About IBD
169 episodes - English - Latest episode: 18 days ago - ★★★★★ - 25 ratingsCrohn's disease and ulcerative colitis (collectively known as inflammatory bowel disease) are about more than diarrhea: they affect the whole person. About IBD focuses on health and lifestyle issues important to people living with Crohn's or colitis. IBD patients, doctors, therapists, and care partners give their tips and advice on topics including diet, nutrition, treatments, mental health, family dynamics, and sexuality as it relates to living with IBD.
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Episodes
Colitis Conversations: Shared Decision-Making
March 07, 2022 05:00 - 37 minutes - 51.6 MBUlcerative colitis and Crohn’s disease are complicated. There are choices to make along the treatment journey, which means that patients and their healthcare providers need to work together to find the right path. That’s where shared decision-making comes into play. Healthcare providers can help patients learn about their options but patients need to speak up and help their doctors understand what they want from their treatment options, because it's not always obvious. To better understand...
Colitis Conversations: Approaches to Treatment
February 21, 2022 05:00 - 34 minutes - 47.3 MBAfter being diagnosed with a form of IBD, it can be a real challenge to understand that treatment is ongoing. Which might mean taking medications for long periods of time. It also means adding in lifestyle changes such as focusing on nutrition and diet, sleep, exercise, stress reduction, and learning about complimentary treatments that might be helpful. There are a lot of barriers to getting treatment, though, including cost and access. Some people might not realize that not only can their...
Colitis Conversations: Treating to Target
February 07, 2022 05:00 - 44 minutes - 51 MBSetting goals is an important part of managing IBD. But after controlling symptoms: what other goals do patients have? They can be anything from being able to go up and down the stairs, to cooking a meal, to going back to an exercise program. Treating to target is a concept that helps in goal-setting. But patients might not be using this method with their clinicians. Dr Neilanjan Nandi, Associate Professor of Clinical Medicine and IBD specialist at the University of Pennsylvania, Perelman ...
Colitis Conversations: The Impact of Ulcerative Colitis
January 24, 2022 05:00 - 45 minutes - 52.3 MBInflammatory bowel disease (IBD) affects our quality of life. What that means, however, is going to be different for each person. It may depend on many factors including disease severity, access to care, and support structure. The symptoms of ulcerative colitis such as diarrhea can prevent people from taking part in activities that aren’t near a bathroom. Bleeding can cause anemia, leaving people feeling tired and unable to go about regular activities. Not to mention the effects on mental ...
Colitis Conversations: Getting an Accurate Diagnosis
January 10, 2022 05:00 - 44 minutes - 51.4 MBOnce people understand that symptoms like ongoing diarrhea and bloody stools are not normal, they need a way to overcome embarrassment and talk their symptoms over with a health care provider. Having an open and honest conversation will help ensure a quicker diagnosis of ulcerative colitis and getting the right treatment. On this episode, Rasheed Clarke, ulcerative colitis and j-pouch patient and author of Three Tablets Twice Daily and Dr Christina Ha, an IBDologist at the IBD Center at Ce...
Every Kid We Take Care of, We Become Part of Their Family
December 06, 2021 05:00 - 18 minutes - 20.7 MBHow is IBD different in kids than it is in adults? When should kids be transitioned from pediatric to adult care? What’s next for IBD treatments? My guest is Dr Jeffrey Hyams, the head of the Division of Digestive Diseases, Hepatology and Nutrition at Connecticut Children's, and a Professor of Pediatrics at the University of Connecticut School of Medicine. He provides a historical perspective on the treatment of IBD and is able to highlight how therapies have advanced over the last 30 years....
What Remission Means to a Teen With Ulcerative Colitis
November 21, 2021 05:00 - 26 minutes - 30.4 MBInflammatory bowel disease (IBD, Crohn’s disease, ulcerative colitis, and indeterminate colitis) is being diagnosed in young people with greater frequency. Research on how to treat pediatric patients, and indeed how to prevent IBD in the first place, is still lacking. What’s not in short supply is the strength and resilience shown by pediatric IBD patients and their families. Meet Brooke, a pediatric patient at Connecticut Children’s Hospital who credits her dedicated IBD team with her abili...
