Marrow Masters
108 episodes - English - Latest episode: 4 months ago - ★★★★★ - 7 ratingsThis podcast series educate patients, caregivers, and health care professionals regarding important topics as they relate to bone marrow/stem cell transplant and Car-T cellular therapy. Our newest installment, Season 12, answers the critical question of "I'm home, now what?"
Season 11 covers survivors who are thriving. Season 10 covers Graft Versus Host Disease (GVHD) focusing on hope and inspiration. Season 9 covers incredible tips before during and after transplant--things folks wish they had known. Season 8 covered All Things Related to Clinical Trials while Season 7 and 6 focused on important topics related to Graft Versus Host Disease, (GVHD.) In earlier seasons, we covered all things survivorship (Season 5), the caregiver perspective (Season 4), the patient perspective (Season 3), busting marrow myths (Season 2), and chronic GVHD (Season 1). With more than 24,000 downloads today, we are so thrilled to offer these pods.
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Episodes
Licensed clinical oncology social worker Ailey Armstrong
December 18, 2023 23:25 - 33 minutes - 30.7 MB**Disclaimer: The information in this podcast should not be construed as medical advice. Please consult with your health care provider regarding your medical decisions and treatment. Any listed resources are not intended to be endorsements.** Ailey Armstrong, MSW, LICSW is a licensed clinical oncology social worker at Fred Hutchinson Cancer Center in Seattle. Today, she shares her insights on transitioning home post-transplant. She emphasizes the importance of continued caregiving support a...
Survivor, Speaker, and Author Gregory Proctor
December 18, 2023 23:20 - 33 minutes - 31.1 MB**Disclaimer: The information in this podcast should not be construed as medical advice. Please consult with your health care provider regarding your medical decisions and treatment. Any listed resources are not intended to be endorsements.** In today's episode of our podcast, we had the privilege of speaking with Gregory Proctor, a 53-year-old multiple myeloma survivor from San Antonio, Texas. Gregory's story is a testament to resilience and hope, as he details his journey through a challe...
Multiple Myeloma Survivor Diane Raab
December 18, 2023 23:15 - 31 minutes - 29.1 MB**Disclaimer: The information in this podcast should not be construed as medical advice. Please consult with your health care provider regarding your medical decisions and treatment. Any listed resources are not intended to be endorsements.** Today we welcome Diane Raab, a remarkable survivor of multiple myeloma and a licensed clinical social worker from Cheboygan, Michigan. Diane shares her personal journey through the challenging path of cancer treatment, sprinkling her narrative with bot...
Registered Dietitian Sue Hill on Food Safety
December 18, 2023 23:10 - 28 minutes - 26.2 MB**Disclaimer: The information in this podcast should not be construed as medical advice. Please consult with your health care provider regarding your medical decisions and treatment. Any listed resources are not intended to be endorsements.** In the podcast, Peggy welcomes Sue Hill, a registered dietitian at Henry Ford Health Cancer in Detroit, to discuss food safety and nutrition for post-transplant patients. Sue emphasizes the importance of following guidelines by the Academy of Nutrition...
Survivor Turned Advocate Alan Katz
December 18, 2023 23:05 - 30 minutes - 28 MB**Disclaimer: The information in this podcast should not be construed as medical advice. Please consult with your health care provider regarding your medical decisions and treatment. Any listed resources are not intended to be endorsements.** In today's episode, we had the privilege of speaking with Alan Katz, a Massachusetts resident and a survivor of Acute Myeloid Leukemia (AML). Alan's journey through his diagnosis, treatment, and life post-transplant is both inspiring and enlightening. ...
Caregiver Leila Zengel Shares Her Family's Experience
December 18, 2023 23:00 - 31 minutes - 29.1 MB**Disclaimer: The information in this podcast should not be construed as medical advice. Please consult with your health care provider regarding your medical decisions and treatment. Any listed resources are not intended to be endorsements.** In this podcast, Peggy converses with Leila Zengel, who shares her family's journey and challenges following her 10 year-old daughter Julie's bone marrow transplant. Julie, diagnosed with (refractory) Ph-like ALL in January 2018, underwent a transplan...
