I'm Aware That I'm Rare: the phaware® podcast
987 episodes - English - Latest episode: 13 days ago - ★★★★★ - 14 ratingsI'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world.
Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early diagnosis and treatment can mean the difference between life and death.
Topics range from the importance of early diagnosis and global PH awareness, to the impact of clinical trials to how patient support and advocacy are paramount to battling this disease.
Learn more about PH at www.phaware.global
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Episodes
Episode 287 - Bill Lickman
October 03, 2019 13:00 - 3 minutes - 3.83 MBPulmonary Hypertension patient and military veteran, Bill Lickman discusses his road to diagnosis and the importance of great caregiver support. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials @antidote_me @umichmedicine
Marie and Zach Rand - phaware® interview 286
October 01, 2019 13:00Co-founder and Managing Director of phaware global association®, Marie Rand and her son Zach discuss breathless on Broadway® an event that honors the memory of Chloë Rand and all people touched by pulmonary hypertension. Get tickets at www.breathlessonbroadway.com #30UnitedVoices Marie: I'm Marie Rand and I am the co-founder and managing director of phaware global association®. Zach: I'm Zach Rand. I am Marie's son and I'm co-founder of breathless on Broadway®. Marie: Today we are ...
Episode 286 - Marie and Zach Rand
September 30, 2019 13:00 - 15 minutes - 14.7 MBCo-founder and Managing Director of phaware global association®, Marie Rand and her son Zach discuss breathless on Broadway® an event that honors the memory of Chloë Rand and all people touched by pulmonary hypertension. Get tickets at www.breathlessonbroadway.com #30UnitedVoices Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Enga...
Terry Jones - phaware® interview 285
September 27, 2019 13:00PH Patient, Terry Jones on being a patient and caregiver and why research is important for the pulmonary hypertension community. I'm Terry Jones and I'm a pulmonary hypertension patient. I started having breathing problems when I was working back around 1998, and I got diagnosed in 2009, by a right heart catheterization. When I was first diagnosed, I started on a low dose of oral medication and it didn't appear to be working. But then after about two months, my wife said to me, "Terry, ...
Episode 285 - Terry Jones
September 26, 2019 13:00 - 2 minutes - 4.67 MBPH Patient, Terry Jones on being a patient and caregiver and why research is important for the pulmonary hypertension community. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials @antidote_me
Chuck Thompson - phaware® interview 284
September 24, 2019 13:00Pulmonary Hypertension caregiver Chuck Thompson discusses the importance of support groups for PH patients like his wife, Barbara. My name is Chuck Thompson. I’m a caregiver for my wife, Barbara. I also had a mother who died from PH that I was a caregiver for, and a sister who died from pulmonary hypertension back in 1992. Being a caregiver, we started a support group back in 2004. My wife was not supposed to make it through 2003. We got her on Tracleer, and about the time she got where...
Episode 284 - Chuck Thompson
September 23, 2019 13:00 - 3 minutes - 5.56 MBPulmonary Hypertension caregiver Chuck Thompson discusses the importance of support groups for PH patients like his wife, Barbara. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials @antidote_me
Alicia & Adriana Kubes - phaware® interview 283
September 20, 2019 13:00Sisters Alicia and Adriana Kubes discuss Alicia's pulmonary hypertension diagnosis and Adriana's role as a caregiver and ways they are facing this chronic illness together. Alicia: My name is Alicia Kubes and I'm a pulmonary hypertension patient. Adriana: Hi, my name is Adriana Kubes and I'm a pulmonary hypertension caregiver. Alicia: I'd been feeling off for a long time. I know that back in 2010 I had some heart palpitations and I went and did all the testing and nothing showed up...
Episode 283 - Alicia & Adriana Kubes
September 19, 2019 13:00 - 5 minutes - 7.32 MBSisters Alicia and Adriana Kubes discuss Alicia's pulmonary hypertension diagnosis and Adriana's role as a caregiver and ways they are facing this chronic illness together. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials @antidote_me
Dora Erdelyi - phaware® interview 282
September 17, 2019 13:00Hungarian Ex-PH patient, Dora Erdelyi, discusses her double lung transplant and how patients in Budapest grapple with PH. I am Dora Erdelyi. I came from Budapest, Hungary. I'm an ex-PH patient, a double lung transplant survivor. It began when I was feeling that I got tired easily. I couldn't go up to the second floor in my apartment. This was unusual for me, because before that I was doing kayaking for years and I was always having sports. I was going up to the sixth, seventh floors wit...
