Latest Mitoaction Podcast Episodes
Frye - Primary Mitochondrial Disease
Audio Podcast - April 15, 2019 14:14 - 1 hour ★★★★ - 23 ratings
Dr. Peter McGuire - Mito & Immune Systems
Audio Podcast - October 05, 2018 21:25 - 1 hour ★★★★ - 23 ratings
Dr. Amel Karaa - MMS Standards of Care
Audio Podcast - September 13, 2018 22:50 - 1 hour ★★★★ - 23 ratings
Dr. Doug Wallace discusses Mitochondrial Genetics and Disease
Audio Podcast - June 03, 2018 18:49 - 1 hour ★★★★ - 23 ratings
Dr. Boles - The Spectrum of Medical Child Abuse and What is Happening Across the Country?
Audio Podcast - May 07, 2018 20:13 - 1 hour ★★★★ - 23 ratings
Dr. Koenig - The Evolution of Leigh Syndrome
Audio Podcast - March 13, 2018 21:07 - 1 hour ★★★★ - 23 ratings
Dr. Kendall Discusses "Is It Really Mito?:"
Audio Podcast - February 20, 2018 02:22 - 1 hour ★★★★ - 23 ratingsDr. Fran Kendall of VMP Genetics discusses "Is it really Mito? When an alternative diagnosis should be considered."Talking points include:Clinical red flags that suggest an alternative diagnosis should be considered;Why that option should be entertained;Tools utilized to reanalyze patients classi...
Medical Care: What Approach Works for You?
Audio Podcast - December 08, 2017 21:56 - 53 minutes ★★★★ - 23 ratings
What You Should Know About Genetic Testing for Mitochondrial Disorders
Audio Podcast - November 03, 2017 17:51 - 1 hour ★★★★ - 23 ratings
How Enteric Microbiome Modulates Mitochondrial Function
Audio Podcast - September 22, 2017 20:37 - 1 hour ★★★★ - 23 ratings
Mitochondrial Replacement Therapy
Audio Podcast - April 24, 2017 15:42 - 57 minutes ★★★★ - 23 ratings
Mitochondria and MitoQ: A Research Update
Audio Podcast - March 06, 2017 16:52 - 1 hour ★★★★ - 23 ratingsMitoQ's mission is to raise awareness of mitochondria and the link between optimal mitochondria function, health, and longevity.
Managing the Day-to-Day of Mitochondrial Disease
Audio Podcast - February 17, 2017 18:11 - 1 hour ★★★★ - 23 ratingsManaging the Day- to-Day of Mitochondrial Disease, a MitoAction presentation for ThriveRx Day-to-Day Management of Mitochondrial Disease from mitoaction
Mito-autism support group call and discussion of PANDAS, Jan 2017
Audio Podcast - January 17, 2017 20:54 - 1 hour ★★★★ - 23 ratingsMito-autism support group call and discussion of PANDAS, Jan 2017
2017 Mito Town Meeting
Audio Podcast - January 06, 2017 19:40 - 1 hour ★★★★ - 23 ratingsThe annual town meeting is our way of kicking off the new year by sharing all that is planned for the next 12 months. We'll hear from organizations, camps, and companies around the globe that have special opportunities, programs, and projects for patients and families with mitochondrial disease.
Exercise and nutrition therapy for mitochondrial disease
Audio Podcast - December 02, 2016 19:41 - 1 hour ★★★★ - 23 ratingsDr. Tarnopolsky, Professor of Pediatrics and Medicine, President and CEO, Exerkine Corporation, and Director of Neuromuscular and Neurometabolic Clinic at McMaster University Medical Center, will discuss the theory and practical issues with endurance and resistance exercise therapy; general nutri...
Getting Through the Day with Mito
Audio Podcast - November 04, 2016 19:56 - 1 hour ★★★★ - 23 ratingsGetting Through the Day with Mito: Treatments, Supplements, and Humor
Molecular diagnostic testing for mitochondrial disorders
Audio Podcast - October 11, 2016 15:28 - 1 hour ★★★★ - 23 ratingsDr. Adams, Medical Director of the Goryeb Children’s Hospital Genetics and Metabolism Division in addition to the Personalized Genomic Medicine Program at Atlantic Health System in Morristown, NJ, will: Explore gene testing and discuss the rationale for using it as first-line testing.Review tradi...
Medical Homes
Audio Podcast - August 05, 2016 19:59 - 1 hour ★★★★ - 23 ratingsTopics include:The importance of a medical home for a mitochondrial disease patient.Definition of a medical home.How to establish a medical home.Why a medical home is an essential component of good patient advocacy.Tips on maintaining a healthy medical home relationship.Ms. Wees will describe the...
Extended School Year and Summer Camp Planning with Annette Hines, Esq.
Audio Podcast - April 20, 2016 20:39 - 1 hour ★★★★ - 23 ratingsSummertime is a time of changed routines for many Mito families. Camp programs, such as those supported by the Matthew Harty Camper Fund, provide special opportunities for children with mitochondrial disease. Mitochondrial disease patients often qualify for and benefit from extended school year ...
Mitochondrial Medicine Society update 2016
Audio Podcast - April 03, 2016 17:09 - 1 hour ★★★★ - 23 ratingsDr. Amy Goldstein provides an update on the Mitochondrial Medicine Society.Areas of discussion include: Transplantation in Mito patientsStroke protocol for MELASStandards of care for Mito patientsCenters of Excellence and the need for community involvement/input
Incapacity Planning and Guardianship
Audio Podcast - March 31, 2016 11:34 - 1 hour ★★★★ - 23 ratingsAs patients or caregivers, it is frightening to think about what would happen if we could not advocate for ourselves. Fortunately, there are legal documents that can be used to communicate our wishes under such circumstances. This type of legal preparation is called incapacity planning and guar...
NORD Public Policy Team
Audio Podcast - March 04, 2016 21:23 - 1 hour ★★★★ - 23 ratingsPlease join MitoAction this month for a conversation with the public policy team for the National Organization for Rare Disorders (NORD).
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