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Did You Know? invisible aspects of Ataxia
Ataxia, Did You Know?
English - September 20, 2017 15:08 - 21 minutes - 19.4 MB - ★★★★★ - 5 ratingsEducation ataxia parkinson’s awareness health rare diseases Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
Previous Episode: Did You Know ? Annual Ataxia Conference (005)
what comes to mind when you think of the invisible aspects of Ataxia:
Fatigue
Guilt
Difficulty maintaining relationships
Difficulty multitasking and keeping track of things
Emotions
Overstimulation
Fatigue:
Exhausted – need to rest frequently during the day – feel guilty
Live by the clock – prioritize your energy
Speech not understood; exhausting to repeat myself
Eating is exhausting – takes a lot of energy not to choke
Use assistive devices to: