I'm Dying to Tell You
122 episodes - English - Latest episode: 5 days ago -Hi, I’m Lorri. I’m dying from ALS, a fatal disease with no cure. I’ve been encouraged by so much to keep LIVING this life and stay focused on the positive. I created this podcast to find & share stories of inspiration in hopes of inspiring you. I'm offering an opportunity for you to continue the conversation after each episode. To join my Podcast Community Group on my Facebook page. There you can interact with guests, ask guestions, give suggestions about episode topics or simply encourage others. To connect more. I'm happy you're here!
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Episodes
The Miracle League with Kim Nuxhall: Giving Everyone a Chance to Play
April 24, 2022 22:00 - 38 minutes - 26.3 MBIn this episode, I talk to Kim Nuxhall who created the Joe Nuxhall Miracle League so that everyone with any challenge can play the game of baseball. Kim is the Chairman of the Board of Directors for the Joe Nuxhall Miracle League. He joins the podcast to tell the powerful story and mission behind his father's legacy projects. Kim's dad, Joe Nuxhall, was the youngest player to ever pitch in the MLB at the ripe age of 15. After his professional baseball career, Joe joined Marty Brennaman ...
Finding Love After Loss with Alison Burell & David Stanley
April 12, 2022 00:00 - 43 minutes - 30.2 MBHere I chat with Alison Burell and David Stanley, who each lost the love of their life way too early. Alison's husband Cory Burell, passed away from ALS at the age of 35 after a valiant fight with familial ALS. David's wife Angela Stanley, died from ALS at a young 50 years old. Through the ALS community, Alison and David met after they each lost their person. Without even searching for love, their friendship grew and love found them. Now they are building a new life together and sh...
Finding Love After Loss with Alison Burell & David Stanley
April 12, 2022 00:00 - 43 minutes - 30.2 MBHere I chat with Alison Burell and David Stanley, who each lost the love of their life way too early. Alison's husband Cory Burell, passed away from ALS at the age of 35 after a valiant fight with familial ALS. David's wife Angela Stanley, died from ALS at a young 50 years old. Through the ALS community, Alison and David met after they each lost their person. Without even searching for love, their friendship grew and love found them. Now they are building a new life together and sh...
Mother & Daughter Cancer Warriors Bring Hope
March 23, 2022 00:00 - 26 minutes - 18.5 MBIn this episode, I talk to Tracy Croxen and her daughter, Jocelyn who are surviving cancer and helping others navigate their journeys. In September 2017, Tracy was diagnosed with ovarian cancer. Almost exactly to the day two years later, in 2019, her 7-year-old daughter Jocelyn was diagnosed with a rare form of cancer called T-Cell Acute Lymphoblastic Leukemia. Tracy said, “I really think I went through my cancer journey to prepare me for hers.” Now, they are sharing their journey throug...
Mother & Daughter Cancer Warriors Bring Hope
March 23, 2022 00:00 - 26 minutes - 18.5 MBIn this episode, I talk to Tracy Croxen and her daughter, Jocelyn who are surviving cancer and helping others navigate their journeys. In September 2017, Tracy was diagnosed with ovarian cancer. Almost exactly to the day two years later, in 2019, her 7-year-old daughter Jocelyn was diagnosed with a rare form of cancer called T-Cell Acute Lymphoblastic Leukemia. Tracy said, “I really think I went through my cancer journey to prepare me for hers.” Now, they are sharing their journey throug...
Hope Loves Company - Supporting Children in ALS Families
March 11, 2022 16:00 - 40 minutes - 27.6 MBIn this episode, I chat with three amazing women who are all involved with Hope Loves Company, a non-profit that provides support to children who have had or have a loved one battling ALS. Hope Loves Company is the result of raising three children who had to learn about ALS (or Lou Gehrig's Disease) as young children. Hope Loves Company's (HLC) founder, Jodi O'Donnell-Ames, lost her husband, Kevin, to ALS in 2001. Their daughter, Alina, was almost three when Kevin was diagnosed. Years...
