I'm Aware That I'm Rare: the phaware® podcast
987 episodes - English - Latest episode: 13 days ago - ★★★★★ - 14 ratingsI'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world.
Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early diagnosis and treatment can mean the difference between life and death.
Topics range from the importance of early diagnosis and global PH awareness, to the impact of clinical trials to how patient support and advocacy are paramount to battling this disease.
Learn more about PH at www.phaware.global
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Episodes
Beth Decristofaro - phaware® interview 187
September 07, 2018 12:00Beth DeCristofaro is a pulmonary hypertension patient from Virginia. She discusses her diagnosis and involvement in clinical trial research. Beth is a married mother of two, and a former Hospice Chaplain. I'm Beth Decristofaro, and I have idiopathic pulmonary arterial hypertension. I was diagnosed in October of 2017. I actually was on vacation, had, looking back, what was a crisis because I didn't have many symptoms before that. In hindsight, I recognize now some of them, but I was fu...
Episode 187 - Beth DeCristofaro
September 06, 2018 12:00 - 8 minutes - 7.68 MBBeth DeCristofaro is a pulmonary hypertension patient from Virginia. She discusses her diagnosis and involvement in clinical trial research. Beth is a married mother of two, and a former Hospice Chaplain. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware
Alex Flipse - phaware® interview 186
September 04, 2018 12:00Alex Flipse was diagnosed with pulmonary hypertension on September 3, 1998. On the 20th anniversary of her diagnosis, Alex details her journey battling both depression and PH. My name is Alex Flipse. I have pulmonary arterial hypertension. I have pulmonary venous hypertension, and I am in Southern California in Riverside County. I had just delivered my third, and final, baby. Probably three months after her birth, I started feeling really, really exhausted all the time. I attributed th...
Episode 186 - Alex Flipse
September 03, 2018 12:00 - 10 minutes - 9.45 MBAlex Flipse was diagnosed with pulmonary hypertension on September 3, 1998. On the 20th anniversary of her diagnosis, Alex details her journey battling both depression and PH. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware @flippymom
Dunbar Ivy, MD - phaware® interview 185
August 31, 2018 12:00Dr. Dunbar Ivy discusses the work of the Pediatric Pulmonary Hypertension Network, (PPHNet) on the network's 10th anniversary. PPHNet is a network of clinical specialists, researchers, and centers bringing a collaborative and multidisciplinary approach to improving care for children with pulmonary vascular disease. Hi, this is Dunbar Ivy. I'm Chief of Pediatric Cardiology at the University of Colorado School of Medicine and Director of the Pediatric Pulmonary Hypertension Program at Child...
Episode 185 - Dunbar Ivy, MD
August 30, 2018 12:00 - 3 minutes - 3.67 MBDr. Dunbar Ivy discusses the work of the Pediatric Pulmonary Hypertension Network, (PPHNet) on the network's 10th anniversary. PPHNet is a network of clinical specialists, researchers, and centers bringing a collaborative and multidisciplinary approach to improving care for children with pulmonary vascular disease. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTub...
Roberta Keller, MD - phaware® interview 184
August 28, 2018 12:00Dr. Roberta Keller discusses the work of the Pediatric Pulmonary Hypertension Network, (PPHNet) on the network's 10th anniversary. PPHNet is a network of clinical specialists, researchers, and centers bringing a collaborative and multidisciplinary approach to improving care for children with pulmonary vascular disease. My name is Dr. Roberta Keller. I'm a professor of pediatrics at the University of California San Francisco Benioff Children's Hospital here in San Francisco. I'm a neonatol...
Episode 184 - Roberta Keller, MD
August 27, 2018 12:00 - 10 minutes - 9.58 MBDr. Roberta Keller discusses the work of the Pediatric Pulmonary Hypertension Network, (PPHNet) on the networks 10th anniversary. PPHNet is a network of clinical specialists, researchers, and centers bringing a collaborative and multidisciplinary approach to improving care for children with pulmonary vascular disease. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, You...
