I'm Dying to Tell You
122 episodes - English - Latest episode: 5 days ago -Hi, I’m Lorri. I’m dying from ALS, a fatal disease with no cure. I’ve been encouraged by so much to keep LIVING this life and stay focused on the positive. I created this podcast to find & share stories of inspiration in hopes of inspiring you. I'm offering an opportunity for you to continue the conversation after each episode. To join my Podcast Community Group on my Facebook page. There you can interact with guests, ask guestions, give suggestions about episode topics or simply encourage others. To connect more. I'm happy you're here!
Homepage Google Podcasts Overcast Castro Pocket Casts RSS feed
Episodes
Goode and Faithful Servant: A Chat with Kerry Goode
July 09, 2024 23:00 - 31 minutes - 21.6 MBSo grateful to have this conversation with Kerry Goode, former NFL (National Football League) player who was diagnosed with ALS in 2015. Kerry was a running back at the University of Alabama, Tampa Bay Buccaneers, Miami Dolphins and later a strength and conditioning coach also in the NFL. So he knew something was wrong when he couldn’t pick up a box. Here, Kerry shares what he's feeling about having been so physically strong, being able to bench press 400 pounds & squat 800 pounds to now n...
Could it be ALS? - Bob Scannell on ALS Misdiagnosis
June 11, 2024 04:00 - 43 minutes - 29.6 MBIn this episode, I sit down with ALS advocate Bob Scannell, whose personal journey through his wife's battle with ALS has fueled his mission to raise awareness about the disease. After enduring a series of misdiagnoses before finally receiving an ALS diagnosis, Bob is now at the forefront of a campaign to educate both the healthcare industry and the public on the critical importance of early and accurate ALS diagnosis. Join us as Bob shares his powerful story and discusses the urgent need fo...
“Staying Loudly” - Sam’s Positive Mindset with ALS
May 07, 2024 15:00 - 55 minutes - 38.3 MBIn this compelling podcast episode, I delve into an inspiring conversation with Sam Telgkamp, a resilient 27-year-old battling ALS. Despite her inability to speak due to the progressive nature of the disease, we explore her journey and outlook on life with grace and gratitude at the forefront. Sam's unwavering positivity and resilience shine through as she discusses the challenges of living with a terminal illness, navigating her speech device solely with her eyes. Her perspective offers a p...
37-year-old Sara Bennett: Life, Death & Parenting with ALS
April 17, 2024 01:00 - 53 minutes - 36.9 MBIn this episode of ""I'm Dying To Tell You,"" I meet up with the resilient Sara Bennett, from Columbus, Ohio. At just 36 years old, Sara was confronted with a devastating diagnosis: ALS. In a candid and deeply moving conversation, Sara opens up about her extraordinary journey, bravely navigating the intricate balance of life as a mother to two young sons, aged 5 and 7, while grappling with the harsh reality of a terminal illness. With unwavering courage, Sara shares her poignant insights,...
LOVE & SUPPORT from ALS Family of Faith
March 13, 2024 00:00 - 53 minutes - 36.6 MBIn the first episode of Season 5, I delve into the inspiring outreach of ALS Family of Faith with guests Dawn Delaloye and Tanya Hageman. Listen in as they illuminate the profound impact of their nonprofit organization, dedicated to providing free emotional and spiritual support to individuals and families living with ALS. From patients battling the disease to their devoted caregivers and even friends and family, ALS Family of Faith extends a compassionate hand to all affected by this devast...
20 Years Living with ALS: A Special Q&A with My Sons Co-Hosting
February 13, 2024 17:00 - 1 hour - 49.3 MBWhen I was initially diagnosed with ALS, I was given the typical prognosis of 2-5 years to live. That was 20 years ago. Today, alongside my two sons, Paul and Christian, we reflect on this journey, answer listener questions, and explore the lessons learned along the way. I answer your questions about life with ALS, my thoughts on the future and advice to others finding themselves in the face of adversity. Then, I find out what questions my sons have for me after 20 years with ALS. Althou...
