Latest Mitoaction Podcast Episodes
Fatty Acid Oxidation Disorders
Audio Podcast - February 05, 2016 21:37 - 1 hour ★★★★ - 23 ratingsAreas of discussion include: * Do patients with mitochondrial defects also have the potential to have fatty acid oxidation defects? * How do disorders of metabolism such as FAOD and mitochondrial disease impact the body's ability to grow, develop and function? * What is the current focu...
2016 Mito Town Meeting
Audio Podcast - January 08, 2016 21:30 - 46 minutes ★★★★ - 23 ratingsUpdates from around the globe during the 2016 Mito Town Meeting.
Diet, Dysmotility, and Tube Feeding
Audio Podcast - December 04, 2015 20:10 - 1 hour ★★★★ - 23 ratingsMany children and adults with mitochondrial disease experience significant gastrointestinal or digestive issues as part of their daily disease challenges. When considering the pros and cons of a feeding tube and struggling to identify the best diet for dysmotility, many parents, patients and fami...
Mitochondrial myopathy with Dr. Bruce Cohen
Audio Podcast - November 20, 2015 19:55 - 1 hour ★★★★ - 23 ratingsJoin MitoAction and Dr. Bruch Cohen as we discuss Mitochondrial myopathy.
Mito-Autism Q&A and Parent/Patient Discussion of Mitochondrial Toxicity
Audio Podcast - October 13, 2015 12:01 - 1 hour ★★★★ - 23 ratingsMito-Autism Q&A and Parent/Patient Discussion of Mitochondrial Toxicity
Mitochondrial Disease and Toxins
Audio Podcast - October 05, 2015 13:17 - 1 hour ★★★★ - 23 ratingsMitochondrial dysfunction has been identified as an important factor in many diseases and conditions beyond primary mitochondrial disease, including autism, ALS, Parkinson's, Alzheimer's, and diabetes. Exposure to toxins via medication, lifestyle, and the environment may lead to mitochondrial dys...
Mito Supplement Therapy
Audio Podcast - September 10, 2015 00:27 - 1 hour ★★★★ - 23 ratingsWhat is "the Mito Cocktail"?Referring to the combination of vitamins and supplements used as therapies in the treatment and management of mitochondrial disease and mitochondrial dysfunction, the "Mito Cocktail" is unique to every patient. Join us with compounding pharmacist Ted Toufas PharmD RPh ...
Back to School Tips
Audio Podcast - August 31, 2015 17:59 - 1 hour ★★★★ - 23 ratingsIt's that time of year ... summer comes to a close and children everywhere are going back to school! While a relief for some families, going back to school can be stressful for parents of children with mitochondrial disease.
Social Security Disability Insurance (SSDI) and Supplemental Security Income (SSI) with Annette Hines, Esq. and Tai Venuti, MPH
Audio Podcast - August 07, 2015 20:22 - 1 hour ★★★★ - 23 ratingsOverview of SSI and SSDI programs;The differences between SSI and SSDI;Social Security’s definition of disability as it pertains to mitochondrial disease;How SSDI is designed to work, eligibility criteria, and the full range of SSDI benefitts;The application and appeals processes for SSI and SSDI;
Getting Involved: Awareness Walk & Events 2015
Audio Podcast - June 13, 2015 00:00 - 38 minutes ★★★★ - 23 ratingsJoin Mitoaction as we discuss how to get involved with the Awareness Walk & Events in 2015.
Basics of Estate Planning and Special Needs Trusts with special guest speaker Annette Hines, Esq.
Audio Podcast - June 01, 2015 23:45 - 1 hour ★★★★ - 23 ratingsPlease join MitoAction as we welcome Annette Hines, Esq., founding partner of the Special Needs Law Group of Massachusetts. Ms. Hines will be speaking on the basics of estate planning and special needs trusts laws in the U.S.
Cannabis oil to treat mitochondrial disease
Audio Podcast - May 17, 2015 22:54 - 1 hour ★★★★ - 23 ratingsDr. Fran Kendall gives the answers to these questions and more regarding the use of medical marijuana (cannabis oil) for treatment in mitochondrial disease patients.What is the historical use of marijuana for medical purposes? Are there legalities associated with medical marijuana use? When is me...
Consensus criteria from the mitochondrial medicine society with Dr Parikh
Audio Podcast - March 06, 2015 20:27 - 1 hour ★★★★ - 23 ratings
Stealth BT mitochondrial myopathy trial
Audio Podcast - February 18, 2015 13:27 - 53 minutes ★★★★ - 23 ratingsJoin us with Stealth BioTherapeutics CEO Travis Wilson and others from the Stealth BT team for a live update from Stealth BT, information about Bendavia, and details about StealthBioTherapeutics' 2015 mitochondrial myopathy clinical trial.
2015 Mito Town Meeting
Audio Podcast - January 10, 2015 00:23 - 1 hour ★★★★ - 23 ratingsThe annual town meeting is our way of kicking off the new year by sharing all that is planned for the next 12 months. We'll hear from organizations, camps, and companies around the globe that have special opportunities, programs, and projects for patients and families with mitochondrial disease. ...
Complex Medical Needs and Medical Child Abuse Accusations
Audio Podcast - December 13, 2014 01:40 - 1 hour ★★★★ - 23 ratingsMitochondrial disorders are characterized by complex presentation of multiple symptoms. Due to a variety of factors, including heterogenity of the disease, erratic symptom presentation and general lack of awareness about the condition, families with mitochondrial disease are more often faced with...
PDCD (Pyruvate Dehydrogenase Complex Deficiency)
Audio Podcast - November 11, 2014 04:16 - 1 hour ★★★★ - 23 ratings
Psychiatric Disorders in Mitochondrial Diseases
Audio Podcast - October 03, 2014 19:14 - 56 minutes ★★★★ - 23 ratings
2014 Mito Awareness Rally
Audio Podcast - September 06, 2014 13:13 - 1 hour ★★★★ - 23 ratingsJoin us as we kick off a month of mito awareness!
Immune Function and Mitochondrial Disease
Audio Podcast - August 01, 2014 19:50 - 55 minutes ★★★★ - 23 ratings
MitoAction: Medical Ethics and Patient Rights (Audio Only)
Audio Podcast - April 12, 2014 01:50 - 1 hour ★★★★ - 23 ratings
Hearing Loss in Mitochondrial Disease
Audio Podcast - April 04, 2014 18:48 - 1 hour ★★★★ - 23 ratings
Edison Pharma’s partnership offers hope for Mito community
Audio Podcast - February 08, 2014 22:03 - 1 hour ★★★★ - 23 ratings
Helping Your Child Become Independent
Audio Podcast - December 07, 2013 02:44 - 1 hour ★★★★ - 23 ratingsHelping Your Child Become Independent with Dr. Paraq Shah and Ann Weaver
Creatine deficiency and supplementation, with Dr. Joseph Clark
Audio Podcast - November 01, 2013 19:42 - 1 hour ★★★★ - 23 ratings
EPI-743 Clinical Trial Update October 2013
Audio Podcast - October 25, 2013 16:49 - 1 hour ★★★★ - 23 ratings
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