Latest Immunodeficiency Podcast Episodes
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How to Stay Positive and Refuse to Let Your Illness Define You
IG Living Advocate Podcast - March 29, 2024 17:00 - 30 minutesIn this episode, we will discuss how to stay positive and refuse to let your illness define you. Today, we have as our guest speaker Debbie Konrad. Debbie is a cancer survivor and common variable immunodeficiency (CVID) patient who refuses to allow chronic conditions to limit or define her. Deb...
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How to Stay Positive and Refuse to Let Your Illness Define You
IG Living Advocate Podcast - March 29, 2024 17:00 - 30 minutes ★★★★ - 3 ratingsIn this episode, we will discuss how to stay positive and refuse to let your illness define you. Today, we have as our guest speaker Debbie Konrad. Debbie is a cancer survivor and common variable immunodeficiency (CVID) patient who refuses to allow chronic conditions to limit or define her. Deb...
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Policy and Health Unveiled: Navigating the Nexus of Politics, Health Care and Chronic Illness
IG Living Advocate Podcast - December 29, 2023 16:00 - 28 minutes ★★★★ - 3 ratingsIn this episode, we will discuss the intersection between politics, healthcare and chronic illness. Today, we have guest speaker Peggy Tighe. Peggy is a prominent figure in healthcare policy and lobbying. With a juris doctorate degree from Delaware Law and a bachelor of arts from Wittenberg Uni...
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Policy and Health Unveiled: Navigating the Nexus of Politics, Health Care and Chronic Illness
IG Living Advocate Podcast - December 29, 2023 16:00 - 28 minutesIn this episode, we will discuss the intersection between politics, healthcare and chronic illness. Today, we have guest speaker Peggy Tighe. Peggy is a prominent figure in healthcare policy and lobbying. With a juris doctorate degree from Delaware Law and a bachelor of arts from Wittenberg Uni...
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From Plasma to Healing: The Intricate Journey of Producing Immune Globulin Medications
IG Living Advocate Podcast - September 15, 2023 17:00 - 21 minutesIn this episode, we will discuss the intricate process of producing immune globulin products, hereafter referred to as IG products. Today, we have guest speaker Keith Berman. Keith has worked in the plasma therapeutics and blood therapies industry in a career spanning over three decades. He hol...
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From Plasma to Healing: The Intricate Journey of Producing Immune Globulin Medications
IG Living Advocate Podcast - September 15, 2023 17:00 - 21 minutes ★★★★ - 3 ratingsIn this episode, we will discuss the intricate process of producing immune globulin products, hereafter referred to as IG products. Today, we have guest speaker Keith Berman. Keith has worked in the plasma therapeutics and blood therapies industry in a career spanning over three decades. He hol...
![IG Living Advocate Podcast artwork](https://is4-ssl.mzstatic.com/image/thumb/Podcasts125/v4/a6/7e/11/a67e1102-d0c4-9dd5-b272-cbf291b4df6d/mza_561901330726983995.jpg/100x100bb.jpg)
Advocacy Versus Self-Advocacy
IG Living Advocate Podcast - June 09, 2023 15:00 - 28 minutesIn this episode, we will discuss the differences between the role of patient advocacy and self-advocacy. Today, we have guest speaker Megan Ryan. Megan is a 1998 graduate of Texas A&M University where she earned a Bachelor's of Business Administration in business analysis and business honors aft...
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Advocacy Versus Self-Advocacy
IG Living Advocate Podcast - June 09, 2023 15:00 - 28 minutes ★★★★ - 3 ratingsIn this episode, we will discuss the differences between the role of patient advocacy and self-advocacy. Today, we have guest speaker Megan Ryan. Megan is a 1998 graduate of Texas A&M University where she earned a Bachelor's of Business Administration in business analysis and business honors aft...
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P.I. and Allergies
IG Living Advocate Podcast - February 23, 2023 18:00 - 25 minutes ★★★★ - 3 ratingsToday, we have guest speaker Dr. Brett Kettelhut. Dr. Kettelhut is board certified in pediatrics, allergy and immunology. He is currently practicing allergy and immunology at Boys Town, Neb., and is an adjunct clinical professor in the College of Medicine at the University of Nebraska Medical Ce...
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P.I. and Allergies
IG Living Advocate Podcast - February 23, 2023 18:00 - 25 minutesToday, we have guest speaker Dr. Brett Kettelhut. Dr. Kettelhut is board certified in pediatrics, allergy and immunology. He is currently practicing allergy and immunology at Boys Town, Neb., and is an adjunct clinical professor in the College of Medicine at the University of Nebraska Medical Ce...
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The Road to Diagnosis
IG Living Advocate Podcast - November 30, 2022 16:00 - 14 minutes ★★★★ - 3 ratingsThis podcast is brought to you by IG Living magazine to give readers an opportunity to hear from healthcare experts on topics important to them. In this episode, we will be talking about one of the most important steps in patients’ journeys to diagnosis: their primary care doctor! Today, we ha...