Rebuilding Together After ALS Loss: Juliet Taylor & Tim Abeska
January 09, 2024 16:00 - 45 minutes - 31.3 MBIn this episode I chat with Juliet Taylor & Tim Abeska who each lost spouse to ALS. They met in a virtual support group for widow & widowers. Realizing they lived in the same area and had common interests, they met for coffee and their relationship grew from there. Today they encourage each other to love & honor their late spouse, enjoy life and be active ALS advocates to help end ALS. Here, Juliet & Tim share about their late spouses, Jeff Sarnacki & Mary Ann Abeska. We talk about how...
Community Building Amidst ALS: Karen (thekaregiver) & Tony Vick
December 12, 2023 18:00 - 52 minutes - 36.4 MBHere you’ll meet Tony and Karen Vick. Tony, a brave U.S. Veteran, has been living with ALS for the past 6 years. Karen, his dedicated wife, serves as his full-time caregiver, showcasing the strength of their bond. Despite facing the challenges of ALS, Tony and Karen lead a fulfilling life and share their journey on Karen's Instagram account, https://www.instagram.com/thekaregiver/. After realizing how many young caregivers are out there, they decided to share more on the day-to-day reali...
How to Find Gratitude During Hard Times
November 28, 2023 06:00 - 42 minutes - 29.1 MBIn this episode, I talk about having gratitude even during hard times. I recorded this on Thanksgiving Day. Thanksgiving encourages us to pause and express gratitude for the positive aspects of our lives. For me, It always fosters a sense of gratitude, reflection, and appreciation for the blessings and relationships in my life. This morning I woke up being extra grateful for all I have, for the relationships that I am a part of and for the extra time that I have been given. Here, I hope...
Amanda Stevens: Wife, Mom, Caregiver & Founder of AxeALS
November 13, 2023 21:00 - 49 minutes - 34.3 MBHere I chat with Amanda Stevens, wife & caregiver to Eric Stevens – former NFL player & L.A. Firefighter, both introduced to us on The Ellen DeGeneres Show in 2019. Amanda and Eric were married only one month when Eric was diagnosed with ALS at a young 29 years old. We fell in love with this young couple as they appeared on the Ellen show three times and even were on to announce that they were expecting a baby. In the past 4 years since receiving Eric's ALS diagnosis, Amanda has dedicate...
Teen Actor Lance Alexander: "From Junk to Hunk"
October 24, 2023 16:00 - 45 minutes - 31.4 MBIn this episode I talk to Lance Alexander, a teen Hollywood actor from my hometown in Ohio. You might know Lance from his role as Elvis, a recurring role on the award-winning Netflix show “Family Reunion.” Like many, during the Pandemic of 2020, he was isolated and fighting depression and decided to fight back. Lance had a public struggle of being overweight and bullied most of his childhood. I love that he is inspired to share his journey. Here Lance shares his motivation for creating...
Radio Legend Jim Scott: Living Positively with ALS
October 12, 2023 02:00 - 44 minutes - 30.8 MBHere my husband Paul & I talk to long-time radio personality Jim Scott from Cincinnati. He has been heard all over the country during his 55+ years on the air, mostly on 700 WLW Radio. He simply is one of the most giving & positive people I know. Although most of his life has been spent using his voice in his radio career, he is now battling a disease that is affecting his voice and more. Jim was diagnosed with ALS, in 2022. Even while living with a fatal disease with no cure, Jim conti...
Military Veteran Kate Peters Battling the Enemy: ALS
September 26, 2023 16:00 - 44 minutes - 30.5 MBHere I chat with military veteran of both the U.S. Marine Corps and the U.S. Navy, Kate Peters. She served in the USMC 2007-2015, USN 2015-2020 and served in Operation Iraqi Freedom. Kate is a mother of two boys, three and five and was medically retired from the military after being diagnosed with ALS, a fatal disease that has no cure. She was diagnosed with ALS in 2020 a few weeks after her second son was born, after about 2 and 1/2 years of symptoms and a misdiagnosis. I talk to Ka...