Living With Ulcerative Colitis as an Air Force Pilot
November 07, 2021 04:00 - 28 minutes - 39.1 MBDid you know that being diagnosed with ulcerative colitis or Crohn’s disease is a disqualifying condition to serve in the United States military? However, it seems that it’s not always an automatic reason for discharge. Lt Colonel Joshua Nelson was diagnosed with ulcerative colitis and needed to have ileostomy surgery. It cast into question his future as a pilot in the Air Force Reserve. Learn his story of how he worked with his medical team in order to keep doing the job he loves, his advic...
J-Pouch Surgery for Ulcerative Colitis With Vikram B. Reddy, MD, PhD
October 25, 2021 04:00 - 33 minutes - 46.3 MBUlcerative colitis surgery is sometimes viewed as the last stop for treatment but it can be a good option to treat inflammatory bowel disease (IBD). Dr. Vikram Reddy, Division Chief of Yale Medicine, Colon and Rectal Surgery, answers questions about j-pouch surgery including how patients feel about it, how he manages his patients after surgery, what complications might occur, and why surgery for ulcerative colitis is complicated and nuanced. Transcript and more information at: https://bit....
Finding Success with Nutrition Therapy
October 11, 2021 04:00 - 32 minutes - 44.8 MBIBD is not a condition that is easy to diagnose or treat. People who live with Crohn’s disease or ulcerative colitis have needs that include guidance on nutrition. Diet is notoriously difficult to study but some research is starting to be done. Dannielle Jascot, MS, CNS, CDN, certified nutritionist and IBD patient talks over the recent results of the DINE-CD study, which compared the Specific Carbohydrate Diet and the Mediterranean Diet. Episode page and transcript: https://bit.ly/2YIaZXk ...
Every Mom Matters: The MELODY Trial
September 27, 2021 04:00 - 21 minutes - 28.9 MBWhat should people who live with inflammatory bowel disease (IBD) eat? What diet plans are available? Barbara Olendzki, the Director of the Center for Applied Nutrition and an Associate Professor at the University of Massachusetts Chan Medical School, helped developed the inflammatory bowel disease anti-inflammatory diet (IBD-AID). The IBD-AID is currently being studied in pregnant people in the MELODY Trial. Barbara gives the lowdown on the IBD-AID, the MELODY Trial, and how and why she got...
The Snuggles Are the Thing
September 13, 2021 04:00 - 35 minutes - 40.9 MBHow do your pets help you with your IBD? I speak to Meredith Mangold, "The Bowel Battling Badass,” about the role her dogs have played in her life. She became seriously ill with ulcerative colitis, which progressed into a rare complication called toxic megacolon. As her journey with IBD progressed, she eventually needed colectomy surgery, and has since been diagnosed with other immune-mediated conditions. Her two dogs, however, have become a big part of her advocacy work and they help her ma...
Making a Plan for Back to School With Dr Brad Jerson
August 08, 2021 04:00 - 38 minutes - 43.5 MBThe back to school period is already a time of so much change but once again in this pandemic, parents and school systems are also facing difficult choices. The experiences of families during the pandemic has been diverse, which means that individual needs need to be addressed. But how do we manage that? Dr Brad Jerson Pediatric Psychologist in the Division of Digestive Diseases, Hepatology, and Nutrition at Connecticut Children’s, puts some framing around these issues and how we might appro...
