Slice of PI
42 episodes - English - Latest episode: almost 2 years ago -A podcast by and for patients living with primary immunodeficiency (PI). “A Slice of PI” explores the diverse experiences of people living with PI through reflexive investigation of the social and emotional well-being of people living with these diseases. This podcast speaks to the complexities that come with living with PI and intends to highlight strategies for cultivating a meaningful life. Each episode, join host Bryan as he sits with patients and experts alike to explore topics surrounding the lived experience of PI.
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Episodes
Ep 13: Final Thoughts
May 27, 2022 04:00 - 18 minutes - 12.6 MBIn the season finale for season 2, Andrea shares her final thoughts as well as reflects on the past episodes.
Trailer S2: Episode 13
May 20, 2022 04:00 - 1 minute - 721 KBTake a listen to what is coming up in the final episode of "Slice of PI" season 2.
Episode 12: Self Care, Parenting and Fun
May 13, 2022 04:00 - 50 minutes - 34.4 MBIn the penultimute episode, Andrea looks at the importance of self-care, parenting and fun. Experts this week are mental health worker, Bryan Curley and father to an ADA SCID daughter, Jeff.
Trailer S2: E12
May 09, 2022 16:00 - 1 minute - 721 KBTake a listen to Friday's episode where Andrea will discuss the importance of self-care, parenting and fun. Experts this week are mental health worker, Bryan Curley and father to an ADA SCID daughter, Jeff.
Episode 11: The Impact of Foundations
April 29, 2022 04:00 - 40 minutes - 28.1 MBThis week, Andrea looks at the impact of foundations, the role organizations play when it comes to support for patients and families with PI. Guests this week: Heather Smith from SCID Angels for Life and patient and parent, Martine Allard.
Trailer: Episode 11
April 22, 2022 04:00 - 1 minute - 721 KBTake a listen to next week's episode where Andrea discusses the important role that foundations play for families and patients with PI.
Ep 10: Resilience, Fight and Bravery
April 15, 2022 04:00 - 35 minutes - 24.2 MBThis week Andrea explores how we can transform our journey through creativity and other ways to give back. Special guests this week: Expert: Luz Adriana Manozca and paren, Funda Eyupoglu.
Episode 9: Making the Transition
April 01, 2022 04:00 - 36 minutes - 25.2 MBThis week, Andrea looks at the complexities and challenges surrounding the important topic that is "transition". Every child will eventually transition out of pediatric care into adult care. However, parents will also have to transition. What does that look like for both the youth and the parent? Guests this week Dr. Catherine Biggs from BC Children's Hospital and parent Margaret Jurocko.
Episode 8: Enzyme Replacement Therapy
March 18, 2022 04:00 - 44 minutes - 30.4 MBThis week Andrea talks to experts about the interesting and often unknown option of enzyme replacement therapy for ADA SCID. Guests this week are Dr. Eyal Grunebaum of SickKids Hospital in Toronto and mother Monica Nava.
Episode 7: Gene Therapy
March 04, 2022 05:00 - 42 minutes - 28.9 MBThis week Andrea looks at the important topic of gene therapy, the amazing advances made over the past two decades, the legacy of PI patients and what is on the horizon. Special expert guests this week include Dr. Donald Kohn and Alyssa Vaccaro.
Episode 6: Stem Cell Donation
February 18, 2022 05:00 - 38 minutes - 26.7 MBThis week Andrea discusses the importance of stem cell donation with special guests, expert Mai Duong from Swab the World and parent advocate Dawn Shirley.
Trailer: Episode 6
February 14, 2022 15:00 - 1 minute - 720 KBTake a sneaky listen to what is coming up in next week's episode where Andrea looks at stem cell donation.
Episode 5: Plasma
February 04, 2022 05:00 - 32 minutes - 22.3 MBYou won't want to miss this episode where Andrea talks to Canadian Blood Services and parent Megan Waghorn around the importance of that "liquid gold" in our blood that is used turned into treatment for immune deficiencies.
Trailer: Episode 5
January 24, 2022 05:00 - 59 seconds - 712 KBTake a listen at what is coming up the next episode where Andrea looks at plasma - the raw ingredient that makes up immunoglobulin (IG).
Episode 4: Medical Trauma
January 21, 2022 05:00 - 38 minutes - 26.3 MBThis week Andrea discusses medical trauma with guests, parent Linda Skeries and child life specialist at Stollery Hospital in Edmonton, Alberta, Stephanie Wanner.
Trailer: Episode 4
January 10, 2022 17:00 - 59 seconds - 713 KBTake a sneaky listen to what's coming up in the next episode of "Slice of PI" where Andrea looks at medical trauma.
Episode 3: The Diagnosis
January 07, 2022 05:00 - 33 minutes - 23.1 MBIn this episode, host and mom, Andrea, looks at the receiving the diagnois what this means and what the process of the diagnosis entails. She talks with another mother of a child with Severe Combined Immune Deficiency (SCID), Barbara Drayton, whose son was the first baby to be diagnosed through Canada's first SCID newborn screening program in Ontario.
Trailer Episode 3
January 04, 2022 18:00 - 59 seconds - 713 KBListen to a preview from Friday's episode where host Andrea talks about the diagnosis and all that entails.
Episode 2: SCID Newborn Screening
December 14, 2021 19:00 - 34 minutes - 24 MBS02:E02 In this season's 2nd episode, we look at SCID Newborn Screening, a potentially life-saving test for babies that identifies the primary immunodeficiency, Severe Combined Immune Deficiency (SCID). This week's guests are: Dr. Nicola Wright from Alberta Children's Hospital and Ian Cowie, a father of a child living with SCID.
