About IBD
169 episodes - English - Latest episode: 18 days ago - ★★★★★ - 25 ratingsCrohn's disease and ulcerative colitis (collectively known as inflammatory bowel disease) are about more than diarrhea: they affect the whole person. About IBD focuses on health and lifestyle issues important to people living with Crohn's or colitis. IBD patients, doctors, therapists, and care partners give their tips and advice on topics including diet, nutrition, treatments, mental health, family dynamics, and sexuality as it relates to living with IBD.
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Episodes
Amber Answers the IBD Advocacy Tag Questions
March 20, 2018 12:11 - 32 minutes - 48.9 MBMegan Johnson of The Front Butt YouTuber has presented 5 questions for people with IBD to answer and then tag someone else using #IBDAdvocacyTag. It’s a great way to get to know people in the community better and hear different perspectives. My answer to the form of IBD I have is not going to be what you expect and my socially awkward moment is pretty epic: I remember every detail about it, even though it happened almost two decades ago. And who did I tag? Well, I do that in my own way, too. ...
You Have To Be Happy Within Yourself
March 06, 2018 00:00 - 40 minutes - 37.3 MBPregnancy and birth are different for women with IBD. There are not only challenges that come from the disease itself but the lack of awareness about IBD during pregnancy can lead to less than optimal treatment. Brooke Abbott of The Crazy Creole Mommy Chronicles describes how she coped with ulcerative colitis during her pregnancy and a birth that did not go as she’d hoped or as she’d expected. Learn how everything turned out in the end and find out what Brooke and Amber think pregnant women ...
When IBD Gets Married With Jaime Weinstein
February 19, 2018 00:00 - 48 minutes - 73.6 MBGetting married is a joyful time in one’s life. Until you have to bring your IBD and body image difficulties along when you shop for your wedding dress, that is. Learn how Crohn’s disease affected Jaime’s perceptions about body image throughout her life and how it all culminated in a trip to a bridal shop that left her angry and frustrated. Plus, we share our best tips for making the dress shopping, and eventual wedding day attire wearing, go more smoothly if IBD decides to make make an appea...
We Are Not Unique With Christy Stone of Crohnie Bologna
February 06, 2018 00:00 - 38 minutes - 56.5 MBAre you unique? Do you represent most patients with IBD? Christy Stone of Crohnie Bologna tells the story of her disease journey, how she feels that she’s not unique as an inflammatory bowel disease patient, why she chooses kindness, and why these things make her a better advocate. Find Christy Stone, Crohnie Bologna, at: Blog: http://www.crohniebolognaibd.com/ Facebook: https://www.facebook.com/CrohnieBolognaIbd/ Twitter: https://twitter.com/CrohnieBologna Instagram: https://www.i...
2017 Year End Wrap-Up
January 04, 2018 20:07 - 33 minutes - 48.8 MBWelcome to the year-end wrap up show! I put together clips from my first 14 shows that drop the heaviest knowledge bombs about how life with IBD affects us, our careers, our relationships, and our stress levels. Do you have an IBD Elevator Speech? I got you, here’s where you can learn to create yours after you listen to Brooke Abbott give hers: https://www.verywell.com/how-to-create-your-ibd-elevator-speech-1942452 Find Christy Stone, Crohnie Bologna, at: Blog: http://www.crohniebologn...
We Are All Capable of More Than We Think With Brian Greenberg
December 03, 2017 23:01 - 42 minutes - 31.7 MBWhat are your goals? Are you taking steps each day to move towards those goals? Brian Greenberg, endurance athlete and president of Chronically Better You tells us how he moved from goals after surgery—getting out of bed and making his own lunch—to training for an Ironman in 2018. People with IBD know the value of structure and Brian explains how he has learned to manage his life with Crohn’s disease and an ostomy through careful planning and setting goals. 2:35: Why sitting still actu...
Growing Up IBD with Brian Greenberg
November 02, 2017 00:00 - 31 minutes - 25 MBBeing diagnosed with IBD as a child presents special challenges for kids and for parents. Learn how Brian Greenberg of Intense Intestines Foundation dealt with a Crohn’s disease diagnosis at a young age and transitioned from being a child reliant on parents to help manage his IBD to learning how to manage it all himself. 2:15: Brian spent a lot of time in detention as a kid! 3:15: The hardest part of going to school with IBD. 5:00: Brian's first resection: at 21. 7:00: Deciding to ge...
Don't Let IBD Ruin Your Day
October 17, 2017 01:20Did you know that more than 70% of people with IBD have reported bathroom accidents (fecal incontinence)? Did you also know that only around 20% ask for help from their physicians? It’s a sensitive topic, to be sure, which is why I offer advice on how to cope with this problem and how to avoid it in the first place. If you’re struggling with this issue I have tips that you can use today but the best advice is to talk to your doctor about it (and I discuss that also!). 2:53: IBD is not a po...
Getting Stress Relief With Dr Tiffany Taft
September 26, 2017 20:26 - 42 minutes - 53.7 MBHow does stress affect IBD? We know that stress does not cause IBD, but it does affect the disease. How does IBD actually cause stress, and what can we do to balance our lives in such a way that it does not affect us in a negative way? I talk with my guest, Dr Taft, about how she advises patients with chronic diseases on relieving stress and the tips and tools that have worked for her and her patients in integrating a comprehensive stress relief program into daily life. :28 The role of str...
