Latest Sequencing Podcast Episodes
Episode 228 - Strength In Unity - The Power of Consolidated Rare Disease Advocacy, Collaborative Breakthroughs, and the Every Cure Initiative with Dr. David Fajgenbaum
Once Upon A Gene - May 09, 2024 11:00 - 51 minutes ★★★★★ - 251 ratingsONCE UPON A GENE - EPISODE 228 Strength In Unity - The Power of Consolidated Rare Disease Advocacy, Collaborative Breathroughs, and the Every Cure Initiative with Dr. David Fajgenbaum Dr. David Fajgenbaum is is a groundbreaking physician-scientist, disease hunter, speaker, and national bestselli...
Four types of retreats (and how to choose the one that's best for you) with Lily Dwyer Begg
Yoga Teacher Resource Podcast - May 09, 2024 09:00 - 41 minutes ★★★★★ - 231 ratingsYoga retreats allow you to share yoga free from the distractions of daily life - while often earning far more than your usual weekly classes. There are four basic types of retreats to consider: day, camping, local, and international. In this episode, we cover the pros and cons of each to help yo...
Bringing Balance Back to the Language of Disability from The Special Needs Mom Podcast with Kara Ryska
Once Upon A Gene - April 25, 2024 11:00 - 51 minutes ★★★★★ - 251 ratingsConnect with Kara, host of The Special Needs Mom Podcast: Instagram: https://www.instagram.com/thespecialneedsmompodcast/ Website: https://www.kararyska.com/ Coaching Opportunities Pathway to Peace {Group Coaching Program}: Schedule a Consult or Contact Me Join The Special Needs Mom Podcast Comm...
12 Tips for Teaching Large(r) Groups
Yoga Teacher Resource Podcast - April 25, 2024 09:00 - 31 minutes ★★★★★ - 231 ratingsTeaching large groups can be intimidating! But it’s also fantastic for improving your teaching skills and boosting your confidence. This episode focuses on the unique challenges and opportunities involved in teaching large yoga groups. Learn to embrace the challenges of large-group instruction a...
From Classrooms to Communities - Parents Visionary Journey in Education, Living, and Advocacy for Inclusion and Epilepsy Funding with Jillian and Scott Copeland
Once Upon A Gene - April 18, 2024 11:00 - 45 minutes ★★★★★ - 251 ratingsONCE UPON A GENE - EPISODE 226 From Classrooms to Communities - Parents Visionary Journey in Education, Living, and Advocacy for Inclusion and Epilepsy Funding with Jillian and Scott Copeland Jillian and Scott Copeland are husband and wife, advocates and pioneers who have transformed their perso...
The Bravery of the Brokenhearted - A Big Brothers Perspective on Grief From the Loss of a Sibling with Sanfilippo Syndrome with Noah Siedman
Once Upon A Gene - April 11, 2024 15:42 - 46 minutes ★★★★★ - 251 ratingsONCE UPON A GENE - EPISODE 225 The Bravery of the Brokenhearted - A Big Brothers Perspective on Grief From the Loss of a Sibling with Sanfilippo Syndrome with Noah Siedman Noah Siedman was a big brother to Ben who had Sanfilippo Syndrome, a devastating disease that leads to childhood dementia an...
An Anti-Perfectionist Approach to Accessible Yoga with Jivana Heyman
Yoga Teacher Resource Podcast - April 11, 2024 11:55 - 45 minutes ★★★★★ - 231 ratingsOver the past decade, there has been a welcome push towards a more inclusive approach to yoga. But what does that look like on a practical level? Jivana Heyman has been at the center of the accessible yoga movement as the founder of the Accessible Yoga Project and the author of The Teacher's Gui...
The Complicated World of ICD10 Codes with CEO and Co-Founder of SLC6A1 Connect - Amber Freed
Once Upon A Gene - April 04, 2024 11:00 - 28 minutes ★★★★★ - 251 ratingsONCE UPON A GENE - EPISODE 224 The Complicated World of ICD10 Codes with CEO and Co-Founder of SLC6A1 Connect - Amber Freed Advocate, rare mom and Founder of SLC6A1 Connect, Amber Freed joins me to talk about ICD-10 codes— the frustrations, the battles, and the common-sense changes we're fightin...
Rare Epilepsy Network with Ilene Penn Miller and Christina Sanlnocencio
Once Upon A Gene - March 28, 2024 11:00 - 51 minutes ★★★★★ - 251 ratingsONCE UPON A GENE - EPISODE 223 Rare Epilepsy Network with Ilene Penn Miller and Christina Sanlnocencio Ilene Miller and Christina SanInocencio are advocates doing groundbreaking work at the Rare Epilepsy Network (REN), a volunteer network of epilepsy organizations banding together, sharing resea...
How to Run a Registered Yoga Series with Nyk Danu
Yoga Teacher Resource Podcast - March 28, 2024 09:00 - 56 minutes ★★★★★ - 231 ratingsSeries classes deepen your relationship with your students, helps them commit to their practice, and provides financial stability for you as the teacher. Nyk Danu, a certified yoga therapist and business mentor, shares her insights on creating a sustainable yoga teaching business through a regis...