Episode 282 - Dora Erdelyi
September 16, 2019 15:00 - 5 minutes - 5.35 MBHungarian Ex-PH patient, Dora Erdelyi, discusses her double lung transplant and how patients in Budapest grapple with PH. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials @antidote_me
Vicki Banos - phaware® interview 281
September 13, 2019 13:00Pulmonary hypertension patient Vicki Banos discusses her PH diagnosis. My name is Vicki Banos and I'm a pulmonary hypertension patient. I had had a knee replacement in Denver in 2012, and I began to feel really weak and fatigued. I couldn't walk two blocks. I had some other things going on at the same time. I had an undiagnosed cough for about eight years. And I was seeing an allergy asthma doctor and they thought maybe I had a blood clot from the knee replacement. So, it started with ...
Episode 281 - Vicki Banos
September 12, 2019 13:00 - 2 minutes - 4.72 MBPulmonary hypertension patient Vicki Banos discusses her PH diagnosis. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials @antidote_me
Yon Sung, MD - phaware® interview 280
September 10, 2019 13:00Yon Sung, MD is a Clinical Assistant Professor of Pulmonary & Critical Care at Stanford University School of Medicine and specializes in the care of pulmonary hypertension patients. She also serves as the Director of Community Outreach for the Vera Moulton Wall Center for Pulmonary Vascular Disease at Stanford and in this position, has the goal of increasing awareness of PH and providing clinical support and education to clinicians and patients alike. In this episode, she discusses the 19th...
Episode 280 - Yon Kyung Sung, MD
September 09, 2019 13:00 - 6 minutes - 7.61 MBYon Sung, MD is a Clinical Assistant Professor of Pulmonary & Critical Care at Stanford University School of Medicine and specializes in the care of pulmonary hypertension patients. She also serves as the Director of Community Outreach for the Vera Moulton Wall Center for Pulmonary Vascular Disease at Stanford and in this position, has the goal of increasing awareness of PH and providing clinical support and education to clinicians and patients alike. In this episode, she discusses the 19th ...
Michelle Johnson - phaware® interview 279
September 06, 2019 15:00Native American PAH patient Michelle Johnson describes her long road to diagnosis. Michelle's journey was complicated due to her cultural customs and her struggle with accepting her illness. My name is Michelle Johnson and I'm a pulmonary hypertension patient. Back in 2011, I had been coughing for a year. 2008… 2009… 2010 was approaching and I was just coughing, coughing, coughing, coughing, coughing. I couldn't stop coughing. I went [to a doctor] and they kept misdiagnosing me, and the...
Episode 279 - Michelle Johnson
September 05, 2019 13:00 - 8 minutes - 10.2 MBNative American PAH patient Michelle Johnson describes her long road to diagnosis. Michelle's journey was complicated due to her cultural customs and her struggle with accepting her illness. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials @antidote_me
Barbara Barry-Nishanian phaware® interview 278
September 03, 2019 13:00Pulmonary Arterial Hypertension patient Barbara Barry-Nishanian discusses her long road to diagnosis and adjusting to a different life with PAH. I’m Barbara Barry-Nishanian and I've recently been diagnosed as a PAH patient. It has been a long, long, long, long journey. It started back in 2000. I like to dance, and all of a sudden, I couldn't get through half of a record or a song. I couldn't dance. I ended up in the hospital for a week. People could not find out what was wrong with me. ...
Episode 278 - Barbara Barry-Nishanian
September 02, 2019 13:00 - 6 minutes - 7.71 MBPulmonary Arterial Hypertension patient Barbara Barry-Nishanian discusses her long road to diagnosis and adjusting to a different life with PAH. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials @antidote_me
Mary Jan Hicks - phaware® interview 277
August 30, 2019 13:00Mary Jan Hicks discusses her daughter Meaghan's PH diagnosis and road to double-lung & heart transplant. My name is Mary Jan Hicks. I live in Gig Harbor, Washington. My connection to pulmonary hypertension is as a caregiver for my daughter, Meaghan Hicks. We were stationed in Heidelberg, Germany. Meaghan went in for a test, and the pediatric cardiologist that did the test told us that she was good, she was healthy, and sent us home. Then he called and told me that he wasn't sure, that h...