Host "Ask Me Anything" - Answering Your Questions
February 22, 2022 23:00 - 28 minutes - 19.3 MBTo wrap up Season 2, I asked my listeners for questions and here I answer each of them in this "Host Ask Me Anything" episode. This was created by YOU, the listener with questions from light to serious. So many listeners asked what they were curious about. I'm so grateful for all the questions that came in, some that really made me reflect and others that made me laugh. I love that my listeners feel comfortable asking me anything. Thanks for being on this journey with me and always lett...
Couplehood in Tough Times: Maria Aleandra and Julian Rodriguez
February 03, 2022 03:00 - 50 minutes - 34.9 MBHere I talk to Maria Aleandra and Julian Rodriguez about how they're navigating all the different shifts of life including ALS. Maria Aleandra and Julian are a young married couple navigating life through entrepreneurship, ALS, parenthood, and all the ups and downs of life together. Julian, 37, has a terminal disease, ALS, so together they have faced difficult and intensely painful experiences. Through the darkest days, they have developed a closer bond than ever. They've made it a point...
Celebrating Purpose, Progress & Community: I AM ALS turns 3
January 25, 2022 03:00 - 42 minutes - 29.4 MBListen in and hear how thousands of people have come together to better the lives of those living with ALS. In this episode, I celebrate I AM ALS turning 3. Here I chat with Mandi Bailey, Tony Rosello & Sandy Morris and hear how their involvement with the ALS patient-led group I AM ALS has showed them the power of a unified community. Each of them are driven by their heart to end ALS and celebrate the progress over the past 3 years. Listen in to their personal testimonies of why they con...
Andrea Peet, 50 Marathons in 50 States with ALS
January 11, 2022 05:00 - 43 minutes - 29.7 MBHere I chat with Andrea Peet and her husband, Dave Peet. Andrea's been on a journey to become the first person with ALS to complete 50 marathons in 50 states. Andrea was diagnosed with ALS at 33 years old. Now at 40, she is super close to accomplishing her goal of completing 50 marathons in 50 states all while living with ALS, a fatal disease with no cure. Andrea and Dave created Team Drea to raise awareness and funds to help cure ALS. With only 3 races to go, the countdown begins with ...
Andrea Peet, 50 Marathons in 50 States with ALS
January 11, 2022 05:00 - 43 minutes - 29.7 MBHere I chat with Andrea Peet and her husband, Dave Peet. Andrea's been on a journey to become the first person with ALS to complete 50 marathons in 50 states. Andrea was diagnosed with ALS at 33 years old. Now at 40, she is super close to accomplishing her goal of completing 50 marathons in 50 states all while living with ALS, a fatal disease with no cure. Andrea and Dave created Team Drea to raise awareness and funds to help cure ALS. With only 3 races to go, the countdown begins with ...
Exemplifying Love, Hope, Faith & Joy through Adversity
December 21, 2021 17:00 - 22 minutes - 15.5 MBHere I reintroduce you to four 2021 guests and highlight how they are able to see love, hope, faith and joy in their darkest days. I randomly selected these past guests and together their stories show us how it really is possible to focus on the good stuff when life seems impossible. In this episode, you'll hear clips from Kanya Sesser, Leah Stavenhagen, Bernadette Okeke and Emma Benoit. Kanya was born without legs and was left on the side of the road in Thailand as a baby. However nothi...
Inspiration behind “HumanKind” with Brad Aronson
December 14, 2021 05:00 - 39 minutes - 27 MBHere I chat with Brad Aronson who shares incredible true stories about how one small deed can make a world of difference. Listen in to how his National Bestseller, HumanKind came to be. Brad Aronson is a husband, dad, entrepreneur, mentor and volunteer. After Brad's wife, Mia, was diagnosed with leukemia Brad spent most of his time either by her side or trying to shield their five-year-old son, Jack, from the worst of Mia’s illness. Brad and Mia were met by an outpouring of kindness fro...
The One Where Monica Scalf & I Talk About " JOYful Gift Giving"
November 23, 2021 04:00 - 44 minutes - 30.3 MBListen in to this fun episode as I chat with my joy go-to girl, Monica Scalf about JOYful Holiday gift giving. As joyful as the holidays are, there’s something about the onset of the gifting season that stirs up a little bit of uncertainty. Can I think of the best gift? Will I have the time to find it? Always overthinking and often I end up putting it off and having to do it all last minute. However, after this chat I am feeling energized and ready for this holiday gift giving season....
