About IBD
165 episodes - English - Latest episode: 13 days ago - ★★★★★ - 25 ratingsCrohn's disease and ulcerative colitis (collectively known as inflammatory bowel disease) are about more than diarrhea: they affect the whole person. About IBD focuses on health and lifestyle issues important to people living with Crohn's or colitis. IBD patients, doctors, therapists, and care partners give their tips and advice on topics including diet, nutrition, treatments, mental health, family dynamics, and sexuality as it relates to living with IBD.
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Episodes
IBD and Somatic Therapy With Abri Bernstein
April 16, 2024 04:00 - 53 minutes - 61.1 MBPeople with IBD are more likely to live with anxiety, depression, or other mood disorders than people who don't live with one of these conditions. For that reason, caring for mental health is as important as caring for physical health. But it doesn't always work out that way, as patients may not know how important their mental health is to their physical health, or may not have access to a mental health professional. Abri Bernstein shares her personal journey with ulcerative colitis (UC) and...
Colorectal Cancer Awareness Month With Dan "Dry Dock" Shockley
March 26, 2024 04:00 - 32 minutes - 45.1 MBDiagnosed with attenuated familial adenomatous polyposis (AFAP), retired Navy veteran Dan "Dry Dock" Shockley shares his remarkable journey of service, diagnosis, and advocacy. Following his diagnosis, Shockley became a passionate advocate for early detection and reducing the stigma associated with living with an ostomy. He emphasizes the importance of proactive medical care and maintaining a positive attitude in the face of adversity. Through his advocacy work and personal journey, Shockley...
Making Crohn's Disease Funny With Matt Nagin
February 13, 2024 05:00 - 36 minutes - 35.2 MBWe can hold two truths: Crohn’s disease is funny. It is also not funny. I speak with Matt Nagin, who has many talents, but we focus on his work as a comedian and actor living with Crohn’s disease. Our discussion focuses on how people need laughter and comedy in their lives. Yet, living with an illness like inflammatory bowel disease (IBD), it can be challenging to find those comedic moments. Especially when most people don’t know what IBD is, and even among those who do, they kind of don’t w...
Amber's Year in Books 2023
January 30, 2024 05:00 - 25 minutes - 26 MBWhat did you read over the past year? If you made a reading goal: did you hit it? The books I read in 2023 included biographies, fantasy, fiction, and romance. Plus, I had several authors who live with Crohn’s disease or ulcerative colitis on the show this year, so I read their books as well. Hear more about some of the books I enjoyed in 2023, how you can hear more from authors with IBD, and ways that you can hit those reading goals this year. IBD Author Episodes: The Plant-Based Crohn’...
IBD Connect With Lisa Fournier
January 16, 2024 05:00 - 36 minutes - 40.8 MBA diagnosis of inflammatory bowel disease (Crohn’s disease, ulcerative colitis, IBD) affects the entire family. When it’s a child that’s diagnosed, it changes so many things and brings a host of challenges. Families experience many unmet needs related to IBD. My guest is Lisa Fournier of IBD Connect. Lisa is the mother of two children who live with IBD. Her experiences in helping them manage IBD at different stages in life compelled her to be a support for others. She worked with her local h...
Post-Traumatic Stress Disorder and IBD With Stephanie Brenner, LCSW, MSW
December 19, 2023 05:00 - 46 minutes - 53 MBMy guest is Stephanie Brenner of Chronic Illness Psychotherapy. Stephanie is a Licensed Clinical Social Worker who has experience in working with clients with chronic illnesses. She has also taken on a variety of roles in GI space, including previously serving on both the advisory team for the Pediatric Crohn’s Guidebook and the recruitment committee for the Rome Foundation’s GastroPsych organization. Stephanie lives with Crohn’s disease and a permanent ileostomy and is also a cancer survi...
