Latest Visualperception Podcast Episodes
Sweet Valentina | Cindy Younan | 17
Kaleidoscope: The Cortical Visual Impairment Podcast - July 25, 2020 10:00 - 57 minutes ★★★★★ - 34 ratingsCindy Younan, founder of cvijourney.com and mother to Valentina (1.5 years), describes the day during her pregnancy when she found out about her daughter’s complications. There have been highs, lows and personal sacrifices since then, which Cindy has embraced with a positive spirit. We talk abo...
Hindsight and Insight | Kira Brady | 16
Kaleidoscope: The Cortical Visual Impairment Podcast - June 06, 2020 10:00 - 56 minutes ★★★★★ - 34 ratingsKira Brady tells the journey to her son’s diagnoses, which include cerebral palsy (CP), periventricular leukomalacia (PVL) and cortical visual impairment (CVI). We marvel at how it can be so difficult to get a diagnosis even when, in hindsight, Mason is considered a “textbook” case. A few thing...
The PhD and the IEP | Barbara Lopez Avila | 15
Kaleidoscope: The Cortical Visual Impairment Podcast - April 25, 2020 10:00 - 51 minutes ★★★★★ - 34 ratingsBarbara Lopez Avila has a PhD in developmental psychology. But she says she still feels ill-prepared to help her son Logan navigate life with cortical visual impairment (CVI). How can that be? She writes in a recent blog post for the Pediatric Cortical Visual Impairment Society, “…while CVI i...
Grace Unfiltered | 14
Kaleidoscope: The Cortical Visual Impairment Podcast - February 17, 2020 10:00 - 13 minutes ★★★★★ - 34 ratingsGrace (8) is a vibrant second grader with lots to say. She describes what it’s like to live with cortical visual impairment – the things that upset her and the special characteristics she relies on day-to-day. She says, “I’m not afraid to speak up.” And so she does.
Team Archer! | Cheyanne Marcy | 13
Kaleidoscope: The Cortical Visual Impairment Podcast - December 09, 2019 10:00 - 1 hour ★★★★★ - 34 ratingsCheyanne Marcy has been an advocate on big stages, on everyday social media platforms and in day-to-day life on behalf of her son, Archer (5). She values action and advocacy – and has navigated not one, not two, but three state education systems. She writes, “… I learned I was not doing enough ...
This Mom With a Blog | Mia Carella | 12
Kaleidoscope: The Cortical Visual Impairment Podcast - July 24, 2019 09:00 - 30 minutes ★★★★★ - 34 ratingsMia Carella of thismomwithablog.com shares wisdom from the head and the heart, which comes from navigating life as a CVI mom / heart mom. (Her daughter Evalyn, 8, has cortical visual impairment and a congenital heart defect.) Mia describes the ups and downs of being a special needs parent and wh...
Word Bubble Much? | Tommy Szalapski | 11
Kaleidoscope: The Cortical Visual Impairment Podcast - April 30, 2019 19:00 - 21 minutes ★★★★★ - 34 ratingsTommy Szalapski – Google accessibility engineer and CVI dad – has created a new app for CVI literacy. The Roman Word Bubbling project automates the tedious process of adding color outlining to letters, numbers and words, based on Dr. Christine Roman’s CVI literacy research and methodology. Tommy...
Rosalie, Small but Mighty| Stephanie Kung | 10
Kaleidoscope: The Cortical Visual Impairment Podcast - March 27, 2019 15:00 - 59 minutes ★★★★★ - 34 ratingsRosalie (1.5) has hydrocephalus, a build-up of fluid in the cavities deep within the brain, which comes with the risk of vision problems. She received a cortical visual impairment (CVI) diagnosis from an ophthalmologist who provided her parents with accurate information, for instance: CVI is a ...
Emma’s Renaissance | Lynn Elko | 9
Kaleidoscope: The Cortical Visual Impairment Podcast - February 15, 2019 11:00 - 45 minutes ★★★★★ - 34 ratingsWhen Emma (16) received a cortical visual impairment diagnosis at age four, CVI literature was not widely available. The consensus was “this is just what she has, live with it,” says her mother, Lynn Elko. Her family didn’t know great gains could be made. They didn’t know how to help her learn o...