Health Advocacy With Brooke Abbott
August 30, 2017 19:09 - 1 hour - 61.3 MBAre you ready to tell your story? Your legislators in Washington D.C., in your state, and your home town want to hear from you about how IBD has affected your life and the legislation you care about. Brooke Abbott of The Crazy Creole Mommy Chronicles and Amber tell you how to get started in health activism and how to make your voice heard in our government! 6:00: What’s an IBD Elevator Speech? Hear Brooke’s and then use the create your own. 7:15: Find out what happens when you meet with ...
Why Are You Grateful for Your IBD?
August 05, 2017 01:21 - 18 minutes - 42.9 MBIf I asked you what about your IBD you were grateful for, what would you say? This is exactly what I asked IBD Advocates, and their answers are as complex, rich, and varied as they are. As you listen to their responses, you will undoubtedly find yourself nodding in agreement with some ideas and seeing your life from a different perspective with others. I hope this episode is as fulfilling for you to listen to as it was for me to produce. 4:45: Hear why Alison Rothbaum of Empowering Patient...
Michael Tresca, Well Spouse and Amber's Husband
July 21, 2017 20:55 - 1 hour - 141 MBWhat's it like to watch your partner's ulcerative colitis become life-threatening and not be able to do anything about it? My husband, Mike, tells my story from his perspective, including how we met, what it was like to watch my health degrade, and all about our fairy tale wedding. Featured Guest: Michael Tresca Twitter: https://twitter.com/worldofwelstar Facebook: https://www.facebook.com/worldofwelstar/ Patreon: https://www.patreon.com/talien Want to become a Lady or Lord of Glen...
Clinical Trials With Michael Osso of the Crohns & Colitis Foundation
July 06, 2017 00:00 - 29 minutes - 66.9 MBOn this episode of About IBD, I talk with Michael Osso of Crohn's & Colitis Foundation and learn how important clinical trials are to patients with Crohn's disease and ulcerative colitis, including how we can do better to ensure trials are completed. This podcast will answer many of your questions about clinical trials, plus we discuss the brand new resource the Foundation has launching later this month! Featured Guest: Michael Osso, President and CEO Crohn's & Colitis Foundation http:/...
Traveling With Crohn's disease and Ulcerative Colitis With Jaime Weinstein
June 21, 2017 23:10 - 1 hour - 139 MBWhen you fly, do you board early? Once you get on the plane, what's the first thing you do? What's the second? Veteran traveler Jaime Weinstein, who lives with Crohn's disease, answers these questions and more based on her personal experiences when flying the friendly skies. Featured Guest: Jaime Weinstein Twitter: @JaimeEditor Instagram: @slightlyjaided Web Site: http://prettyrottenguts.tumblr.com/ Facebook Groups: https://www.facebook.com/groups/ibdjourney/ https://www.face...
Brooke Abbott of The Crazy Creole Mommy Chronicles
May 30, 2017 00:00 - 33 minutes - 76.6 MBI talk with Brooke Abbott of The Crazy Creole Mommy Chronicles about what it's like to be a parent with a chronic illness and how that's affected our relationship with our children. We also try to figure out how to clone ourselves and I'm so tired that I get the name of a well-known celebrity wrong -- several times. Featured Guest: Brooke Abbott Twitter: @CrzyCreoleMommy Facebook: https://www.facebook.com/crazycreolemommy/ Web site: https://crazycreolemommy.com/ Women of Distincti...
Ryan Stevens, Competitive Swimmer and Crohn's Patient
May 16, 2017 15:36 - 36 minutes - 82.5 MBWhat's it like to be a competitive swimmer and one day develop Crohn's disease? Well, you don't stop swimming! Hear Ryan Stevens, Crohn's Guy, talk about the work he's doing to raise awareness of IBD. Featured Guest: Ryan Stevens Twitter: @ryan_crohnsguy Facebook: https://www.facebook.com/IBDSwimmer/ Web site: www.crohnsguy.com Swimming With Courage & Crohn's: http://www.janssen.com/making-a-splash-with-patient-advocacy Finely Tuned: http://www.finelytuned.com/ Music: Moose -...
My J-Pouch Is My BFF
April 26, 2017 00:00 - 30 minutes - 35.4 MBOn this episode of the About IBD Podcast, I discuss j-pouches and bust some of the misconceptions that surround them. I also give my firsthand experience as a j-poucher who gave birth twice and let you in on what it's like for me to have a midline scar from open surgery. Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram. Credits: “About IBD" ©Cooney Studio.
Let's Talk About "The Talk" With Your Partner
April 12, 2017 11:59 - 34 minutes - 77.8 MBThe second edition of the About IBD Podcast where I talk with 3 women with IBD about their experiences in telling their partners about their Crohn's disease or ulcerative colitis. Featured Guests: Jaime Weinstein www.prettyrottenguts.tumblr.com @JaimeEditor Brooke Abbott www.crazycreolemommy.com @CrzyCreoleMommy Christy Stone www.crohniebolognaibd.com @CrohnieBologna Music: Funky Element - Bensound.com - www.bensound.com/royalty-free-music
Let's Talk About That Fungus Thing
March 26, 2017 00:00 - 27 minutes - 34.1 MBThe first edition of my About IBD Podcast where I talk about this fungus fracas, how it relates to Crohn's disease and ulcerative colitis, and why I'm not too worked up about IBD research done on mice. Find Amber J Tresca of About IBD at: Verywell: https://www.verywell.com/ibd-crohns-colitis-4014703 Blog: http://aboutibd.com/ Facebook: https://www.facebook.com/aboutIBD/ Twitter: https://twitter.com/aboutIBD Pinterest: https://www.pinterest.com/aboutibd/ Instagram: https://www.i...