"Hope Fights Back" - Andrea Peet & Meredith Atwood
August 22, 2023 04:00 - 48 minutes - 33.2 MBHere I chat with a young woman living with ALS, who defies all odds by finishing fifty marathons and, in turn, inspires people to “go on, be brave.” I'm absolutely thrilled to catch up with Andrea Lytle Peet again and meet Meredith Atwood in this chat. Andrea and Meredith coauthor Andrea's new memoir titled, "Hope Fights Back." Andrea was thirty-three years old—newly married and a triathlete—when she received the death sentence of an ALS diagnosis (also known as Lou Gehrig's disease). Afte...
"Ask Me Anything" - Host Q & A on Life, Outlook & My Terminal Illness
August 10, 2023 05:00 - 39 minutes - 26.9 MBThis episode is just me answering YOUR questions. I had a lot of requests for this format again, so I asked listeners to send in questions about anything and I answered them here. I'm so grateful for all the questions that came in, about life, perspective, my ALS longevity, family and advice. I love that my listeners feel comfortable asking me anything. This was a super special experience. I hope you enjoy and share with a friend. Connect: https://www.instagram.com/imdyingtotellyoupodca...
Tackling Tough Conversations About ALS (Part 2/2)
July 25, 2023 19:00 - 42 minutes - 29 MBHere I continue my talk with Amy, Jim and Matt who are living with ALS about having the toughest conversations of their lives. When you’re living with a terminal illness that doesn’t have a cure and typically gives you just a few years to live, like ALS, the most difficult conversations come up quick. In this Part 2 episode, I continue chatting with Amy Stiens, Jim Plews-Ogan and Matt Klingenberg. I am grateful for their willingness to chat about how they were told they had a terminal il...
Tackling Tough Conversations About ALS (Part 1/2)
July 12, 2023 01:00 - 50 minutes - 34.8 MBWhen you’re living with a terminal illness that doesn’t have a cure and typically gives you just a few years to live, like ALS, the most difficult conversations come up quick. In this episode, I bring together 3 others who are living with ALS to talk about their experiences with these tough conversations. Here, I’m talking to Amy Stiens, Jim Plews-Ogan and Matt Klingenberg. I am grateful for their willingness to chat about how they were told they had a terminal illness with no cure, how th...
Power of Positivity with Child Abuse Survivor, Courtney Cirabisi
June 26, 2023 20:00 - 44 minutes - 30.6 MBIn this episode you'll hear my chat with Courtney Cirabisi, a 30 year old who lives in Bakersfield, California. She became reliant on a wheelchair for everyday mobility after she was child abused by her dad when she was 9 months old, resulting with a spinal cord injury. I've been following her journey as she shows us that life doesn’t stop after you have been abused and have lost the ability to walk. Courtney shares how she believes the mind is the most important thing a person can have. ...
Q&A: Young Adults Living with ALS (Part 2/2)
May 17, 2023 22:00 - 46 minutes - 31.9 MBMay is ALS Awareness month. So in the spirit of increasing awareness of ALS, a terminal illness with no cure, I continue my chat with 3 others living with ALS. We answer the questions sent in by listeners of this podcast about what it's like being a young adult and living with a terminal illness. My guests, Ashley Rivera and Mira Hudson were diagnosed at 24 and James Smith was diagnosed at 36. They dig deep and open their hearts to answer your questions like, "Can you share about the mom...
Q&A: Young Adults Living with ALS (Part1/2)
May 09, 2023 15:00 - 56 minutes - 38.5 MBIn this special Q&A episode, 3 young adults answer questions you sent in about ALS and living with a terminal illness. May is ALS Awareness month. So in the spirit of increasing awareness of ALS, a terminal illness with no cure, I chatted with 3 others living with ALS. We answer the questions sent in by listeners of this podcast about what it's like being a young adult and living with a terminal illness. My guests, Ashley Rivera and Mira Hudson were diagnosed at 24 and James Smith was di...
"The Wisdom of Morrie" with His Son Rob Schwartz
April 24, 2023 02:00 - 42 minutes - 29.5 MBOn this episode of I'm Dying To Tell You Podcast, I talk to Rob Schwartz son of Morrie Schwartz from the classic book Tuesdays with Morrie. We chat about the newly released book, “The Wisdom of Morrie.” The book was written by Morrie Schwartz, recently edited and released by Rob. The number one bestseller Tuesdays with Morrie was written from conversations with author Mitch Albom after Morrie was sick and knew he was in the process of dying from ALS. However, this newly released book,...