Episode 277 - Mary Jan Hicks
August 29, 2019 13:00 - 7 minutes - 6.82 MBMary Jan Hicks discusses her daughter Meaghan's PH diagnosis and road to double-lung & heart transplant. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials @antidote_me For more about Meaghan's journey, visit www.meaghanhicks.com
Stephanie Bachelder - phaware® interview 276
August 27, 2019 13:00Pulmonary Hypertension patient Stephanie Bachelder on being diagnosed with a terminal illness, the power of combination therapy and why she feels she is no longer dying of her disease, but living with it. My name is Stephanie Bachelder and I am a pulmonary arterial hypertension patient. For probably about 15 years, I was symptomatic, having shortness of breath, swelling of the legs. I was passing out. I had extremely high blood pressure. I was very obese, morbidly obese, and I just k...
Episode 276 - Stephanie Bachelder
August 26, 2019 13:00 - 5 minutes - 7.03 MBPulmonary Hypertension patient Stephanie Bachelder on being diagnosed with a terminal illness, the power of combination therapy and why she feels she is no longer dying of her disease, but living with it. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials @antidot...
Cathy Downard - phaware® interview 275
August 23, 2019 13:00Lupus and Pulmonary Hypertension patient Cathy Downard discusses her rare disease diagnosis and how she battles depression by helping kids in her the community become citizens. My name is Cathy Downward, and I am a pulmonary hypertension patient. I was diagnosed with lupus when I was 17. Like most teenagers, I was pretty independent and I wanted to do everything. So when I was passing out, because I played basketball and I didn't want anything to stop me from playing basketball or being...
Episode 275 - Cathy Downard
August 22, 2019 13:00 - 6 minutes - 7.66 MBLupus and Pulmonary Hypertension patient Cathy Downard discusses her rare disease diagnosis and how she battles depression by helping kids in her the community become citizens. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials @antidote_me
Shannin Strom-Henry - phaware® interview 274
August 20, 2019 13:00Pediatric PH Caregiver Shannin Strom-Henry discusses her daughter Zoe's congenital diaphragmatic hernia and pulmonary hypertension diagnosis. She describes how being a rabid researcher, collaborating with her PH care team and the power of parent online support is helping Zoe (11) lead as normal a life as possible. My name is Shannin Strom-Henry. I live on Bainbridge Island, Washington, an island just off of Seattle, and I have a daughter who will turn 11 on Monday who has pulmonary hyper...
Episode 274 - Shannin Strom-Henry
August 19, 2019 16:00 - 12 minutes - 13.3 MBPediatric PH Caregiver Shannin Strom-Henry discusses her daughter Zoe's congenital diaphragmatic hernia and pulmonary hypertension diagnosis. She describes how being a rabid researcher, collaborating with her PH care team and the power of parent online support is helping Zoe (11) lead as normal a life as possible. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter,...
Carl Hicks - phaware® interview 273
August 16, 2019 13:00Carl Hicks is a beloved member of the pulmonary hypertension community and tireless advocate for patients and caregivers alike. Carl is a combat-decorated U.S. Army Airborne Ranger Officer who served our country for nearly 25 years. His daughter Meaghan was diagnosed with idiopathic arterial pulmonary hypertension while Carl was serving overseas. Meaghan lost her battle with PH during Carl's service as the board chair of PHA. He reflects on Meaghan on what would have been her 38th birthday....
Episode 273 - Carl Hicks
August 15, 2019 13:00 - 12 minutes - 13.7 MBCarl Hicks is a beloved member of the pulmonary hypertension community and tireless advocate for patients and caregivers alike. Carl is a combat-decorated U.S. Army Airborne Ranger Officer who served our country for nearly 25 years. His daughter Meaghan was diagnosed with idiopathic arterial pulmonary hypertension while Carl was serving overseas. Meaghan lost her battle with PH during Carl's service as the board chair of PHA. He reflects on Meaghan on what would have been her 38th birthday. ...
