Ataxia, Did You Know?
56 episodes - English - Latest episode: over 3 years ago - ★★★★★ - 5 ratingsCurious, knowledgeable wife of an Ataxian. My mission is to share reputable Ataxia information in short, simple, digestible servings. I want the world to become acquainted with Ataxia and the way it robs someone of their balance, coordination, ability to walk, talk, swallow, and see.
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Episodes
Did You Know Suport Groups are extended family and friends
November 23, 2017 14:43 - 5 minutes - 5.21 MBDana Mauro: Talks about the importance of a good support system.
Did You Know about research
November 23, 2017 00:21 - 1 minute - 1.48 MBResearch is at a pivotal time for Ataxia – with one medication in clinical trial and more in the pipeline. We received 84 applications for Ataxia research grants this year! Work with us to get as many of them funded as possible. We want to give researchers the support that they need, so that they can look for the answers that we need. Join NAF’s 2017 Research Drive! Make a contribution today https://ataxia.donorpages.com/2017ResearchDrive/
Did You Know ? National Ataxia Foundation believes that this type
November 16, 2017 22:37 - 6 minutes - 5.63 MBDana Mauro talks about: National Ataxia Foundation believes that this type of request for study subjects will be made in the future for many, and hopefully, all forms of ataxia
Did You Know? invisible aspects of Ataxia
September 20, 2017 15:08 - 21 minutes - 19.4 MBwhat comes to mind when you think of the invisible aspects of Ataxia: Fatigue Guilt Difficulty maintaining relationships Difficulty multitasking and keeping track of things Emotions Overstimulation Fatigue: Exhausted – need to rest frequently during the day – feel guilty Live by the clock – prioritize your energy Speech not understood; exhausting to repeat myself Eating is exhausting – takes a lot of energy not to choke Use assistive devices to:
Did You Know ? Annual Ataxia Conference (005)
September 12, 2017 20:31 - 6 minutes - 6.06 MBDid You Know ? Annual Ataxia Conference (005) NAF coordinates the world’s largest annual Ataxia gathering – the Annual Ataxia Conference (AAC). For three days, conference attendees meet and learn from world-leading Ataxia researchers and clinicians, network, and reunite with old friends. Hundreds of people – from patients, to caregivers, to medical professionals – travel from all over the world to attend the conference
Did You Know Podcast - Episode One
August 31, 2017 00:00 - 4 minutes - 4.28 MBWhat is Ataxia? Did you know this? This is an Ataxia Awareness campaign. Please tune in daily for a new fact to share with friends and family.