Alvin Rocha, RN - phaware® interview 183
August 24, 2018 12:00Alvin Rocha, RN discusses clinic visits in the outpatient setting and his role in the Pediatric Pulmonary Hypertension Program of Children’s Hospital Los Angeles (CHLA). My name is Alvin Rocha and I'm from Los Angeles, California. I work at Children's Hospital Los Angeles. I was hired as the new pulmonary hypertension nurse care manager is what we call it, similar to a nurse coordinator position. I'm new to the pulmonary hypertension world. I've been working in it since July of last yea...
Episode 183 - Alvin Rocha, RN
August 23, 2018 12:00 - 4 minutes - 4.68 MBAlvin Rocha, RN discusses clinic visits in the outpatient setting and his role in the Pediatric Pulmonary Hypertension Program of Children’s Hospital Los Angeles (CHLA). Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #phawareMD @ChildrensLA
Anna Brown, RN - phaware® interview 182
August 21, 2018 12:00Anna Brown, RN discusses pulmonary hypertension patients transitioning from pediatrics to adult program as well as the need for comprehensive palliative care that utilizes social workers and psychologists, and mental health providers. Anna is pediatric nurse practitioner at the Vanderbilt Children's Hospital. My name is Anna Brown. I'm a pediatric nurse practitioner at the Vanderbilt Children's Hospital in Nashville Tennessee. I've been working in the Pediatric Pulmonary Hypertension prog...
Episode 182 - Anna Brown, RN
August 20, 2018 12:00 - 7 minutes - 7.2 MBAnna Brown, RN discusses pulmonary hypertension patients transitioning from pediatrics to adult program as well as the need for comprehensive palliative care that utilizes social workers and psychologists, and mental health providers. Anna is pediatric nurse practitioner at the Vanderbilt Children's Hospital. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & L...
Victor F. Tapson, MD - phaware® interview 181
August 17, 2018 12:00Victor F. Tapson, MD from Cedars-Sinai discusses the different pathways that medical professionals and researchers utilize in treating pulmonary arterial hypertension patients. Hi, everyone, I'm Vic Tapson. I'm at Cedars-Sinai Medical Center in Los Angeles. I'm in pulmonary critical care medicine, and my main clinical research interests are pulmonary hypertension and pulmonary embolism. I want to talk about the different pathways that we utilize in treating pulmonary arterial hypertensi...
Episode 181 - Victor F. Tapson, MD
August 16, 2018 12:00 - 3 minutes - 3.41 MBVictor F. Tapson, MD from Cedars-Sinai discusses the different pathways that medical professionals and researchers utilize in treating pulmonary arterial hypertension patients. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #phawareMD
Richard Channick, MD - phaware® interview 180
August 14, 2018 12:00Richard Channick, MD discusses the importance of clinical trials and how various approved pulmonary hypertension therapies work on specific pathways. I'm Rich Channick. I'm from Mass General Hospital in Boston and I run the pulmonary hypertension program there. The field of clinical trials in pulmonary hypertension has evolved greatly from back when I started doing this many years ago when there really were no therapies and so the clinical trial meant that the patient was getting a drug...
Episode 180 - Richard Channick, MD
August 13, 2018 12:00 - 5 minutes - 4.91 MBRichard Channick, MD discusses the importance of clinical trials and how various approved pulmonary hypertension therapies work on specific pathways. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #phawareMD
Roberta Keller, MD - phaware® interview 179
August 10, 2018 12:00Roberta Keller, MD dicusses the importance of clinical trials and clinical research in general, but particularly in newborns. Dr. Keller is a neonatologist from UCSF’s Benioff Children’s Hospital in San Francisco. I'm Dr. Roberta Keller from the University of California, San Francisco, Benioff Children’s Hospital in San Francisco. I'm a neonatologist, and my clinical and research focus is on newborns and children with cardiopulmonary disorders. Today I'm going to talk a little bit about...
Episode 179 - Roberta Keller, MD
August 09, 2018 12:00 - 6 minutes - 6.65 MBRoberta Keller, MD dicusses the importance of clinical trials and clinical research in general, but particularly in newborns. Dr. Keller is a neonatologist from UCSF’s Benioff Children’s Hospital in San Francisco. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #phawareMD @UCSFChildrens @pphnet
Roberta Keller, MD - phaware® interview 178
August 07, 2018 12:00Roberta Keller, MD discusses the importance of multidisciplinary comprehensive care centers for children with chronic cardiopulmonary conditions. Dr. Keller is a neonatologist from UCSF’s Benioff Children’s Hospital in San Francisco. I'm Roberta Keller. I'm a professor of pediatrics at the University of California San Francisco Benioff Children's Hospital in San Francisco. I'm a neonatologist, and I specialize in evaluation and management of newborns and children with cardiopulmonary diso...
Episode 178 - Roberta Keller, MD
August 06, 2018 12:00 - 6 minutes - 6.03 MBRoberta Keller, MD discusses the importance of multidisciplinary comprehensive care centers for children with chronic cardiopulmonary conditions. Dr. Keller is a neonatologist from UCSF’s Benioff Children’s Hospital in San Francisco. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #phawareMD @UCSF...
Anson Daine, RN - phaware® interview 177
August 03, 2018 12:00Anson Daine, RN from UCSF Benioff Children's Hospital discusses UCSF’s pediatric pulmonary hypertension program and caring for infants in the pediatric ICU. My name is Anson Daine. I'm a registered nurse. I work in the pediatric intensive unit at UCSF Benioff Children's Hospital in San Francisco. I've been working there about two-and-a-half years. I'm a relatively newer nurse. UCSF has a pediatric pulmonary hypertension program, but within the last year, it's greatly expanded and as wel...
Episode 177 - Anson Daine, RN
August 02, 2018 12:00 - 4 minutes - 4.4 MBAnson Daine, RN from UCSF Benioff Children's Hospital discusses UCSF’s pediatric pulmonary hypertension program and caring for infants in the pediatric ICU. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #phawareMD @UCSFChildrens @pphnet
Rolf Berger, MD - phaware® interview 176
July 31, 2018 12:00Rolf Berger, MD discusses Pediatric Pulmonary Hypertension treatment in the Netherlands and the challenges in clinical trials in children with PAH. Dr. Berger is a pediatric cardiologist from the University Medical Center of Groningen. I'm Rolf Berger. I'm a pediatric cardiologist working in the University Medical Center of Groningen in the Netherlands, which is the national referral center for pulmonary hypertension in childhood. I've been interested in working in the field of pulmonary ...
Episode 176 - Rolf Berger, MD
July 30, 2018 12:00 - 6 minutes - 5.91 MBRolf Berger, MD discusses Pediatric Pulmonary Hypertension treatment in the Netherlands and the challenges in clinical trials in children with PAH. Dr. Berger is a pediatric cardiologist from the University Medical Center of Groningen. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #phawareMD @cm...
Dunbar Ivy, MD - phaware® interview 175
July 27, 2018 12:00Dunbar Ivy, MD discusses the pipeline of potential PAH pediatric therapies. Hi, this is Dunbar Ivy. I'm Chief of Pediatric Cardiology at the University of Colorado's School of Medicine, and Director of the Pediatric Pulmonary Hypertension Program, at Children's Hospital of Colorado. I'm excited to talk to you today about the potential therapies that are in the pipeline for treatment of pulmonary arterial hypertension. Most of these therapies are going to be studied in adults first, an...
Episode 175 - Dunbar Ivy, MD
July 26, 2018 12:00 - 5 minutes - 4.97 MBDunbar Ivy, MD discusses the pipeline of potential PAH pediatric therapies. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #phawareMD @ChildrensColo @DunbarIvy
Dunbar Ivy, MD - phaware® interview 174
July 24, 2018 12:00Dunbar Ivy, MD gives an update on the 6th World Symposium on Pulmonary Hypertension, which was held in Nice, France earlier this year. Dr. Ivy discusses the progress of pulmonary hypertension science and its anticipated future developments. The WSPH series takes place once every five years. Hi, this is Dunbar Ivy, I'm chief of pediatric cardiology at the University of Colorado School of Medicine and Director of the Pediatric Pulmonary Hypertension Program at Children's Hospital of Colorad...
