Latest Cgvhd Podcast Episodes
AML Survivor Lela Prewitt Talks GVHD Tips
Marrow Masters - December 14, 2022 23:54 - 30 minutes ★★★★★ - 7 ratingsLela Prewitt was diagnosed with Acute Myeloid Leukemia (AML) n February of 2021. She walks us through her diagnosis and transplant process. This includes having to move with her wife from their small community to Seattle, so they could have access to the Fred Hutchinson Cancer Center, also kno...
Pediatric Patient Care, with Retired PA Nancy Robey
Marrow Masters - December 14, 2022 23:54 - 33 minutes ★★★★★ - 7 ratingsNancy Robey spent 34 years as a Physicians Assistant at Johns Hopkins in Maryland. Now retired, she has a wealth of experience with pediatric transplant patients. She's here today to offer her tips and best practices to care for them. In the pediatric transplant world, the procedure may be for...
Caregiver Tina Masters-Odum Keeps Hunter's Battle Alive
Marrow Masters - December 14, 2022 23:54 - 31 minutes ★★★★★ - 7 ratingsTina Masters-Odum recently lost her husband after being his caregiver for over 12 years. Today, she honors his legacy by sharing her best caregiver and survivorship tips. We start with what you need to know at the beginning of this process. It can be easy to experience information overload. B...
Jermaine Reid's Spirituality Through AML
Marrow Masters - December 14, 2022 23:54 - 29 minutes ★★★★★ - 7 ratingsJermaine Reid of Georgia was playing a recreational basketball game when, all of a sudden, he couldn't catch his breath. Jermaine had not been to the doctor in quite some time and he knew something was wrong. Next thing you know, he was in the Bone Marrow Transplant Unit at Northside Hospital...
Information Specialist, Nurse and CML Survivor Becky Dame
Marrow Masters - December 14, 2022 23:54 - 15 minutes ★★★★★ - 7 ratingsToday we are joined by Becky Dame, currently an Information Specialist at The Leukemia & Lymphoma Society, RN and Survivor. As Peggy says in the podcast, callers who end up talking to Becky must feel like they've hit the information jackpot. Becky is a chronic myeloid leukemia (CML) survivor w...
Season 9 Trailer: What I Wish I Knew Before Transplant
Marrow Masters - December 14, 2022 22:44 - 2 minutes ★★★★★ - 7 ratingsSeason 9 of the Marrow Masters Podcast focuses on “what I wish I knew before transplant.” We’re featuring advice from caregivers, doctors, nurses, and survivors. The transplant journey doesn’t end in the hospital - it’s important to maintain a positive attitude when you come home, too. This sea...
How A Clinical Trial Changed Aisha Stokes' Life
Marrow Masters - September 21, 2022 13:17 - 20 minutes ★★★★★ - 7 ratingsSurvivor Aisha Stokes of Southfield, Michigan was not a cancer patient. She battled sickle cell anemia for the first 24 years of her life. But it was a clinical trial involving what's traditionally a cancer course of treatment - that changed everything. Aisha walks us through the decision to...
Dr. Corey Cutler of Dana Farber
Marrow Masters - September 21, 2022 13:16 - 21 minutes ★★★★★ - 7 ratingsDr. Corey Cutler is the medical director of the Stem Cell Transplantation Program at Boston's Dana Farber Cancer Institute and an associate professor of medicine at Harvard Medical School. As a physician at the forefront of cancer research, he talks about how the field has rapidly advanced, tha...
How Clinical Trials Extended Jacey Herman's Life
Marrow Masters - September 21, 2022 13:16 - 17 minutes ★★★★★ - 7 ratingsJacey Herman is a survivor. And much of that has to do with clinical trials. At age 35, this mom of two was diagnosed with with B cell acute lymphoblastic leukemia. Late admission into a clinical trial got her to remission the first time. After a relapse, she underwent a double cord transpla...
Stacey Brown, Clinical Research Manager at Northside Hospital
Marrow Masters - September 21, 2022 13:15 - 17 minutes ★★★★★ - 7 ratingsThis season we are talking to doctors and clinical trial participants. But today we get a different perspective. Stacey Brown manages clinical research at Northside Hospital Cancer Institute. She's uniquely qualified to discuss what goes into an institution joining a clinical trial, as well as...
Gleevec Pioneer Mel Mann's 25 Year Survival Story
Marrow Masters - September 21, 2022 13:15 - 23 minutes ★★★★★ - 7 ratingsToday Gleevec is an incredibly common cancer treatment. But like every drug on the market, it went through clinical trials more than two decades ago. Our guest today, Mel Mann, was the second person to receive the drug, back in 1998. And it saved his life. Mel was diagnosed with chronic myelo...