A Wee Spark of Inspiration With Author Kathleen Nicholls
July 26, 2021 04:00 - 25 minutes - 35.1 MBThis is the second part of my conversation with Kathleen Nicholls, author of "Go Your Crohn Way: A Gutsy Guide to Living with Crohn's Disease” and "My Flare Lady: A Handbook for Today's (Diseased) Dame.” Hear the first part in Episode 97, where Kathleen tells us about her Crohn’s disease diagnosis and how blogging became the way she processes her disease journey. We talk about how to answer when people ask us how we’re doing. Which leads to another topic, and that’s how providers can ask p...
Wine, Biscuits, and Drinking Water With Author Kathleen Nicholls
July 12, 2021 04:00 - 25 minutes - 35.2 MBLife with inflammatory bowel disease (IBD) brings challenges and many life changes but it can also sometimes bring unexpected opportunities. Kathleen Nicholls, author of "Go Your Crohn Way: A Gutsy Guide to Living with Crohn's Disease” and "My Flare Lady: a handbook for today's (diseased) dame” was diagnosed with Crohn’s disease in her 20s. She started a blog as a way to process her disease journey. She was stunned when people started reading it and when publishers became interested. Two b...
Fatherhood and IBD With Jordan McConnell
June 20, 2021 04:00 - 39 minutes - 45.7 MBThe patient advocacy space is lacking the voices of men and especially men of color. The result is that the IBD community is not diverse enough to provide the kind of support that they need. Jordan McConnell, the founder of Crohn’s Veteran, is looking to change the dynamics of the online IBD space. Jordan served in the military and was eventually discharged due to his Crohn’s disease. It was a shock and changed his career plans unexpectedly. His disease journey showed him that he needed to...
Kelly Owens: Vagus Nerve Girl
June 14, 2021 04:00 - 38 minutes - 44.2 MBWhat is the next innovation in the treatment of inflammatory bowel disease (IBD)? Is it the microbiome? Stem cells? Or, is it the emerging field of bioelectric medicine? IBD is a complicated disease to treat and can bring complications and other, related conditions. The problem is the immune-mediated nature of the disease and how it affects the entire body. For Kelly Owens, who lives with Crohn’s disease, bioelectric medicine has bumped her into remission and changed her life in several wa...
Single Motherhood and IBD With Brooke Abbott
May 31, 2021 04:00 - 31 minutes - 36.5 MBMotherhood comes in all shapes and sizes. The intersection of inflammatory bowel disease (IBD) and motherhood is often left out of the discussion and single motherhood and IBD is pretty much ignored altogether. That's why I asked my close friend and co-founder of IBDMoms, Brooke Abbott of The Crazy Creole Mommy Chronicles, to tell me about her challenges and her successes living with IBD, a j-pouch, and being a single mom of a young son. Concepts discussed in this episode: What Are the F...
Motherhood Unplugged With Natalie Hayden
May 17, 2021 04:00 - 41 minutes - 47.8 MBIt's one thing to talk to your physicians about becoming pregnant when you live with ulcerative colitis or Crohn's disease. But what about getting the benefit of experiences from the mothers who have been through a pregnancy, birth, and breastfeeding journey? Former news anchor and current blogger and Crohn's patient Natalie Hayden gives her experiences with pregnancy and receiving biologics, as well as how she has participated in research during her pregnancies and the benefits it offers h...
IBD and Pregnancy With Jill Gaidos, MD
May 03, 2021 04:00 - 36 minutes - 41.5 MBWe used to be told that women with IBD couldn’t have children. We were also told people with IBD shouldn’t have children. The truth is this: women with IBD get pregnant and have healthy pregnancies and babies. We have more evidence and guidance than ever before. Gastroenterologist Dr Jill Gaidos, Associate Professor of Medicine in the section of Digestive Diseases and the Director of Clinical Research for the Yale Inflammatory Bowel Diseases Program discusses the finer points of pregnancy ...
Healthcare Disparities in IBD
April 05, 2021 04:00 - 1 minute - 1.91 MBHey, it's Amber. I want to tell you about my limited podcast series, Healthcare Disparities in IBD. IBD used to be thought of as a Western disease. Something that happened in developed countries like the United States, Canada, the UK, and Australia. IBD was also thought to mainly affect White people and people of Jewish heritage. However, these demographics are changing, and IBD is now considered a global disease.[1] A harmful and pervasive misconception is that IBD does not affect peopl...