Episode 174 - Dunbar Ivy, MD
July 23, 2018 12:00 - 7 minutes - 6.74 MBDunbar Ivy, MD gives an update on the 6th World Symposium on Pulmonary Hypertension, which was held in Nice, France earlier this year. Dr. Ivy discusses the progress of pulmonary hypertension science and its anticipated future developments. The WSPH series takes place once every five years. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a...
Victor F. Tapson, MD - phaware® interview 173
July 20, 2018 12:00In this episode Dr. Victor Tapson from Cedars-Sinai discusses novel Pulmonary Hypertension Therapies. Hi, everyone. I'm Vic Tapson. I'm at Cedars-Sinai Medical Center in Los Angeles. I'm in pulmonary critical care medicine and my main clinical and research interests are pulmonary hypertension and pulmonary embolism. So today let's talk a little bit about novel PH therapies. We've really come a long way in the past 20-some years with new drugs. We have three drug classes we use pretty ...
Episode 173 - Victor F. Tapson, MD
July 19, 2018 12:00 - 8 minutes - 7.71 MBIn this episode Dr. Victor Tapson from Cedars-Sinai discusses novel Pulmonary Hypertension Therapies. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, twitter, Instagram, youtube & linkedin Engage for a cure: www.phaware.global/donate #phaware #phawareMD #ClinicalTrials @CedarsSinai @vic_tapson
Richard Channick, MD - phaware® interview 172
July 17, 2018 12:00Richard Channick, MD discusses pulmonary embolism or blood clots in the lungs, and how they can progress to CTEPH (Chronic Thromboembolic Pulmonary Hypertension). I'm Rich Channick. I'm from Mass General Hospital in Boston, and I run the pulmonary hypertension program there. Today we're going to talk about pulmonary embolism or blood clots in the lungs, and how they can progress to chronic thromboembolic pulmonary hypertension, or what we call CTEPH. CTEPH is a very important cause of...
Episode 172 - Richard Channick, MD
July 16, 2018 12:00 - 5 minutes - 5.15 MBIn this episode, Richard Channick, MD discusses pulmonary embolism or blood clots in the lungs, and how they can progress to CTEPH (Chronic Thromboembolic Pulmonary Hypertension). Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, instagram, youtube & linkedin Engage for a cure: www.phaware.global/donate #phaware #phawareMD #CTEPH
Iain Hess - phaware® interview 171
July 13, 2018 12:00Iain Hess discusses his lifesaving double-lung transplant and his plans for life post PH. Iain Hess is a former pulmonary hypertension patient from Boulder, Colorado who was diagnosed at age 5 with IPAH. He received a double-lung transplant on January 17, 2017. My name is Iain Hess. I was born in Boulder, Colorado. I was diagnosed with pulmonary arterial hypertension at the age of five when my doctor in Bolder heard an initial second heartbeat. At the time, we were about to go to Indi...
Episode 171 - Iain Hess
July 12, 2018 12:00 - 8 minutes - 7.91 MBIain Hess discusses his lifesaving double-lung transplant and his plans for life post PH. Iain Hess is a former pulmonary hypertension patient from Boulder, Colorado who was diagnosed at age 5 with IPAH. He received a double-lung transplant on January 17, 2017. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, instagram, youtube & linkedin Engage for a cure: www.phaware.global/dona...
Steven D. Nathan, MD - phaware® interview 170
July 10, 2018 12:00In this episode Dr. Steven D. Nathan discusses sarcoidosis and how it can be complicated by the development of pulmonary hypertension. Steven D. Nathan, MD, is a member of several professional medical associations, including the American Thoracic Society, the American College of Chest Physicians, and the International Society for Heart and Lung Transplantation. Dr. Nathan is board certified in internal medicine, pulmonary diseases, and critical care medicine. My name is Dr. Steven Nath...
