Wellacopia Interview with Stephanie Tait (Part 2)
Invisible Not Broken - Chronic Illness Podcast Network
English - November 12, 2019 14:45 - 52.9 MB - ★★★★★ - 113 ratingsMental Health Health & Fitness Alternative Health chronic illness invisible illness spoonie fibromyalgia ehlers danlos chronic fatigue healthcare lupus pain care Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
https://www.youtube.com/watch?v=gOVSUKYoxPs&t=146s
“Wellacopia Interview with Stephanie Tait (Part 2)”
Stephanie Tait is a disabled disability advocate with lyme disease. In the fourteen years it took her to get a diagnosis, she struggled with miscarriages, medical indifference and sexism, and the birth of her two sons. Her book, The View from Rock Bottom, is a tale of her struggles with chronic illness along with messages about faith, pain, suffering, joy, and hope. In this episode, part 2 of our intimate interview, Tait discusses her calls for change and the importance of centering the chronically ill in discussions about necessary changes to the medical community and healthcare system. For more visit:
➡️ visit https://www.stephanietaitwrites.com/
@stephanietaitwrites
Time stamps and bulleted notes
1.22 - Gender bias and chronic illness
8:98 - Call for a system that’s more holistic in which conversations with patients and symptom history are just as important as tests
9:34 - Problems with testing for Lyme disease - characteristics of the bacteria, reasons for false negatives
13:44 - Insight into doctors’ perspectives and limitations
20.03 - Mission of Wellacopia and “Care Fair”
22.08 - Hint at the upcoming podcast and the importance of bringing back one’s identity despite chronic illness
22:57 - The case for centering chronically ill and disabled people in conversations about healthcare access, the medicare for all debate, and quality of care
39:38 - The challenges of going outside the healthcare system and the predatory nature of quackery re: chronic illness
42:22 - The importance of communication and the challenge of finding a balance between ‘raising your voice’ and tone policing
51:41 - The importance of sharing stories as a humanizing tool
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Episode supported by Wellacopia - the first matching site that helps people with chronic illnesses find their ideal, long-term, specialized practitioners (a similar approach to a dating site!).
Our mission is to help build better, trusting healthcare relationships and therefore, see better outcomes and quality of life.
👉 Find your ideal practitioners - https://www.Wellacopia.com