Latest Imitation Podcast Episodes
Episode 65: LGMD Awareness Day, Physical Struggles and Blood Work
Beyond Labels and Limitations - September 29, 2021 16:00 - 18 minutesOn episode 65 of Beyond Labels & Limitations, John Graybill talks about the LGMD Awareness Day which is every September 30th. This day is important in spreading awareness about LGMD. Go to LGMD Awareness Foundation to learn more about LGMD. John also shares some physical struggles he's had o...
Episode 64: 2021 LGMD International Conference take away, Garden of Life supplement, and Neck Stiffness Tip
Beyond Labels and Limitations - September 22, 2021 16:00 - 24 minutesOn episode 64 of Beyond Labels & Limitations, John Graybill shares his take away from the 2021 International LGMD Conference, which was put on by the Speak Foundation. If you missed the conference you can view all 4 days at this link: 2021 LGMD International Conference John also shares his l...
Episode 63: 2021 LGMD International Conference, Pinched Nerve, Mind Chatter and LGMD is like the game Jenga
Beyond Labels and Limitations - September 15, 2021 16:00 - 22 minutesOn episode 63 of Beyond Labels & Limitations, John Graybill talks about a few things. First of all, the upcoming 2021 LGMD International Conference. This is huge and is put on by The Speak Foundation. If you would like to attend please go to: The Speak Foundation National LGMD Conference T...
Episode 62: Physical Health Review
Beyond Labels and Limitations - September 08, 2021 16:00 - 18 minutesOn episode 62 of Beyond Labels & Limitations, John Graybill looks back on his health from March 16, 2020 to now and what has changed. John has done a podcast on changes to his health that you can hear on episodes 5, 19 and 37. In each of these episodes, John shares what struggles he has going on...
Episode 61: When is the time to stop driving when you have limb girdle muscular dystrophy
Beyond Labels and Limitations - September 01, 2021 16:00 - 11 minutesOn episode 61 of Beyond Labels & Limitations, John Graybill shares an almost accident he had while driving in a parking lot. This got John to thinking about is it time to stop driving. John looks at the first signs of driving becoming too difficult to do. He also shares how the meaning he gives ...
Episode 60: Why do I struggle with Muscular Dystrophy
Beyond Labels and Limitations - August 25, 2021 16:00 - 17 minutesOn episode 60 of Beyond Labels & Limitations, John Graybill shares how he struggles with limb girdle muscular dystrophy. The struggle wasn't always the same over 26 years. When John was younger he believed himself to be the physical John. Naturally, whenever he lost an ability, he took it hard, ...
Episode 59: Struggling with Negative Thinking
Beyond Labels and Limitations - August 18, 2021 16:00 - 25 minutesOn episode 59 of Beyond Labels & Limitations, John Graybill shares how a negative thought spiraled into more negative thoughts about how his life is terrible. This isn't something new to John's life but rather a constant battle he has endured for close to 26 years. Everybody has these days but h...
Episode 58: Going somewhere, why it can be stressful when you have Limb Girdle Muscular Dystrophy
Beyond Labels and Limitations - August 11, 2021 16:00 - 12 minutesOn episode 58 of Beyond Labels & Limitations, John Graybill shares how traveling to his parents house brought up challenges he hadn't encountered on previous trips there. Why your friend, child or partner doesn't want to go new places or even places visited before is probably due to it's getting...
Episode 57: How I see Limb Girdle Muscular Dystrophy in my life
Beyond Labels and Limitations - August 04, 2021 16:00 - 19 minutesOn episode 57 of Beyond Labels & Limitations, John Graybill talks about how he sees his life with LGMD. John was diagnosed in 1995 at the age of 17. He thought his life was over when the doctors told him he had muscular dystrophy. John gave up on life. When John met Wayne Dyer, his perspective o...
Episode 56: What sucks about having Limb Girdle Muscular Dystrophy
Beyond Labels and Limitations - July 28, 2021 16:00 - 21 minutesOn episode 56 of Beyond Labels & Limitations, John Graybill shares some of the things that suck and have sucked regarding being diagnosed with a physical disability such as Limb Girdle Muscular Dystrophy. John looks at areas of dating, walking, getting up from a chair, climbing stairs, rolling o...
