in it 24/7. No one should be dismissing the stuff you have to say.” -Em Miller Em and Kate Miller are the co-authors of chronic illness blog, TwoBeingHealthy.com and the YouTube channel of the same name. Forced into non-traditional careers by chronic illnesses that include Lupus, POTS, EDS, Mast Cell Activation disorder diagnosed in their late teens, their blog is a delightful mix of practical tips for patients, product testing, and the...
(HumanCare podcast) How to Advocate for Yourself: Em and Kate Miller
January 29, 2020 21:11 - 1 hour - 129 MB“You know your body better than anyone. You’re living in it 24/7. No one should be dismissing the stuff you have to say.” -Em Miller Em and Kate Miller are the co-authors of chronic illness blog, TwoBeingHealthy.com and the YouTube channel of the same name. Forced into non-traditional careers by chronic illnesses that include Lupus, POTS, EDS, Mast Cell Activation disorder diagnosed in their late teens, their blog is a delightful mix of practical tips for patients, product testing, and the...
What Happens When You Return To Work After Disability: A Teacher's Story : A Chronic Illness Podcast
January 20, 2020 14:30 - 64.6 MBYou might remember Julie from her last interview: Nutcracker Syndrome: Kidneys, Bad Ass Teacher, and Staying Sane in Hospital and on Bed Rest She was just recuperating from her surgery for Nutcracker syndrome. You also might remember her concerns about returning to a high school (she is a science teacher) before she was physically ready and if she would be able to navigate a not terribly ADA friendly environment. From long corridors, few elevators, heavy doors, and long commutes we go over ...
What Happens When You Return To Work After Disability: A Teacher's Story (Explicitly Sick)
January 20, 2020 06:00 - 47 minutes - 64.6 MB*The Explicitly Sick Podcast* You might remember Julie from her last interview: Nutcracker Syndrome: Kidneys, Bad Ass Teacher, and Staying Sane in Hospital and on Bed Rest She was just recuperating from her surgery for Nutcracker syndrome. You also might remember her concerns about returning to a high school (she is a science teacher) before she was physically ready and if she would be able to navigate a not terribly ADA friendly environment. From long corridors, few elevators, heavy door...
(Explicitly Sick) What Happens When You Return To Work After Disability: A Teacher's Story
January 20, 2020 06:00 - 47 minutes - 64.6 MB*The Explicitly Sick Podcast* You might remember Julie from her last interview: Nutcracker Syndrome: Kidneys, Bad Ass Teacher, and Staying Sane in Hospital and on Bed Rest She was just recuperating from her surgery for Nutcracker syndrome. You also might remember her concerns about returning to a high school (she is a science teacher) before she was physically ready and if she would be able to navigate a not terribly ADA friendly environment. From long corridors, few elevators, heavy door...
(HumanCare Podcast) How To Learn to Love Your Chronic Illness: Dr. Ginevra Liptan
January 13, 2020 06:29 - 59 minutes - 110 MBHow Learning to Love Your Illness Can Make You a Better Person: An Interview with Ginevra Liptan, M.D. “It is here, it is part of me, it is part of how my nervous system interacts with the world and loving it has enabled me to sort of look at myself differently.” -Ginevra Liptan, M.D. Doctor Ginevra Liptan M.D. is a board-certified physician with fibromyalgia. She is one of the few specialists whose practice focuses solely on treating fibromyalgia, taking a holistic approach to care that ...
How To Learn to Love Your Chronic Illness
January 13, 2020 06:29 - 59 minutes - 110 MBHow Learning to Love Your Illness Can Make You a Better Person: An Interview with Ginevra Liptan, M.D. “It is here, it is part of me, it is part of how my nervous system interacts with the world and loving it has enabled me to sort of look at myself differently.” -Ginevra Liptan, M.D. Doctor Ginevra Liptan M.D. is a board-certified physician with fibromyalgia. She is one of the few specialists whose practice focuses solely on treating fibromyalgia, taking a holistic approach to care that ...
(Explicitly Sick) How to Confront Ableism, Racism, and Sexism: Tiara Simmons-Mercius - Part 2:
January 07, 2020 06:00 - 1 hour - 121 MBSubjects Covered For Part 2 Tattoos and Disability Activism and Disability New Mother World Life Hacks for Disabled Moms Disability Temper Tantrums Labor and Delivery Disability and Race Pregnancy and Disability Infant and Maternal Mortality Rates for Black Women Medical Racism and Ableism in the Medical System Disability and Custody Birth Story Disabled Merch When you get to be the test for a surgeon’s sewing skills Disabled When Your Baby is in NICU Hospitals Need to Prepa...
