I'm Aware That I'm Rare: the phaware® podcast
987 episodes - English - Latest episode: 13 days ago - ★★★★★ - 14 ratingsI'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world.
Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early diagnosis and treatment can mean the difference between life and death.
Topics range from the importance of early diagnosis and global PH awareness, to the impact of clinical trials to how patient support and advocacy are paramount to battling this disease.
Learn more about PH at www.phaware.global
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Episodes
Episode 163 - Michelle Liu, MD (Pt 2)
June 14, 2018 12:00 - 5 minutes - 5.12 MBMichelle Liu, MD discusses how physicians can use “PEARLS” to build relationships with patients. The mnemonic PEARLS – stands for partnership, empathy, apology/acknowledgment, respect, legitimation, and support. Dr. Liu is a Parent, Caregiver and PH Support Group Leader. Her daughter Ester Grace is a former PH patient who received a double lung transplant in 2014. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow ...
Michelle Liu, MD - phaware® interview 162
June 12, 2018 12:00PH and Transplant: Perspectives from a Physician‐Mother Caregiver. Michelle Liu, MD discusses her daughter Esther Grace’s 5 year journey from pulmonary hypertension diagnosis through transplant. Dr. Liu is a Parent, Caregiver and PH Support Group Leader. I'm Michelle Liu, I'm a parent of a former PH-er and also a physician. My daughter was diagnosed with PH in 2012 when we were living in Europe. She had a sudden cardiac event and it was right in front of me. She had been jumping on a tr...
Episode 162 - Michelle Liu, MD (Pt 1)
June 11, 2018 12:00 - 9 minutes - 8.76 MBPH and Transplant: Perspectives from a Physician‐Mother Caregiver. Michelle Liu, MD discusses her daughter Esther Grace’s 5 year journey from pulmonary hypertension diagnosis through transplant. Dr. Liu is a Parent, Caregiver and PH Support Group Leader. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, instagram, youtube & linkedin Engage for a cure: www.phaware.global/donate #pha...
Libby Webb - phaware® interview 161
June 08, 2018 12:00Libby Webb discusses how ZappRx is leveraging technology to simplify and automate the way specialty drugs get to patients. Libby is the Senior Vice President, Product of ZappRx, a digital health company offering a prescription and prior authorization platform. In this episode Libby discusses how ZappRx is leveraging technology to simplify and automate the way specialty drugs get to patients. I'm Libby Webb. I'm the SVP of product at ZappRx and I am responsible for our product strategy, ...
Episode 161 - Libby Webb
June 07, 2018 12:00 - 8 minutes - 8.28 MBLibby Webb discusses how ZappRx is leveraging technology to simplify and automate the way specialty drugs get to patients. Libby is the Senior Vice President, Product of ZappRx, a digital health company offering a prescription and prior authorization platform. In this episode Libby discusses how ZappRx is leveraging technology to simplify and automate the way specialty drugs get to patients. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the ...
Harrison "Hap" Farber, MD - phaware® interview 160
June 05, 2018 12:00Harrison "Hap" Farber, MD discusses this importance of poster sessions. Dr. Farber is considered an opinion leader and internationally recognized expert in the field of pulmonary hypertension. He is a Professor in the Department of Medicine and attends in the Medical Intensive Care Unit and on the Pulmonary Consultation Service at Boston Medical Center. He also oversees the care of all patients with Pulmonary Hypertension at Boston Medical Center. I'm Hap Farber from Boston University ...
Episode 160 - Harrison "Hap" Farber, MD
June 04, 2018 12:00 - 4 minutes - 4.02 MBHarrison "Hap" Farber, MD discusses this importance of poster sessions. Dr. Farber is considered an opinion leader and internationally recognized expert in the field of pulmonary hypertension. He is a Professor in the Department of Medicine and attends in the Medical Intensive Care Unit and on the Pulmonary Consultation Service at Boston Medical Center. He also oversees the care of all patients with Pulmonary Hypertension at Boston Medical Center. Learn more about pulmonary hypertension...
Allison Dsouza - phaware® interview 159
June 01, 2018 12:00In this episode, Allison Dsouza shares tips for patients transitioning to life at college and how her experience as a patient led to her decision to attending nursing school at UCLA. Allison is a pulmonary hypertension patient who was diagnosed in her senior year of high school. My name is Allison Dsouza. And I've been diagnosed with pulmonary hypertension for three years now. So basically I was a senior in high school, and I thought that I was that lazy overweight, out-of-shape teenage...