Episode 170 - Steven D. Nathan, MD
July 09, 2018 12:00 - 7 minutes - 6.81 MBIn this episode Dr. Steven D. Nathan discusses sarcoidosis and how it can be complicated by the development of pulmonary hypertension. Steven D. Nathan, MD, is a member of several professional medical associations, including the American Thoracic Society, the American College of Chest Physicians, and the International Society for Heart and Lung Transplantation. Dr. Nathan is board certified in internal medicine, pulmonary diseases, and critical care medicine. Learn more about pulmonary h...
Uyen Truong, MD - phaware® interview 169
July 06, 2018 12:00In this episode, Dr. Uyen Truong discusses how MRI has the potential of providing as much if not more information about the cardiovascular system as cardiac catheterization, and this may shift the paradigm of pediatric PH care towards a safer, noninvasive monitoring modality and significantly improve quality of life in children with PH. My name is Uyen Truong. I'm an associate professor at the University of Colorado. We are affiliated with the Children's Hospital of Colorado. I'm in the d...
Episode 169 - Uyen Truong, MD
July 05, 2018 12:00 - 5 minutes - 5.24 MBIn this episode, Dr. Uyen Truong discusses how MRI has the potential of providing as much if not more information about the cardiovascular system as cardiac catheterization, and this may shift the paradigm of pediatric PH care towards a safer, noninvasive monitoring modality and significantly improve quality of life in children with PH. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twit...
Amina Berbić - phaware® interview 168
July 03, 2018 12:00Amina Berbić is a pulmonary arterial hypertension (PAH) patient from Bosnia and Herzegovina. She is a student and a local non-government organization (NGO) project manager who works to help empower 300 unemployed women through developing new skills to increase employability, as well as positivity and stress reduction. Hi, my name is Amina Berbić I'm from Bosnia and Herzegovina. I'm 20 years old, and I'm a pulmonary hypertension patient. When I was 17, I was playing a volleyball game, a...
Episode 168 - Amina Berbić
July 02, 2018 12:00 - 5 minutes - 5.14 MBAmina Berbić is a pulmonary arterial hypertension (PAH) patient from Bosnia and Herzegovina. She is a student and a local non-government organization (NGO) project manager who works to help empower 300 unemployed women through developing new skills to increase employability, as well as positivity and stress reduction. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, instagram, yo...
Episode 168 - Amina Berbić
July 02, 2018 12:00 - 5 minutes - 5.14 MBAmina Berbić is a pulmonary arterial hypertension (PAH) patient from Bosnia and Herzegovina. She is a student and a local non-government organization (NGO) project manager who works to help empower 300 unemployed women through developing new skills to increase employability, as well as positivity and stress reduction. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, instagram, yo...
Harrison "Hap" Farber, MD - phaware® interview 167
June 29, 2018 12:00Harrison "Hap" Farber, MD discusses ways Team PHenomenal Hope seeks to build community with those suffering from PH including the #LetMeBeYourLungs program. Dr. Farber is the Vice President of Team PHenomenal Hope. Dr. Farber is considered an opinion leader and internationally recognized expert in the field of pulmonary hypertension. He is a Professor in the Department of Medicine and attends in the Medical Intensive Care Unit and on the Pulmonary Consultation Service at Boston Medical Ce...
Episode 167 - Harrison "Hap" Farber, MD
June 28, 2018 12:00 - 3 minutes - 3.11 MBHarrison "Hap" Farber, MD discusses ways Team PHenomenal Hope seeks to build community with those suffering from PH including the #LetMeBeYourLungs program. Dr. Farber is the Vice President of Team PHenomenal Hope. Dr. Farber is considered an opinion leader and internationally recognized expert in the field of pulmonary hypertension. He is a Professor in the Department of Medicine and attends in the Medical Intensive Care Unit and on the Pulmonary Consultation Service at Boston Medical Cen...