Part 2 How to Confront Ableism, Racism, and Sexism
January 07, 2020 06:00 - 1 hour - 121 MBSubjects Covered For Part 2 Tattoos and Disability Activism and Disability New Mother World Life Hacks for Disabled Moms Disability Temper Tantrums Labor and Delivery Disability and Race Pregnancy and Disability Infant and Maternal Mortality Rates for Black Women Medical Racism and Ableism in the Medical System Disability and Custody Birth Story Disabled Merch When you get to be the test for a surgeon’s sewing skills Disabled When Your Baby is in NICU Hospitals Need to Prepa...
Part 2 How to Confront Ableism, Racism, Sexism in the Medical Industry, On Social Media, and In School: An Interview with Activist and Blogger, Tiara Simmons-Mercius
January 06, 2020 14:30 - 121 MBSubjects Covered For Part 2 Tattoos and Disability Activism and Disability New Mother World Life Hacks for Disabled Moms Disability Temper Tantrums Labor and Delivery Disability and Race Pregnancy and Disability Infant and Maternal Mortality Rates for Black Women Medical Racism and Ableism in the Medical System Disability and Custody Birth Story Disabled Merch When you get to be the test for a surgeon’s sewing skills Disabled When Your Baby is in NICU Hospitals Need to Prepare ...
A Year in Review (2019): Invisible Not Broken, a Chronic Illness Podcast
December 31, 2019 11:19 - 56 minutes - 21.9 MBThis episode wraps up 2019! Can you believe it?! In the last year for Invisible Not Broken: Eva joined as a co-host We reached 115 interviews! Over 115k Downloads, VA, OR, CO with the most! (say hi, guys!) Launched Patreon (PLEASE SUPPORT US <3 ) Our top episodes: How to Navigate Life with Chronic Illness - Fibromyalgia Coach Tami and Eva of Wellacopia Diagnosing fibromyalgia by physical exam and the power of the guaifenesin protocol - Dr. Congdon and Eva of Wellacopia Financial Pla...
A Year in Review (2019) for Invisible Not Broken
December 31, 2019 05:48This episode wraps up 2019, can you believe it?!
Part 1 Interview With Activist and Blogger Tiara Simmons-Mercius On Ableism, Law School, Pregnancy and Disability
December 23, 2019 14:30 - 86.9 MBI breathe. I cry. I smile. I dream…just like you. Just like you I have goals that I work towards everyday. They may be centered around disability rights/justice, health, relationships, or my career. But I have them. And just like you I hit bumps in the road. Sometimes I slam full-force into the biggest obstacles around me. — Tiara Simmons-Mercius On a daily basis I confront ableism, racism, sexism, well…most of the -isms. The thing is, it’s not just the obstacle around yo...
Part 1 Interview With Activist and Blogger Tiara Simmons-Mercius On Ableism, Law School, Pregnancy and Disability,
December 23, 2019 06:30 - 47 minutes - 86.9 MBI breathe. I cry. I smile. I dream…just like you. Just like you I have goals that I work towards everyday. They may be centered around disability rights/justice, health, relationships, or my career. But I have them. And just like you I hit bumps in the road. Sometimes I slam full-force into the biggest obstacles around me. — Tiara Simmons-Mercius On a daily basis I confront ableism, racism, sexism, well…most of the -isms. The thing is, it’s not just the obstacle around you, but how you tac...
How to Put Mindfulness Theory into Practice: Dr. Bojana Weatherly
December 21, 2019 00:52 - 68.1 MBHow to build your own resilience routine and coping skills
How to Put The Science of Mindfulness Into Practice: Dr. Bojana Jankovic Weatherly
December 18, 2019 08:46 - 1 hour - 50 MB“What we practice gets stronger” – Dr. Bojana https://drbojana.com/ @drbojana ***PLEASE SUPPORT US ON PATREON <3: https://www.patreon.com/invisiblenotbroken In this episode we talk about - How to build your own resilience routine and coping skills - The power of your mind to take charge of your body - The 4 types of meditation practices and how to adapt them to your mind and body needs - Breathing techniques and more Other Talking points - Resilience buildi...