The One Where Monica Scalf & I Talk About " JOYful Gift Giving"
November 23, 2021 04:00 - 44 minutes - 30.3 MBListen in to this fun episode as I chat with my joy go-to girl, Monica Scalf about JOYful Holiday gift giving. As joyful as the holidays are, there’s something about the onset of the gifting season that stirs up a little bit of uncertainty. Can I think of the best gift? Will I have the time to find it? Always overthinking and often I end up putting it off and having to do it all last minute. However, after this chat I am feeling energized and ready for this holiday gift giving season....
Veteran & ALS Warrior: The Juan & Only, Juan Reyes
November 09, 2021 01:00 - 35 minutes - 24.7 MBIn this Veteran's Day episode, I talk to Juan Reyes a military veteran battling ALS as he shares what's getting him through the toughest of times. Since his ALS diagnosis in 2015, he's been in the fight of his life. He's been fighting with grace and humor to improve treatment opportunities as well as advocating for others in the hopes of ending ALS. Juan served in the United States Air Force for 21 years and has learned the art of resiliency — along with his wife, Meg. Since veterans ar...
Life Lessons with Author of Tuesdays with Morrie, Mitch Albom
October 25, 2021 17:00 - 46 minutes - 32.1 MBHere I chat with Mitch Albom about love, faith, living and dying and the life lessons of Morrie Schwartz. In this episode Mitch Albom shares the backstory of how he met his former professor Morrie Schwartz and how their relationship developed. Mitch shared Morrie's life lessons in the best-selling memoir of all time,Tuesdays with Morrie. Today, the book has sold 17 million copies in more than 50 editions around the world. Mitch and I discuss some lessons that Morrie passed on during thei...
Suicide Survivor Brings Hope: Emma Benoit
October 11, 2021 22:00 - 41 minutes - 28.4 MBIn this episode, I chat with Emma Benoit who survived a suicide attempt at 16. She's using her painful experience to help others find hope in the darkest of days. Emma became extremely passionate about suicide prevention after her suicide attempt in 2017, the summer before her senior year in high school. At the time, she was a popular varsity cheerleader with a supportive family and lots of friends, but on the inside, she was filled with depression and anxiety, and had never told a soul ...
ALS Twins: Keeping Alex & Jaci's Legacy Alive
September 28, 2021 18:00 - 46 minutes - 31.7 MBIn a cruel twist of fate and genetics, two twins both lost their young lives to ALS. Here, I talk to their mother Lori Hermstad of Iowa who is speaking up to help keep their legacy alive. Lori lost her 2 twin daughters to ALS at 17 and 26. The youngest, Alex was diagnosed at 11, put on vent at 12, and died at 17. Eight years to the day that Alex died, Jaci was diagnosed at 25 and lived one year. They had no idea Jaci would get ALS too. I talked to Lori the week the girls would have tur...
Behind the Brew: "Ales For ALS" with Mike & Cheryl Smith
September 14, 2021 02:00 - 35 minutes - 24.4 MBIn this episode, I catch up with Mike and Cheryl Smith who created Ales for ALS, a program that has raised over $3,500,000 for ALS research at the ALS Therapy Development Institute (ALS TDI). Mike and Cheryl own Loftus Ranches, a fourth-generation hop farm in Washington’s Yakima Valley. Cheryl has lost 9 relatives to ALS, including her grandfather and father. Along the way, they've learned that her family carries a gene that causes ALS and they have dedicated themselves to fighting the ...
My Dad, My Hero - Varen Rogers on Life with ALS
August 24, 2021 17:00 - 23 minutes - 16.3 MBIn this episode, sweet inspiration comes from 10-year-old Varen Rogers who shares her perspective on life while her dad fights ALS. Varen accidentally made a name for herself with one sweet gesture, a tribute to her father, Justin Rogers who was diagnosed with ALS at 35. Varen wanted to give a shout out to her dad at the Cincinnati Reds first Lou Gehrig Day baseball game. She had used her money from her 10th birthday to buy a memo board and wrote: “My dad has ALS. He is my Hero. I love y...