Season 12 Trailer
December 08, 2023 14:43 - 3 minutes - 2.94 MBWelcome to Season 12 of the Marrow Masters Podcast, brought to you by the National Bone Marrow Transplant Link, and sponsored by Sanofi. This season focuses on one critical question. "I'm home. Now what?" You'll hear candid stories and advice from survivors and caregivers. This season, you'll also get valuable advice from a registered dietician and a social worker. Season 12 of the Marrow Masters Podcast is out December 19th, 2023. Don't miss an episode - follow our show for free on Apple, S...
Loriana Hernandez Armors Up For Life
August 31, 2023 10:25 - 34 minutes - 31.6 MBLoriana Hernandez felt like she had it all. She'd been a news anchor all over the country whose profile had risen nationally. In her own words, she was a clean-eating, green-drinking, yoga enthusiast. She had a two-year-old son, and was in the midst of fertility treatment when her doctor noticed there was something wrong. Loriana had AML Leukemia, and a doctor contact at world-renowned Johns Hopkins told her "Get on a plane. Say goodbye to your son. You don't have time to waste. We have ...
Author Peter Gordon and The Long Road Onward
August 31, 2023 10:20 - 27 minutes - 24.9 MBPeter Gordon is no stranger to the National Bone Marrow Transplant Link. The author of "Six Years and Counting: Love, Leukemia, and the Long Road Onward" was very well received at our book club. Today you'll hear his story. In 2008, this avid outdoorsman was living in the White Mountains of New Hampshire, and his girlfriend had just moved down from Montreal to marry him. Soon after, he was diagnosed with leukemia and put on the transplant waiting list at Boston's Dana Farber Cancer Inst...
Future Social Worker Sharde Fultz Pays It Forward
August 31, 2023 10:15 - 31 minutes - 28.4 MBWe first met the incredible Sharde Fultz in our very first season of Marrow Masters, back in 2019. We wanted to reconnect with her as one our our "survivors who thrive" this season. In 2009, Sharde was a college student, living on campus as a dance major with big dreams. Then she was diagnosed with non-Hodgkins Lymphoma. Following chemotherapy and radiation, Sharde received an an allogeneic bone marrow transplant in 2011. Having to leave school, she immersed herself in online support fo...
Patient Turned Fundraiser Mike Rubin
August 31, 2023 10:10 - 32 minutes - 29.6 MBAs a patient, Mike Rubin was at the forefront of bone marrow transplants when he received one in 1987 at the age of 24. Today, he serves a director of philanthropic gifts for the very place he received his transplant - Seattle's Fred Hutch Cancer Center. In the mid 80's, Mike was diagnosed with myelodysplasia, which would eventually morph into AML leukemia. After consulting with some of the nation's leading cancer centers, Mike and his family settled on the institution that pioneered bone...
Survivor Turned Nurse Molly Pratt
August 31, 2023 10:05 - 17 minutes - 16.1 MBAs a child, Molly Pratt had a fear of medical facilities. Today, you'll hear how her perspective changed. She's now a BSN, RN in Pediatrics at Beaumont Children's at Corewell Health's Beaumont Hospital, Royal Oak, Michigan. Molly was an active 16 year-old high school student when she was diagnosed with Hodgkin's Lymphoma. Her first round of treatment involved outpatient chemotherapy, but she eventually needed a bone marrow transplant, which she received in 2017. Her priorities shifted f...
Cancer Survivor Turned Social Work Professor Dr. Bradley Zebrack
August 31, 2023 10:00 - 26 minutes - 24.3 MBDr. Brad Zebrack is not only an incredible social worker who specializes in oncology but he is survivor himself. Brad was diagnosed with Hodgkin's lymphoma, at the age of 25, back in 1989. We spend some time on the term "survivor" - 40 years ago it referred to the family members left behind when someone died of cancer. Now, a survivor is anyone who is still alive, starting from the moment of diagnosis. But it's important to remember that every journey is different, and terms like this c...
Season 11 Trailer: Survivors Who Thrive
August 28, 2023 15:26 - 3 minutes - 3.52 MBWelcome to Marrow Masters Season 11, sponsored by The Leukemia & Lymphoma Society and Sanofi. The National Bone Marrow Transplant Link, established in 1992 strives to help patients, caregivers and families cope with the psychosocial challenges of bone marrow/stem cell transplant from diagnosis through survivorship. Season 11 of our show focuses on thriving in survivorship. We know it’s hard work. In this season, you will meet six incredible people who will share the challenges they faced a...