Dr. Bojana: The Science of Mindfulness & How to Put Theory Into Practice
December 18, 2019 08:46 - 1 hour - 50 MB“What we practice gets stronger” – Dr. Bojana https://drbojana.com/ @drbojana ***PLEASE SUPPORT US ON PATREON <3: https://www.patreon.com/invisiblenotbroken In this episode we talk about - How to build your own resilience routine and coping skills - The power of your mind to take charge of your body - The 4 types of meditation practices and how to adapt them to your mind and body needs - Breathing techniques and more Other Talking points - Resilience buil...
Interview With Stephanie Daly: Bone Tumors, Building Awareness, and Community : A Chronic Illness Podcast
December 09, 2019 06:01 - 1 hour - 98.8 MBSupport Invisible Not Broken With Patreon! We are a self funded podcast and we could really use your help to keep Invisible Not Broken going and hopefully expanding. https://www.patreon.com/invisiblenotbroken Website/Blog, Twitter, & Instagram Handle www.bonetumorawareness.org, Twitter: @StephDinDC, FB: www.facebook.com/bonetumorawareness, IG: @stephmdaly & @bonetumorawareness Name * Stephanie Daly Disorder Info What is your disorder? * Bone Tumor Survivor At what age did your diso...
Embracing Life and Love at Death's Door: Bernardo Puccio discusses his Career as Designer to the Stars and Battle with Liver Failure
December 01, 2019 06:00 - 56 minutes - 51.9 MB“It’s been a real ride and it’s not over yet” Bernardo Puccio is an interior designer to the stars, author, and ten year liver transplant survivor. His book, "13 Pieces of Unmatched Luggage and My Poodle", is a tale of glamour, survival, and the challenges of embracing life and love while at death’s door. In this interview, Puccio talks about his life, career, and battle with liver failure. His message is not just one of hope, but of the need to recognize that one cannot face illness and d...
Embracing Life and Love at Death's Door: Bernardo Puccio, Designer to the Stars
December 01, 2019 06:00 - 56 minutes - 51.9 MB“It’s been a real ride and it’s not over yet” Bernardo Puccio is an interior designer to the stars, author, and ten year liver transplant survivor. His book, "13 Pieces of Unmatched Luggage and My Poodle", is a tale of glamour, survival, and the challenges of embracing life and love while at death’s door. In this interview, Puccio talks about his life, career, and battle with liver failure. His message is not just one of hope, but of the need to recognize that one cannot face illness and de...
How to Embrace Life and Love at Death's Door: Hollywood Designer, Bernardo Puccio (Liver Failure)
December 01, 2019 06:00 - 56 minutes - 51.9 MB“It’s been a real ride and it’s not over yet” Bernardo Puccio is an interior designer to the stars, author, and ten year liver transplant survivor. His book, "13 Pieces of Unmatched Luggage and My Poodle", is a tale of glamour, survival, and the challenges of embracing life and love while at death’s door. In this interview, Puccio talks about his life, career, and battle with liver failure. His message is not just one of hope, but of the need to recognize that one cannot face illness and de...
Bernardo Puccio Interviewed by Eva of Wellacopia
December 01, 2019 00:50 - 51.9 MBEmbracing Life While at Death’s Door: Bernardo Puccio Discusses his Career as Designer to the Stars and his Battle with Liver Failure
Interview With Tiffany Kairos On Epilepsy, Advocacy, Faith, and TENS
November 25, 2019 22:00 - 45 minutes - 83 MBWebsite/Blog, Twitter, & Instagram Handle Website: www.tiffanykairos.com Twitter: @TiffanyKairos Instagram: @TiffanyKairos Mentions: Ten The Good Place Jameela Jami I weigh, Instagram changes Maison Kimhekim Name * Tiffany Kairos Disorder Info What is your disorder? * Epilepsy At what age did your disorder become a daily issue? * 22 Who were you before your illness became debilitating? * Tiffany Kairos What would you do if you were not dealing with your invisible illness?...
Interview With Tiffany Kairos On Epilepsy, Advocacy, Faith, and TENS: A Chronic Illness Podcast
November 25, 2019 14:30 - 83 MBWebsite/Blog, Twitter, & Instagram Handle Website: www.tiffanykairos.com Twitter: @TiffanyKairos Instagram: @TiffanyKairos Mentions: Ten The Good Place Jameela Jami I weigh, Instagram changes Maison Kimhekim Name * Tiffany Kairos Disorder Info What is your disorder? * Epilepsy At what age did your disorder become a daily issue? * 22 Who were you before your illness became debilitating? * Tiffany Kairos What would you do if you were not dealing with your invisible illnes...