Episode 159 - Allison Dsouza
May 31, 2018 12:00 - 6 minutes - 6.05 MBAllison Dsouza shares tips for patients transitioning to life at college and how her experience as a patient led to her decision to attending nursing school at UCLA. Allison is a pulmonary hypertension patient who was diagnosed in her senior year of high school. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, instagram, youtube & linkedin Engage for a cure: www.phaware.global/don...
Tilman Humpl, MD - phaware® interview 158
May 29, 2018 12:00Dr. Tilman Humpl is the Director of the Pulmonary Hypertension Service at the Hospital for Sick Children in Toronto, which is part of the Pediatric Pulmonary Hypertension Network (PPHNet). One focus of Dr. Humpl’s clinical work is the management of children on a ventricular assist device. As the Director of the Pulmonary Hypertension Service at the Hospital for Sick Children, he runs an outpatient clinic with referrals from several Canadian provinces. In this episode, Dr. Humpl discusses pe...
Episode 158 - Tilman Humpl, MD
May 28, 2018 12:00 - 4 minutes - 4.79 MBDr. Tilman Humpl is the Director of the Pulmonary Hypertension Service at the Hospital for Sick Children in Toronto, which is part of the Pediatric Pulmonary Hypertension Network (PPHNet). One focus of Dr. Humpl’s clinical work is the management of children on a ventricular assist device. As the Director of the Pulmonary Hypertension Service at the Hospital for Sick Children, he runs an outpatient clinic with referrals from several Canadian provinces. In this episode, Dr. Humpl discusses ped...
Vinicio A de Jesus Perez, MD - phaware® interview 157
May 25, 2018 12:00Vinicio de Jesus Perez, MD is Assistant Professor of Medicine (Pulmonary and Critical Care Medicine) at the Stanford Adult PH Clinic where he trains fellows pursuing careers in PH and IPF. He is principal investigator of a research program with the ultimate goal of identifying new therapeutic targets to treat PH and IPF. In this episode, Dr. Vinicio de Jesus Perez discusses pulmonary arterial hypertension as a complication of methamphetamine use (METH-PAH). My name is Vincinio de Jesus Pe...
Episode 157 - Vinicio A de Jesus Perez, MD
May 24, 2018 12:00 - 14 minutes - 13.1 MBVinicio de Jesus Perez, MD is Assistant Professor of Medicine (Pulmonary and Critical Care Medicine) at the Stanford Adult PH Clinic where he trains fellows pursuing careers in PH and IPF. He is principal investigator of a research program with the ultimate goal of identifying new therapeutic targets to treat PH and IPF. In this episode, Dr. Vinicio de Jesus Perez discusses pulmonary arterial hypertension as a complication of methamphetamine use (METH-PAH). Learn more about pulmonary hyper...
George B. Mallory, MD - phaware® interview 156
May 22, 2018 12:00George B. Mallory, MD is a pediatric pulmonologist at Texas Children's Hospital. In 2001, he joined the Baylor College of Medicine pediatric faculty and founded the TCH Lung Transplant Program. Since 2005, Dr. Mallory has also been medical director of the region's only pediatric pulmonary hypertension program. In this episode, Dr. Mallory discusses his experience with lung transplantation in children with pulmonary hypertension and cystic fibrosis. My name is George Mallory. I'm a pediatr...
Episode 156 - George B. Mallory, MD
May 21, 2018 12:00 - 9 minutes - 8.85 MBGeorge B. Mallory, MD is a pediatric pulmonologist at Texas Children's Hospital. In 2001, he joined the Baylor College of Medicine pediatric faculty and founded the TCH Lung Transplant Program. Since 2005, Dr. Mallory has also been medical director of the region's only pediatric pulmonary hypertension program. In this episode, Dr. Mallory discusses his experience with lung transplantation in children with pulmonary hypertension and cystic fibrosis. Learn more about pulmonary hypertension a...
Travis Flores - phaware® interview 155
May 18, 2018 12:00At 4 months old, Travis was diagnosed with Cystic Fibrosis, a life-long genetic disease that attacks the respiratory & digestive systems. Travis is an award-winning children's book author and nationally recognized speaker & advocate for multiple charities. May is Cystic Fibrosis Awareness Month. My name is Travis Flores, I'm 27 years old, I have cystic fibrosis, and I've had two double lung transplants. Cystic fibrosis effects about one in 25,000 people in the United States, it's certai...