A better understanding of GVHD with Occupational Therapist Melora Rennie, OTR/L, CLT-LANA
June 22, 2023 10:25 - 47 minutes - 43.9 MBAs this season focuses on Graft Versus Host Disease (GVHD), we thought we would start with the basics. Today we welcome Melora Rennie, OTR/L, CLT-LANA, an Occupational Therapist from the blood and marrow transplant unit at Northside Hospital in Atlanta. She helps patients who are battling various blood and marrow cancers such as leukemia, lymphoma, aplastic anemia, multiple myeloma and even sickle cell disease. Melora explains the reasons for and different types of bone marrow transplants...
Four Time Transplant Survivor Jim Bond On Why It Was All Worth It
June 22, 2023 10:20 - 17 minutes - 16.4 MBIt's hard not to be inspired by the story of today's guest. Jim Bond is a four-time transplant survivor, dating back to his first transplant in 1993, following his 1992 diagnosis.. He's participated in a life-saving clinical trial. In 2002, he was running out of options after his third transplant. In fact, his doctor was ready to send him to hospice care. But Jim wouldn't take no for an answer, travelled from Cleveland to Boston, and continued his fight. Wouldn't you know, he was the s...
Dr. Matt Kalaycio on the Importance of GVHD Clinical Trials
June 22, 2023 10:15 - 28 minutes - 25.6 MBDr. Matt Kalaycio is the Vice Chairman of the Taussig Cancer Institute at the Cleveland Clinic. He joins us today to talk about clinical trials - the hope they bring, the lives they save, and why they are so important in regards to Graft Versus Host Disease. For example, the popular GVHD drugs Ruxolitinib, Ibrutinib, and Belumosudil They were found to be effective, thanks to clinical trials Dr. Kalaycio walks us through how that happened. Clinical trials are often intimidating, or even ...
"Walking Miracle" and AML Survivor Rhonda Frederick Stewart
June 22, 2023 10:10 - 23 minutes - 21.9 MBRhonda Frederick Stewart has been through it all. She was diagnosed with non-Hodgkin's lymphoma in 2012. Her chemo treatment likely led to acute myeloid leukemia (AML). Later, she developed both a brain bleed and an aneurism. Today, she takes us through her journey of survivorship and inspiration. Rhonda's treatment has led to Chronic Graft Versus Host Disease(GVHD) of the lungs, skin, eyes. and gastrointestinal system (GI system.) Through a combination of communications with her me...
Dr. Andy Harris on the Challenges Facing Young Patients with cGVHD
June 22, 2023 10:05 - 28 minutes - 26.3 MBDr. Andy Harris was diagnosed with acute myeloid leukemia (AML) when he was a 19 year old pre-med college student. After receiving lifesaving care at the University of Michigan, he vowed to pay it forward. Now he works with young people at Memorial Sloan Kettering Cancer Center in New York. Today we do a deep dive with Dr. Harris on the unique challenges posed to kids of all ages fighting cancer. Babies are supposed to be spending this time bonding with their parents. Toddlers are suppo...
Barbara Abernathy, PhD, Pediatric Support and Navigating GVHD & Survivorship
June 22, 2023 10:00 - 27 minutes - 25.5 MBDr. Barbara Abernathy is the President and CEO of The Pediatric Oncology Support Team, (POST) serving South Florida. She was already working at POST, helping pediatric cancer patients and their families, when she herself was diagnosed with Polycythemia Vera, a blood cancer, in 1996. She kept her diagnosis to herself. In 2013, Barb's disease morphed into AML, and she was in urgent need of a bone marrow transplant. A match, a young man in Germany, was found. Barb's intimate knowledge of ...
Season 10 Trailer
June 13, 2023 18:36 - 2 minutes - 2.36 MBSEASON 10 OF MARROW MASTERS WILL BE OUT ON THURSDAY, JUNE 22, 2023! Welcome to Marrow Masters Season 10, sponsored by Pharmacylics and Janssen, and Incyte. The National Bone Marrow Transplant Link, established in 1992, strives to help patients, caregivers, and families cope with the psychosocial challenges of bone marrow and stem cell transplant from diagnosis through survivorship. Season 10 focuses on sharing hope and inspiration regarding chronic graft versus host disease, or GVHD. This ...