Episode 55: What I have learned from having Limb Girdle Muscular Dystrophy
Beyond Labels and Limitations - July 21, 2021 16:00 - 26 minutesIn episode 55 of Beyond Labels & Limitations, John Graybill shares what he has learned over the course of 26 years being diagnosed with LGMD. 1. Don't believe everything I think 2. Accept constant change 3. A belief can be powerful when given enough attention 4. Appreciate what I have w...
Episode 54: Finding beauty in Limb Girdle Muscular Dystrophy is a choice
Beyond Labels and Limitations - July 14, 2021 16:00 - 19 minutesOn episode 54 of Beyond Labels & Limitations, John Graybill talks about finding beauty in a disease that takes away your physical abilities. It's not easy to find the lessons in your situations especially when you think your life should be another way, but it is a choice you must make if you wan...
Episode 53: Digestive Issues and Limb Girdle Muscular Dystrophy
Beyond Labels and Limitations - July 07, 2021 16:00 - 13 minutesOn episode 53 of Beyond Labels & Limitations, John Graybill shares how not watching what you eat can upset your digestive system. He also shares what the symptoms are and how he dealt with them. ______________________________ Connect with John: Visit the Website Subscribe on YouTube Em...
Episode 52: Keeping the mindset of "I'm going to beat Limb Girdle Muscular Dystrophy" alive
Beyond Labels and Limitations - June 30, 2021 16:00 - 19 minutesOn episode 52 of Beyond Labels & Limitations, John Graybill shares what keeps him motivated to not give up. He shares how a 3 year old helped him see more clearly. The mindset is a big determining factor in the course of your life regardless of having LGMD or not. One thing to keep in mind is th...
Episode 51: What do you do for a living when you have Limb Girdle Muscular Dystrophy
Beyond Labels and Limitations - June 23, 2021 16:00 - 15 minutesOn episode 51 of "Beyond Labels & Limitations", John Graybill looks at the question, "What do you do for a living". John has been asked this question for over 15 years, since he's been on disability, and how this question has impacted him. From feeling ashamed and embarrassed to making a differe...
Episode 50: How Can I be Grateful when I have Limb Girdle Muscular Dystrophy
Beyond Labels and Limitations - June 16, 2021 16:00 - 17 minutesOn episode 50 of "Beyond Labels & Limitations," John Graybill talks about how his wife and daughter leaving for a camping trip helped him examine his life. Being around people all the time doesn't allow for you to be alone with your thoughts, and some of the thoughts aren't positive. So, when Da...
Episode 49: Donavon Decker, LGMD2D, and his participation in Gene Therapies
Beyond Labels and Limitations - June 09, 2021 16:00 - 43 minutesOn episode 49 of Beyond Labels & Limitations, John Graybill talks with Donavon Decker, who has LGMD2D. Donavon comes from a family of 8 with 5 of them being diagnosed with LGMD2D. His unaffected sister later had 2 children who were diagnosed with LGMD2I. Donavon also shares how the LGMD2D popula...
Episode 48: What I Learned from My Cat
Beyond Labels and Limitations - June 02, 2021 16:00 - 15 minutesOn episode 48 of Beyond Labels & Limitations, John Graybill shares what his whining cat showed him about his relationship with his 5 year old daughter and himself. ______________________________ Connect with John: Subscribe on YouTube Visit the Website Email: [email protected] ____...
Episode 47: Meet Brad Williams, Ph.D, who also has Limb Girdle Muscular Dystrophy 2B/R2
Beyond Labels and Limitations - May 26, 2021 16:00 - 34 minutesOn episode 47 of Beyond Labels & Limitations, John Graybill talks with Brad Williams about his life with LGMD2B/R2. Brad shares how he waited nearly 18 years to find out what he had. Brad was a figure skater, runner, very athletic in his youth but around the age of 18 he noticed he couldn't stan...
Episode 46: Healing in Brazil at the Casa De Dom Inacio
Beyond Labels and Limitations - May 19, 2021 16:00 - 33 minutesOn episode 46 of Beyond Labels & Limitations, John Graybill shares his experience of traveling to Abadiania, Brazil. It's in Abadiania where John of God's Healing Center, Casa De Dom Inacio, is located. This episode will be difficult for those who are deeply rooted in the Bible teachings. An ope...
