Latest Crohns Podcast Episodes
Sophie Ricketts & Hymenectomy Surgery
That's So Chronic - August 07, 2023 18:00 - 1 hour ★★★★★ - 8 ratingsWelcome to That’s So Chronic! Today I am chatting to Sophie Ricketts, and she talks us through a hymenectomy surgery that she had while she was at drama school. In this episode Sophie explains the process of discovering that she had a thick hymen, which involves several people telling her “she...
We Have to Invest in the Health Wealth of Our Nation With Brooke Abbott: Healthcare Disparities in IBD
About IBD - August 01, 2023 04:00 - 43 minutes ★★★★★ - 25 ratingsHealthcare is political. That's why it's important to push legislators to ensure care is available and accessible to all patients, regardless of their socioeconomic status. Brooke Abbott, of the Crazy Creole Mommy Chronicles and co-founder of IBDMoms helps illustrate the aspects of public policy...
Dr Kara Wada, MD & Sjorgren's Syndrome
That's So Chronic - July 31, 2023 18:00 - 52 minutes ★★★★★ - 8 ratingsWelcome back to That’s So Chronic! Today’s episode is with Dr Kara Wada, MD, and we are discussing her diagnosis of Sjogren’s syndrome and her work as an allergist, immunologist, and lifestyle medicine physician. In this episode Dr Kara shares her diagnosis story, as well as the symptoms that...
I Wanted People to Know That They're Not Alone With Fasika Shimeles Teferra, MD: Healthcare Disparities in IBD
About IBD - July 25, 2023 04:00 - 29 minutes ★★★★★ - 25 ratingsInflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds. IBD is still considered rare in some parts of the world, but incidence is increasing. Fas...
Spotlight On: Dr Hayley Leake (pain researcher & winner of Survivor Australia)
That's So Chronic - July 24, 2023 18:00 - 24 minutes ★★★★★ - 8 ratingsWelcome back to That’s So Chronic. It's the final Tuesday of the month, so we take a break from regular interviews. For today’s Spotlight On episode, I’m chatting to pain researcher and sole Survivor, Dr Hayley Leake. In this episode Hayley chats about the pain research work that she is workin...
Elizabeth & Multiple Sclerosis (MS)
That's So Chronic - July 17, 2023 18:00 - 40 minutes ★★★★★ - 8 ratingsWelcome back to That’s So Chronic! Today’s episode is with Elizabeth, and we are chatting about her diagnosis of multiple sclerosis (MS). In this episode Elizabeth shares the diagnosis process that eventuated after a bout of optic neuritis, how she felt when her symptoms had a name, her manag...
I'm Letting You In With Cedric Pulliam, PhD: Healthcare Disparities in IBD
About IBD - July 11, 2023 04:00 - 40 minutes ★★★★★ - 25 ratingsInflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds. What is it like to not have anyone on your medical team that looks like you or understand...
Ruby Quinn & ME/CFS (Myalgic Encephalomyelitis/Chronic Fatigue Syndrome), Endometriosis, & ADHD (Attention Deficit Hyperactivity Disorder)
That's So Chronic - July 10, 2023 18:00 - 1 hour ★★★★★ - 8 ratingsYay! It’s Tuesday! Which means a brand new episode of That’s So Chronic! Today’s episode is with Ruby Quinn, and we are chatting about her diagnosis of ME/CFS (myalgic encephalomyelitis/chronic fatigue syndrome), endometriosis, and ADHD (attention deficit hyperactivity disorder). In this ep...
I Want Someone Who's Going to Understand Where I'm Coming From With Selvi Vasudevan, MD: Healthcare Disparities in IBD
About IBD - July 04, 2023 04:00 - 33 minutes ★★★★★ - 25 ratingsInflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds. Nutrition is a major component of managing digestive disease. Yet people living with Croh...
Allie Sharples & Chronic Inflammatory Demyelinating Polyneuropathy (CIDP) and Cleft Lip & Palate
That's So Chronic - July 03, 2023 18:00 - 49 minutes ★★★★★ - 8 ratingsAhhhh!!!! WE’RE BACK! BRAND NEW EPISODES! Sorry for shouting but I’m SO EXCITED! Welcome back! Today’s episode is with Allie Sharples, and we are chatting about her diagnosis of chronic inflammatory demyelinating polyneuropathy (CIDP), as well as being born with a cleft lip and palate. In t...