IBD in the Hispanic Community With Oriana Damas, MD
December 05, 2023 05:00 - 39 minutes - 45 MBAs an assistant professor of medicine in the Division of Gastroenterology at the University of Miami Miller School of Medicine, and the Director of Translational Studies for the Crohn’s and Colitis Center, Dr. Damas sheds light on the misconception that IBD only affects certain ethnicities. Her extensive research explores the connection between of environment and genetics in the development of IBD, with a special focus on its impact on immigrants from Latin America. Dr. Damas shares insights...
Positivity Beats IBD With Josef Miller
November 28, 2023 05:00 - 39 minutes - 45 MBWhat is it like to be a teen living with Crohn’s disease? If you’re like Josef Miller, you channel the challenges of the diagnosis and management of IBD into action. Josef has written a book about his experiences, entitled "The Purple Rose," and created an initiative called "Positivity Beats IBD," which creates inspirational cards for people living with IBD and other conditions. Learn about Josef's journey with Crohn's, his multicultural background, and how and why he decided to write a book...
Designer $hit: A Microbiome Love Story With Saffron Cassaday
November 14, 2023 14:00 - 27 minutes - 31.9 MBWhat options are you wiling to try to manage your ulcerative colitis or Crohn’s disease? How about putting someone else’s stool into your own colon? Fecal microbiota transplants (FMTs) — using stool from a donor to repopulate bacteria in the colon — are being studied for use in treating inflammatory bowel disease (IBD). Filmmaker Saffron Cassady decided to try do-it-yourself FMT to treat her ulcerative colitis, using stool from the healthiest person she could find: her husband. The journey i...
Coping With IBD While in Military Service With Dr Anish Patel
November 08, 2023 22:00 - 44 minutes - 51.2 MBWhat do all the new oral drugs available for treating IBD have to do with military service? Being diagnosed with IBD might mean leaving the military for some service members. Part of the reason is that it’s not possible to be deployed while receiving a drug that’s an injection or an infusion. But when a medication works well and happens to be in pill form: that’s a game-changer. Dr Anish Patel, the Medical Director of the Inflammatory Bowel Disease Center at Brooke Army Medical Center gives ...
Learning to Accept IBD
October 24, 2023 04:00 - 28 minutes - 23.1 MBBeing diagnosed with a chronic condition is a major adjustment. Digestive conditions like IBD (Crohn’s disease and ulcerative colitis) wind up affecting every part of our lives. Learning to accept the ways in which the disease affects life can be helpful. But it’s important to make the distinction between acceptance and complacency. Maalvika Bhuvansunder, a young adult patient living with Crohn’s disease, uses her experiences to help bring the concept of acceptance into focus for other peo...
IBD and Menopause
October 17, 2023 04:00 - 14 minutes - 11.7 MBMenopause is a topic that's not well understood in general and there's even less information when it comes to menopause and inflammatory bowel disease (IBD, Crohn’s disease and ulcerative colitis). October is World menopause Awareness Month. World Menopause Day is on October 18 every year. The purpose of the day is to raise awareness of menopause and the support options available for improving health and well being. Learn more about how IBD may affect perimenopause and menopause, as well as ...
Having a Screening Colonoscopy
September 26, 2023 04:00 - 39 minutes - 45 MBColon cancer is being diagnosed more frequently in younger people. It’s now recommended that most people get a screening colonoscopy at the age of 45. For people who have a family history of colon cancer, the first screening should be when they are 10 years younger than the family member was when they were diagnosed. My guest is my husband, Michael Tresca, who recently had a screening colonoscopy after turning 50. He details his experiences in using a newer prep and how he managed the...
Managing IBD Diet and Lifestyle With Clemmie Oliver
September 12, 2023 04:00 - 51 minutes - 58.9 MBDiet does matter in inflammatory bowel disease (IBD). Not only in how it affects the digestive system, but also in overall health. Adults with IBD have greater incidences of heart disease, lung disease, cancer, diabetes, arthritis, kidney disease, liver disease, and ulcers than do people without IBD. For those reasons and more: thinking about diet and how it affects all these other body systems, as well as the IBD, is important. To discuss how diet relates to IBD, Amber talks to ...
