Latest Ataxia Podcast Episodes
225 - From Preterm to Pediatrician: Tyler's Triumph with CP
Two Disabled Dudes - Living with Urgency - September 04, 2023 07:01 - 49 minutes ★★★★★ - 107 ratingsDr. Tyler Sexton is the Medical Director of pediatrics at Singing River Health System in Mississippi. He's also an international motivational speaker and author, and he has cerebral palsy. Dr. Sexton discusses his journey and how his disability motivated him to become a pediatrician. He share...
224 - The Power of the Patient Voice - BIO International
Two Disabled Dudes - Living with Urgency - August 28, 2023 07:01 - 44 minutes ★★★★★ - 107 ratingsTo kick off the inaugural Film Festival at the BIO International Conference, we had the opportunity to moderate a panel about using podcasts, video, and other media to help center the patient voice in the drug development process. This panel featured three top advocates who regularly use medi...
223 - Attitudes Can Change - Let's Talk Debra
Two Disabled Dudes - Living with Urgency - August 21, 2023 07:01 - 43 minutes ★★★★★ - 107 ratingsA few years ago, Kyle and Sean both had experiences with someone else judging them for their disability. Whether it was fair or not, both dudes took offense to the way they were approached. Today they review those situations and reevaluate their reactions. Would they react differently today? ...
222 - Is Technology Good or Bad? Yes.
Two Disabled Dudes - Living with Urgency - August 14, 2023 07:01 - 32 minutes ★★★★★ - 107 ratingsEver have those moments where you reflect on the past and think to yourself, “Well, 20 years ago…” and immediately realize that the memory you’re recalling was actually 30 years ago? In other words, time flies and we’re all getting old. In this episode, The Dudes discuss pros and cons of how t...
221 -Disability & Fun Can Coexist
Two Disabled Dudes - Living with Urgency - August 07, 2023 07:01 - 30 minutes ★★★★★ - 107 ratingsSeason 10 kicks off with ep221. Life is constantly changing, especially when living with progressive rare disease. Both Kyle & Sean are living with Friedreich’s ataxia and their abilities are changing often. Recently, Sean hit a mini-golf course and although it wasn’t what he remembers as a teen...
220 - Season Finale - How Much is Too Much?
Two Disabled Dudes - Living with Urgency - May 29, 2023 07:01 - 46 minutes ★★★★★ - 107 ratingsFor the last episode in Season 9, we want you to know how much we appreciate you listening to this show. This season has been especially trying as we unknowingly doubled our workload at the beginning of the season. Listen as the dudes explain. The conversation goes existentially deep as usual...
219 - Physical Therapy Goals with Dr. Gretchen Hawley
Two Disabled Dudes - Living with Urgency - May 22, 2023 07:01 - 55 minutes ★★★★★ - 107 ratingsPhysical Therapy is an important part of care for many people in the rare disease and disability communities, However, it's difficult to find a phhysical therapist who will work to understand your disease. That's why we enjoyed talking with Dr Gretchen Hawley. See how she's different and how ...
218 - Accessibility: Inconvenient or Impossible?
Two Disabled Dudes - Living with Urgency - May 15, 2023 07:01 - 51 minutes ★★★★★ - 107 ratingsThere are lots of things that may be accessible for one person but not another. Some are inconvenient, and some are impossible. From topics in other episodes to recently traveling together, we noticed a handful of things that make sense, and things that don’t make sense. Listen for experien...
217 - Are Disabled Students Forgotten On University Campuses?
Two Disabled Dudes - Living with Urgency - May 08, 2023 07:01 - 57 minutes ★★★★★ - 107 ratingsFor college students, sports games are a huge part of the college experience. However, students with disabilities are often left out due to poor accessibility. In episode 217 you'll hear from Noah Griffith, a journalism major who wrote a letter about his experience accessing the student sectio...
216 - The Emotional Response To Research
Two Disabled Dudes - Living with Urgency - May 01, 2023 07:01 - 37 minutes ★★★★★ - 107 ratingsResearch studies are designed to investigate the details of our bodies and lives. The research process has the potential to point out how our disability limits us. This can be tough to take. That’s why it’s important to recognize the emotional response to research. In this Episode: Kyle le...