Non-Hodgkin's Lymphoma Survivor Kate Arnold's Top Tips
December 14, 2022 23:55 - 33 minutes - 30.6 MBKate Arnold underwent a stem cell transplant for Non-Hodgkins Lymphoma 12 years ago. She joins us today to discuss her best survivorship tips for every step of the process. First, you need a goal--- a "why." For Kate, she wanted to get her young daughters through high school. Today, they are both in college. Throughout this process, listen to your gut. ASK QUESTIONS - there are no stupid questions, even if they seem trivial. Make sure you have a medical team that you are comfortable w...
Preserving Fertility Through Cancer Treatment
December 14, 2022 23:55 - 34 minutes - 31.6 MBThis is a special episode of the Marrow Masters Podcast. Not only do we have two guests, but we are also diving into a very important topic that isn't often discussed. When you're facing transplant, fertility may be the furthest thing from your mind. But chemotherapy, radiation, and other treatments could impact your body's ability to start a family. That's why it's critically important to at least have a conversation before starting treatment. Today's guests are Dr. Quinton Katler, a...
AML Survivor Lela Prewitt Talks GVHD Tips
December 14, 2022 23:54 - 30 minutes - 28.1 MBLela Prewitt was diagnosed with Acute Myeloid Leukemia (AML) n February of 2021. She walks us through her diagnosis and transplant process. This includes having to move with her wife from their small community to Seattle, so they could have access to the Fred Hutchinson Cancer Center, also known as "The Hutch." Lela's transplant in June 2021 went well, but she developed Graft Versus Host Disease, and with it came many complications. She talks about the need for education about survivorshi...
Pediatric Patient Care, with Retired PA Nancy Robey
December 14, 2022 23:54 - 33 minutes - 30.5 MBNancy Robey spent 34 years as a Physicians Assistant at Johns Hopkins in Maryland. Now retired, she has a wealth of experience with pediatric transplant patients. She's here today to offer her tips and best practices to care for them. In the pediatric transplant world, the procedure may be for something other than cancer, and many patients and families don't have the knowledge base that cancer patients do. Education is so important. Speaking of education, how do you navigate a patient b...
Caregiver Tina Masters-Odum Keeps Hunter's Battle Alive
December 14, 2022 23:54 - 31 minutes - 28.6 MBTina Masters-Odum recently lost her husband after being his caregiver for over 12 years. Today, she honors his legacy by sharing her best caregiver and survivorship tips. We start with what you need to know at the beginning of this process. It can be easy to experience information overload. But talk to a nurse navigator or equivalent to find out things such as what are the sleeping arrangements for the caregiver? What other accommodations will the hospital have for food, a shower, and mo...
Jermaine Reid's Spirituality Through AML
December 14, 2022 23:54 - 29 minutes - 26.7 MBJermaine Reid of Georgia was playing a recreational basketball game when, all of a sudden, he couldn't catch his breath. Jermaine had not been to the doctor in quite some time and he knew something was wrong. Next thing you know, he was in the Bone Marrow Transplant Unit at Northside Hospital, unable to be around his children. He was fighting with acute myeloid leukemia. But it was a chance meeting with another patient on his second day that completely changed his perspective. All of...
Information Specialist, Nurse and CML Survivor Becky Dame
December 14, 2022 23:54 - 15 minutes - 14.6 MBToday we are joined by Becky Dame, currently an Information Specialist at The Leukemia & Lymphoma Society, RN and Survivor. As Peggy says in the podcast, callers who end up talking to Becky must feel like they've hit the information jackpot. Becky is a chronic myeloid leukemia (CML) survivor who went on to become a cancer care nurse, before she transitioned to her current role. Today, we tap into her wealth of personal and professional experience. Becky was diagnosed as a college student...
Season 9 Trailer: What I Wish I Knew Before Transplant
December 14, 2022 22:44 - 2 minutes - 2.14 MBSeason 9 of the Marrow Masters Podcast focuses on “what I wish I knew before transplant.” We’re featuring advice from caregivers, doctors, nurses, and survivors. The transplant journey doesn’t end in the hospital - it’s important to maintain a positive attitude when you come home, too. This season also includes an episode on fertility preservation, a topic that isn't discussed nearly enough. Don't miss an episode of Marrow Masters, Season 9! Follow our show on Apple, Spotify, YouTube, or o...