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The Road to Diagnosis
IG Living Advocate Podcast - November 30, 2022 16:00 - 14 minutesThis podcast is brought to you by IG Living magazine to give readers an opportunity to hear from healthcare experts on topics important to them. In this episode, we will be talking about one of the most important steps in patients’ journeys to diagnosis: their primary care doctor! Today, we ha...
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Issues Geriatric Primary Immunodeficiency Patients Face When Accessing Care
IG Living Advocate Podcast - July 15, 2022 20:00 - 32 minutesIn this episode, Abbie Cornett will be talking about the issues geriatric primary immunodeficiency patients face when accessing care. Support the Show.
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Issues Geriatric Primary Immunodeficiency Patients Face When Accessing Care
IG Living Advocate Podcast - July 15, 2022 20:00 - 32 minutes ★★★★ - 3 ratingsIn this episode, Abbie Cornett will be talking about the issues geriatric primary immunodeficiency patients face when accessing care. Support the Show.
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Ep 13: Final Thoughts
Slice of PI - May 27, 2022 04:00 - 18 minutesIn the season finale for season 2, Andrea shares her final thoughts as well as reflects on the past episodes.
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Trailer S2: Episode 13
Slice of PI - May 20, 2022 04:00 - 1 minuteTake a listen to what is coming up in the final episode of "Slice of PI" season 2.
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Episode 12: Self Care, Parenting and Fun
Slice of PI - May 13, 2022 04:00 - 50 minutesIn the penultimute episode, Andrea looks at the importance of self-care, parenting and fun. Experts this week are mental health worker, Bryan Curley and father to an ADA SCID daughter, Jeff.
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Trailer S2: E12
Slice of PI - May 09, 2022 16:00 - 1 minuteTake a listen to Friday's episode where Andrea will discuss the importance of self-care, parenting and fun. Experts this week are mental health worker, Bryan Curley and father to an ADA SCID daughter, Jeff.
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Episode 11: The Impact of Foundations
Slice of PI - April 29, 2022 04:00 - 40 minutesThis week, Andrea looks at the impact of foundations, the role organizations play when it comes to support for patients and families with PI. Guests this week: Heather Smith from SCID Angels for Life and patient and parent, Martine Allard.
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Trailer: Episode 11
Slice of PI - April 22, 2022 04:00 - 1 minuteTake a listen to next week's episode where Andrea discusses the important role that foundations play for families and patients with PI.
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Ep 10: Resilience, Fight and Bravery
Slice of PI - April 15, 2022 04:00 - 35 minutesThis week Andrea explores how we can transform our journey through creativity and other ways to give back. Special guests this week: Expert: Luz Adriana Manozca and paren, Funda Eyupoglu.
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Trailer: Episode 10
Slice of PI - April 05, 2022 16:00 - 1 minuteTake a quick glimpse at Friday's episode where Andrea explores ways to give back throughout your journey and how you can transform your journey through creativity.
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Episode 9: Making the Transition
Slice of PI - April 01, 2022 04:00 - 36 minutesThis week, Andrea looks at the complexities and challenges surrounding the important topic that is "transition". Every child will eventually transition out of pediatric care into adult care. However, parents will also have to transition. What does that look like for both the youth and the parent...
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Trailer: Episode 9
Slice of PI - March 21, 2022 04:00 - 1 minuteTake a listen at what is coming up next week when Andrea looks at the challenge and complexities of transition from pediatric to adult care.
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Episode 8: Enzyme Replacement Therapy
Slice of PI - March 18, 2022 04:00 - 44 minutesThis week Andrea talks to experts about the interesting and often unknown option of enzyme replacement therapy for ADA SCID. Guests this week are Dr. Eyal Grunebaum of SickKids Hospital in Toronto and mother Monica Nava.
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IG Infusions in the Home Setting
IG Living Advocate Podcast - March 11, 2022 16:00 - 22 minutes ★★★★ - 3 ratingsSupport the Show.
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IG Infusions in the Home Setting
IG Living Advocate Podcast - March 11, 2022 16:00 - 22 minutesSupport the Show.
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Trailer: Episode 8
Slice of PI - March 11, 2022 05:00 - 1 minuteTake a quick listen to what Andrea has in store for next week's episode!
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Episode 7: Gene Therapy
Slice of PI - March 04, 2022 05:00 - 42 minutesThis week Andrea looks at the important topic of gene therapy, the amazing advances made over the past two decades, the legacy of PI patients and what is on the horizon. Special expert guests this week include Dr. Donald Kohn and Alyssa Vaccaro.
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Trailer: Episode 7
Slice of PI - March 03, 2022 21:00 - 1 minuteTake a listen to episode 7 where Andrea looks at gene therapy.
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