Krabbe Disease with Kasey Feldt
Once Upon A Gene - March 21, 2024 11:00 - 29 minutes ★★★★★ - 251 ratingsONCE UPON A GENE - EPISODE 222 Krabbe Disease with Kasey Feldt Kasey Feldt is the mom of two- one year old Lukas and Dawson, who passed away from Krabbe disease. Kasey has become a passionate and unstoppable advocate, not only advocating for Krabbe disease, but also the newborn screening system ...
BeginNGS - Newborn Genomic Sequencing to End the Diagnostic Odyssey with Dr. Stephen Kingsmore, Wendy Erler and Tom DeFay
Once Upon A Gene - March 14, 2024 11:00 - 38 minutes ★★★★★ - 251 ratingsONCE UPON A GENE - EPISODE 221 BeginNGS - Newborn Genomic Sequencing to End the Diagnostic Odyssey with Dr. Stephen Kingsmore, Wendy Erler and Tom DeFay I'm joined by Dr. Stephen Kingsmore, Wendy Erler and Tom DeFay to discuss BeginNGS, a ground-breaking initiative that stands at the forefront o...
Teaching Mixed Abilities in Yoga Classes with Dr. Libby Hinsley
Yoga Teacher Resource Podcast - March 14, 2024 09:00 - 43 minutes ★★★★★ - 231 ratingsYoga is for everyone, but when people of varied physical abilities show up in the same class it can be difficult to meet all their needs at the same time. In this episode, Mado and Libby offer a framework for understanding why your students might struggle with a particular asana and how to offer...
A Rare Collection - From Financial Strain to Supportive Gain - A Call For Action
Once Upon A Gene - March 07, 2024 12:00 - 17 minutes ★★★★★ - 251 ratingsONCE UPON A GENE - EPISODE 220 A Rare Collection - From Financial Strain to Supportive Gain - A Call For Action There's power in storytelling- for the listener and the storyteller. A Rare Collection is a monthly series featuring people from the rare disease community, sharing a story with a comm...
Genomics England Clinical Lead for Genetic Counseling - Amanda Pichini
Once Upon A Gene - February 29, 2024 12:00 - 43 minutes ★★★★★ - 251 ratingsONCE UPON A GENE - EPISODE 219 Genomics England Clinical Lead for Genetic Counseling - Amanda Pichini Amanda Pichini is a genetic counselor from Genomics England, here to share their initiatives and mission. EPISODE HIGHLIGHTS What is your role at Genomics England and how did your career devel...
Bridging the Gap between Retreats and Online Classes with Laura Mendez Asbach [On-Air Coaching Call]
Yoga Teacher Resource Podcast - February 29, 2024 10:00 - 24 minutes ★★★★★ - 231 ratingsLaura reached out for help to increase enrollment in her online classes. Despite her success in drawing people to her global retreats, she struggles to fill her online series and workshops. In this conversation, we discuss strategies to improve sign-ups for online offerings. Some of the ideas we...
James G Robinson - More Than We Expected Author - Five Years with a Remarkable Child
Once Upon A Gene - February 22, 2024 12:00 - 53 minutes ★★★★★ - 251 ratingsONCE UPON A GENE - EPISODE 218 James G Robinson - More Than We Expected Author - Five Years with a Remarkable Child James Robinson is a dad and the author of More Than We Expected: Five Years With a Remarkable Child, a deeply moving book and a testament to the strength found in vulnerability, th...
More of Everything - How I Became a Better Parent to My Child With Extreme Special Needs By Lifting My Emotional Burdens With SYNGAP1 Mom - Janie Reade
Once Upon A Gene - February 15, 2024 13:39 - 51 minutes ★★★★★ - 251 ratingsONCE UPON A GENE - EPISODE 184 More of Everything - How I Became a Better Parent to My Child With Extreme Special Needs By Lifting My Emotional Burdens With SYNGAP1 Mom - Janie Reade Janie Reade is an author and mom to three adult sons, one with a severe neurodevelopmental disorder caused by a m...
Cueing, Demonstration, and Finding your Voice as a Teacher with Johanna [On Air Coaching Call]
Yoga Teacher Resource Podcast - February 15, 2024 10:00 - 42 minutes ★★★★★ - 231 ratingsJohanna is a new yoga teacher who struggles to lead her yoga class without physically practicing along with her students. Mado helps her unpack why she wants to develop this skill and provides simple strategies to build her ability to cue without practicing along with the class. Along the way, t...
Uniting Science and Hope - COMBINEDBrain and it's Quest to Transform Research and Treatment for Rare Genetic Neurodevelopmental Disorders with Terry Jo Bichell
Once Upon A Gene - February 08, 2024 12:00 - 55 minutes ★★★★★ - 251 ratingsONCE UPON A GENE - EPISODE 217 Uniting Science and Hope - COMBINEDBrain and its Quest to Transform Research and Treatment for Rare Genetic Neurodevelopmental Disorders with Terry Jo Bichell Terry Jo Bichell is a rare mom, neuroscientist and the founder of COMBINEDBrain, a nonprofit organization ...