Where to Invest Money: Healthcare Disparities in IBD
August 08, 2023 04:00 - 21 minutes - 15.2 MBInflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds. One of the barriers to addressing disparities is money. It's an unfortunate fact that the healthcare system in the United States is intertwined with money. In some cases, access to care and other equity issues might be solved by putting some funding towards the problems. That's why I aske...
We Have to Invest in the Health Wealth of Our Nation With Brooke Abbott: Healthcare Disparities in IBD
August 01, 2023 04:00 - 43 minutes - 33.4 MBHealthcare is political. That's why it's important to push legislators to ensure care is available and accessible to all patients, regardless of their socioeconomic status. Brooke Abbott, of the Crazy Creole Mommy Chronicles and co-founder of IBDMoms helps illustrate the aspects of public policy that are important in achieving equity in healthcare. In this discussion you'll learn how lack of access to educational opportunities affects the healthcare space, how some provisions in the Affordab...
I Wanted People to Know That They're Not Alone With Fasika Shimeles Teferra, MD: Healthcare Disparities in IBD
July 25, 2023 04:00 - 29 minutes - 21.5 MBInflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds. IBD is still considered rare in some parts of the world, but incidence is increasing. Fasika Shimeles Teferra, MD of Ethiopia describes her journey to a diagnosis of Crohn’s disease. Being a medical doctor, she has been able to make connections in order to help other IBD patients in her c...
I'm Letting You In With Cedric Pulliam, PhD: Healthcare Disparities in IBD
July 11, 2023 04:00 - 40 minutes - 29.6 MBInflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds. What is it like to not have anyone on your medical team that looks like you or understands your concerns? The diversity of the human experience is often not reflected in the healthcare system. In fact, there's little research into some areas of IBD, including the experience of LGBTQIA+ pa...
I Want Someone Who's Going to Understand Where I'm Coming From With Selvi Vasudevan, MD: Healthcare Disparities in IBD
July 04, 2023 04:00 - 33 minutes - 28.4 MBInflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds. Nutrition is a major component of managing digestive disease. Yet people living with Crohn's disease, ulcerative colitis, or indeterminate colitis may not be offered access to help managing their diet. Dr Selvi Vasudevan, founder of Dr Selvi's Keys to Ease Crohn's, discusses her Crohn's...
You Have to Genuinely and Authentically Connect With Leaders in This Space With Melodie Narain-Blackwell: Healthcare Disparities in IBD
June 27, 2023 04:00 - 35 minutes - 31.3 MBInflammatory bowel disease (IBD) affects people from all ethnic and cultural groups. In this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds. Why do women of color encounter so many barriers when accessing care? Where are the spaces for black and brown patients to share their knowledge, experiences, and support around Crohn's disease, ulcerative colitis, and other immune-mediated and autoimmune conditions? Melodie Narain-Blac...
These Disparities Have Been Going on for a Very Long Time With Dr Aline Charabaty: Healthcare Disparities in IBD
June 20, 2023 04:00 - 41 minutes - 28.1 MBIn this limited series, we'll explore how inequalities in the healthcare system affect people from diverse backgrounds who live with IBD. Why is there a lack of people of diverse backgrounds who live with Crohn's disease or ulcerative colitis represented in clinical trials? Why are there so many barriers for people of color in accessing IBD care? Dr Aline Charabaty, Director of the IBD Center at Johns Hopkins Sibley Memorial Hospital and founder of Monday Night IBD on Twitter discusses t...
