Latest Mitoaction Podcast Episodes
Interpreting Genetic Testing
Audio Podcast - September 13, 2013 21:03 - 1 hour ★★★★ - 23 ratingsLearn the nuts and bolts of interpreting today's genetic tests from Dr. Boles in this informative discussion. Dr. Boles is the scientific advisor for Courtagen Life Sciences and is also a practicing mitochondrial specialist at Children's Hospital Los Angeles.
EPI-743 Leighs Syndrome Trial Update April 2013
Audio Podcast - April 08, 2013 14:39 - 1 hour ★★★★ - 23 ratingsJoin MitoAction for An update from Edison Pharma on the Development of EPI-743
Get more from every doctor's appointment
Audio Podcast - March 01, 2013 20:09 - 1 hour ★★★★ - 23 ratingsIt's time to take charge of the many hours that we as patients and families spend in clinics, waiting rooms, hospitals, and healthcare provider offices. How can you get more out of every appointment? More importantly, how can you get what you need from those interactions?
Parents, Stress and Coping with Mitochondrial Disease
Audio Podcast - February 01, 2013 20:45 - 1 hour ★★★★ - 23 ratingsJoin MitoAction in discussing how parents can cope with the stress from Mitochondrial disease.
2013 Mito Town Meeting
Audio Podcast - January 04, 2013 20:24 - 1 hour ★★★★ - 23 ratingsListen in as we discuss all that's happening in 2013 in our Mito Town Meeting.
Sick Protocol for Mito Patients with Dr. Korson
Audio Podcast - December 07, 2012 18:53 - 1 hour ★★★★ - 23 ratingsJoin Mitoaction to discuss sick protocols for Mito patients with Dr. Korson.
Exercise and Physical Therapy
Audio Podcast - November 05, 2012 16:55 - 1 hour ★★★★ - 23 ratingsDiscuss exercise and physical therapy for children, teens and adults with mitochondrial disease with MitoAction and Kimberly Serra.
Edison Pharma EPI-743 Clinical Trial Meeting
Audio Podcast - October 08, 2012 15:10 - 1 hour ★★★★ - 23 ratingsListen to the Edison Pharma EPI-743 clinical trial meeting.
Education and School Advocacy Tips, with Cristy Balcells and Kirsten Casale
Audio Podcast - September 07, 2012 18:28 - 1 hour ★★★★ - 23 ratingsListen to Cristy Balcells and Kirsten Casale discuss Education and School Advocacy Tips.
Genetics, Genomics and Mitochondrial DNA Testing
Audio Podcast - August 03, 2012 19:19 - 1 hour - application/octet-stream ★★★★ - 23 ratingsJoin MitoAction and Dr. Richard Boles from Children's Hospital Los Angeles and Courtagen Life Sciences, Inc to discuss the following questions: What is genomic sequencing and how does it change testing for mitochondrial disorders?, Is NextGen testing appropriate for all people with suspected mito...
Mito, Autism and Cerebral Folate Deficiency
Audio Podcast - June 01, 2012 21:01 - 1 hour ★★★★ - 23 ratingsJoin MitoAction this month with Dr. Richard Frye, MD PhD, Director of Autism Research and Associate Professor of Pediatrics at Arkansas Children's Hospital
9 Tips to Ensure Your Insurer Pays Up
Audio Podcast - May 22, 2012 13:53 - 46 minutes ★★★★ - 23 ratingsJoin us this month as we discuss strategies for advocating for the diagnosis, management and treatment of your mitochondrial disease.
Interpreting Labs 101 with Dr Mark Korson
Audio Podcast - April 16, 2012 13:19 - 1 hour - application/octet-stream ★★★★ - 23 ratingsInterpreting Labs 101 with Dr. Mark Korson.
Practical Approaches to a Mito Diagnosis with Dr Richard Haas
Audio Podcast - March 02, 2012 19:28 - 1 hour - application/octet-stream ★★★★ - 23 ratingsPractical approaches to a Mito diagnosis with Dr. Richard Haas from the UCSD Mitochondrial and Metabolic Disease Center.
