211 - Thriving with Duchenne, RDD 2023
Two Disabled Dudes - Living with Urgency
English - March 27, 2023 04:05 - 53 minutes - 42.8 MB - ★★★★★ - 107 ratingsSelf-Improvement Education emotionalintelligence ataxia beyondcircumstance disabilityawareness disease dudes friedreichs motivational overcomingchallenges rare Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
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Next Episode: 212 - Wheelchairs: If You Help, This is For You
For Rare Disease Day 2023, we were honored to moderate a virtual panel with our friends at Jett Foundation. The theme was Thriving with Duchenne; a Rare Disease Day event focused on mental health and anxiety and it features a diverse panel of patients, caregivers, a life coach, and a Psychologist.
Duchenne Muscular Dystrophy (DMD) affects mostly males and causes progressive muscle damage in the entire body. It is the most common fatal pediatric disorder.
Duchenne has no cure. But the individuals in this episode are determined to Thrive with Duchenne.