Pregnancy and IBD: The PIANO Study With Uma Mahadevan, MD
June 06, 2023 04:00 - 25 minutes - 28.9 MBPregnancy while living with inflammatory bowel disease (IBD) feels scary. But thanks to the groundbreaking Pregnancy Inflammatory bowel disease And Neonatal Outcomes (PIANO) study, there is now so much more data and information to help moms and their doctors make decisions. Dr Mahadevan began the PIANO registry in 2007, which followed women and their babies through pregnancy and after. What was learned from this registry was how IBD medications, and especially biologics, affected pregnancy, ...
Yoga for IBD With Desiree Schmidt
May 23, 2023 04:00 - 38 minutes - 44.3 MBDesiree Schmidt, a 500-hour yoga instructor and owner of a personal training business, shares her passion for helping people with chronic illnesses, which is inspired by her own experience with Crohn's disease. She discusses how yoga has been key in her journey, both physically and mentally. Amber and Desiree discuss the benefits of different yoga forms and how to choose the right practice based on whether one is in a flare-up or in remission. Desiree points out how it is important to modi...
An Ostomy Is a Beginning With Brad Watson-Davelaar
May 09, 2023 04:00 - 43 minutes - 49.8 MBBrad Watson-Davelaar, founder of Gaming for Guts, shares his experiences in living with Crohn’s disease and how he found support and community through his IBD journey. He talks about his ostomy surgery and how for him, it is a beginning rather than an end. Brad describes the upcoming fundraising event sponsored by Gaming for Guts to celebrate World IBD Day on May 19th. It will feature Canadian-themed activities in support of Crohn's and Colitis Canada. The IBD and gaming communities are en...
I Pooped My Pants With April Michelle Harris
April 25, 2023 04:00 - 41 minutes - 47.1 MBWhen is the last time you pooped your pants? Amber speaks with April Michelle Harris, who lives with ulcerative colitis, a type of inflammatory bowel disease (IBD), for over 13 years. April shares her journey, from her initial diagnosis to her struggles with depression and anxiety, and how she has managed to build a fulfilling life despite the many challenges that come with living with a chronic illness. We also dive into April's new book "I Pooped My Pants", where she shares her story and...
RunPee: The App That Tells You the Best Time to Use the Bathroom During a Movie
April 18, 2023 04:00 - 37 minutes - 42.5 MBGoing to a movie can be a frustrating experience for anyone with a digestive or urinary condition. Not only are the bathrooms sometimes far from the theaters, it’s difficult to know when to duck out if nature calls. Enter RunPee. The RunPee app is designed to help moviegoers know when the best time is to use the restroom (a peetime) during a movie without missing any important scenes. The creator, Dan Gardner, discusses how he and his team choose the best times to use the restroom while stil...
Accommodations for IBD in College With Sari Grossman
March 28, 2023 04:00 - 44 minutes - 60.8 MBWhat happens when your professional life and your IBD overlap? Sari Grossman is a research scientist, Crohn's disease patient, and advocate for patients with chronic illnesses. She shares her experience with Crohn's disease, including her family history of IBD, diagnosis at a young age, her unusual symptoms, and the impact it had on her life. She speaks candidly about the physical and emotional challenges of living with a chronic illness, and how she has learned to cope with the ups and down...
Up and Adam: A Patient's Experience on Winning with IBD
March 14, 2023 05:00 - 29 minutes - 40.9 MBIs it possible for kids to look at their touchpoints with medical care as empowering experiences? Adam Finkelstein, a medical student and author, shared his experiences of living with IBD from a young age, and how he coped with surgeries and doctor's appointments as a child. Adam provides tips for helping kids develop positive associations with going to the doctor, which include building trust with healthcare professionals, being honest about what to expect during appointments, and creating ...
Living with IBD: How Caitlin McGinnis, LCSW Supports Mental Health
February 28, 2023 05:00 - 28 minutes - 39.3 MBCaitlin McGinnis, LCSW was diagnosed with ulcerative colitis at the age of 22 and had her entire colon removed. This experience prompted her to become a social worker and specialize in providing mental health support for patients with various digestive health issues. Through her own experiences and connecting with support groups, Caitlin has learned the importance of creating communities, bringing awareness, and being a source of support for those going through similar struggles. She strives...