Interview With Tyler Corella: Long Term Health in Micro Premies, Asthma, March of Dimes, and New Adventures: A Chronic Illness Podcast
November 18, 2019 15:00 - 34 minutes - 63.5 MBWebsite/Blog, Twitter, & Instagram Handle Instagram: @_tylershea_ Name * Tyler Corella What is your disorder? * I have multiple (5 total), but my most prevalent one would be asthma. As of today (Not including prematurity affects that are no longer frequent): -Asthma/Mass Lung Scarring Tissue/Obstructive Pulmonary Disease Types of asthma: •Adult on-set Asthma •Allergic Asthma •Asthma/COPD Overlap •Exercise Induced Bronchoconstriction •Occupational Asthma Most adults only suffer from 1 or...
Wellacopia Interview with Stephanie Tait (Part 2)
November 12, 2019 14:45 - 52.9 MBhttps://www.youtube.com/watch?v=gOVSUKYoxPs&t=146s “Wellacopia Interview with Stephanie Tait (Part 2)” Stephanie Tait is a disabled disability advocate with lyme disease. In the fourteen years it took her to get a diagnosis, she struggled with miscarriages, medical indifference and sexism, and the birth of her two sons. Her book, The View from Rock Bottom, is a tale of her struggles with chronic illness along with messages about faith, pain, suffering, joy, and hope. In this episode, part ...
Wellacopia interview with Stephanie Tait (Part 1)
November 11, 2019 21:38 - 53.8 MBWellacopia Interview with Stephanie Tait Part 1 PART 1: Diagnosed 15 years too late: Stephanie Tait and the View From Rock Bottom "Find ways to show up intentionally for your right now life, and don’t lose yourself to 'someday when.'"- Stephanie Tait Stephanie Tait is a disabled disability advocate with Lyme disease. In the fourteen years it took her to get a diagnosis, she struggled with miscarriages, medical indifference and sexism, and the birth of her two sons. Her book, ...
The Need to Humanize Healthcare: Stephanie Tait (Part 2)
November 07, 2019 05:00 - 57 minutes - 52.9 MBStephanie Tait is a disabled disability advocate with lyme disease. In the fourteen years it took her to get a diagnosis, she struggled with miscarriages, medical indifference and sexism, and the birth of her two sons. Her book, The View from Rock Bottom, is a tale of her struggles with chronic illness along with messages about faith, pain, suffering, joy, and hope. In this episode, Tait discusses her calls for change and the importance of centering the chronically ill in discussions about n...
New Interview with Chronic Illness Blogger Pamela Jessen About Chronic Pain, DISH, Diabetes, Hypothyroid, Atypical Trigeminal Neuralgia, BiPolar, and Volunteering
October 28, 2019 05:20 - 37 minutes - 51.2 MBWebsite/Blog, Twitter, & Instagram Handle pamelajessen.com, @pamjessen, pamelajessen1 Name * Pamela Jessen Gender or Pronoun For Us to Use Female Male Prefer not to say they Other: Disorder Info What is your disorder? * Chronic Pain Chronic Fatigue from Fibromyalgia Osteoarthritis Myofascial Pain a spinal condition called D.I.S.H., Diabetes Type 2 Gastroparesis Bipolar Disorder Hypothyroidism Atypical Trigeminal Neuralgia At what age did your disorder become a daily iss...
Explicitly Sick: An Interview With Podcast Host and Blogger Brandy Ferner About Chronic Illness Parenting, Podcast Life, and Mental Health
October 21, 2019 13:30 - 1 hour - 86.4 MBWebsite/Blog, Twitter, & Instagram Handle Podcast website: www.adultconversationpodcast.com, Blog: www.adultconversationparenting.com, FB: https://www.facebook.com/AdultConversationParenting, Twitter: https://twitter.com/adultconvo_ Instagram: https://www.instagram.com/adultconversation/ Name * Brandy Ferner Disorder Info What is your disorder? * Missing parts of my intestines, including my ileocecal valve, chronic kidney stones At what age did your disorder become a daily issue? ...
Diagnosed 15 years too late: Stephanie Tait and the View From Rock Bottom (Part 1)
October 16, 2019 22:28 - 57 minutes - 39.6 MBFind ways to show up intentionally for your right now life, and don’t lose yourself to “someday when.” - Stephanie Tait Website: stephanietaitwrites.com --> Her interview on The Today Show What is your illness(es)? -I had Lyme disease and other co-infections for 15 years before they got it correctly diagnosed. As a result I have permanent heart damage, permanent neurological damage (causing a variety of symptoms including an intermittent tremor, neuropathy, balance issues, aphasia, me...