How A Clinical Trial Changed Aisha Stokes' Life
September 21, 2022 13:17 - 20 minutes - 18.5 MBSurvivor Aisha Stokes of Southfield, Michigan was not a cancer patient. She battled sickle cell anemia for the first 24 years of her life. But it was a clinical trial involving what's traditionally a cancer course of treatment - that changed everything. Aisha walks us through the decision to enroll in this trial just before an upcoming birthday would have made her ineligible. Following pheresis, she underwent an intense four day chemotherapy treatment, followed by a stem cell transplant,...
Dr. Corey Cutler of Dana Farber
September 21, 2022 13:16 - 21 minutes - 20 MBDr. Corey Cutler is the medical director of the Stem Cell Transplantation Program at Boston's Dana Farber Cancer Institute and an associate professor of medicine at Harvard Medical School. As a physician at the forefront of cancer research, he talks about how the field has rapidly advanced, thanks to the volunteers who participate in clinical trials. Dr. Cutler's field of expertise is Graft Versus Host Disease, and he starts by walking through all the different therapies that have come out...
How Clinical Trials Extended Jacey Herman's Life
September 21, 2022 13:16 - 17 minutes - 15.9 MBJacey Herman is a survivor. And much of that has to do with clinical trials. At age 35, this mom of two was diagnosed with with B cell acute lymphoblastic leukemia. Late admission into a clinical trial got her to remission the first time. After a relapse, she underwent a double cord transplant when no donor could be found. Yet another clinical trial bought her more time until, following yet another relapse, Jacey found a match, and has been in remission ever since. Peg and Jacey talk ...
Stacey Brown, Clinical Research Manager at Northside Hospital
September 21, 2022 13:15 - 17 minutes - 16 MBThis season we are talking to doctors and clinical trial participants. But today we get a different perspective. Stacey Brown manages clinical research at Northside Hospital Cancer Institute. She's uniquely qualified to discuss what goes into an institution joining a clinical trial, as well as everything patients can expect throughout the process. Northside is unique in that all its patients come in via referral. Stacey walks us through the paperwork process with the reminders that patie...
Gleevec Pioneer Mel Mann's 25 Year Survival Story
September 21, 2022 13:15 - 23 minutes - 21.8 MBToday Gleevec is an incredibly common cancer treatment. But like every drug on the market, it went through clinical trials more than two decades ago. Our guest today, Mel Mann, was the second person to receive the drug, back in 1998. And it saved his life. Mel was diagnosed with chronic myeloid leukemia, (CML) in 1995 and was given three years to live. At the time, a bone marrow transplant was the only option. The registry had far less people on it than today, particularly people of colo...
Dr. Mark Schroeder Explains the Clinical Trial Process
September 21, 2022 13:14 - 28 minutes - 26.5 MBOur guest today is Dr. Mark Schroeder of the Washington University School of Medicine in Saint Louis. Dr. Schroeder walks us through the different phases of the clinical trial process, how it can benefit patients, and how volunteers can help advance cancer treatment. We talk about interventional vs. non interventional studies, and how Phase 1, Phase 2, and Phase 3 of clinical trials function step by step. Depending on your diagnosis and prognosis, this explanation can help you decide whic...
Marilyn Zagha-Keeshan's Shares Extraordinary Treatment During Clinical Trials
September 21, 2022 13:14 - 11 minutes - 10.7 MBSurvivor Marilyn Zagha-Keeshan joins us today. An immunoblastic T-cell lymphoma survivor, Marilyn volunteered for not one, but two clinical trials. She talks about the helpless feeling that came with her cancer diagnosis, but the empowering feeling that came with volunteering for clinical trials. First, she participated in a trial for Azacitidine, which was given to her in between chemotherapy treatments. Marilyn talks about the resources available to her - from the staff to a detailed c...