A Rare Collection - Five Advocacy Aces Share Their Conference Commandments
Once Upon A Gene - February 01, 2024 12:00 - 39 minutes ★★★★★ - 251 ratingsONCE UPON A GENE - EPISODE 201 A Rare Collection - Five Advocacy Aces Share Their Conference Commandments EPISODE HIGHLIGHTS Melissa Hioco, STXBP1 DO: Offer a family hospitality room where parents can see the broadcast and stay involved in the conference. Provide sibling spaces and make them f...
The Art and Science of Teaching Yoga Online - Part 2 with Lily Dwyer Begg
Yoga Teacher Resource Podcast - February 01, 2024 10:00 - 56 minutes ★★★★★ - 231 ratingsTransitioning from in-person classes to online can shake up every aspect of your teaching. When Lily Dwyer Begg dove headfirst into this process, she found greater clarity in her voice and a blossoming creative potential in her teaching. In this episode, Lily shares advice for the art of teachin...
Soundtrack of Silence - Love, Loss, and a Playlist for Life with Neurofibromatosis Type 2 (NF2) Patient Advocate - Matt Hay
Once Upon A Gene - January 25, 2024 12:00 - 43 minutes ★★★★★ - 251 ratingsONCE UPON A GENE - EPISODE 216 Soundtrack of Silence - Love, Loss, and a Playlist for Life with Neurofibromatosis Type 2 (NF2) Patient Advocate - Matt Hay Matt Hay has a disorder called Neurofibromatosis type 2 (NF2) and how he has more than overcome the challenges that came with it— he has thri...
Beyond the Crossroads- Rebuilding and Reclaiming Identity After Sacrificing Careers for Caregiving with Emily Crawford
Once Upon A Gene - January 18, 2024 12:00 - 34 minutes ★★★★★ - 251 ratingsONCE UPON A GENE - EPISODE 215 Beyond the Crossroads- Rebuilding and Reclaiming Identity After Sacrificing Careers for Caregiving with Emily Crawford Emily Crawford left her lifelong dream job of being a teacher to surrender to the demands of care-giving. She joins me to discuss identity loss an...
The Art and Science of Teaching Yoga Online - Part 1 with Lily Dwyer Begg
Yoga Teacher Resource Podcast - January 18, 2024 10:00 - 49 minutes ★★★★★ - 231 ratingsLearn the nuts and bolts of setting up an online yoga studio. Despite describing herself as a 'Luddite', Lily started teaching online when in-person classes shut down during COVID. She found that online teaching allowed her to teach fewer classes, increase her income, and boost her creativity. I...
A Courageous Gift - The Power of Brain and Tissue Donation in Rare Disease Research with Anne Rugari
Once Upon A Gene - January 11, 2024 12:00 - 41 minutes ★★★★★ - 251 ratingsONCE UPON A GENE - EPISODE 214 A Courageous Gift - The Power of Brain and Tissue Donation in Rare Disease Research with Anne Rugari Anne Rugari is an advocating powerhouse, an author of two children's books, a mom, and two of her children have passed away from Krabbe disease. She joins us to sha...
Is Yoga Bad for Bendy People? with Dr. Libby Hinsley
Yoga Teacher Resource Podcast - January 11, 2024 10:00 - 42 minutes ★★★★★ - 231 ratingsEver been told that hypermobile people shouldn’t practice yoga? Yoga is not bad for bendy people, but there are different considerations for people with hypermobile joints. Dr. Libby Hinsley, author of Yoga for Bendy People joins us to debunk some myths and talk about the ways that yoga is amazi...
Finding Strength In Every Step
Once Upon A Gene - January 08, 2024 12:00 - 17 minutes ★★★★★ - 251 ratingsAs a new parent of a child with a rare genetic syndrome, I was lost. There was no guide. There was no rulebook. This was not what I had imagined. As I navigated my way through this new reality, I realized something that should have been simple, but was not. A truth that had always been there, but...
How & Why to Eliminate Fear Based Language in Yoga Class with Dr. Libby Hinsley
Yoga Teacher Resource Podcast - January 04, 2024 10:00 - 38 minutes ★★★★★ - 231 ratingsHave you heard of “nocebic” language? Learn the way our brains react to expectations, why it’s important to notice fear based language and how to transform your words to empower your students. Episode Highlights: How to help your students feel confident and inspired to be in charge of thei...
Yoga & Self-Massage with Dr. Libby Hinsley
Yoga Teacher Resource Podcast - December 28, 2023 10:00 - 48 minutes ★★★★★ - 231 ratingsLearn how to incorporate self-massage into your own yoga practice and your yoga classes to build awareness, familiarize yourself with sensation and guide your nervous system toward relaxation. EPISODE HIGHLIGHTS: What you need to know before bringing self-massage into your classes Sequenc...
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