Derek Mari of Crohnie: It's Not Impossible
March 23, 2021 04:00 - 30 minutes - 41.4 MBHave you ever seen a person who lives with inflammatory bowel disease (IBD) in a movie or TV show? If so: was the depiction positive or negative? My guest is actor, writer, and filmmaker Derek Mari. Derek lives with Crohn's disease and his IBD journey inspired him to create a story that explores the way people cope with living with a chronic illness. He has already filmed a short film, entitled "Crohnie," which was positively received at several film festivals (before the pandemic shut ev...
Fully Vaccinated Against COVID-19
March 08, 2021 05:00 - 20 minutes - 28.1 MBTelling your Crohn's disease or ulcerative colitis story is powerful. It can be freeing but it can also come with some unexpected side effects. Welcome back Rosanne Mottola, who originally intended to talk over receiving her second dose of the Pfizer BioNtech COVID-19 vaccine. She told her ulcerative colitis story and about receiving her first dose on Episode 87, "COVID-19 Vaccination With UC Patient Rosanne Mottola." She gives her experience on her second dose, how it affected her, and wh...
Living With IBD and a Rare Disease
February 21, 2021 05:00 - 37 minutes - 43 MBLiving with one disease is bad enough, but living with two adds more than two times the complexity. As a young man, Aaron Blocker was diagnosed with Crohn’s disease after years of coping with strange and seemingly disconnected signs and symptoms. He continued to have problems which resulted in two hip replacements that were blamed on prednisone. However, after one of those hip replacements became dislocated, Aaron went looking for more answers and wound up suspecting that he also had an ultr...
Living With Crohn's Disease and a Rare Disease
February 21, 2021 05:00 - 37 minutes - 43 MBLiving with one disease is bad enough, but living with two adds more than two times the complexity. As a young man, Aaron Blocker was diagnosed with Crohn’s disease after years of coping with strange and seemingly disconnected signs and symptoms. He continued to have problems which resulted in two hip replacements that were blamed on prednisone. However, after one of those hip replacements became dislocated, Aaron went looking for more answers and wound up suspecting that he also had an ultr...
Leaning Into Pleasure With Passion by Kait
February 08, 2021 18:41 - 42 minutes - 39.3 MBDuring times of stress, our personal relationships may suffer. In the pandemic, we are finding ourselves spending a lot of time with those in our households, and for couples, that can start to take a toll. Certified sex educator Kait Scalisi, founder of Passion By Kait, shares her knowledge and experience as a neuroscientist, public health professional, and couples' counselor to help us understand how to better manage our relationships during the pandemic and beyond. Concepts discussed on ...
COVID-19 Vaccination With UC Patient Rosanne Mottola
January 25, 2021 05:00 - 35 minutes - 40.5 MBPeople with IBD and other chronic conditions have questions about receiving the COVID-19 vaccination. Rosanne Mottola works at a hospital and was therefore eligible to receive a vaccination through her employer. Rosanne gives her experiences and takeaways as a "mild to moderate" ulcerative colitis patient and how she made the decision to receive the SARS-CoV-2 vaccine. She offers some great advice about how the internet may skew our perception of what IBD life is like, and because of her bac...
Double Baggin' It With Joe and Danielle
January 11, 2021 05:00 - 44 minutes - 50.4 MBDid an IBD diagnosis change the direction of your life? For Danielle Golden and Joe Teeters, being diagnosed as a young adult had a profound influence on their lives. The plans they had for their lives were derailed, but they only met, formed a strong friendship, and founded Double Baggin' It because of their IBD. Learn more about their disease journeys, how they met, and how they use humor to raise awareness of IBD and ostomy life both inside and outside the IBD community. Further Reading...