Zac Brown Band's John Driskell Hopkins & His Battle with ALS
April 11, 2023 16:00 - 1 hour - 42.7 MBHere I sit down with Zac Brown Band founding member, John Driskell Hopkins who is using his stage to help bring awareness to ALS, also known as Lou Gehrig’s Disease. John was diagnosed with ALS, a terminal illness with no cure in 2021. John, also known as Hop, decided to go public with his ALS hoping his reach could result in awareness, action and ultimately support for an ALS cure. He and his wife, Jennifer formed the Hop On A Cure organization which supports promising ALS research. In...
Fighting ALS with Humor: Brooke Eby
March 28, 2023 16:00 - 52 minutes - 35.8 MBHere I talk to 34 year old TikToker, Brooke Eby who is using humor and social media to navigate life after being diagnosed with a fatal disease. Brooke was diagnosed with the terminal illness, ALS, at a young 33. With the support of her family, friends, and co-workers, Brooke's been able to laugh in the face of ALS by using humor on social media.. Brooke created a TikTok account @LimpBroozkit to help explain what she was going through without making it a heavy conversation. Not only is...
John Carthum: Outliving ALS By 27 Years
March 09, 2023 06:00 - 41 minutes - 28.7 MBHere I talk to someone who has ALS for over 25 years. I reconnect with a former colleague from Kraft Nabisco, John Carthum. It was a few decades ago when I heard John left the company for medical reasons. I never knew what hand he was dealt that made him have to leave his career at such a young age until I was diagnosed with ALS in 2004. That’s when I learned that it was also ALS that John was diagnosed with in 1995. Now he is outliving the typical 2 to 5 year death sentence that come...
"Sometimes I Shake" - An Inspirational Tale on Living Fully
March 01, 2023 03:00 - 52 minutes - 35.8 MBHere I chat with award-winning director/producer, Jared Callahan. He shares the inspiration behind the film, SOMETIMES I SHAKE. The documentary film follows PLNU music professor and jazz conductor Dan Nelson as he navigates his life and profession around an ever-increasing shake caused by his Parkinson's disease. Then suddenly, Dan is devastated by the additional, and terminal, diagnosis of ALS. The film is an inspirational tale full of vigor, humor, and raw honesty, that follows Dan’s wi...
4 Easy Ways To Spread More Love
February 10, 2023 00:00 - 23 minutes - 16.4 MBIn this episode, it's just ME talking about LOVE :) Here I mix it up a little and talk about what's on my heart. This releases on Valentines Day, so talking about LOVE ... specifically 4 Easy Ways To Spread More Love. I talk about the first few things that came to mind, Listen, Words, Time and Action. I thought to myself, these seem so simple but realized I always need reminders, so why not share? We all have the power to show others they are loved and not alone. There are no limits on l...
Brian Wallach & Sandra Abrevaya: Action Born from Hope
January 25, 2023 04:00 - 52 minutes - 36 MBHere I chat with Brian Wallach and his wife Sandra Abrevaya, co-founders of I AM ALS and Synapticure. At 37, Brian was diagnosed with ALS—on the same day he and he and Sandra brought their second daughter home from the hospital. In an instant, everything changed. They went from being a couple only a few years removed from both working at the White House to not knowing if Brian would live to see his 40th birthday. An otherwise healthy former college athlete, Brian expected to find a syst...
Kylan Morris and Carrying on Her Mama's Legacy
January 11, 2023 03:00 - 44 minutes - 30.3 MBHere I talk to Kylan Morris, 25, who recently lost her mother to ALS about how she's already following her mama's marching orders to help those battling ALS. "Please take my baton & run faster & farther." That was Sandy Morris's last twitter message to her fellow advocates fighting for ALS cures with her. Sandy Morris passed away on August 28, 2022 at age 56 from ALS. I chat with Kylan as she shares what it was like losing her mom at such a young age. Just a few months after losing her ...