Episode 155 - Travis Flores
May 17, 2018 12:00 - 11 minutes - 10.5 MBAt 4 months old, Travis Flores was diagnosed with Cystic Fibrosis, a life-long genetic disease that attacks the respiratory & digestive systems. Travis is an award-winning children's book author and nationally recognized speaker & advocate for multiple charities. May is Cystic Fibrosis Awareness Month. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, instagram, youtube & linkedin ...
Episode 155 - Travis Flores
May 17, 2018 12:00 - 11 minutes - 10.5 MBAt 4 months old, Travis Flores was diagnosed with Cystic Fibrosis, a life-long genetic disease that attacks the respiratory & digestive systems. Travis is an award-winning children's book author and nationally recognized speaker & advocate for multiple charities. May is Cystic Fibrosis Awareness Month. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, instagram, youtube & linkedin ...
Vinicio A. de Jesus Perez, MD - phaware® interview 154
May 15, 2018 12:00Vinicio de Jesus Perez, MD is Assistant Professor of Medicine (Pulmonary and Critical Care Medicine) at the Stanford Adult PH Clinic where he trains fellows pursuing careers in PH and IPF. He is principal investigator of a research program with the ultimate goal of identifying new therapeutic targets to treat PH and IPF. In this episode, Dr. Vinicio de Jesus Perez discusses the 4th International Symposium: From Precision Biology to Precision Medicine in Pulmonary Hypertension. My name ...
Episode 154 - Vinicio A de Jesus Perez, MD
May 14, 2018 12:00 - 6 minutes - 6.05 MBVinicio de Jesus Perez, MD is Assistant Professor of Medicine (Pulmonary and Critical Care Medicine) at the Stanford Adult PH Clinic where he trains fellows pursuing careers in PH and IPF. He is principal investigator of a research program with the ultimate goal of identifying new therapeutic targets to treat PH and IPF. In this episode, Dr. Vinicio de Jesus Perez discusses the 4th International Symposium: From Precision Biology to Precision Medicine in Pulmonary Hypertension. Learn more a...
Shari Caffrey - phaware® interview 153
May 11, 2018 12:00Shari Caffrey is the founder of TaylorsWish.org. Taylor’s Wish was created in memory of Taylor Renee Caffrey, Shari and Michael’s daughter and twin sister to Brooke. Taylor lost her battle with Pulmonary Hypertension at the tender age of 4 1/2 years. In this episode, Shari discusses how she honors Taylor’s memory by helping raise awareness and funds for more research in order to find a cure for this widely unknown terminal illness. The 9th Annual Saturday, RACE 2 CURE PH takes place on May...
Shari Caffrey - phaware® interview 153
May 11, 2018 12:00Shari Caffrey is the founder of TaylorsWish.org. Taylor’s Wish was created in memory of Taylor Renee Caffrey, Shari and Michael’s daughter and twin sister to Brooke. Taylor lost her battle with Pulmonary Hypertension at the tender age of 4 1/2 years. In this episode, Shari discusses how she honors Taylor’s memory by helping raise awareness and funds for more research in order to find a cure for this widely unknown terminal illness. The 9th Annual Saturday, RACE 2 CURE PH takes place on May...
Episode 153 - Shari Caffrey
May 10, 2018 12:00 - 7 minutes - 7.09 MBShari Caffrey is the founder of TaylorsWish.org. Taylor’s Wish was created in memory of Taylor Renee Caffrey, Shari and Michael’s daughter and twin sister to Brooke. Taylor lost her battle with Pulmonary Hypertension at the tender age of 4 1/2 years. In this episode, Shari discusses how she honors Taylor’s memory by helping raise awareness and funds for more research in order to find a cure for this widely unknown terminal illness. The 9th Annual Saturday, RACE 2 CURE PH takes place on May ...
Monica Penaranda - phaware® interview 152
May 08, 2018 12:00Monica Penaranda is a long term pulmonary hypertension patient from California. She was diagnosed with PH nearly twenty four years ago. In this episode, Monica discusses her near death experience due to a high-risk pregnancy and how participating in clinical trials has prolonged her life. My name is Monica Penaranda, and I'm from Whittier, California. I have had PH for almost 24 years. I ended up, at 16 years old, getting pregnant. As if that wasn't enough of a shock for my family, also...
Episode 152 - Monica Penaranda
May 07, 2018 12:00 - 8 minutes - 7.85 MBMonica Penaranda is a long term pulmonary hypertension patient from California. She was diagnosed with PH nearly twenty four years ago. In this episode, Monica discusses her near death experience due to a high-risk pregnancy and how participating in clinical trials has prolonged her life. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, instagram, youtube & linkedin Engage for a c...