"Don't Wait to Be Great" - Jahkil Jackson, Teen Activist
August 10, 2021 03:00 - 25 minutes - 17.3 MBHere I catch up with 13 year old, Jahkil Jackson who is a young entrepreneur known for creating Project I Am and distributing almost 60,000 Blessing Bags to the homeless around the world. A teen philanthropist, author and anti-bullying activist has made his mark in the world by helping homeless people since he was eight. Project I Am distributes and delivering thousands and thousands of Blessing Bags to homeless individuals. Blessing Bags include essentials like socks, hygiene products,...
A Tribute to ALS Ice Bucket Challenge Co-founder Pat Quinn
July 27, 2021 04:00 - 39 minutes - 27.4 MBIn this special episode I share my chat with ALS Ice Bucket Challenge co-founder Pat Quinn who inspired millions before losing his battle to ALS. Pat Quinn was the last of three ALS warriors, Anthony Senerchia, Pete Frates and Pat Quinn to be the first to accelerate the ALS Ice Bucket Challenge while living with ALS. Pat from Yonkers , New York passed away at 37 in November 2020 after a heroic, seven year battle. He fought with positivity and courage and inspired me and all who knew him....
A Tribute to ALS Ice Bucket Challenge Co-founder Pat Quinn
July 27, 2021 04:00 - 39 minutes - 27.4 MBIn this special episode I share my chat with ALS Ice Bucket Challenge co-founder Pat Quinn who inspired millions before losing his battle to ALS. Pat Quinn was the last of three ALS warriors, Anthony Senerchia, Pete Frates and Pat Quinn to be the first to accelerate the ALS Ice Bucket Challenge while living with ALS. Pat from Yonkers , New York passed away at 37 in November 2020 after a heroic, seven year battle. He fought with positivity and courage and inspired me and all who knew him....
Words to Live By - a Chat with Jamie and Scott Smith
July 12, 2021 19:00 - 44 minutes - 30.3 MBThis episode is pure inspiration. Here I chat with Scott and Jamie Smith. As they fight Scott's ALS, they are sharing their hearts to encourage others. Silver Linings, Courage Under Fire, Nothing to Lose and Riding On Hope are just a few of the topics Scott Smith writes about in his intimate blog, Flex On ALS. He's documenting his personal experience by sharing his fears, regrets and what he wants us to realize before it's too late. In this episode, I catch up with Scott and his wife ...
All the Colors Came Out: Kate Fagan on Love & Lessons from her Father
June 22, 2021 03:00 - 41 minutes - 28.6 MBFormer ESPN host, Emmy Award-winning journalist and New York Times best-selling author, Kate Fagan and I chat about her latest book: All the Colors Came Out. It is an unforgettable, beautifully written memoir about the love between a father and a daughter. Listen in as Kate Fagan shares her motivation for her beautiful love story about her father, Chris Fagan. She opens up about their special relationship that was built on the basketball court together and how that grew complicated ove...
"You are Worth It" - Beyond the Medal with Kyle Carpenter
June 08, 2021 01:00 - 44 minutes - 30.9 MBHere I chat with Medal of Honor Recipient, Kyle Carpenter to hear what prepared him to cover a grenade to save his fellow Marine and what he's learned from his near- death experience. Kyle, shares his incredible journey and his unique perspective for life that everyone can benefit from. At a young 21, Kyle was serving in Afghanistan when the enemy initiated an attack with hand grenades, one of which landed inside his sandbagged position. Without hesitation, Lance Corporal Carpenter moved ...
"You are Worth It" - Beyond the Medal with Kyle Carpenter
June 08, 2021 01:00 - 44 minutes - 30.9 MBHere I chat with Medal of Honor Recipient, Kyle Carpenter to hear what prepared him to cover a grenade to save his fellow Marine and what he's learned from his near- death experience. Kyle, shares his incredible journey and his unique perspective for life that everyone can benefit from. At a young 21, Kyle was serving in Afghanistan when the enemy initiated an attack with hand grenades, one of which landed inside his sandbagged position. Without hesitation, Lance Corporal Carpenter moved ...