INSPIRED REPLAY: "Words to Live By - a Chat with Jamie and Scott Smith"
December 21, 2022 20:00 - 49 minutes - 34.2 MBI knew I wanted to do an episode about HOPE, heading into the new year. On December 8th we lost our friend Scott Smith and quickly I knew his words were all I needed to share. This episode is an inspired replay. In memory of our dear friend Scott Smith, I added a new intro, a message from Jamie and then share my original chat with Scott and Jamie Smith. Originally released in 2021, as they were fighting Scott's ALS, Scott and Jamie shared their hearts to encourage others. Silver Lin...
Michael Platt: Teen Baker Fights Hunger with "Sweets for a Cause"
December 12, 2022 23:00 - 30 minutes - 21.2 MBSo happy to talk to 17 year old Michael C. Platt, a teen baker, social entrepreneur, food-justice advocate and author. He inspires me with his giving spirit and passion to help others. Michael recently released his first cookbook to bring awareness to food and poverty. His book, Michaels Desserts, Sweets for a Cause aims to build skills in the kitchen, celebrate history, and inspire activism. We also chat about his baking company, Michael's Desserts, his one-for-one model, his non-profi...
Michael Platt: Teen Baker Fights Hunger with "Sweets for a Cause"
December 12, 2022 23:00 - 30 minutes - 21.2 MBSo happy to talk to 17 year old Michael C. Platt, a teen baker, social entrepreneur, food-justice advocate and author. He inspires me with his giving spirit and passion to help others. Michael recently released his first cookbook to bring awareness to food and poverty. His book, Michaels Desserts, Sweets for a Cause aims to build skills in the kitchen, celebrate history, and inspire activism. We also chat about his baking company, Michael's Desserts, his one-for-one model, his non-profi...
Luka & the Lights: Introducing the First Robot with ALS
November 21, 2022 19:00 - 46 minutes - 31.6 MBIn this episode I chat with those who created Luka, the first robot to have ALS and hear the inspiration behind it all. I chat with the team that is bringing the first robot with ALS to the big screen. The film, Luka & the Lights, is inspired by the real-life of Sascha Groen and her husband Anjo Snijders who is battling ALS. Sascha created the robot character Luka and wrote and illustrated his story to help explain to their children what’s happening with their dad who was diagnosed wit...
How Cancer Changed Their Lives for the Better: Michael & Ashlee Cramer
November 08, 2022 01:00 - 42 minutes - 29.5 MBIn this episode, hear 21 year old Michael Cramer who was given just eight months to live share his journey on beating a rare and aggressive blood cancer. At age 19, Michael had been an athletic, healthy teenager. He was a surfer and sailor, rarely sick and had never been hospitalized. A routine blood test led to a life-changing cancer diagnosis. After Michael was diagnosed with Hepatosplenic T-cell Lymphoma (HSTCL) Michael and his mom Ashlee Cramer were terrified. They knew Michael mig...
Behind the Lab Door: ALS TDI's Passion & Hope to End ALS
October 25, 2022 20:00 - 1 hour - 47.6 MBHere I am on location in Boston to bring you a behind the scenes look and my weekend experience with the ALS Therapy Development Institute (ALS TDI) the world's foremost ALS drug discovery lab focused solely on ALS. I was so grateful to tour the lab and attend the ALS TDI Summit which was a day of updates on the progress of ALS Research. I wrapped up the weekend by attending their White Coat Affair gala which is a powerful evening that brings together and honors those living with ALS and ...
Behind the Lab Door: ALS TDI's Passion & Hope to End ALS
October 25, 2022 20:00 - 1 hour - 47.6 MBHere I am on location in Boston to bring you a behind the scenes look and my weekend experience with the ALS Therapy Development Institute (ALS TDI) the world's foremost ALS drug discovery lab focused solely on ALS. I was so grateful to tour the lab and attend the ALS TDI Summit which was a day of updates on the progress of ALS Research. I wrapped up the weekend by attending their White Coat Affair gala which is a powerful evening that brings together and honors those living with ALS and ...
