This Mom With a Blog | Mia Carella | 12
Kaleidoscope: The Cortical Visual Impairment Podcast
English - July 24, 2019 09:00 - 30 minutes - 27.8 MB - ★★★★★ - 34 ratingsParenting Kids & Family Education neuroplasticity brain cerebralvisualimpairment corticalblindness corticalvisualimpairment cvi vision visualperception Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
Mia Carella of thismomwithablog.com shares wisdom from the head and the heart, which comes from navigating life as a CVI mom / heart mom. (Her daughter Evalyn, 8, has cortical visual impairment and a congenital heart defect.) Mia describes the ups and downs of being a special needs parent and why we should let go of the Super Mom ideal.
In this episode:
2:05 – Dance programs for kids with special needs
4:45 – Moving from feeling helpless to feeling more empowered as a mom
9:20 – Explaining rare genetic disorders and little-known conditions, like CVI, to doctors #CVIsplaining
11:30 – What CVI means for Evalyn (late Phase II CVI) in her day-to-day life
13:20 – Advocating for CVI needs in an IEP meeting
18:30 – Participating in The Miracle League and making baseball adaptations
23:50 – What our kids teach us about resilience, positive outlooks and perspective
26:19 – How her blog has changed her life
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