215 - Birthday Parties Can Be Tough with Guest Host: Effie Parks
Two Disabled Dudes - Living with Urgency - April 24, 2023 07:01 - 47 minutes ★★★★★ - 107 ratingsThis is the first episode ever that does not feature both Dudes! Sean is joined by our friend and guest host, Effie Parks from the Once Upon A Gene Podcast. Effie produces short “Effisodes” on her show and one in particular grabbed Sean’s attention. With Kyle on the road, Effie agreed to help T...
214 - Inspiration Porn - Are We Part of the Problem?
Two Disabled Dudes - Living with Urgency - April 17, 2023 07:01 - 43 minutes ★★★★★ - 107 ratingsAccording to an article Kyle read on Forbes.com, "Inspiration Porn provides kind of superficial pleasure and gratification for the viewer, while objectifying , often harming the mostly passive subjects being looked at.” Sounds pretty bad. Find out what the Dudes think. In this Episode: Kyle...
213 - Why is Government so HARD?
Two Disabled Dudes - Living with Urgency - April 10, 2023 07:01 - 59 minutes ★★★★★ - 107 ratingsAs Sean says: Government is HARD - especially when trying to navigate the Social Security Disability system. That’s why we talk to Spencer Bishins who worked in the Social Security Administration for years and shares his insights with us. Spencer just scratches the surface with us- but you ca...
212 - Wheelchairs: If You Help, This is For You
Two Disabled Dudes - Living with Urgency - April 03, 2023 07:01 - 51 minutes ★★★★★ - 107 ratingsManeuvering a wheelchair presents many situations that are much different than a person who uses their legs to get around. When you offer to help someone in a wheelchair, here are a few things you should keep in mind. In this Episode: Kyle checks out a new section of bike trail so Sean w...
211 - Thriving with Duchenne, RDD 2023
Two Disabled Dudes - Living with Urgency - March 27, 2023 04:05 - 53 minutes ★★★★★ - 107 ratingsFor Rare Disease Day 2023, we were honored to moderate a virtual panel with our friends at Jett Foundation. The theme was Thriving with Duchenne; a Rare Disease Day event focused on mental health and anxiety and it features a diverse panel of patients, caregivers, a life coach, and a Psychologi...
210 - Death and Sex - Buckle Up!
Two Disabled Dudes - Living with Urgency - March 20, 2023 07:01 - 56 minutes ★★★★★ - 107 ratingsIn this Episode: You Got This, Mental Health - Our friend Shelley Bowen (Ep 140) takes us through her experience having the hard talk about death. The Dudes are quite uncomfortable talking about SEX, especially sex and disability. So we welcome Jennie Williams from Enhance the UK to introdu...
209 - How A Mom Launched The First Drug Approval in FA
Two Disabled Dudes - Living with Urgency - March 13, 2023 07:01 - 55 minutes ★★★★★ - 107 ratingsIn this Episode: You Got This, Mental Health - Feeling seen and heard. Some of the responsibilty is on you. Can a single person make a difference? The amazing story of the first approved drug for Friedreich's ataxia (FA) Thank you notes - Reata Pharmmaceuticals, and Kyle's landlord at work...
208 - Is There a Wrong Way?
Two Disabled Dudes - Living with Urgency - March 06, 2023 08:01 - 32 minutes ★★★★★ - 107 ratingsIn this Episode: The very first treatment for Friedreich's ataxia (FA) was approved last Tuesday! A deep dive into this next week. You Got This, Mental Health - There's not one "right" direction in life. Keep moving forward and making progress. Thank you notes - Clinical Team at Childr...
207 - Asking For Help: Pride vs. Practicality
Two Disabled Dudes - Living with Urgency - February 27, 2023 08:01 - 44 minutes ★★★★★ - 107 ratingsIn this Episode: How Kyle ended up at Cracker Barrell for chicken fried steak at lunchtime You Got This, Mental Health featuring Andra Stratton - Managing expectations for drug development Asking for help is complicated. The Dudes talk through some of the different scenarios that make it s...
206 - Why Authenticity Matters at Home & Work
Two Disabled Dudes - Living with Urgency - February 20, 2023 08:01 - 43 minutes ★★★★★ - 107 ratingsIn this Episode: Dr. Kyle gives his advice. You Got This, Mental Health - Self Image Audrey Greenberg is the CBO of Discovery Labs and the Center for Breakthrough Medicines. She talks with The Dudes about how authenticity can benefit all of us. Thank you notes - Bill at Meineke & Taylor...
