Latest Tumour Podcast Episodes
Episode 42 - Spotlight on Family Led Partnerships
Let's Talk About Brain Tumours - April 25, 2023 18:00 - 15 minutesIn this episode we talk to Phoebe Day our Gifts and Partnerships Manager at the charity. She explains what family led partnerships are, the different types and why they are so important to the charity. Family led partnerships are so much more than just rasing money for the charity as Phoebe ex...
Episode 41 - PCV Chemotherapy
Let's Talk About Brain Tumours - March 30, 2023 15:00 - 47 minutesIn this episode, we talk to Sarah and Patrick about their experience taking the chemotherapy drug PCV. They explain what taking this chemotherapy regime is like, what side effects they experienced, dietary restrictions, hair loss, and more. You can find out more about chemotherapy here and if ...
Episode 40 - Spotlight on TIME, using art to tell stories of brain tumours
Let's Talk About Brain Tumours - March 23, 2023 15:00 - 16 minutesIn this episode, we talk to Hannah Waldron about the TIME Art Exhibition . The exhibition will feature photographs, illustrations, paintings, scans and sculptures submitted by the community to help tell the stories of those affected by a brain tumour, as well as artwork from upcoming and renown...
Episode 39 - Caring beyond a brain tumour
Let's Talk About Brain Tumours - March 07, 2023 12:00 - 46 minutesIn this episode we talk to Elizabeth and Julia the hosts of the podcast 'On a good day' about their experiences of caring for their partners who both live with the impacts of brain injury. Elizabeth's husband Paull had a stroke when he was just 38 and Julia's husband Hector had a subarachnoid ...
Episode 38 - Spotlight on getting benefits and money advice (UK)
Let's Talk About Brain Tumours - February 21, 2023 07:00 - 10 minutesIn this episode, Chandos talks to Denise one of our benefits advisers. Through talking to our community we know the financial impact of a brain tumour diagnosis can be huge and cause a great deal of stress and anxiety so we partnered with Citizens Advice to provide support and information aroun...
Episode 37 - Brain Tumours and Seizures
Let's Talk About Brain Tumours - February 07, 2023 10:00 - 37 minutesIn this episode we talk to e people, Jess, Reece and Kate about the impact seizures have on their lives, from being the first sign there was something wrong to the day to day challenges of managing their seizures. We talk about the different types of seizures and how medication can help to ge...
Episode 36 - Spotlight on Involvement Champions
Let's Talk About Brain Tumours - January 17, 2023 07:00 - 25 minutesIn this episode, Neil Munn and Donald Innes talk about their time as Involvement Champions for the charity. They share what being an Involvement Champion means, not just in terms of their role and what they have done as Involvement Champions but also what it has meant to them personally and the...
10000 Downloads - A Celebration
AfterThoughts - January 11, 2023 08:00 - 1 hourAlright. We know in the grand scheme of podcasts, 10,000 downloads isn't that many. But for a niche podcast of stories about cancer, created by two people who just want to do their bit to change some of the narratives, it felt like something worth celebrating. Let's face it, we don't need an exc...
Episode 35 - Christmas - Caring for or coping with the loss of a loved one
Let's Talk About Brain Tumours - December 20, 2022 07:00 - 22 minutesWe know that Christmas can be a difficult time for people who are caring for a loved one with a diagnosis, whether this is your first Christmas since the diagnosis or you are worried this may be your last. We also know that for some of you this may be a time of remembering a loved one you have l...
Episode 35 - Christmas - Caring for or coping with the loss of a loved one
Let's Talk About Brain Tumours - December 20, 2022 07:00 - 23 minutesWe know that Christmas can be a difficult time for people who are caring for a loved one with a diagnosis, whether this is your first Christmas since the diagnosis or you are worried this may be your last. We also know that for some of you this may be a time of remembering a loved one you have l...
Episode 34 - Living with a Brain Tumour At Christmas
Let's Talk About Brain Tumours - December 08, 2022 16:00 - 27 minutesIn this episode, we talk about some of the challenges of having a brain tumour over the festive season. For some of you, this might be your first Christmas since receiving your diagnosis and have mixed feelings about the impending festivities. The team share some personal experiences of how ha...
Episode 33 - Spotlight On Our Young Ambassadors - Making Positive Changes
Let's Talk About Brain Tumours - November 22, 2022 15:00 - 27 minutesIn this episode, Anna talks to fellow young ambassadors Rhudi and Victoria about the Young Ambassador Program which is a 2-year program tum by the charity for young people aged 18 - 25. They talk about what made them want to become ambassadors for the charity and some of the great things they h...
Episode 32 - How to prepare for the death of a loved one
Let's Talk About Brain Tumours - November 01, 2022 09:00 - 46 minutesIn this episode, we're joined again by Sacha Langton-Gilks to talk about how to prepare for the death of a loved one and explore what it means to give someone a good death and help them die well. Trigger warning: In this episode, we do talk about the final stages of death and some of the physi...
Episode 31 - Spotlight on Community Fundraising - How our community helps fund research
Let's Talk About Brain Tumours - October 18, 2022 10:00 - 11 minutesIn this episode, Chandos talks to Community Fundraiser Firzana Khan about how our community works with the charity to raise money for vital research into better treatments and cures for brain tumours. They talk about the different ways people can raise money from cycle rides and runs to charity...
Episode 30 - The importance of an Advance Care Plan
Let's Talk About Brain Tumours - October 04, 2022 06:00 - 47 minutesIn this episode we talk about the importance of having an Advance Care Plan in place, what it is, how you go about doing one an why it is so important. Sacha Langton- Gilks son DD died when he was 16 from his brain tumour. Sacha like most people felt ill prepared and ill-informed about how to...