Advocating Responsibly and Communicating Effectively
Audio Podcast - February 03, 2012 21:39 - 1 hour ★★★★ - 23 ratingsAdvocating Responsibly and Communicating Effectively with Mannie Taimuty-Loomis, MA, LBS from Jonah & The Whale Foundation
2012 Mito Town Meeting
Audio Podcast - January 06, 2012 20:26 - 1 hour ★★★★ - 23 ratings2012 Mito Town Meeting with MitoAction members discussing activities, events and volunteer opportunities for 2012.
How do I know I have Mito?
Audio Podcast - November 04, 2011 19:12 - 1 hour - application/octet-stream ★★★★ - 23 ratingsDr. Kendall discusses how to figure out if you have Mito.
IV Hydration and Nutrition, Current topics with Thrive RX
Audio Podcast - October 07, 2011 20:02 - 58 minutes - application/octet-stream ★★★★ - 23 ratingsIV Hydration and Nutrition, Current topics with Thrive RX
Immunodeficiency Disorders and Mitochondrial Disease
Audio Podcast - September 02, 2011 17:55 - 52 minutes ★★★★ - 23 ratingsJoin MitoAction to discuss Immunodeficiency Disorders and Mitochondrial Disease with Dr. Susan Pacheco from Memorial Hermann Texas Medical Center Department of Pediatric Allergy and Immunology
Seizures, strokes and migraines with Dr Mary Kay Koenig
Audio Podcast - August 05, 2011 22:42 - 55 minutes ★★★★ - 23 ratingsSeizures, strokes and migraines with Dr Mary Kay Koenig
Dr Fran Kendall speaks about Mito-Autism
Audio Podcast - July 08, 2011 18:15 - 55 minutes - application/octet-stream ★★★★ - 23 ratingsDr Fran Kendall speaks about Mito-Autism: Diagnosis, Testing and Treatment.
Edison Pharma Question and Answer about EPI-743
Audio Podcast - June 16, 2011 20:02 - 1 hour - application/octet-stream ★★★★ - 23 ratingsEdison Pharma Question and Answer about EPI-743, emergency drug treatment protocol for mitochondrial disease with Dr. Guy Miller and Dr. Greg Enns
School and IEP advice for kids
Audio Podcast - June 15, 2011 13:39 - 21 minutes ★★★★ - 23 ratingsSchool and IEP advice for kids with Mito-Autism with Kirsten Casale, MitoAction Educational Advocate.
Service Dogs for Children and Adults with Mito
Audio Podcast - June 03, 2011 19:26 - 1 hour - application/octet-stream ★★★★ - 23 ratingsListen to the discussion with John Moon from NEADS.org about service dogs for children and adults with Mito.
Dysautonomia with Dr Boles
Audio Podcast - May 06, 2011 19:55 - 1 hour - application/octet-stream ★★★★ - 23 ratingsListen as we discuss Dysautonomia with Dr. Boles.
Mona Inocentes discusses IV Access
Audio Podcast - April 04, 2011 17:59 - 1 hour - application/octet-stream ★★★★ - 23 ratingsMona Inocentes discusses IV Access, Use and Complications with MitoAction.
Mito Diagnosis and Autism
Audio Podcast - March 14, 2011 20:51 - 1 hour ★★★★ - 23 ratingsAn informal discussion with Cristy Balcells on Mito diagnosis and Autism from our February 2011 Autism-Mito Support Meeting.
Sleep Disorders with Dr Weiss
Audio Podcast - March 04, 2011 21:39 - 1 hour ★★★★ - 23 ratingsMitoAction conference call with Dr Matthew Weiss discussing sleep disorders.
Genetics of Mitochondrial Disease
Audio Podcast - February 04, 2011 21:18 - 1 hour - application/octet-stream ★★★★ - 23 ratingsListen to the discussion on the genetics of mitochondrial disease with Nancy Slate.
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