In Her ALS Shoes: A Chat with Leah Stavenhagen
May 25, 2021 06:00 - 37 minutes - 25.4 MBListen in as I talk to Leah Stavenhagen, 28, about her ALS journey and the "In Her ALS Shoes" movement she created. "I was an active 26-year-old so why did I feel like my feet couldn’t quite keep up? She couldn’t find my knee-jerk reflex and suggested that I visit a neurologist. Naively, I didn’t understand why I was being referred to a neurologist over a podiatrist. This quickly changed. I learned that I had ALS and a 2-5 year life expectancy." That is from my guest, Leah. In this...
In Her ALS Shoes: A Chat with Leah Stavenhagen
May 25, 2021 06:00 - 37 minutes - 25.4 MBListen in as I talk to Leah Stavenhagen, 28, about her ALS journey and the "In Her ALS Shoes" movement she created. "I was an active 26-year-old so why did I feel like my feet couldn’t quite keep up? She couldn’t find my knee-jerk reflex and suggested that I visit a neurologist. Naively, I didn’t understand why I was being referred to a neurologist over a podiatrist. This quickly changed. I learned that I had ALS and a 2-5 year life expectancy." That is from my guest, Leah. In this...
Inspiration from 4 ALS Warriors
May 12, 2021 21:00 - 46 minutes - 31.9 MBIn honor of ALS Awareness Month, I catch up with 4 people who are in the fight of their life as they battle ALS, a terminal illness that has no cure. My guests are Bernadine Okeke, Taya Jones, Bruce Rosenblum and Zamir Kociaj. I asked listeners, what they were most curious about when it comes to ALS. My gracious guests, open their hearts and answer those questions and more. A few examples, How do you find joy every day, knowing you have a terminal illness? After being diagnosed with...
The One Where I Talk About "Giving Yourself Grace"
April 27, 2021 00:00 - 22 minutes - 15.7 MBIn this solo episode, I share what's on my heart as it relates to giving yourself grace. Why is it so hard to make space for grace? Specifically giving ourselves grace. We graciously do it for others, but what about us? In this episode, I address: What is grace? Why is it so hard? What are some thoughts on it? In a world that says, "go get it." "Do better." "Be the best version of yourself.” We always seem to put a lot of pressure on ourselves to have it all together. So when ...
"No Legs, No Limits" - Kanya Sesser
April 12, 2021 19:00 - 37 minutes - 25.7 MBIn this episode, I chat with 28-year old Kanya Sesser. Born with no legs in Thailand and found on the side of the road. Kanya lets us know how to live fully and without regrets. Kanya is now a professional skateboarder, surfer, actress, model, motivational speaker and activist. She may have had a rough start in life but now she is showing us that all things are truly possible. This young lady is strong, wise and won't let anything stop her. We had a great chat about how she is fu...
"ALS Has No Victory Over Me" - A Chat with 10-year-old Kennedy Arney
March 20, 2021 20:00 - 30 minutes - 20.9 MBHear how 10 year old Kennedy Arney is living with ALS, a terminal illness, but yet adopts one of her best friend's mottos "ALS has no victory over Me!" This episode is proof that inspiration can come in all sizes. Listen in as I chat with 10 year old, Kennedy Arney of Michigan. She is one of the youngest people in the United States to be diagnosed ALS. We chat a little about ALS but more on faith, life and and of course ...besties & Harry Potter. It was a blessing to get to know Ke...
Special Anniversary Episode: Celebrating the First Year of the Podcast
March 09, 2021 04:00 - 39 minutes - 27.2 MBWelcome to Season 2 of I'm Dying To Tell You. This is a special anniversary episode celebrating the first year of the podcast, each listener and all my inspiring guests. I'll be checking in with a few guests from this past year, answering some listener questions and previewing season 2. I am living with ALS, a fatal disease with no cure. I am outliving my 2-5 year death sentence and am grateful to share inspiring stories here. This episode gives you a peek into this podcast, my gues...
