Latest Sequencing Podcast Episodes
Rare Epilepsy Network with Ilene Penn Miller and Christina Sanlnocencio
Once Upon A Gene - March 28, 2024 11:00 - 51 minutes ★★★★★ - 251 ratingsONCE UPON A GENE - EPISODE 223 Rare Epilepsy Network with Ilene Penn Miller and Christina Sanlnocencio Ilene Miller and Christina SanInocencio are advocates doing groundbreaking work at the Rare Epilepsy Network (REN), a volunteer network of epilepsy organizations banding together, sharing resea...
How to Run a Registered Yoga Series with Nyk Danu
Yoga Teacher Resource Podcast - March 28, 2024 09:00 - 56 minutes ★★★★★ - 229 ratingsSeries classes deepen your relationship with your students, helps them commit to their practice, and provides financial stability for you as the teacher. Nyk Danu, a certified yoga therapist and business mentor, shares her insights on creating a sustainable yoga teaching business through a regis...
Krabbe Disease with Kasey Feldt
Once Upon A Gene - March 21, 2024 11:00 - 29 minutes ★★★★★ - 251 ratingsONCE UPON A GENE - EPISODE 222 Krabbe Disease with Kasey Feldt Kasey Feldt is the mom of two- one year old Lukas and Dawson, who passed away from Krabbe disease. Kasey has become a passionate and unstoppable advocate, not only advocating for Krabbe disease, but also the newborn screening system ...
BeginNGS - Newborn Genomic Sequencing to End the Diagnostic Odyssey with Dr. Stephen Kingsmore, Wendy Erler and Tom DeFay
Once Upon A Gene - March 14, 2024 11:00 - 38 minutes ★★★★★ - 251 ratingsONCE UPON A GENE - EPISODE 221 BeginNGS - Newborn Genomic Sequencing to End the Diagnostic Odyssey with Dr. Stephen Kingsmore, Wendy Erler and Tom DeFay I'm joined by Dr. Stephen Kingsmore, Wendy Erler and Tom DeFay to discuss BeginNGS, a ground-breaking initiative that stands at the forefront o...
Teaching Mixed Abilities in Yoga Classes with Dr. Libby Hinsley
Yoga Teacher Resource Podcast - March 14, 2024 09:00 - 43 minutes ★★★★★ - 229 ratingsYoga is for everyone, but when people of varied physical abilities show up in the same class it can be difficult to meet all their needs at the same time. In this episode, Mado and Libby offer a framework for understanding why your students might struggle with a particular asana and how to offer...
A Rare Collection - From Financial Strain to Supportive Gain - A Call For Action
Once Upon A Gene - March 07, 2024 12:00 - 17 minutes ★★★★★ - 251 ratingsONCE UPON A GENE - EPISODE 220 A Rare Collection - From Financial Strain to Supportive Gain - A Call For Action There's power in storytelling- for the listener and the storyteller. A Rare Collection is a monthly series featuring people from the rare disease community, sharing a story with a comm...
Genomics England Clinical Lead for Genetic Counseling - Amanda Pichini
Once Upon A Gene - February 29, 2024 12:00 - 43 minutes ★★★★★ - 251 ratingsONCE UPON A GENE - EPISODE 219 Genomics England Clinical Lead for Genetic Counseling - Amanda Pichini Amanda Pichini is a genetic counselor from Genomics England, here to share their initiatives and mission. EPISODE HIGHLIGHTS What is your role at Genomics England and how did your career devel...
Bridging the Gap between Retreats and Online Classes with Laura Mendez Asbach [On-Air Coaching Call]
Yoga Teacher Resource Podcast - February 29, 2024 10:00 - 24 minutes ★★★★★ - 229 ratingsLaura reached out for help to increase enrollment in her online classes. Despite her success in drawing people to her global retreats, she struggles to fill her online series and workshops. In this conversation, we discuss strategies to improve sign-ups for online offerings. Some of the ideas we...
James G Robinson - More Than We Expected Author - Five Years with a Remarkable Child
Once Upon A Gene - February 22, 2024 12:00 - 53 minutes ★★★★★ - 251 ratingsONCE UPON A GENE - EPISODE 218 James G Robinson - More Than We Expected Author - Five Years with a Remarkable Child James Robinson is a dad and the author of More Than We Expected: Five Years With a Remarkable Child, a deeply moving book and a testament to the strength found in vulnerability, th...
More of Everything - How I Became a Better Parent to My Child With Extreme Special Needs By Lifting My Emotional Burdens With SYNGAP1 Mom - Janie Reade
Once Upon A Gene - February 15, 2024 13:39 - 51 minutes ★★★★★ - 251 ratingsONCE UPON A GENE - EPISODE 184 More of Everything - How I Became a Better Parent to My Child With Extreme Special Needs By Lifting My Emotional Burdens With SYNGAP1 Mom - Janie Reade Janie Reade is an author and mom to three adult sons, one with a severe neurodevelopmental disorder caused by a m...