CDPATH: A Prognostic Tool for Crohn's Disease
February 14, 2023 05:00 - 26 minutes - 35.8 MBAre we getting close to predicting how Crohn's disease might change over time? Dr. Corey Siegel, co-director of the Inflammatory Bowel Disease Center at the Dartmouth Hitchcock Medical Center in Lebanon, New Hampshire, and Jessica Caron, a patient key opinion leader who lives with Crohn's, discuss a prognostic tool called CDPATH. This tool may help patient and healthcare providers understand how the disease may change over the next few years, and better inform a discussion of treatment optio...
The Plant-Based Crohn’s and Colitis Cookbook
January 31, 2023 05:00 - 37 minutes - 51.5 MBFor years we were told that diet doesn’t matter in inflammatory bowel disease (IBD). We know now that diet is important in IBD. What’s still not clear is how we should be thinking about it in terms of management. Helena Murphy is a photographer, yoga teacher, and Crohn’s disease patient who brought her skills and experience to writing a book entitled, "The Plant-Based Crohn’s and Colitis Cookbook." She shares her secret to publishing her book, as well as how her life has changed since being ...
Pelvic Health With Amanda Olson, DPT, PRPC
January 24, 2023 05:00 - 28 minutes - 39.1 MBCaring for pelvic health is important for people of all genders who live with an inflammatory bowel disease (Crohn’s disease or ulcerative colitis). Dr. Amanda Olson, who holds a doctorate in physical therapy and is the President and Chief Clinical Officer for Intimate Rose, has dedicated her professional life to helping people improve their pelvic health. Learn more about pelvic therapy and how she has developed resources and tools to help people living with all types of conditions. Find ...
Amber's Year in Books 2022
December 26, 2022 13:01 - 25 minutes - 29.6 MBWhat did you read over the past year? If you made a reading goal: did you hit it? The books I read this year ranged from self-help to true crime to science fiction. Hear more about some of the books I enjoyed in 2022 (and in the year after I was diagnosed with ulcerative colitis) and if you’ll want to pick them up for yourself. Creativity: A Short and Cheerful Guide The Comfort Book Born a Crime: Stories from a South African Childhood It’s Trevor Noah: Born a Crime: Stories from a Sou...
Recovering from Medical Catatonia
December 13, 2022 05:00 - 37 minutes - 42.3 MBFor some people living with Crohn’s disease or ulcerative colitis, the disease puts roadblocks in the way when it comes to going to school, having a career, and participating in sports. For Lauren Thibodeau, a diagnosis of ulcerative colitis led to a complication of medical catatonia, which derailed her life and her career as a college golfer. However, with her family, her medical team, and her teammates around her, she made her way back to the golf course and in fact, wound up playing bette...
Understanding Resilience With Mara Shapiro
November 21, 2022 01:02 - 35 minutes - 40.6 MBDoes living with Crohn’s disease or ulcerative colitis make a person more resilient? And is resilience something that should be a part of management plan for people with inflammatory bowel disease (IBD) or other chronic illnesses? Mara Shapiro, healthcare journalist and Crohn’s disease patient, has had no other choice but to find a way towards resilience in her life, having lived through grief and loss early in life, followed by the diagnosis of several chronic illnesses. She provides deep i...
Serving in the Navy With Crohn’s Disease, With Daniel Rausa, DO
November 08, 2022 05:00 - 27 minutes - 31.4 MBWhen it comes to people with Crohn’s disease or ulcerative colitis serving in the military, the usual policy is that the two things are incompatible. The reason being that people living with an inflammatory bowel disease (IBD) need care and treatments that are incompatible with being deployed. However, sometimes there are other considerations, as Dr Daniel Rausa describes. Dr Rausa was diagnosed with Crohn’s disease while serving in the Navy, and he has advice for people who live with an IBD...