Special Anniversary Episode: Celebrating the First Year of the Podcast
March 09, 2021 04:00 - 39 minutes - 27.2 MBWelcome to Season 2 of I'm Dying To Tell You. This is a special anniversary episode celebrating the first year of the podcast, each listener and all my inspiring guests. I'll be checking in with a few guests from this past year, answering some listener questions and previewing season 2. I am living with ALS, a fatal disease with no cure. I am outliving my 2-5 year death sentence and am grateful to share inspiring stories here. This episode gives you a peek into this podcast, my gues...
ALS: A Love Story, with Lynne & Augie Nieto
February 22, 2021 02:00 - 40 minutes - 27.6 MBI imagine you've never heard a love story quite like this one. This is all about commitment, love and resilience. Here I chat with Augie Nieto, the successful fitness industry mogul behind Lifecycle and Life Fitness who was diagnosed with ALS in 2005 and his wife, Lynne. They open up about life with ALS, their unique love story and what they are dying to tell you. They share the raw truth about their relationship and where they are today. After living with ALS for 16 years they remai...
ALS: A Love Story, with Lynne & Augie Nieto
February 22, 2021 02:00 - 40 minutes - 27.6 MBI imagine you've never heard a love story quite like this one. This is all about commitment, love and resilience. Here I chat with Augie Nieto, the successful fitness industry mogul behind Lifecycle and Life Fitness who was diagnosed with ALS in 2005 and his wife, Lynne. They open up about life with ALS, their unique love story and what they are dying to tell you. They share the raw truth about their relationship and where they are today. After living with ALS for 16 years they remai...
Everyone Deserves Authentic Friendships
February 08, 2021 20:00 - 36 minutes - 24.9 MBHere I catch up with Juliana Fetherman, 24, who was inspired by her brother to help those with special needs make friends. So many of us have been feeling extremely isolated during this pandemic. My guest, Juliana knows that feeling alone on a daily basis is common for some. Her brother, Michael has both autism and ADHD, and struggles with the interpersonal skills necessary for forming friendships and even holding conversations. Juliana realized she wanted to create something to help him...
Celebrating Hope, Love & Community: I AM ALS Turns 2
January 26, 2021 08:00 - 39 minutes - 26.8 MBListen in and hear a beautiful testimony of how ordinary people have united to end ALS and change the world. This episode is a celebration of hope, love and community. I celebrate I AM ALS turning 2, by talking with Cathy Collet, Jill Brattain and Nadia Sethi who have all lost someone to ALS. All are driven by their heart to end ALS through their involvement with the patient-led group I AM ALS . Cathy, Jill and Nadia share what gives them hope, why we should celebrate and what they are d...
Reclaim Your MOJO in 2021
January 11, 2021 02:00 - 36 minutes - 25.2 MBListen in as I chat with my joy go-to girl, Monica Scalf, founder of Crazy Grateful about what we are taking into the New Year and leaving in 2020 so that we can reclaim our MOJO in 2021. We're sharing our personal experiences and what 2020 taught us. Join our conversation by sharing what you are bringing into the new year to live joyfully. Let's share with each other how to get this year started off right. Want to share what YOU are Dying To Tell us? Nominate a guest? https://imdy...
Brian Cuban: Overcoming Alcohol, Bulimia, Cocaine
December 08, 2020 05:00 - 39 minutes - 27.2 MBHere I chat with Brian Cuban, the younger brother of Dallas Mavericks owner and entrepreneur Mark Cuban. Brian is a Dallas based attorney, author and addiction recovery advocate. Brian shares his intimate life with addiction and eating disorders in hopes of inspiring others. He has been in long term recovery from alcohol, cocaine and bulimia since April of 2007. Brian’s most recent, best-selling book, The Addicted Lawyer, Tales of The Bar, Booze, Blow, & Redemption is a look back at how...