20-year-old Emma & her 20-year ALS Warrior & Grandfather, "Grandy"
October 11, 2022 19:00 - 44 minutes - 30.4 MBIn this episode, I talk to Emma Terry who is a an ALS caregiver and a participant in the Miss America organization with her platform being ALS. I catch up with this college student at the University of Alabama at Birmingham who is an ALS advocate, caregiver and granddaughter of ALS warrior, Stewart Simpson. Emma recently turned 20 and her grandfather "Grandy" was diagnosed with ALS right before she was born. Emma has a special relationship with her Grandy as all she's known is a lifeti...
Lori Larson Heller: Moving Forward Instead of Moving On
September 27, 2022 03:00 - 52 minutes - 36.2 MBHear my conversation with Lori Larson Heller as we talk about love, loss and moving forward instead of moving on. Lori is a writer, speaker, fierce ALS advocate, and a widow. She was in a season where life was going better than she could of planned. Lori had a husband who was her best friend and soul mate, the absolute love of her life. Then without warning, her plan changed. On September 6, 2018 … her husband Jim Heller was diagnosed with a terminal illness, ALS. She left her succ...
Katrina Byrd on Love, Caregiving and Forgiveness
September 14, 2022 03:00 - 43 minutes - 29.9 MBHere I chat with ALS advocate and boa flouncer Katrina Byrd about her experience as a caregiver and what led her to write, "The Language of Forgiveness." Katrina is a writer, playwright and ALS advocate, of Jackson, Mississippi. She's an inspiration to many as she is a perfect example of courage, love, acceptance and forgiveness. Katrina is legally blind and is no stranger to life obstacles of her own. Yet, she cared for her partner, Dora Robertson who died from ALS just 76 days after be...
INSPIRED REPLAY: "Tuesdays with Morrie" Author, Mitch Albom
August 25, 2022 03:00 - 51 minutes - 35.3 MBThis month is the 25th anniversary of the American classic book, "Tuesdays with Morrie." Here I'm resharing my precious conversation with the author Mitch Albom. We talk about love, faith, living and dying and the life lessons from his professor, Morrie Schwartz. In this episode Mitch Albom shares the backstory of how he met his former professor Morrie Schwartz and how their relationship developed. Mitch shared Morrie's life lessons in the best-selling memoir of all time, Tuesdays with ...
INSPIRED REPLAY: "Tuesdays with Morrie" Author, Mitch Albom
August 25, 2022 03:00 - 51 minutes - 35.3 MBThis month is the 25th anniversary of the American classic book, "Tuesdays with Morrie." Here I'm resharing my precious conversation with the author Mitch Albom. We talk about love, faith, living and dying and the life lessons from his professor, Morrie Schwartz. In this episode Mitch Albom shares the backstory of how he met his former professor Morrie Schwartz and how their relationship developed. Mitch shared Morrie's life lessons in the best-selling memoir of all time, Tuesdays with ...
Cycle of Lives with David Richman
August 09, 2022 18:00 - 52 minutes - 35.8 MBListen in to my conversation with David Richman who rode his bike 5,000 miles to explore the emotional journey of cancer. After losing his sister to brain cancer, David was led to do something incredible that can inspire us all. In this chat we talk about his intense and unique fundraiser in his sister's memory which was writing a book, Cycle of Lives. This book is the result of 15 people’s stories, 5,000 miles and a journey through the emotional chaos of cancer. David shares what motiva...
Sarah Nauser Fights ALS to Serve and Protect Others
July 27, 2022 19:00 - 44 minutes - 30.6 MBListen in to my conversation with former Kansas City police officer, Sarah Nauser as we chat about life and love while living with a terminal illness. For eight years, Sarah earned high praise as a young, vibrant, rising star within the Kansas City Police Department. She was living her dream until she was told she had ALS at the young age of 29. Sarah, also a former body builder continues to be strong and determined. In our conversation, we talked about life before ALS, her dream of...
"No You Won't Bully Me" - DJ Annie Red, Teen Activist
July 12, 2022 04:00 - 37 minutes - 25.6 MBHere I chat with 13 year old Samirah Horton, aka DJ Annie Red who uses her music to spread an anti-bullying message. This award winning DJ is also a rapper, author, motivational speaker and anti-bullying activist from Brooklyn, New York. From the age of 6, Samirah was picked on by her peers for the things that made her different—her raspier voice, her unique sense of style, and her unwavering confidence in herself. The way she decided to fight back was to use her love of music and m...