Episode 45: Robert Schwartz, "Your Souls Plan", Discovering the Real Meaning of the Life You Planned Before You Were Born
Beyond Labels and Limitations - May 12, 2021 16:00 - 39 minutesOn episode 45 of Beyond Labels & Limitations, John Graybill talks with author Robert Schwartz about his book, "Your Souls Plan". In this podcast, Rob shares how we planned our life before being born and how this plan is the reason for us coming into human form. Rob is one of those people who hel...
Episode 44: Using Limb Girdle Muscular Dystrophy to find Me
Beyond Labels and Limitations - May 05, 2021 16:00 - 25 minutesIn episode 44 of Beyond Labels & Limitations, John Graybill talks about how being diagnosed with Limb Girdle Muscular Dystrophy was necessary in order for him to search for who he truly is. John use to think he was all of his accomplishments but when a disease takes away your physical abilities,...
Episode 43: Meet Amanda, who was misdiagnosed with Limb Girdle Muscular Dystrophy
Beyond Labels and Limitations - April 28, 2021 16:00 - 30 minutesIn episode 43 of Beyond Labels & Limitations, John Graybill talks with Amanda about her journey from being diagnosed with Limb Girdle Muscular Dystrophy to Anti-HMGCR. At first Amanda shares optimism about going from an incurable genetic disease like LGMD to an autoimmune disease where there are...
Episode 42: How suffering shows up in parenting for me
Beyond Labels and Limitations - April 21, 2021 16:00 - 11 minutesIn episode 42 of Beyond Labels & Limitations, John Graybill shares how suffering showed up when he was playing with his daughter. He believed that when she was older, then playing with her would be more fun. What John didn't realize was how his beliefs about what he "should" be doing had program...
Episode 41: Meet Dr. Vovanti Jones, who has Limb Girdle Muscular Dystrophy
Beyond Labels and Limitations - April 14, 2021 16:00 - 37 minutesOn episode 41 of Beyond Labels & Limitations, John Graybill talks with Doctor Vovanti Jones, who has LGMD2B. Dr. Jones found out she had LGMD when she was in her 20's and while studying to become a doctor. Vovanti shares how she doubted herself at times that she could become a doctor. She share...
Episode 40: Rollin with Henry Eichner
Beyond Labels and Limitations - April 07, 2021 16:00 - 36 minutesOn episode 40 of Beyond Labels & Limitations, John Graybill talks with Henry Eichner. Henry has a form of LGMD that is unspecified. Henry shares what his life has been like from before being diagnosed to what he struggles with today. Henry has also started a YouTube page dedicated to sharing his...
Episode 39: When is it time to stop working when you have limb girdle muscular dystrophy
Beyond Labels and Limitations - March 31, 2021 16:00 - 19 minutesIn episode 39 of Beyond Labels & Limitations, John Graybill talks about when it was time for him to stop working. It wasn't an easy decision for John. Things to consider were, how was John going to make a living, support a future wife and child. ______________________________ Connect with Jo...
Episode 38: Tips & Tricks with Limb Girdle Muscular Dystrophy
Beyond Labels and Limitations - March 24, 2021 16:00 - 23 minutesIn episode 38 of Beyond Labels & Limitations, John Graybill shares his tips and tricks he has found useful for living with LGMD over the past 26 years. There are 7 tips and tricks and they are, Balance, Sitting down and getting up with a belt, Standing, Stretching, Supplements, Diet, and Appreci...
Episode 37: One year follow up and what's troubling now
Beyond Labels and Limitations - March 17, 2021 16:00 - 13 minutesOn episode 37 of Beyond Labels & Limitations, John Graybill looks back to last year, March 16 2020, and what struggles he had with Limb Girdle Muscular Dystrophy. He also talks about what symptoms he's having today. The purpose of this exercise is to see if the symptoms are here to stay or are t...
Episode 36: Shopping for Clothes and Shoes
Beyond Labels and Limitations - March 10, 2021 17:00 - 13 minutesIn episode 36 of Beyond Labels & Limitations, John Graybill shares how shopping with Limb Girdle Muscular Dystrophy can be a struggle. When younger, stronger maybe not so difficult but what do you do when you're older and weaker and cannot get into dressing rooms? This is something John found ch...
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