Cueing, Demonstration, and Finding your Voice as a Teacher with Johanna [On Air Coaching Call]
Yoga Teacher Resource Podcast - February 15, 2024 10:00 - 42 minutes ★★★★★ - 229 ratingsJohanna is a new yoga teacher who struggles to lead her yoga class without physically practicing along with her students. Mado helps her unpack why she wants to develop this skill and provides simple strategies to build her ability to cue without practicing along with the class. Along the way, t...
Uniting Science and Hope - COMBINEDBrain and it's Quest to Transform Research and Treatment for Rare Genetic Neurodevelopmental Disorders with Terry Jo Bichell
Once Upon A Gene - February 08, 2024 12:00 - 55 minutes ★★★★★ - 251 ratingsONCE UPON A GENE - EPISODE 217 Uniting Science and Hope - COMBINEDBrain and its Quest to Transform Research and Treatment for Rare Genetic Neurodevelopmental Disorders with Terry Jo Bichell Terry Jo Bichell is a rare mom, neuroscientist and the founder of COMBINEDBrain, a nonprofit organization ...
The Art and Science of Teaching Yoga Online - Part 2 with Lily Dwyer Begg
Yoga Teacher Resource Podcast - February 01, 2024 10:00 - 56 minutes ★★★★★ - 229 ratingsTransitioning from in-person classes to online can shake up every aspect of your teaching. When Lily Dwyer Begg dove headfirst into this process, she found greater clarity in her voice and a blossoming creative potential in her teaching. In this episode, Lily shares advice for the art of teachin...
Soundtrack of Silence - Love, Loss, and a Playlist for Life with Neurofibromatosis Type 2 (NF2) Patient Advocate - Matt Hay
Once Upon A Gene - January 25, 2024 12:00 - 43 minutes ★★★★★ - 251 ratingsONCE UPON A GENE - EPISODE 216 Soundtrack of Silence - Love, Loss, and a Playlist for Life with Neurofibromatosis Type 2 (NF2) Patient Advocate - Matt Hay Matt Hay has a disorder called Neurofibromatosis type 2 (NF2) and how he has more than overcome the challenges that came with it— he has thri...
Beyond the Crossroads- Rebuilding and Reclaiming Identity After Sacrificing Careers for Caregiving with Emily Crawford
Once Upon A Gene - January 18, 2024 12:00 - 34 minutes ★★★★★ - 251 ratingsONCE UPON A GENE - EPISODE 215 Beyond the Crossroads- Rebuilding and Reclaiming Identity After Sacrificing Careers for Caregiving with Emily Crawford Emily Crawford left her lifelong dream job of being a teacher to surrender to the demands of care-giving. She joins me to discuss identity loss an...
The Art and Science of Teaching Yoga Online - Part 1 with Lily Dwyer Begg
Yoga Teacher Resource Podcast - January 18, 2024 10:00 - 49 minutes ★★★★★ - 229 ratingsLearn the nuts and bolts of setting up an online yoga studio. Despite describing herself as a 'Luddite', Lily started teaching online when in-person classes shut down during COVID. She found that online teaching allowed her to teach fewer classes, increase her income, and boost her creativity. I...
A Courageous Gift - The Power of Brain and Tissue Donation in Rare Disease Research with Anne Rugari
Once Upon A Gene - January 11, 2024 12:00 - 41 minutes ★★★★★ - 251 ratingsONCE UPON A GENE - EPISODE 214 A Courageous Gift - The Power of Brain and Tissue Donation in Rare Disease Research with Anne Rugari Anne Rugari is an advocating powerhouse, an author of two children's books, a mom, and two of her children have passed away from Krabbe disease. She joins us to sha...
Is Yoga Bad for Bendy People? with Dr. Libby Hinsley
Yoga Teacher Resource Podcast - January 11, 2024 10:00 - 42 minutes ★★★★★ - 229 ratingsEver been told that hypermobile people shouldn’t practice yoga? Yoga is not bad for bendy people, but there are different considerations for people with hypermobile joints. Dr. Libby Hinsley, author of Yoga for Bendy People joins us to debunk some myths and talk about the ways that yoga is amazi...
Finding Strength In Every Step
Once Upon A Gene - January 08, 2024 12:00 - 17 minutes ★★★★★ - 251 ratingsAs a new parent of a child with a rare genetic syndrome, I was lost. There was no guide. There was no rulebook. This was not what I had imagined. As I navigated my way through this new reality, I realized something that should have been simple, but was not. A truth that had always been there, but...
How & Why to Eliminate Fear Based Language in Yoga Class with Dr. Libby Hinsley
Yoga Teacher Resource Podcast - January 04, 2024 10:00 - 38 minutes ★★★★★ - 229 ratingsHave you heard of “nocebic” language? Learn the way our brains react to expectations, why it’s important to notice fear based language and how to transform your words to empower your students. Episode Highlights: How to help your students feel confident and inspired to be in charge of thei...