VIPhaware Pin Trading - phaware® interview 166
June 26, 2018 12:00A LIVE Global #phaware Activation. phaware global association® invites you to become a #VIPhaware Pin Trader! Participate in a LIVE “treasure hunt.” phaware® President and Co-Founder, Steve Van Wormer details how Int’l PH Conference & Scientific Sessions attendees can be part of an inclusive, fun and educational experience for exhibit hall visitors of all ages taking place June 28 - July 1 in Orlando, Florida. Hi everyone my name is Steve Van Wormer, I'm one of the Co-Founders of pha...
Episode 166 - VIPhaware Pin Trading
June 25, 2018 12:00 - 5 minutes - 5.15 MBA LIVE Global #phaware Activation. phaware global association® invites you to become a #VIPhaware Pin Trader! Participate in a LIVE “treasure hunt.” phaware® President and Co-Founder, Steve Van Wormer details how Int’l PH Conference & Scientific Sessions attendees can be part of an inclusive, fun and educational experience for exhibit hall visitors of all ages taking place June 28 - July 1 in Orlando, Florida. Learn more about pulmonary hypertension at www.phaware365.global. Never mis...
Vinicio A. de Jesus Perez, MD - phaware® interview 165
June 22, 2018 19:00In this episode, Dr. Perez discusses health inequality and ways to improve access of care for patients with disadvantageous ethnic backgrounds. Vinicio de Jesus Perez, MD is Assistant Professor of Medicine (Pulmonary and Critical Care Medicine) at the Stanford Adult PH Clinic where he trains fellows pursuing careers in PH and IPF. My name is Vinicio de Jesus Perez. I am an assistant professor in the division of pulmonary critical medicine at Stanford University. I'm also a staff physicia...
Episode 165 - Vinicio A de Jesus Perez, MD
June 21, 2018 12:00 - 7 minutes - 7.49 MBIn this episode, Dr. Perez discusses health inequality and ways to improve access of care for patients with disadvantageous ethnic backgrounds. Vinicio de Jesus Perez, MD is Assistant Professor of Medicine (Pulmonary and Critical Care Medicine) at the Stanford Adult PH Clinic where he trains fellows pursuing careers in PH and IPF. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, ...
Pirooz Eghtesady, MD, PHD - phaware® interview 164
June 19, 2018 12:00Dr. Pirooz Eghtesady is a pediatric cardiothoracic surgeon at the Washington University School of Medicine in St Louis. His research focus is on congenital heart diseases, with particular emphasis on aortic stenosis and hypoplastic left heart syndrome. In this episode, Dr. Eghtesady discusses the surgical procedure called a Potts shunt as a treatment option for children who suffer from pulmonary hypertension. My name is Pirooz Eghtesady. I'm here at Washington University in St. Louis or ...
Episode 164 - Pirooz Eghtesady, MD
June 18, 2018 12:00 - 9 minutes - 8.84 MBDr. Pirooz Eghtesady is a pediatric cardiothoracic surgeon at the Washington University School of Medicine in St Louis. His research focus is on congenital heart diseases, with particular emphasis on aortic stenosis and hypoplastic left heart syndrome. In this episode, Dr. Eghtesady discusses the surgical procedure called a Potts shunt as a treatment option for children who suffer from pulmonary hypertension. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an ...
Michelle Liu, MD - phaware® interview 163
June 15, 2018 12:00Michelle Liu, MD discusses how physicians can use “PEARLS” to build relationships with patients. The mnemonic PEARLS – stands for partnership, empathy, apology/acknowledgment, respect, legitimation, and support. Dr. Liu is a Parent, Caregiver and PH Support Group Leader. Her daughter Ester Grace is a former PH patient who received a double lung transplant in 2014. I'm Michelle Liu, I'm a parent of a former PHer, and also a physician. My daughter was diagnosed with PH in 2012 when we were l...