Dr. Mark Schroeder Explains the Clinical Trial Process
Marrow Masters - September 21, 2022 13:14 - 28 minutes ★★★★★ - 7 ratingsOur guest today is Dr. Mark Schroeder of the Washington University School of Medicine in Saint Louis. Dr. Schroeder walks us through the different phases of the clinical trial process, how it can benefit patients, and how volunteers can help advance cancer treatment. We talk about intervention...
Marilyn Zagha-Keeshan's Shares Extraordinary Treatment During Clinical Trials
Marrow Masters - September 21, 2022 13:14 - 11 minutes ★★★★★ - 7 ratingsSurvivor Marilyn Zagha-Keeshan joins us today. An immunoblastic T-cell lymphoma survivor, Marilyn volunteered for not one, but two clinical trials. She talks about the helpless feeling that came with her cancer diagnosis, but the empowering feeling that came with volunteering for clinical tria...
Season 8 Trailer: Clinical Trials
Marrow Masters - September 19, 2022 21:40 - 2 minutes ★★★★★ - 7 ratingsWelcome to Season 8 of the Marrow Masters Podcast, sponsored by Omeros Corporation. and Incyte. Season 8 of our show focuses on clinical trials. We're covering how to find them, what to expect, and how survivors have benefited from them. We also talk to healthcare professionals about how these ...
Dr. Areej El-Jawahri on Chronic Graft Versus Host Disease Issues Regarding Sexual Health and Intimacy
Marrow Masters - June 21, 2022 11:20 - 19 minutes ★★★★★ - 7 ratingsSeason 7 of Marrow Masters focuses on chronic Graft vs. Host Disease sufferers, or GVHD "long haulers." And our first episode is about an important topic that doesn't get enough attention - reproductive and sexual health. Dr. Areej El-Jawahri is an oncologist at Massachusetts General Hospital ...
Juliane Belisle, MSW, LCSW-s, on the Psychosocial Needs of Chronic Graft Versus Host Disease Long Haulers
Marrow Masters - June 21, 2022 11:15 - 30 minutes ★★★★★ - 7 ratingsJuliane Belisle, MSW, LCSW-s, at Cancer Family Care in Cincinnati, provided counseling and other services to survivors and their families. To outsiders, chronic Graft vs. Host Disease long haulers may appear fine. Survivors have made it through transplant and the immediate aftermath. But the...
Dr. Sean Smith on Improving and Maintaining Mobility with Chronic Graft Versus Host Disease
Marrow Masters - June 21, 2022 11:10 - 21 minutes ★★★★★ - 7 ratingsDr. Sean Smith is the director of the cancer rehabilitation program at Michigan Medicine, in Ann Arbor, as well as an associate professor at the University of Michigan. He's dedicated to helping patients improve function as it relates to a variety of musculoskeletal, neurological and cognitive d...
Heather Jim, Ph.D, on Chronic Graft Versus Host Disease Sleep Related Issues
Marrow Masters - June 21, 2022 11:05 - 14 minutes ★★★★★ - 7 ratingsHeather Jim, PhD, is a senior member and co-leader of the Health Outcomes and Behavior Research Program at Moffitt Cancer Center in Tampa. Today she walks us through ways to combat sleep issues related to chronic Graft vs. Host Disease. Hopefully the tips here will help all of us get a better...
Caregiver Ann Haehn Shares Best Ways to Support Your Loved One Battling Chronic Graft Versus Host Disease
Marrow Masters - June 21, 2022 11:00 - 33 minutes ★★★★★ - 7 ratingsColorado's Ann Haehn and her daughter Genny are two truly special people. Today, Ann takes us on their journey through Genny's transplant and subsequent battles with chronic Graft vs Host Disease. After a very grim diagnosis, Ann and the rest of Genny's village found a doctor that felt he coul...
Survivor and Advocate Meredith Cowden, MA, LPCC-S, Shares Insight and Resources Regarding Chronic Graft Versus Host Disease
Marrow Masters - June 21, 2022 10:55 - 36 minutes ★★★★★ - 7 ratingsToday, survivor and advocate Meredith Cowden talks about being your own advocate regarding GVHD. As patient advocacy director of the Meredith Cowden Foundation, she has a wealth of resources to share, many of which are linked below. (If you'd like to hear a more detailed version of Meredith'...
Heather Younker RDN, CSO, on Chronic Graft Versus Host Disease Diet and Nutrition Issues
Marrow Masters - June 21, 2022 10:50 - 31 minutes ★★★★★ - 7 ratingsToday, Peg is joined by Heather Younker, RDN, CSO, a dietician at the John Theurer Cancer Center at Hackensack University Medical Center. We cover all things related to Graft vs. Host Disease and diet. Nutrition is important for everyone, but especially those with GVHD, in order to prevent maln...