Yoga & Self-Massage with Dr. Libby Hinsley
Yoga Teacher Resource Podcast - December 28, 2023 10:00 - 48 minutes ★★★★★ - 229 ratingsLearn how to incorporate self-massage into your own yoga practice and your yoga classes to build awareness, familiarize yourself with sensation and guide your nervous system toward relaxation. EPISODE HIGHLIGHTS: What you need to know before bringing self-massage into your classes Sequenc...
The Megadata of Lake Mendota - Part 3: Boating Out to David Buoy
Genome Insider - December 21, 2023 12:00 - 24 minutesThis is the third and final episode of our series on a giant metagenome assembly from Wisconsin’s Lake Mendota. In the last two episodes, we’ve covered the specialized software and supercomputers behind this project. But every part of this project depends on lakewater samples — so this episode i...
Pain Points on the Disorder Channel with Daniel DeFabio and Bo Bigelow -This Festivus, Let the Airing of Grievances Begin
Once Upon A Gene - December 21, 2023 12:00 - 11 minutes ★★★★★ - 251 ratingsONCE UPON A GENE - EPISODE 212 Special pop up episode from our friends Daniel DeFabio and Bo Bigelow from the Disorder Channel - Pain Points https://www.rarediseasefilmfestival.com/ www.thedisordercollection.com https://www.facebook.com/rarediseasefilmfestival https://www.instagram.com/disorderr...
Q&A with Dr. Libby Hinsley
Yoga Teacher Resource Podcast - December 21, 2023 10:00 - 46 minutes ★★★★★ - 229 ratingsMado and Dr. Libby Hinsley, physical therapist and yoga therapist, address questions for yoga teachers who are curious about anatomy and biomechanics and how they apply to specific poses. EPISODE HIGHLIGHTS: The best approach for learning anatomy How to craft a class that is helpful for t...
The Juggle is Real - Navigating Parenthood and Rare Disease Leadership with Kim Nye and Mike Graglia
Once Upon A Gene - December 14, 2023 12:00 - 49 minutes ★★★★★ - 251 ratingsONCE UPON A GENE - EPISODE 211 The Juggle is Real - Navigating Parenthood and Rare Disease Leadership with Kim Nye and Mike Graglia Rare disease parents and front line advocates, Kim Nye and Mike Graglia, join this episode for a discussion about the unseen struggles of rare disease parenthood an...
Partnerships & Collaborations with Mado Hesselink and Dr. Libby Hinsely
Yoga Teacher Resource Podcast - December 14, 2023 10:00 - 43 minutes ★★★★★ - 229 ratingsCollaborating with other yoga teachers can be inspiring and fun - but it can also be a big disaster. Get a behind-the-scenes look at what makes a collaboration successful, when you should partner with someone on a project, and how to choose the right person to collaborate with. EPISODE HIGHL...
GeneDX - A Genetic Diagnosis Matters with Gay Grossman and Paul Kruszka
Once Upon A Gene - December 08, 2023 12:00 - 45 minutes ★★★★★ - 251 ratingsONCE UPON A GENE - EPISODE 210 GeneDX - A Genetic Diagnosis Matters with Gay Grossman and Paul Kruszka If you're passionate about the evolving landscape of genetic testing, this episode is for you. Gay Grossman, Patient Advocacy & Engagement Lead, and Paul Kruszka, Chief Medical Officer, are a w...
The Megadata of Lake Mendota - Part 2: Souped Up Computing
Genome Insider - December 07, 2023 12:00 - 22 minutesThis series is the story of a giant metagenome assembly from Wisconsin’s Lake Mendota. In this episode: a look at the supercomputing that stitches together large datasets with the assembler program MetaHipMer2. Oak Ridge National Lab is home to two supercomputers — Summit and Frontier — that pr...
Hypermobility & Yoga with Dr. Libby Hinsley
Yoga Teacher Resource Podcast - December 07, 2023 10:00 - 41 minutes ★★★★★ - 229 ratingsDr. Libby Hinsley returns to the podcast to talk about joint hypermobility, how yoga affects bendy people differently from people with a more average range of motion, and how to best support those with hypermobile bodies in your yoga classes. EPISODE HIGHLIGHTS: Hallmarks of hypermobility ...
A Leap of Faith - Rare Disease Moms on the Bittersweet Joy of New Babies
Once Upon A Gene - November 30, 2023 12:00 - 40 minutes ★★★★★ - 251 ratingsONCE UPON A GENE - EPISODE 209 A Leap of Faith - Rare Disease Moms on the Bittersweet Joy of New Babies I'm joined by two new, rare moms, Emily and Katie, to discuss the topic of having additional children after you've had a child with a rare disease. EPISODE HIGHLIGHTS How did your experienc...
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