Dr. Andy Harris on the Challenges Facing Young Patients with cGVHD

Dr. Andy Harris was diagnosed with acute myeloid leukemia (AML) when he was a 19 year old pre-med college student.  After receiving lifesaving care at the University of Michigan, he vowed to pay it forward.  Now he works with young people at Memorial Sloan Kettering Cancer Center in New York.

Today we do a deep dive with Dr. Harris on the unique challenges posed to kids of all ages fighting cancer.  Babies are supposed to be spending this time bonding with their parents.  Toddlers are supposed to be starting school.   Older kids are supposed to be learning social skills, and teenagers are supposed to be forming their own identity.  No matter what the patient's age, the treatment process is a major disruption to their lives and development.

Going through a life-threatening situation will change anyone's perspective, but this can be especially true of kids.  And often, their peers don't know how to react.  Sadly, friends may drop off.  Others may not know what to say, or be intimidated to broach the topic.  And patients may miss out on milestones - homecoming, prom, sports, and much more.

Dr. Harris and his colleagues work on an individualized treatment plan for each and every patient.  This may include different therapies, and facilitating any necessary accommodations when they return to school and/or work.  This can include coordinating with school nurses on any necessary treatment.

It's important to remember that each patient has their own timetable, both physically and mentally.  Peer support groups can often be a great way to find common ground, understanding, and help.

Often, the relationship with a patient's parents can be challenging.  A child who was just finding their independence may suddenly find themself in need of more support.  And on the back end, parents may have a difficult time with the child regaining independence. Counseling can be another great tool here.

Dr. Harris isn't quick to tell his patients that he's an AML and bone marrow transplant survivor.  He's happy to answer any questions honestly, but every cancer journey is different and he is aware of this when talking to his patients and their loved ones.

Memorial Sloan Kettering Cancer Center Website: https://www.mskcc.org/

Andy Harris Bio: https://www.mskcc.org/cancer-care/doctors/andrew-harris

Other Resources

National Bone Marrow Transplant Link - (800) LINK-BMT, or (800) 546-5268.

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