Amber's Reflections on 2020
December 29, 2020 23:00 - 6 minutes - 6.59 MBWhat does it mean to act with intention? The pandemic altered the course of our year and divorced us from our intentions. However, there were learnings that we can build on to create a better, more inclusive, and informed IBD community. In this mini-episode, I share my thoughts on how the year affected me and how I plan to move forward in 2021 by getting back to my intentions. Find Amber J Tresca at AboutIBD.com, Verywell, Facebook, Twitter, Pinterest, and Instagram. Credits: Mix and sou...
Dr David Rubin Answers COVID-19 Vaccine Questions
December 18, 2020 20:31 - 32 minutes - 37.7 MBFrom the beginning of the COVID-19 pandemic, people with inflammatory bowel disease (IBD) have had many questions. Now that vaccines against the virus are becoming available, people living with Crohn's disease or ulcerative colitis need even more information in order to make decisions. I asked Dr David Rubin, Chief of the Section of Gastroenterology, Hepatology & Nutrition and the Co-Director of the Digestive Diseases Center at The University of Chicago Medicine to answer some of these initi...
Find the Pony With Justin Baker
December 14, 2020 05:00 - 35 minutes - 40.7 MBFor many of us who live with a form of IBD, being a performer seems like it would be impossible. Some of the problems include needing a job that provides health insurance, the stress of auditions, and being healthy enough to perform onstage. Justin Baker, however, has found a way to make it work for him as he lives with Crohn's disease and ankylosing spondylitis (a form of degenerative arthritis that's associated with IBD). Justin is an actor, a photographer, and a clown. He tells me how he ...
The Streamers From Gaming4Guts
November 30, 2020 05:00 - 30 minutes - 34.4 MBCrohn's and Colitis Awareness Week is full of events that aim to raise funds and understanding of inflammatory bowel disease (IBD). One of these is Gaming4Guts, a gaming marathon to raise funds for the Crohn's & Colitis Foundation. Participants stream over Twitch during the 72-hour event but they have also formed a community, keeping in contact year-round on the Gaming4Guts Discord server. Kenzie, John, and Mark from Gaming4Guts sat down with me to talk about their personal connections to IB...
If I Take Care of Myself, I'm Also Taking Care of You
November 26, 2020 05:00 - 20 minutes - 23.1 MBAfter hearing from my 10-year-old daughter, it’s now time to hear from my 13-year-old son. My kids are in hybrid school, and for my 8th grader, this means he goes to school in person two full days a week, with 3 days of distance learning at home. We are managing it as well as I think we can expect. However, my son brings up a small wrinkle in regards to the "return to normal" to which we are all looking forward. It is going to be challenging for us to go back to our prior pace and there wil...
How Would You Feel if I Got COVID?
November 23, 2020 12:22 - 21 minutes - 24.9 MBHow often do you check in with your friends and family about how they're doing during the pandemic? Families have had to make difficult choices regarding school, playdates, and extracurricular activities. We are all concerned about how our kids are faring during the pandemic. But are we asking them about their worries and concerns as often as we should? Amber sits down with her 10-year-old daughter to talk about hybrid school, concerns about getting sick with COVID, what kids are missing rig...
Am I Forgiven?
November 16, 2020 05:00 - 33 minutes - 31.6 MBDo you worry that inflammatory bowel disease (IBD) will get in the way of finding a romantic partner? Crohn's disease or ulcerative colitis can make dating challenging but they can also simplify it. It becomes clear pretty quickly if a potential partner is going to struggle to cope with chronic illness. This episode focuses on communication, as Amber and her husband, Mike, discuss how he reacted to his first introduction to ulcerative colitis and why it's important to check in with your part...