Brian Cuban: Overcoming Alcohol, Bulimia, Cocaine
December 08, 2020 05:00 - 39 minutes - 27.2 MBHere I chat with Brian Cuban, the younger brother of Dallas Mavericks owner and entrepreneur Mark Cuban. Brian is a Dallas based attorney, author and addiction recovery advocate. Brian shares his intimate life with addiction and eating disorders in hopes of inspiring others. He has been in long term recovery from alcohol, cocaine and bulimia since April of 2007. Brian’s most recent, best-selling book, The Addicted Lawyer, Tales of The Bar, Booze, Blow, & Redemption is a look back at how...
Daughter Inspires the World with her Pandemic Story
November 24, 2020 04:00 - 36 minutes - 25.3 MBThis is one of the sweetest stories to come out of the 2020 pandemic. In this heartwarming episode, I chat with Nina Ambrose, who like many was devastated when lockdown rules prevented her from seeing her dad Roger, 77, who moved into a care home in January. After being furloughed from her job, Nina took on a volunteer position at the care home so she could see her father during the pandemic lockdown. Nina's father has had Alzheimer's for 12 years and sheds light on living with this tough...
Daughter Inspires the World with her Pandemic Story
November 24, 2020 04:00 - 36 minutes - 25.3 MBThis is one of the sweetest stories to come out of the 2020 pandemic. In this heartwarming episode, I chat with Nina Ambrose, who like many was devastated when lockdown rules prevented her from seeing her dad Roger, 77, who moved into a care home in January. After being furloughed from her job, Nina took on a volunteer position at the care home so she could see her father during the pandemic lockdown. Nina's father has had Alzheimer's for 12 years and sheds light on living with this tough...
Two Veterans Reveal their Most Powerful Weapon while Battling ALS
November 09, 2020 18:00 - 49 minutes - 34.3 MBIn this Veteran's Day episode, I talk to two military veterans as they share what is getting them through their greatest battle yet - ALS. Military veterans in the US are twice as likely to develop ALS - a fatal disease with no cure. Chuck Schretzman and Tony Vick are two soldiers living with this horrific disease. Here I chat with Chuck, Tony and their wives about their love for our country, their love for each other and their love for life. Tune in to hear their life mottos and how t...
Two Veterans Reveal their Most Powerful Weapon while Battling ALS
November 09, 2020 18:00 - 49 minutes - 34.3 MBIn this Veteran's Day episode, I talk to two military veterans as they share what is getting them through their greatest battle yet - ALS. Military veterans in the US are twice as likely to develop ALS - a fatal disease with no cure. Chuck Schretzman and Tony Vick are two soldiers living with this horrific disease. Here I chat with Chuck, Tony and their wives about their love for our country, their love for each other and their love for life. Tune in to hear their life mottos and how t...
Facing their Fate: a Future Diagnosis of ALS
October 27, 2020 02:00 - 44 minutes - 30.5 MBListen in on my chat with two young men 29 and 32, who already know an ALS diagnosis will be in their future. Hear their unique perspectives on life as they know a terminal illness is coming. Daniel Barvin and Tucker Olson both made the decision to do genetic testing and have tested positive to a familial ALS genetic mutation. These guys open their hearts and share how this new information affects their outlook on life, future relationships, children, legacy and more. Podcast communi...
I'm More Than My Height: Advocating for Inclusion Everywhere
October 13, 2020 01:00 - 41 minutes - 28.8 MBI chat with Becky Curran Kekula who is finding ways to change how little people and all people with disabilities are perceived in the media, corporations and everywhere. Becky also happens to be a little person who is proud to identify as part of the disability community. Hear how Becky’s life working at the worlds leading entertainment industry to the Marketing Director & Co-founding board member of the Catalina Film festival & more, has led her on a quest to create more inclusion and equa...
From Losing Everything … To Finding True Happiness
September 22, 2020 00:00 - 26 minutes - 18 MBYou don't wanna miss my chat with this 36 year old who has experienced so much loss yet has gained such a valuable perspective on life and happiness. ALS has taken her ability to talk, walk, move and breath on her own. In her book, Pursuit Of Happiness: From Heels to Wheels, Mayuri Saxena shares her five pillars of truth that she discovered in her pursuit for true happiness. In this episode, you'll learn what those are and hear Mayuri share how she discovered them. Newly divorced and hap...