Suzanne Ransom - phaware® interview 272
August 13, 2019 13:00Pediatric PH Caregiver Suzanne Ransom on advocating for her daughter's rare disease diagnosis and adjusting to her "level of hard." My name is Suzanne Ransom and I am a pulmonary hypertension caregiver. I was pregnant and I was about 27 weeks. When they were doing the measurements, they're like, "Your baby seems a bit small." They sent me for the giant ultrasound all over again at 27 weeks. They said, "It looks like your baby has an infection around its stomach and heart." They sent me ...
Episode 272 - Suzanne Ransom
August 12, 2019 12:30 - 4 minutes - 6 MBPediatric PH Caregiver Suzanne Ransom on advocating for her daughter's rare disease diagnosis and adjusting to her "level of hard." Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials @antidote_me
Lauren Janzen - phaware® interview 271
August 09, 2019 13:00Pulmonary hypertension patient and nurse Lauren Janzen on the unique perspective of being both a patient and a RN working on the PH floor she was diagnosed on. My name is Lauren Janzen, and I am a pulmonary hypertension patient. I had kind of had on and off symptoms for about a year that I can recall, back in 2008. I'm from Wisconsin, so I was in college at the time. I remember going sledding with a bunch of friends and trying to run up a hill and getting to the top and being super short...
Episode 271 - Lauren Janzen
August 08, 2019 12:30 - 6 minutes - 7.76 MBPulmonary hypertension patient and nurse Lauren Janzen on the unique perspective of being both a patient and a RN working on the PH floor she was diagnosed on. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials @antidote_me
Linda Gates - phaware® interview 270
August 06, 2019 12:30Pulmonary hypertension patient Linda Gates on being diagnosed at age 55 and how this rare disease impacted her retirement plans. I'm Linda Gates and I'm a pulmonary hypertension patient. I had symptoms several years before I was diagnosed. My husband and I had gone to Yosemite and I attributed my not being able to walk 10 feet without catching our breath to being sedentary as a secretary and my age and being overweight. I didn't come home and go to the doctor and say I had a problem. At ...
Episode 270 - Linda Gates
August 05, 2019 12:30 - 6 minutes - 5.92 MBPulmonary hypertension patient Linda Gates on being diagnosed at age 55 and how this rare disease impacted her retirement plans. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials @antidote_me
Lorraine Bourne - phaware® interview 269
August 02, 2019 12:30Pulmonary hypertension patient Lorraine Bourne on the frustration in getting a proper PH diagnosis and the importance of connecting with other patients who share her rare disease. I'm Lorraine Bourne and I'm a pulmonary hypertension patient. I would say the first time I heard the words pulmonary hypertension, and in my case, pulmonary arterial hypertension, because that's what I have, I was feeling like I was going to pass out every time I exercised. It had been going on for about two y...
Episode 269 - Lorraine Bourne
August 01, 2019 12:30 - 6 minutes - 5.76 MBPulmonary hypertension patient Lorraine Bourne on the frustration in getting a proper PH diagnosis and the importance of connecting with other patients who share her rare disease. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials @antidote_me
Rochelle Earp - phaware® interview 268
July 30, 2019 15:30Pulmonary hypertension patient, Rochelle Earp discusses the importance of early diagnosis and the importance of in-person and online support in battling her rare disease. My name is Rochelle Earp, and I am a pulmonary hypertension patient. My family physician knew about pulmonary hypertension. I actually thought I'd pulled a muscle and I have asthma, so I was having some issues breathing and I blamed my asthma. Then I ended up going to the emergency room about five times. Finally, I wen...
Episode 268 - Rochelle Earp
July 29, 2019 15:30 - 5 minutes - 5.03 MBPulmonary hypertension patient, Rochelle Earp discusses the importance of early diagnosis and the importance of in-person and online support in battling her rare disease. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials @antidote_me
Sara Cates - phaware® interview 267
July 26, 2019 12:30Single Mom, Sara Cates discusses being diagnosed with pulmonary hypertension and how juicing and a whole food plant based diet helped change her weight, lifestyle and mental wellbeing. My name is Sara Cates. I am in Kansas City, Missouri and I am a pulmonary hypertension patient. I actually heard about PH for the first time in an emergency room visit. I had symptoms ongoing for over a year that included a racing heart, a battle with pneumonia that I just couldn't overcome. It got to t...