205 - Finally, A Dating App For People With Disability
Two Disabled Dudes - Living with Urgency - February 13, 2023 08:01 - 52 minutes ★★★★★ - 107 ratingsIn this Episode: Almost a year later, Kyle gives an update on his wheelchair drama. You Got This, Mental Health featuring Andra Stratton - Managing our expectations for Drug Development. The Dateability App - Designed by someone with a disability for the disabled community. Thank you note...
204 - What If Kindness Isn't The Answer?
Two Disabled Dudes - Living with Urgency - February 06, 2023 08:01 - 40 minutes ★★★★★ - 107 ratingsWelcome to Season 9! Dolly Parton wants to see more kindness in 2023. However if you ask Sean, kindness is not the issue - it's awareness of others around you. It will make sense after you listen. Sean's column on the subject: No Good Excuse This episode brought to you in part by Horizon T...
203 - Reason vs Excuse: It's Up To You
Two Disabled Dudes - Living with Urgency - November 28, 2022 05:01 - 32 minutes ★★★★★ - 107 ratingsThere's a common debate going on in many of our heads when it comes to committments. Whether it's meeting a friend for coffee, or going to a concert with a group, we have to decide if we can make it. If we decide not to go or even worse, cancel at the last minute, is it for a legit reason or a...
202 - Addressing Independence and Accessibility with Rare Disease
Two Disabled Dudes - Living with Urgency - November 21, 2022 08:00 - 42 minutes ★★★★★ - 107 ratingsMaking the transition to independence is difficult to begin with. It is further complicated if you have a rare disease. Lauren Riggs joins The Dudes to talk about her recent experience moving away from home to go to school at University of Oklahoma and then grad school in Texas. Lauren lives wi...
201 - How Does Positivity Become Toxic?
Two Disabled Dudes - Living with Urgency - November 14, 2022 08:00 - 53 minutes ★★★★★ - 107 ratingsWhen Katie Lloyd's son was diagnosed with a rare, lifethreatning disease, she began to notice that people around her reacting to the news in some unintentionallyinsensitive ways. When we witness someone going through a difficult situation, our first impulse is to say something encouraging: "Ch...
200 - State of the Podcast and A Few Favorite Moments
Two Disabled Dudes - Living with Urgency - November 07, 2022 02:11 - 50 minutes ★★★★★ - 107 ratingsWe have been doing this for 6 years - we're still friends, and we hope a few people have enjoyed listening. Let's celebrate episode 200 with a little reminiscing, a few old snippets, and a brief look at the future of the show. Some of our favorite epispdes that we mentioned: 055 - Facing the...
199 - RAVE: A Principle Everyone Ought to Consider
Two Disabled Dudes - Living with Urgency - October 31, 2022 06:07 - 45 minutes ★★★★★ - 107 ratingsA guiding principle Sean has adopted from his employer applies to every area of life - Respect, Appreciate, and Value Everyone, a.k.a RAVE. As a Fortune 100 Best Companies to Work For, Nugget Markets, Inc. is careful with the culture they foster and honor. In this episode, Sean shares a glimps...
198 - What's Your CanDo Story?
Two Disabled Dudes - Living with Urgency - October 24, 2022 01:38 - 41 minutes ★★★★★ - 107 ratingsAdam Bremen is the co-founder of CanDo, the maker of the #1 Keto bar on Amazon, Keto Krisp. Despite living with Cerebral Palsy and having experienced much hardship and loss in his life, Adam is one of the most positive and genuine people we've ever had on the show. The success of his brand is n...
197 - Looking for the Pause Button on Friedreich's Ataxia
Two Disabled Dudes - Living with Urgency - October 17, 2022 01:38 - 36 minutes ★★★★★ - 107 ratingsRare Disease is ever present and relentless. Sometimes we wish we could push the pause button and live an able bodied life for a little while. Kendall harvey writes about this struggle in her recent column for Friedreich's Ataxia News. The article is called FA Progression No Longer Has Total ...
196 - Two Disabled Slackers
Two Disabled Dudes - Living with Urgency - October 09, 2022 22:59 - 37 minutes ★★★★★ - 107 ratingsSean is overwhelmed at the moment. He has too much on his plate and life is chaotic. Kyle's plate is pretty full too. However there's always something to talk about. Listen as the dudes talk about being over subscribed and possible strategies to avoid this situation.
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