The Girl That Was Missing
October 26, 2020 04:00 - 31 minutes - 27.4 MBInflammatory bowel disease (IBD) affects more than the digestive system. Crohn’s disease or ulcerative colitis can also affect the eyes, joints, and skin. Jordan Ditty was diagnosed with IBD as a child, though her diagnosis floated between Crohn’s and ulcerative colitis and she had j-pouch surgery due to a colonic perforation. Recently, she had her j-pouch removed and a permanent ileostomy placed. Surgery gave her with a better quality of life but also a new diagnosis of a skin condition rel...
Promo: PSC Mami
September 21, 2020 20:32 - 1 minute - 2.21 MBI'm taking some time off from producing new episodes of About IBD. But I don't want to leave you without great Crohn's disease and ulcerative colitis content for your ears. That’s why I’m sharing another podcast with you, called PSC Mami. PSC stands for primary sclerosing cholangitis, and it’s a liver condition that is related to IBD, and ulcerative colitis in particular. PSC Mami brings you stories at the intersection of PSC and parenthood. You can find PSC Mami in any podcast app as well...
Promo: Crohn's Veteran
September 07, 2020 11:26 - 1 minute - 2.31 MBI'm taking some time off from producing new episodes of About IBD. But I don't want to leave you without great Crohn's disease and ulcerative colitis content for your ears. That's why I'm sharing a new IBD podcast with you, called Crohn's Veteran. You can find Crohn's Veteran in any podcast app as well as on Facebook, YouTube, Instagram, and Twitter. The Crohn's Veteran hosts are Jordan McConnell, CJ Cabrera, and Renika Wood, who give their perspective on life with IBD and interview guests ...
Sending Chronically Ill Kids to School, Featuring Dr Brad Jerson
August 17, 2020 04:00 - 25 minutes - 29.6 MBKids with chronic illness face special issues when going back to school because they’re at risk of their accommodations becoming eroded. In particular, children who live with Crohn’s disease or ulcerative colitis, might be in danger of not being granted appropriate bathroom access. I speak with Dr Brad Jerson, a Pediatric Psychologist in the Division of Digestive Diseases, Hepatology, and Nutrition at Connecticut Children’s and an Assistant Professor of Pediatrics at the University of Connec...
Back to School in a Pandemic With Dr Brad Jerson
August 10, 2020 04:00 - 27 minutes - 31.1 MBBack to school will be quite different for families across the United States and the world this year. There aren’t many answers to be had to our questions, yet we must make decisions with the best information that we have at this time. I speak with Dr Brad Jerson, a Pediatric Psychologist in the Division of Digestive Diseases, Hepatology, and Nutrition at Connecticut Children’s and an Assistant Professor of Pediatrics at the University of Connecticut School of Medicine about how we can prepa...
About IBD Preview
August 09, 2020 20:38 - 1 minute - 2.36 MBWhile everyone who lives with inflammatory bowel disease, or IBD, has their own story, there are major themes. Finding someone whose story is similar to yours is both validating and empowering. This is why Amber Tresca, who lives with ulcerative colitis and a j-pouch, developed the About IBD Podcast. IBD is not only isolating but it also affects every aspect of the lives of those who live with these diseases. It touches relationships, finances, and careers. On About IBD, Amber talks to...
About IBD Preview - Crohn's Disease and Ulcerative Colitis
August 09, 2020 20:38 - 1 minute - 2.36 MBWhile everyone who lives with inflammatory bowel disease (Crohn's disease, ulcerative colitis, indeterminate colitis), or IBD, has their own story, there are major themes. Finding someone whose story is similar to yours is both validating and empowering. This is why Amber Tresca, who lives with ulcerative colitis and a j-pouch, developed the About IBD Podcast. IBD is not only isolating but it also affects every aspect of the lives of those who live with these diseases. It touches relat...
The Footprints Program with Arielle Radin of Gali Health
July 27, 2020 04:00 - 40 minutes - 46.5 MBWhat’s in your microbiome and how does it interact with your IBD? The bacteria that’s in the gut of someone that lives with IBD is different from the bacteria in the the gut of someone that doesn’t have IBD. This is a major area of study because it may help researchers not only in developing new treatments but also in better understanding IBD. That’s why I asked Arielle Radin, Director of Clinical Research for Gali Health, to talk to me about the Footprints Program. The Footprints Program is...