You Have to Genuinely and Authentically Connect With Leaders in This Space With Melodie Narain-Blackwell: Healthcare Disparities in IBD
About IBD - June 27, 2023 04:00 - 35 minutes ★★★★★ - 25 ratingsInflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds. Why do women of color encounter so many barriers when accessing care? Where are the space...
If you're new to That's So Chronic... START HERE (Trailer)
That's So Chronic - June 26, 2023 18:00 - 3 minutes ★★★★★ - 8 ratingsWelcome to That's So Chronic (or if you're a long time listener, welcome back!) a weekly podcast where Jess Brien (@jessssbrien) interviews people from around the world who are thriving - and sometimes only just surviving - with chronic illnesses, life changing injuries, and potentially disastro...
These Disparities Have Been Going on for a Very Long Time With Dr Aline Charabaty: Healthcare Disparities in IBD
About IBD - June 20, 2023 04:00 - 41 minutes ★★★★★ - 25 ratingsIn this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds who live with IBD. Why is there a lack of people of diverse backgrounds who live with Crohn's disease or ulcerative colitis represented in clinical trials? Why are there so ma...
Pregnancy and IBD: The PIANO Study With Uma Mahadevan, MD
About IBD - June 06, 2023 04:00 - 25 minutes ★★★★★ - 25 ratingsPregnancy while living with inflammatory bowel disease (IBD) feels scary. But thanks to the groundbreaking Pregnancy Inflammatory bowel disease And Neonatal Outcomes (PIANO) study, there is now so much more data and information to help moms and their doctors make decisions. Dr Mahadevan began th...
How does it feel to live with an autoimmune illness?
Autoimmune diet and me - June 02, 2023 19:16 ★★★★★ - 2 ratingsMy nutrition channel: http://www.youtube.com/motivweight Did you know I'm a keen writer as well as a blogger and creating these videos? Facebook: http://www.facebook.com/louiseusherwrites Twitter: http://www.twitter.com/louiseusher Blog: http://www.louiseusher.co.uk (blog) Nutr...
Yoga for IBD With Desiree Schmidt
About IBD - May 23, 2023 04:00 - 38 minutes ★★★★★ - 25 ratingsDesiree Schmidt, a 500-hour yoga instructor and owner of a personal training business, shares her passion for helping people with chronic illnesses, which is inspired by her own experience with Crohn's disease. She discusses how yoga has been key in her journey, both physically and mentally. A...
An Ostomy Is a Beginning With Brad Watson-Davelaar
About IBD - May 09, 2023 04:00 - 43 minutes ★★★★★ - 25 ratingsBrad Watson-Davelaar, founder of Gaming for Guts, shares his experiences in living with Crohn’s disease and how he found support and community through his IBD journey. He talks about his ostomy surgery and how for him, it is a beginning rather than an end. Brad describes the upcoming fundraisi...
I Pooped My Pants With April Michelle Harris
About IBD - April 25, 2023 04:00 - 41 minutes ★★★★★ - 25 ratingsWhen is the last time you pooped your pants? Amber speaks with April Michelle Harris, who lives with ulcerative colitis, a type of inflammatory bowel disease (IBD), for over 13 years. April shares her journey, from her initial diagnosis to her struggles with depression and anxiety, and how she h...
RunPee: The App That Tells You the Best Time to Use the Bathroom During a Movie
About IBD - April 18, 2023 04:00 - 37 minutes ★★★★★ - 25 ratingsGoing to a movie can be a frustrating experience for anyone with a digestive or urinary condition. Not only are the bathrooms sometimes far from the theaters, it’s difficult to know when to duck out if nature calls. Enter RunPee. The RunPee app is designed to help moviegoers know when the best t...
Episode 4: How can hay fever lead to frightening reactions with fruit & vegetables?
Clinical Cases - April 09, 2023 17:00 - 43 minutesWelcome to today's episode of our podcast, where we will be talking about Pollen Food Syndrome, the most common form of allergy in adults. Our guest, Osteopath, Rob Williams, will be sharing his personal experience with this condition, which he suddenly developed in his late twenties. Rob will d...