Season 8 Trailer: Clinical Trials
September 19, 2022 21:40 - 2 minutes - 2.5 MBWelcome to Season 8 of the Marrow Masters Podcast, sponsored by Omeros Corporation. and Incyte. Season 8 of our show focuses on clinical trials. We're covering how to find them, what to expect, and how survivors have benefited from them. We also talk to healthcare professionals about how these oncology clinical trials are conducted and monitored, safely. Our goal is to answer as many of your questions as possible. Follow our show on Apple, Spotify, YouTube, or wherever you're listening rig...
Dr. Areej El-Jawahri on Chronic Graft Versus Host Disease Issues Regarding Sexual Health and Intimacy
June 21, 2022 11:20 - 19 minutes - 27 MBSeason 7 of Marrow Masters focuses on chronic Graft vs. Host Disease sufferers, or GVHD "long haulers." And our first episode is about an important topic that doesn't get enough attention - reproductive and sexual health. Dr. Areej El-Jawahri is an oncologist at Massachusetts General Hospital in Boston. And while that is her primary role, her work experience has taught her about the need to focus on these issues. A majority of transplant survivors struggle with sexual health issues and...
Juliane Belisle, MSW, LCSW-s, on the Psychosocial Needs of Chronic Graft Versus Host Disease Long Haulers
June 21, 2022 11:15 - 30 minutes - 41.5 MBJuliane Belisle, MSW, LCSW-s, at Cancer Family Care in Cincinnati, provided counseling and other services to survivors and their families. To outsiders, chronic Graft vs. Host Disease long haulers may appear fine. Survivors have made it through transplant and the immediate aftermath. But the unpredictability of cGVHD can lead to anxiety, depression, and despair and frankly, survivors get sick and tired....of being sick and tired. And they have to learn how to "re-train their brain." In...
Dr. Sean Smith on Improving and Maintaining Mobility with Chronic Graft Versus Host Disease
June 21, 2022 11:10 - 21 minutes - 30 MBDr. Sean Smith is the director of the cancer rehabilitation program at Michigan Medicine, in Ann Arbor, as well as an associate professor at the University of Michigan. He's dedicated to helping patients improve function as it relates to a variety of musculoskeletal, neurological and cognitive deficits related to cancer and its treatment. Dr. Smith says every patient is different, and they may try many treatments at once to find the best fit for each individual situation. The sooner he and...
Heather Jim, Ph.D, on Chronic Graft Versus Host Disease Sleep Related Issues
June 21, 2022 11:05 - 14 minutes - 19.3 MBHeather Jim, PhD, is a senior member and co-leader of the Health Outcomes and Behavior Research Program at Moffitt Cancer Center in Tampa. Today she walks us through ways to combat sleep issues related to chronic Graft vs. Host Disease. Hopefully the tips here will help all of us get a better night's sleep. Heather begins by walking us through the importance of sleep, and how that changes as we age. Interestingly, 30% of the general population report sleep problems, but for transplant r...
Caregiver Ann Haehn Shares Best Ways to Support Your Loved One Battling Chronic Graft Versus Host Disease
June 21, 2022 11:00 - 33 minutes - 46.1 MBColorado's Ann Haehn and her daughter Genny are two truly special people. Today, Ann takes us on their journey through Genny's transplant and subsequent battles with chronic Graft vs Host Disease. After a very grim diagnosis, Ann and the rest of Genny's village found a doctor that felt he could get Genny through transplant at Colorado Blood Cancer Institute. During a long six-month pre-transplant process, Ann moved in with Genny and her kids. Genny's new boyfriend (now husband) Josh was a...
Survivor and Advocate Meredith Cowden, MA, LPCC-S, Shares Insight and Resources Regarding Chronic Graft Versus Host Disease
June 21, 2022 10:55 - 36 minutes - 49.6 MBToday, survivor and advocate Meredith Cowden talks about being your own advocate regarding GVHD. As patient advocacy director of the Meredith Cowden Foundation, she has a wealth of resources to share, many of which are linked below. (If you'd like to hear a more detailed version of Meredith's story, you can listen to Season 6, Episode 4 of the Marrow Masters podcast here: https://marrowmasters.simplecast.com/episodes/meredithcowden ) After a diagnosis of AML, Meredith received an alloge...