The Sherman Prize With Dr Dermot McGovern
July 03, 2020 04:00 - 23 minutes - 26.8 MBThe Sherman Prize is an award created by Bruce and Cynthia Sherman to recognize those who are making great contributions to the field of research and care in inflammatory bowel disease (IBD). The Sherman family has been touched by IBD and their goal is to create a ripple effect that spreads awareness, fosters innovation, and provides inspiration in the hope that in the future, other families won’t have to contend with IBD in the way that theirs has. Dr Dermot McGovern, Professor of Medicine ...
Find Those Things That Make You Happy
June 29, 2020 04:00 - 31 minutes - 35.9 MBBeing diagnosed with inflammatory bowel disease (Crohn’s disease or ulcerative colitis) can upend your entire life. Then being diagnosed with a rare liver disease? It could truly leave you feeling hopeless. But that’s not what happened to Jenna Ziegler of The Comical Colon. Not long after her ulcerative colitis diagnosis, her doctor was concerned about her liver test levels. With more testing and a lot of patient empowerment, Jenna now has a presumed diagnosis of primary sclerosing cholangit...
You've Got to Find the Humor in Things
June 22, 2020 12:00 - 28 minutes - 32.3 MBDo you have a sense of humor about your IBD? Jenna Ziegler of The Comical Colon found that keeping her sense of humor has helped her through the challenges she faced after being diagnosed with ulcerative colitis in college. After fighting her way back to health after severe flare-ups and carving out the life she wanted for herself, Jenna received another stunning diagnosis: a rare liver condition called primary sclerosing cholangitis, or PSC. Over the years she has done the hard work to lear...
I Had Contemplated Keeping It a Secret
June 01, 2020 04:00 - 31 minutes - 37.6 MBWhat has been your experience with ostomy surgery? If you know someone who lives with an ileostomy or a colostomy, you'll likely get your impression about having a stoma from them. But what if that person struggles to accept their stoma? When Amber Wallace Ogle of The Ostomy Diaries was faced with ileostomy surgery to treat her Crohn's disease, she was reminded of the negative experiences of her family members who lived with an ostomy. However, it didn't take long after her surgery before sh...
I Evaluated What Was Really Important to Me
May 18, 2020 04:00 - 36 minutes - 41.5 MBHow does being diagnosed with a chronic illness affect your path in life? For Mariah Leach, a rheumatoid arthritis diagnosis came out of the blue and put her at a crossroads. She decided to take the road towards patient advocacy. What started as a way to process her feelings and keep family and friends updated about her condition through her writing has evolved into a calling. Today, she has become a tireless advocate for people living with rheumatoid arthritis and as a resource for parents ...
I'm Not Doing This By Myself
May 04, 2020 20:51 - 23 minutes - 29.3 MBHow would you answer these questions about your inflammatory bowel disease (IBD)? What is the best part of having IBD? What is the hardest part of your day? What is your least favorite treatment? If you could choose one dance for your doctor, what would it be and why? What is one thing you wish people knew about your condition? Amber answers these questions, posed by Shawntel Bethea of Crohn's & Stuff, for fun and also to get the conversation started about how Crohn’s disease and u...
Tips for Telehealth Appointments During the Pandemic
April 27, 2020 04:00 - 27 minutes - 31.4 MBTelehealth has become part of our new normal as we practice physical distancing during the COVID-19 pandemic. Several of the barriers that prevented us from being able to see our doctors for an appointment via a telephone call or a video call have now been managed. However, it’s still a new way to receive healthcare, and both patients and clinicians are adjusting. Learn from Neilanjan Nandi, MD, gastroenterologist and Associate Professor of Clinical Medicine at Penn Presbyterian Medical Cent...