Helping River Read | Judy Endicott | 8
Kaleidoscope: The Cortical Visual Impairment Podcast - January 24, 2019 20:00 - 46 minutes ★★★★★ - 34 ratingsJudy Endicott works with her grandson River (9) on his reading skills, relying on her background as a special educator and continuing education in CVI principles and practices. How does she manage to keep up with his needs, including the countless custom materials he requires to access print? Wh...
Mini-Episode | Year of the CVI Advocate | 7
Kaleidoscope: The Cortical Visual Impairment Podcast - December 19, 2018 17:00 - 10 minutes ★★★★★ - 34 ratingsI’m reflecting on 2018. For me, this has been the Year of the CVI Advocate. My life has been transformed by my interactions with fellow CVI parent advocates – online, at conferences and through this podcast. From Start Seeing CVI Advocacy on Facebook to Boston for the CVI Symposium to Omaha fo...
When Your Daughter Has a Visual Impairment, and Your Niece Does Too | Anna Ault & Lori Kinney | 6
Kaleidoscope: The Cortical Visual Impairment Podcast - October 31, 2018 11:00 - 58 minutes ★★★★★ - 34 ratingsSisters Anna Ault and Lori Kinney are raising daughters with visual impairments. One has cortical visual impairment, the other an ocular visual impairment. We discuss their parallel but unique experiences advocating for CVI and Leber’s congenital amaurosis. They are raising their kids in the s...
Life With CVI and Perfect Pitch | Dagbjört Andrésdóttir | 5
Kaleidoscope: The Cortical Visual Impairment Podcast - September 23, 2018 10:00 - 33 minutes ★★★★★ - 34 ratingsOpera performance student Dagbjört Andrésdóttir gives us a glimpse into her life with cortical visual impairment, describing music and strong parental support as her saving grace. “I kind of knew always there was something, but I wasn’t sure if it was my vision or something else,” says Dagbjör...
What Happens When Things Go Right? | The Rastogi-Wilsons | 4
Kaleidoscope: The Cortical Visual Impairment Podcast - August 18, 2018 10:00 - 50 minutes ★★★★★ - 34 ratingsKrish (6) received an early CVI diagnosis and guidance from a teacher of the visually impaired who knew how to intervene appropriately, based on his CVI Range score. With neuroplasticity and dedicated parents on his side, he’s heading to kindergarten with improved functional vision and a CVI-ric...
Going All In: From Phase I to Phase III | Alisha Waugh | 3
Kaleidoscope: The Cortical Visual Impairment Podcast - July 18, 2018 09:00 - 41 minutes ★★★★★ - 34 ratingsWhen Alisha Waugh and her husband learned that their son Griffen (10) has a cortical visual impairment (CVI), they committed to improving his functional vision above all else – and with stellar results. Alisha puts her Perkins-Roman CVI Range Endorsement to work each and every day for Griffen....
The Early Days: A Mother's First Year on the CVI Journey | Rachel Bennett | 2
Kaleidoscope: The Cortical Visual Impairment Podcast - June 05, 2018 11:09 - 41 minutes ★★★★★ - 34 ratingsHenry (5) has a new cortical visual impairment (CVI) diagnosis. His mom, Rachel, now understands why he is so frustrated. He can't interpret what he sees. Relying on the 10 characteristics of CVI, they infuse vision into everything they do. His vision has improved, and his whole being has too. ...
Testing. Are CVI Parents Out There? | The Marquardts | 1
Kaleidoscope: The Cortical Visual Impairment Podcast - May 17, 2018 17:30 - 42 minutes ★★★★★ - 34 ratingsGrace (6) reads sight words, enjoys hearing chapter books and shows an affinity for math. Yet she can’t interpret illustrations in a children’s book or recognize the faces of her mother and father. Her parents on the struggles and joys of raising a child with cortical visual impairment. In this...
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