IBD and Biomarkers: What You Need to Know With Andres Hurtado-Lorenzo, PhD
July 11, 2022 04:00 - 29 minutes - 33.5 MBWhat if we knew which patients would have severe Crohn’s disease or ulcerative colitis? And which wouldn’t? How about if we could tell which drug would work best in which patient? Knowing these things would change how inflammatory bowel disease (IBD) is diagnosed and treated. Plus, more importantly: it would improve lives. Dr Andres Hurtado-Lorenzo, Vice President of Translational research and IBD Ventures at the Crohn's and Colitis Foundation explains biomarkers and how they may play into t...
Don’t Google Your Symptoms With CJ Papuro
June 27, 2022 04:00 - 32 minutes - 37.7 MBThere aren’t as many men who are vocal in the inflammatory bowel disease (IBD) space as there are women. Crohn’s disease and ulcerative colitis affect men as often as they do women, but fewer men seem comfortable being public about their disease. That’s why Carlos “CJ" Cabrera, who also goes by CJ Papuro, entered the IBD community after his diagnosis of Crohn’s. He gives an overview of how difficult it was to be diagnosed as a US veteran using the Veterans Health Administration, his st...
The Restroom Access Act
June 19, 2022 04:00 - 30 minutes - 35.1 MBHave you ever been out in public and needed a toilet — but there wasn’t one available? This has happened to everyone who lives with an inflammatory bowel disease (IBD, Crohn’s disease or ulcerative colitis), which is why so many of us have “bathroom accident” stories. Needing to use the bathroom is a basic human need, but it’s treated like an afterthought. That’s where the Restroom Access Act comes into play: a law passed in several states that allows people to request access to a toilet w...
Cannabis and IBD
June 06, 2022 04:00 - 48 minutes - 50.8 MBThere are significant unmet needs for IBD patients that include pain control, sleep disturbances, anxiety, and depression. Some patients turn to medical cannabis for these symptoms. But is that a good idea, does it work, and what should patients and their doctors know about medical cannabis? To answer these questions and more, Amber talks to cannabis and IBD expert Dr Jami Kinnucan, who is a Senior Associate Consultant in the Section of Gastroenterology and Hepatology at the Mayo Clinic in J...
How Physical Therapy Can Help People With IBD
May 23, 2022 04:00 - 37 minutes - 43 MBWhen you think of Crohn’s disease or ulcerative colitis, you might not think of physical therapy. But physical therapy and pelvic floor therapy can be integral to helping with function, pain, and having better bowel movements. To learn more, I connected with Nancy Cullinane, who is a Board-Certified Women’s Health Clinical Specialist at Overlake Hospital and Clinics Outpatient Rehab in Washington State, and Christine Morgan, who is a Board-Certified Sports Clinical Specialist and the Directo...
How to Be Happy & Healthy With IBD: The Psychosocial Impact of IBD
May 16, 2022 04:00 - 34 minutes - 39.7 MBThere are tools available to address the psychosocial impact of inflammatory bowel disease (IBD). Learn what’s available to you from Dr Jessica Naftaly, a GI behavioral health fellow at the University of Michigan and Amy Bugwadia, higher education coordinator for Generation Patient, Teaching Assistant at Stanford University School of Medicine, ulcerative colitis patient, and key opinion leader in the IBD community. Concepts discussed on this episode include: The Rome Foundation Gastropsyc...
How to Be Happy & Healthy With IBD: Reducing the Day-to-Day Burden
May 02, 2022 04:00 - 35 minutes - 40.1 MBWhether in remission or not, the day-to-day of life with IBD can be challenging. Living with Crohn’s disease or ulcerative colitis, even when feeling well, might mean making lifestyle changes, going to doctor’s appointments, and taking medications. Many people are diagnosed young, at a time when their friends aren’t going through anything similar. To understand how people might deal effectively with these changes, Amber talks with Dr Sandra Quezada, a gastroenterologist who specializes in IB...