Heather Younker RDN, CSO, on Chronic Graft Versus Host Disease Diet and Nutrition Issues
June 21, 2022 10:50 - 31 minutes - 43.9 MBToday, Peg is joined by Heather Younker, RDN, CSO, a dietician at the John Theurer Cancer Center at Hackensack University Medical Center. We cover all things related to Graft vs. Host Disease and diet. Nutrition is important for everyone, but especially those with GVHD, in order to prevent malnutrition and other issues. Registered dieticians and nutritionists can be key in a multidisciplinary approach. It's important to keep your entire health care team in the loop so they can be aware of ...
Season 7 Trailer - cGVHD Long Haulers
June 16, 2022 19:33 - 1 minute - 2.72 MBWelcome to Marrow Masters Season 7, sponsored by Pharmacyclics and Jansen, and Kadmon, a Sanofi company. This season we focus on long haulers – those who are dealing with chronic graft vs host disease. We cover different treatment options. We’ll cover some topics that aren’t always easy to bring up. And we’ll cover the importance of taking care of not just your physical health, but your mental health as well. Season 7 of Marrow Masters is out June 21st. Follow our show for free on Appl...
Dr. Sung Choi Shares Her Best Advice Regarding cGVHD as it affects children
July 19, 2021 21:28 - 34 minutes - 31.2 MBDr. Sung Choi is a pediatric bone marrow transplant physician at Michigan Medicine (University of Michigan). Dr. Choi joins us today to discuss the unique challenges for pediatric patients as it relates to GVHD. Passionate and knowledgeable, Dr. Choi will tackle it all, including target organ damage, the cytokine storm, clinical trials and much more. Classic organs affected by acute GVHD include skin, liver and GI tract. Did you know that typically the skin is the most affected in both pe...
Dr. Sung Choi Shares Her Best Advice Regarding Chronic Graft Versus Host Disease (cGVHD) as it affects children
July 19, 2021 21:28 - 34 minutes - 31.2 MBDr. Sung Choi is a pediatric bone marrow transplant physician at Michigan Medicine (University of Michigan). Dr. Choi joins us today to discuss the unique challenges for pediatric patients as it relates to Graft Versus Host Disease (cGVHD). Passionate and knowledgeable, Dr. Choi will tackle it all, including target organ damage, the cytokine storm, clinical trials and much more. Classic organs affected by acute GVHD include skin, liver and GI tract. Did you know that typically the skin is...
Dr. Ed Cowen of the NIH Covers GVHD Skin-Related Issues
July 19, 2021 21:27 - 30 minutes - 27.6 MBSenior Clinician Dr. Edward Cowen is Head of the Dermatology Consultation Service at the National Institute of Arthritis and Musculoskeletal and Skin Diseases at the NIH. Dr. Cowen will share his expertise on skin issues as they relate to GVHD. In this episode Dr. Cowen "covers" it all--dry scaly skin, red rashes, skin fibrosis and fasciitis. His expertise will make patients and caregivers alike feel more confident and knowledgeable about skin GVHD. When should you seek treatment and which...
Dr. Ed Cowen of the NIH Covers Graft Versus Host Disease (GVHD) Skin-Related Issues
July 19, 2021 21:27 - 30 minutes - 27.6 MBSenior Clinician Dr. Edward Cowen is Head of the Dermatology Consultation Service at the National Institute of Arthritis and Musculoskeletal and Skin Diseases at the NIH. Dr. Cowen will share his expertise on skin issues as they relate to Graft Versus Host Disease (GVHD). In this episode Dr. Cowen "covers" it all--dry scaly skin, red rashes, skin fibrosis and fasciitis. His expertise will make patients and caregivers alike feel more confident and knowledgeable about skin GVHD. When should ...
Meet Dr. Molly Gallogly and Learn about Seidman's Graft Versus Host Disease Clinic
July 19, 2021 21:27 - 32 minutes - 29.4 MBMolly Gallogly, MD, PhD, Attending Physician, and director of the Graft Versus Host Disease (GVHD) program at the Seidman Cancer Center in Cleveland, OH, is one busy doctor. Dr. Gallogly will share what happens at their incredible GVHD clinic and why it is advantageous to have a designated GVHD clinic. Newly diagnosed patients are evaluated and seen regularly as long as their GVHD is active. A detailed head-to-toe exam and full skin exam are standard and each GVHD patient is accurately stage...