Season 7 Trailer - cGVHD Long Haulers
Marrow Masters - June 16, 2022 19:33 - 1 minute ★★★★★ - 7 ratingsWelcome to Marrow Masters Season 7, sponsored by Pharmacyclics and Jansen, and Kadmon, a Sanofi company. This season we focus on long haulers – those who are dealing with chronic graft vs host disease. We cover different treatment options. We’ll cover some topics that aren’t always easy to br...
Dr. Sung Choi Shares Her Best Advice Regarding cGVHD as it affects children
Marrow Masters - July 19, 2021 21:28 - 34 minutes ★★★★★ - 7 ratingsDr. Sung Choi is a pediatric bone marrow transplant physician at Michigan Medicine (University of Michigan). Dr. Choi joins us today to discuss the unique challenges for pediatric patients as it relates to GVHD. Passionate and knowledgeable, Dr. Choi will tackle it all, including target organ d...
Dr. Sung Choi Shares Her Best Advice Regarding Chronic Graft Versus Host Disease (cGVHD) as it affects children
Marrow Masters - July 19, 2021 21:28 - 34 minutes ★★★★★ - 7 ratingsDr. Sung Choi is a pediatric bone marrow transplant physician at Michigan Medicine (University of Michigan). Dr. Choi joins us today to discuss the unique challenges for pediatric patients as it relates to Graft Versus Host Disease (cGVHD). Passionate and knowledgeable, Dr. Choi will tackle it ...
Dr. Ed Cowen of the NIH Covers Graft Versus Host Disease (GVHD) Skin-Related Issues
Marrow Masters - July 19, 2021 21:27 - 30 minutes ★★★★★ - 7 ratingsSenior Clinician Dr. Edward Cowen is Head of the Dermatology Consultation Service at the National Institute of Arthritis and Musculoskeletal and Skin Diseases at the NIH. Dr. Cowen will share his expertise on skin issues as they relate to Graft Versus Host Disease (GVHD). In this episode Dr. C...
Dr. Ed Cowen of the NIH Covers GVHD Skin-Related Issues
Marrow Masters - July 19, 2021 21:27 - 30 minutes ★★★★★ - 7 ratingsSenior Clinician Dr. Edward Cowen is Head of the Dermatology Consultation Service at the National Institute of Arthritis and Musculoskeletal and Skin Diseases at the NIH. Dr. Cowen will share his expertise on skin issues as they relate to GVHD. In this episode Dr. Cowen "covers" it all--dry sc...
Meet Dr. Molly Gallogly and Learn about Seidman's GVHD Clinic
Marrow Masters - July 19, 2021 21:27 - 32 minutes ★★★★★ - 7 ratingsMolly Gallogly, MD, PhD, Attending Physician, and director of the GVHD program at the Seidman Cancer Center in Cleveland, OH, is one busy doctor. Dr. Gallogly will share what happens at their incredible GVHD clinic and why it is advantageous to have a designated GVHD clinic. Newly diagnosed pati...
Meet Dr. Molly Gallogly and Learn about Seidman's Graft Versus Host Disease Clinic
Marrow Masters - July 19, 2021 21:27 - 32 minutes ★★★★★ - 7 ratingsMolly Gallogly, MD, PhD, Attending Physician, and director of the Graft Versus Host Disease (GVHD) program at the Seidman Cancer Center in Cleveland, OH, is one busy doctor. Dr. Gallogly will share what happens at their incredible GVHD clinic and why it is advantageous to have a designated GVHD ...
Meredith Cowden Keeps it Real as She Shares Her Long Journey with GVHD
Marrow Masters - July 19, 2021 21:27 - 31 minutes ★★★★★ - 7 ratingsMeredith Cowden was only 19 years-old when she was diagnosed with AML about 20 years ago. Meredith has been dealing with GVHD in many manifestations for most of these two decades. Polymyositis and steroid use are discussed as well as the incredible perseverance and determination this young lad...
Meredith Cowden Keeps it Real as She Shares Her Long Journey with Graft Versus Host Disease (GVHD)
Marrow Masters - July 19, 2021 21:27 - 31 minutes ★★★★★ - 7 ratingsMeredith Cowden was only 19 years-old when she was diagnosed with AML about 20 years ago. Meredith has been dealing with GVHD in many manifestations for most of these two decades. Polymyositis and steroid use are discussed as well as the incredible perseverance and determination this young lad...
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