How to Be Happy & Healthy With IBD: Common Misconceptions About IBD
April 18, 2022 04:00 - 39 minutes - 45.4 MBMyths and misconceptions about IBD are common. Even amongst patients, there’s things that take time and education to understand because the things that swirl around in the public consciousness are not always true. To help understand why we can’t get rid of some of these common misconceptions, Amber Tresca is joined by gastroenterologist and IBDologist Siobhan Proksell, MD, and ulcerative colitis and irritable bowel syndrome (IBS) patient advocate Molly Dunham-Friel, MPH of Better Bellies By ...
How to Be Happy & Healthy With IBD: Tips for Navigating Health Insurance
April 04, 2022 04:00 - 41 minutes - 47.6 MBPeople who live with chronic illness don’t get training on how to deal with health insurance. Yet it is a major part of living with conditions such as Crohn’s disease or ulcerative colitis. Plus, it not only affects patients living with IBD, but our doctors and other healthcare providers are also frustrated and overburdened with dealing with red tape such as prior authorizations. Dr Shubha Bhat, a gastroenterology clinical pharmacist at the Cleveland Clinic and Jaime Holland, who is a health...
How to Be Happy & Healthy With IBD: Discussing IBD With Family and Friends
March 21, 2022 04:00 - 42 minutes - 58.5 MBPeople who live with Crohn’s disease or ulcerative colitis don’t want to feel like a burden. They may feel guilty about changing or canceling plans. Sometimes, people with IBD may not even want to make plans in the first place. A strong support system can help overcome these issues and help patients manage their new normal. Dr Alexandra Fuss, a clinical health psychologist and an Assistant Professor of Psychiatry in the Department of Psychiatry at Yale School of Medicine and Brooke Abbott, u...
Colitis Conversations: Shared Decision-Making
March 07, 2022 05:00 - 37 minutes - 51.6 MBUlcerative colitis and Crohn’s disease are complicated. There are choices to make along the treatment journey, which means that patients and their healthcare providers need to work together to find the right path. That’s where shared decision-making comes into play. Healthcare providers can help patients learn about their options but patients need to speak up and help their doctors understand what they want from their treatment options, because it's not always obvious. To better understand...
Colitis Conversations: Approaches to Treatment
February 21, 2022 05:00 - 34 minutes - 47.3 MBAfter being diagnosed with a form of IBD, it can be a real challenge to understand that treatment is ongoing. Which might mean taking medications for long periods of time. It also means adding in lifestyle changes such as focusing on nutrition and diet, sleep, exercise, stress reduction, and learning about complimentary treatments that might be helpful. There are a lot of barriers to getting treatment, though, including cost and access. Some people might not realize that not only can their...
Colitis Conversations: Treating to Target
February 07, 2022 05:00 - 44 minutes - 51 MBSetting goals is an important part of managing IBD. But after controlling symptoms: what other goals do patients have? They can be anything from being able to go up and down the stairs, to cooking a meal, to going back to an exercise program. Treating to target is a concept that helps in goal-setting. But patients might not be using this method with their clinicians. Dr Neilanjan Nandi, Associate Professor of Clinical Medicine and IBD specialist at the University of Pennsylvania, Perelman ...
Colitis Conversations: The Impact of Ulcerative Colitis
January 24, 2022 05:00 - 45 minutes - 52.3 MBInflammatory bowel disease (IBD) affects our quality of life. What that means, however, is going to be different for each person. It may depend on many factors including disease severity, access to care, and support structure. The symptoms of ulcerative colitis such as diarrhea can prevent people from taking part in activities that aren’t near a bathroom. Bleeding can cause anemia, leaving people feeling tired and unable to go about regular activities. Not to mention the effects on mental ...