Accommodations for IBD in College With Sari Grossman
About IBD - March 28, 2023 04:00 - 44 minutes ★★★★★ - 25 ratingsWhat happens when your professional life and your IBD overlap? Sari Grossman is a research scientist, Crohn's disease patient, and advocate for patients with chronic illnesses. She shares her experience with Crohn's disease, including her family history of IBD, diagnosis at a young age, her unus...
That's So: Why Does It Still Hurt? by Dr Paul Biegler (an interview with Paul!)
That's So Chronic - March 27, 2023 17:00 - 39 minutes ★★★★★ - 8 ratingsIt’s the final Tuesday of the month which means a That’s So episode! Today I am chatting about Dr Paul Biegler’s latest book Why Does It Still Hurt? Throughout the book Paul begins to unpack the reasons behind why it might still be hurting, using his own chronic pain journey, as well as other ...
Annie Vander & Complex Regional Pain Syndrome (CRPS)
That's So Chronic - March 20, 2023 19:30 - 37 minutes ★★★★★ - 8 ratingsWelcome back to That’s So Chronic! Today, after a couple of technical difficulties, I’m joined by singer songwriter Annie Vander, and we’re talking all about her diagnosis of complex regional pain syndrome (CRPS) In this episode Annie shares the accident that subsequently changed the course of...
Up and Adam: A Patient's Experience on Winning with IBD
About IBD - March 14, 2023 05:00 - 29 minutes ★★★★★ - 25 ratingsIs it possible for kids to look at their touchpoints with medical care as empowering experiences? Adam Finkelstein, a medical student and author, shared his experiences of living with IBD from a young age, and how he coped with surgeries and doctor's appointments as a child. Adam provides tips f...
Natasha Godetz & Juvenile Idiopathic Arthritis and a double hip replacement at 32
That's So Chronic - March 13, 2023 19:30 - 1 hour ★★★★★ - 8 ratingsWelcome to That’s So Chronic! Today’s episode is with Natasha Godetz, and we are chatting about her diagnosis of juvenile idiopathic arthritis and the journey that led her to a double hip replacement. In this episode, Natasha explains what it was like receiving a diagnosis when she was 10 yea...
Shana Pereira & a heart and kidney transplant
That's So Chronic - March 06, 2023 19:30 - 48 minutes ★★★★★ - 8 ratingsYAY! We’re BACK! Thank you for being so patient while I took a break for the summer holidays here in NZ! Today’s episode is with Shana Pereira, and we are discussing her heart and kidney transplant, and honestly, at times you will think it is actually the plot of a movie... But more on that t...
Living with IBD: How Caitlin McGinnis, LCSW Supports Mental Health
About IBD - February 28, 2023 05:00 - 28 minutes ★★★★★ - 25 ratingsCaitlin McGinnis, LCSW was diagnosed with ulcerative colitis at the age of 22 and had her entire colon removed. This experience prompted her to become a social worker and specialize in providing mental health support for patients with various digestive health issues. Through her own experiences ...
CDPATH: A Prognostic Tool for Crohn's Disease
About IBD - February 14, 2023 05:00 - 26 minutes ★★★★★ - 25 ratingsAre we getting close to predicting how Crohn's disease might change over time? Dr. Corey Siegel, co-director of the Inflammatory Bowel Disease Center at the Dartmouth Hitchcock Medical Center in Lebanon, New Hampshire, and Jessica Caron, a patient key opinion leader who lives with Crohn's, discu...
The Plant-Based Crohn’s and Colitis Cookbook
About IBD - January 31, 2023 05:00 - 37 minutes ★★★★★ - 25 ratingsFor years we were told that diet doesn’t matter in inflammatory bowel disease (IBD). We know now that diet is important in IBD. What’s still not clear is how we should be thinking about it in terms of management. Helena Murphy is a photographer, yoga teacher, and Crohn’s disease patient who brou...
Pelvic Health With Amanda Olson, DPT, PRPC
About IBD - January 24, 2023 05:00 - 28 minutes ★★★★★ - 25 ratingsCaring for pelvic health is important for people of all genders who live with an inflammatory bowel disease (Crohn’s disease or ulcerative colitis). Dr. Amanda Olson, who holds a doctorate in physical therapy and is the President and Chief Clinical Officer for Intimate Rose, has dedicated her pr...