"No You Won't Bully Me" - DJ Annie Red, Teen Activist
July 12, 2022 04:00 - 37 minutes - 25.6 MBHere I chat with 13 year old Samirah Horton, aka DJ Annie Red who uses her music to spread an anti-bullying message. This award winning DJ is also a rapper, author, motivational speaker and anti-bullying activist from Brooklyn, New York. From the age of 6, Samirah was picked on by her peers for the things that made her different—her raspier voice, her unique sense of style, and her unwavering confidence in herself. The way she decided to fight back was to use her love of music and m...
The Lloyd Brothers: Racing for ALS
June 28, 2022 03:00 - 42 minutes - 29.5 MBHere I catch up with David & Scott Lloyd, the brothers who created Racing for ALS. Growing up, David and Scott loved racing and always talked about racing cars together. As life happened, that desire got put to the side, yet they kept putting off their dreams of auto racing. That all changed in 2017, when David was diagnosed with ALS. They realized quickly that their dream of someday buying cars and going racing for fun needed to happen now. As they did that to simply have fun togethe...
The Lloyd Brothers: Racing for ALS
June 28, 2022 03:00 - 42 minutes - 29.5 MBHere I catch up with David & Scott Lloyd, the brothers who created Racing for ALS. Growing up, David and Scott loved racing and always talked about racing cars together. As life happened, that desire got put to the side, yet they kept putting off their dreams of auto racing. That all changed in 2017, when David was diagnosed with ALS. They realized quickly that their dream of someday buying cars and going racing for fun needed to happen now. As they did that to simply have fun togethe...
Giving Back His Father's Independence by Creating LifeDrive
June 13, 2022 04:00 - 44 minutes - 30.6 MBIn this episode, I chat with college student John Sexton, CEO and Founder of LifeDrive. What started as an idea to help his dad who has ALS, John now creates adaptive technology for people with disabilities in order to give them more independence. John is an upcoming senior at the University of Notre Dame and next drum major for the Notre Dame Band. All while being a full-time student and band member, John has been fighting for his father's independence. John's father, Shawn is battlin...
What You Want to Know, But Were Afraid to Ask (Part 2/2)
May 12, 2022 00:00 - 55 minutes - 38.3 MBIn honor of ALS Awareness Month, I asked the listeners, "What do you want to know about ALS & living with a terminal illness, but you're afraid to ask? " More questions than I could imagine came in, so I asked a few friends living with ALS to help answer these tough questions. So in this episode, I chat with Sunny Brous, Kate Nycz, Maceo Carter and Kevin Rowland as we go through each question submitted by listeners of this podcast. Between us, our ALS diagnosis ages vary from 27- 47 an...
What You Want to Know, But Were Afraid to Ask (Part 1/2)
May 10, 2022 17:00 - 53 minutes - 36.6 MBIn honor of ALS Awareness Month, I asked the listeners, "What do you want to know about ALS & living with a terminal illness, but you're afraid to ask? " More questions than I could imagine came in, so I asked a few friends living with ALS to help answer these tough questions. So in this episode, I chat with Sunny Brous, Kate Nycz, Maceo Carter and Kevin Rowland as we go through each question submitted by listeners of this podcast. Between us, our ALS diagnosis ages vary from 27- 47 an...
The Miracle League with Kim Nuxhall: Giving Everyone a Chance to Play
April 24, 2022 22:00 - 38 minutes - 26.3 MBIn this episode, I talk to Kim Nuxhall who created the Joe Nuxhall Miracle League so that everyone with any challenge can play the game of baseball. Kim is the Chairman of the Board of Directors for the Joe Nuxhall Miracle League. He joins the podcast to tell the powerful story and mission behind his father's legacy projects. Kim's dad, Joe Nuxhall, was the youngest player to ever pitch in the MLB at the ripe age of 15. After his professional baseball career, Joe joined Marty Brennaman ...