AfterThoughts: Connection
AfterThoughts - September 26, 2022 07:30 - 20 minutesAfterThoughts was created to make visible some of the invisible cancer stories from within the young cancer community. For our final shortcast, and thus our very last episode of Series Five, we're looking at connection. Because if there's something that's come out of every chat we've ever had o...
AfterThoughts: Intimacy & Cancer
AfterThoughts - September 23, 2022 07:30 - 27 minutesAfterThoughts was created to make visible some of the invisible cancer stories from within the young cancer community. It's another shortcast and we're looking at some of the most intimate stories there are. Sex and cancer. And you can't talk about sex and cancer without talking about fertility...
AfterThoughts - Exercise
AfterThoughts - September 20, 2022 07:30 - 30 minutesAfterThoughts was created to make visible some of the invisible cancer stories from within the young cancer community. We're back to bring you some extra special episodes to say ta'ra to Series Five - our Shortcasts. Bitesized episodes exploring three themes that some of our storytellers touche...
Episode 29 - Spotlight Revisited - National Eye Health Week
Let's Talk About Brain Tumours - September 20, 2022 06:00 - 14 minutesThis episode was recorded in September 2021 but as this week is National Eye Health week we thought we'd revisit this episode where Chandos talks to Optical Engagement Manager Lorcan Butler about the importance of eye exams as these appointments can tell you much more about your overall health t...
Series Five: Wrap Up
AfterThoughts - September 07, 2022 07:30 - 53 minutesAfterThoughts was created to make visible some of the invisible cancer stories from within the young cancer community. As ever, we like to end a series by taking a look back over some of our favourite stories from the series. We take it theme by theme and try to agree on the best bits. It ain't...
Episode 28 - What exactly is Gamma Knife?
Let's Talk About Brain Tumours - September 06, 2022 09:00 - 34 minutesIn this episode, myself and Andy talk to Katie about Gamma Knife Radiotherapy also known as Stereotactic Radiotherapy. Both Andy and Katie had this treatment when they had a recurrence of their brain tumours, they explain what the treatment entails and what it was like to undergo. You can find...
Natalie: Proposals, Invisible Illnesses and Sex and Intimacy
AfterThoughts - August 31, 2022 07:30 - 58 minutesAfterThoughts was created to make visible some of the invisible cancer stories from within the young cancer community. Well. We've made it. It's the very last storyteller of the series. But you know we'll be back for our usual wrap up and all that other business in due course. Before that thoug...
Episode 27 - Spotlight on the Charity Lottery
Let's Talk About Brain Tumours - August 30, 2022 06:00 - 7 minutesIn this episode Chandos talks to Tamsin Tyson our Individual Giving Officer about the recently launched charity lottery. Tamsin explains what the lottery is and why we have decided to create a lottery as a way to continue to be able to raise money for vital research into brain tumours at a time...
Sean: Navigating Finances, Body Image and Giving the Need to Knows
AfterThoughts - August 24, 2022 07:30 - 54 minutesAfterThoughts was created to make visible some of the invisible cancer stories from within the young cancer community. Our storyteller for episode SIX (!!) of series five is Sean. Diagnosed with Stage 4 Hodgkins Lymphoma in 2016, Sean went from being a self employed personal trainer (not person...
Sukhy: Running, Returning to Work, Cancer and Tiny Humans
AfterThoughts - August 18, 2022 07:55 - 56 minutesAfterThoughts was created to make visible some of the invisible cancer stories from within the young cancer community. For this episode, we're joined by the brill Sukhy. Sukhy was diagnosed with breast cancer when she was 37. She joins us to talk about being a single mum and going through cance...
Episode 26 - What's it like to have a craniotomy?
Let's Talk About Brain Tumours - August 16, 2022 06:00 - 46 minutesIn this episode, we talk to Rob, diagnosed with a grade 2 glioma, and Carly, with a grade 2 oligodendroglioma, about what it's like to have a craniotomy. Both Rob and Carly had an awake craniotomy while Andy who has a grade 2 meningioma had a craniotomy under a general anaesthetic They share ...
Jake: Leg funerals, Paratriathletes and Controlling Your Own Narrative
AfterThoughts - August 10, 2022 08:25 - 59 minutesAfterThoughts was created to make visible some of the invisible cancer stories from within the young cancer community. For episode four of AfterThoughts, Series Five, our storyteller is Jake. We didn't intend to have two people diagnosed with osteosarcoma back to back, that's just how it happe...
Episode 25 - Spotlight on Signs and Symptoms - How we created a campaign
Let's Talk About Brain Tumours - August 04, 2022 15:00 - 23 minutesIn this episode we talk to Ali Lopez, the charity's Campaigns and Communications Manager about how the charity created the new Signs And Symptoms campaign that the charity recently launched to raise awareness of the signs and symptoms of brain tumours. Ali talks through the process of creating ...
Krista: Connection, Being Both Doctor & Patient and 'Dumping Outwards'
AfterThoughts - July 27, 2022 07:30 - 50 minutesAfterThoughts was created to make visible some of the invisible cancer stories from within the young cancer community. For episode three of AfterThoughts, Series Five, we're joined by Dr Krista. Krista was diagnosed with Osteosarcoma in one of the wildest diagnosis stories we've ever heard (it ...
Jay - Body Image, Survivor's Responsibility and Preempting Chaos
AfterThoughts - July 20, 2022 07:30 - 51 minutesAfterThoughts was created to make visible some of the invisible cancer stories from within the young cancer community. In this episode, we're joined by the wise and wonderful Jay (they/them) who Zoomed in all the way from Pisa in Italy. Jay was diagnosed with Hodgkins Lymphoma and relapsed a fe...
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