Trailer: Episode 2
December 06, 2021 05:00 - 59 seconds - 713 KBTake a listen for what's in store next week on "Slice of PI" when Andrea talks to guests Dr. Nicola Wright and parent Ian Cowie about newborn screening for SCID.
Introducing Andrea
December 03, 2021 05:00 - 27 minutes - 19 MBWelcome to Season 2 of "Slice of PI"! In this introductory episode, you meet your host for the season, Andrea. Andrea is a mom of a small child who was diagnosed at birth with a primary immunodeficiency, Severe Combined Immune Deficiency (SCID). Listen as she gives an overview of what is in store for this season and tells you a little about her story.
Season 2 Trailer 1
November 19, 2021 05:00 - 59 seconds - 713 KBWe're back for season 2! Meet your new host Andrea in this trailer for the next season of Slice of PI which starts on December 3rd.
Season Finale: Episode 10
April 23, 2021 19:00 - 27 minutes - 19 MBIn the finale to Slice of PI, Bryan reflects on his journey over the course of the series, his encounters with others living with primary immunodeficiency and how this has impacted his view. He shares his thoughts for the future as well!
Trailer: Episode 10
April 07, 2021 21:00 - 1 minute - 721 KBIn this trailer of next week's series finale, Bryan, reflects on the journey that was "Slice of PI" and what takeaways he has been given through the voices of his many guests and the feedback he has received.
Trailer: Episode 10
April 07, 2021 21:00 - 1 minute - 721 KBIn this trailer of next week's series finale, Bryan, reflects on the journey that was "Slice of PI" and what takeaways he has been given through the voices of his many guests and the feedback he has received.
Episode 9: COVID-19
April 02, 2021 04:00 - 36 minutes - 25.1 MBIn the penultimate episode to series 1, Bryan is joined again by guest Tara (ep.4, Travel) to discuss the impact of the COVID-19 on the primary immunodeficiency community. Listen as two primary immunodeficiency patients explore the past year of this pandemic.
Trailer: Episode 9
March 22, 2021 16:00 - 1 minute - 721 KBIn our penultimate episode, Bryan is again joined by Tara (Travel Episode) and the two discuss how the COVID pandemic has affected them as PI patients. Take a listen to next week's episode!
Episode 8: Post Secondary
March 19, 2021 04:00 - 37 minutes - 26 MBThis week Bryan is joined by Safira and two delve deep discussing the world of post-secondary education while living with primary immunodeficiency.
Trailer: Episode 8
March 12, 2021 16:00 - 1 minute - 721 KBTake a listen at what is coming up in next week's episode when Bryan is joined by Safira to talk about education.
Episode 7: Retirement
March 05, 2021 05:00 - 34 minutes - 23.7 MBThis week Bryan is joined by guest, Jan, an older patient living with PI. Jan and Bryan discuss navigating retirement and how PI affects the decisions and planning for older age. A must listen episode!
Trailer: Episode 7
February 23, 2021 17:00 - 1 minute - 759 KBHave a sneaky listen to next week's episode, where Bryan talks to Jan. They discuss retirement and older age. Is it possible to enjoy retirement while living with PI? Will you be able to do all the things you had planned?
Episode 6: Employment
February 19, 2021 05:00 - 37 minutes - 25.5 MBThis week Bryan talks with Tonya, an fellow patient about navigating the world of employment while living with immunodeficiency. This is a tricky subject for many of us, and one you will not want to miss out on.
Episode 5: Dating & Relationships
February 05, 2021 05:00 - 39 minutes - 27 MBThis week, Nicole is back chatting to Bryan about dating. Tune in and listen as they discuss the world of relationships while living with immunodeficiency. This is definitely an episode not to be missed!
Trailer - Episode 5
January 29, 2021 18:00 - 1 minute - 759 KBTake a peek at next week's episode! Nicole is back talking to Bryan about navigating dating while living with immunodeficiency.
Episode 4: Travel
January 22, 2021 05:00 - 37 minutes - 25.7 MBIn this episode Bryan is joined by Tara, a CVID patient who loves to travel! Join Tara and Bryan as they discuss what having a primary immunodeficiency means in regards to travelling, and what we can do to protect ourselves and be better prepared on the road.
Trailer - Episode 4
January 13, 2021 21:00 - 53 seconds - 643 KBTake a quick listen to what's coming up in next week's episode when Bryan is joined by Tara, a CVID patient, who loves to... travel!
Trailer - Episode 3
January 04, 2021 17:00 - 53 seconds - 643 KBIn this peek at Ep. 3 Bryan talks to Kristina about first infusions. Don't miss the full episode on Friday, January 8!
First Infusions
January 04, 2021 17:00 - 39 minutes - 27.1 MBIn episode 3, Bryan talks to Kristina, a primary immunodeficiency patient. The two discuss their experiences with first infusions as well as other aspects of living with PI.
Trailer - Episode 2
December 11, 2020 17:00 - 1 minute - 759 KBEpisode 2: Self Care Listen to a sneak peek at next week's episode on self-care, with guest Nicole B.
Episode 2: Self Care
December 11, 2020 17:00 - 38 minutes - 26.4 MBThis week, Bryan is joined by guest Nicole B as they discuss the importance of self-care in the context of immunodeficiency.
Introducing Bryan
December 02, 2020 22:00 - 27 minutes - 18.6 MBIn this first episode, we introduce to the series host, Bryan and we will outline the objective of the show and flesh out the shape of the season. Through this, we hope to situate the audience to our own social-emotional-mental locations, and invite them into our journey of learning through the season.
Introducing Bryan
December 02, 2020 19:00 - 53 seconds - 657 KBEnjoy a sneak peek of our first episode landing on Friday! This introductory episode will introduce you to your season's host, Bryan, and what's to come in the first season of "Slice of PI".