Episode 267 - Sara Cates
July 25, 2019 12:30 - 8 minutes - 8.26 MBSingle Mom, Sara Cates discusses being diagnosed with pulmonary hypertension and how juicing and a whole food plant based diet helped change her weight, lifestyle and mental wellbeing. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials @antidote_me
Joann Volpe - phaware® interview 266
July 23, 2019 12:00Long-term pulmonary hypertension patient, Joann Volpe discusses her road to diagnosis 25 years ago, being put on a clinical trial for the first PH drug, and her believe in a higher power. I'm Joann Volpe, and I'm a pulmonary hypertension patient. I was diagnosed 24 years ago. I was having shortness of breath just walking from my car to where I worked at a high school. I went to all kinds of doctors and nobody knew [what was wrong]. They thought it was a hole in my heart. This one pulmon...
Episode 266 - Joann Volpe
July 22, 2019 12:00 - 4 minutes - 4.17 MBLong-term pulmonary hypertension patient, Joann Volpe discusses her road to diagnosis 25 years ago, being put on a clinical trial for the first PH drug, and her believe in a higher power. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials @antidote_me
Jennifer Garigan - phaware® interview 265
July 19, 2019 12:00Pediatric pulmonary hypertension caregiver Jennifer Garigen discussed her son Tyler's PH diagnosis, the importance of a PH Care Center and offers parenting tips for siblings of rare disease patients. I'm Jennifer Garigan and I'm a pulmonary hypertension caregiver. Our son was four at the time [he was diagnosed] and he showed no symptoms, no signs whatsoever, and just got a respiratory virus, so we went to the hospital. His oxygen saturations were in the 80s and they sent us to the emerg...
Episode 265 - Jennifer Garigen
July 18, 2019 12:00 - 5 minutes - 6.93 MBPediatric pulmonary hypertension caregiver Jennifer Garigen discussed her son Tyler's PH diagnosis, the importance of a PH Care Center and offers parenting tips for siblings of rare disease patients. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials @antidote_me
Darlene Monday - phaware® interview 264
July 16, 2019 12:00Patient Darlene Monday discusses how she came to terms with her pulmonary hypertension diagnosis, her fear of dying and what keeps her going. My name is Darlene Monday, and I am a pulmonary hypertension patient. About two years ago, I started getting real weak, short of breath, not able to do anything, and I thought, "Well, you know, I'm just getting old." Then it got to the point that I'm like, "I'm not just getting old, something's wrong," because I would lay down at night in relaxat...
Episode 264 - Darlene Monday
July 15, 2019 12:00 - 6 minutes - 8.23 MBPatient Darlene Monday discusses how she came to terms with her pulmonary hypertension diagnosis, her fear of dying and what keeps her going. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials @antidote_me
Kori Ascher, DO - phaware® interview 263
July 12, 2019 12:00Dr. Kori Ascher was born and raised in upstate NY then relocated to South Florida for medical school, residency, and fellowship. Dr. Ascher founded Just Breathe Miami, a non-profit which raises awareness and supports those with chronic lung disease. The 2nd annual fundraising event, Just Breathe for Pulmonary Hypertension will be held July 25, 2019 in Miami, Florida. In this episode, Dr. Ascher discusses what motivates her to raise funds and awareness for pulmonary hypertension. Hi, my n...
Episode 263 - Kori Ascher, DO
July 11, 2019 12:00 - 7 minutes - 8.71 MBDr. Kori Ascher was born and raised in upstate NY then relocated to South Florida for medical school, residency, and fellowship. Dr. Ascher founded Just Breathe Miami, a non-profit which raises awareness and supports those with chronic lung disease. The 2nd annual fundraising event, Just Breathe for Pulmonary Hypertension will be held July 25, 2019 in Miami, Florida. In this episode, Dr. Ascher discusses what motivates her to raise funds and awareness for pulmonary hypertension. Learn mor...
Karen Reams - phaware® interview 262
July 09, 2019 12:30CTEPH patient Karen Reams discusses the elation of the possibility of a cure for her PH and the devastation in being told her blot clots are too distal for PTE surgery. I'm Karen Reams, I am a pulmonary hypertension patient. What led to my diagnosis, was I had been noticing for years that I was short of breath. I was a smoker, so of course, you smoke, you're going to be short of breath. Well, it just kept eventually getting worse and worse. So, I quit smoking and it didn't get any bette...