Mark Grady, MD - phaware® interview 151
May 04, 2018 12:00Dr. Ronald Mark Grady, MD is a pediatric cardiologist at the Washington University School of Medicine in St Louis. He has over 29 years of diverse experience, especially in Cardiovascular Disease. He is affiliated with many hospitals including St Louis Children’s Hospital. In this episode, Dr. Grady discusses the surgical procedure called a Potts shunt as a treatment option for children who suffer from pulmonary hypertension. I'm Mark Grady. I have been a pediatric cardiologist at Washin...
Episode 151 - Mark Grady, MD
May 03, 2018 12:00 - 7 minutes - 7.03 MBRonald Mark Grady, MD is a pediatric cardiologist at the Washington University School of Medicine in St Louis. He has over 29 years of diverse experience, especially in Cardiovascular Disease. He is affiliated with many hospitals including St Louis Children’s Hospital. In this episode, Dr. Grady discusses the surgical procedure called a Potts shunt as a treatment option for children who suffer from pulmonary hypertension. Learn more about pulmonary hypertension at www.phaware365.global. N...
World PH Day - phaware® interview 150
May 01, 2018 12:00A LIVE Global #phaware Activation. Every year on May 5th, pulmonary hypertension organizations and groups around the world participate in World Pulmonary Hypertension Day activities to raise awareness of this rare and often-misdiagnosed disease and to celebrate the lives of the global PH community. This year, phaware global association® invites you to become a #phaware Brand Ambassador! phaware® President and Co-Founder, Steve Van Wormer details 5 WAYS YOU CAN GET INVOLVED with the Strea...
Episode 150 - World PH Day 2018
April 30, 2018 12:00 - 7 minutes - 7.47 MBA LIVE Global #phaware Activation. Every year on May 5th, pulmonary hypertension organizations and groups around the world participate in World Pulmonary Hypertension Day activities to raise awareness of this rare and often-misdiagnosed disease and to celebrate the lives of the global PH community. This year, phaware global association® invites you to become a #phaware Brand Ambassador! phaware® President and Co-Founder, Steve Van Wormer details 5 WAYS YOU CAN GET INVOLVED with the Stream...
Sanjay Mehta, MD - phaware® interview 149
April 27, 2018 12:00Sanjay Mehta, MD, FRCPC, FCCP, is PHA Canada’s Chair. He is additionally Professor of Medicine at the University of Western Ontario, and Director of the Southwest Ontario Pulmonary Hypertension Clinic at the London Health Sciences Center in London, Canada. He is also Chair of the Pulmonary Vascular Disease Committee of the Canadian Thoracic Society. Dr. Mehta has been caring for patients with PH and doing research in PH since 1989. In this episode, Dr. Mehta discusses PHA Canada’s 10 Year ...
Episode 149 - Sanjay Mehta, MD
April 26, 2018 12:00 - 11 minutes - 11 MBSanjay Mehta, MD, FRCPC, FCCP, is PHA Canada’s Chair. He is additionally Professor of Medicine at the University of Western Ontario, and Director of the Southwest Ontario Pulmonary Hypertension Clinic at the London Health Sciences Center in London, Canada. He is also Chair of the Pulmonary Vascular Disease Committee of the Canadian Thoracic Society. Dr. Mehta has been caring for patients with PH and doing research in PH since 1989. In this episode, Dr. Mehta discusses PHA Canada’s 10 Year A...
Jamie Myrah - phaware® interview 148
April 24, 2018 12:00Jamie Myrah joined PHA Canada as the organization’s first Executive Director in January 2016. She is responsible for overseeing all of their operations, including providing support and guidance to the staff in delivering programs and services. She also works closely with the Board of Directors on governance, strategic planning, public and government relations, and fund development. She works closely with Canada’s PH community to create changes that improve the lives of all those affected by...
Episode 148 - Jamie Myrah
April 23, 2018 12:00 - 6 minutes - 6.18 MBJamie Myrah joined PHA Canada as the organization’s first Executive Director in January 2016. She is responsible for overseeing all of their operations, including providing support and guidance to the staff in delivering programs and services. She also works closely with the Board of Directors on governance, strategic planning, public and government relations, and fund development. She works closely with Canada’s PH community to create changes that improve the lives of all those affected by ...
Julie Scott - phaware® interview 147
April 20, 2018 12:00My name is Julie Scott. Born and raised in San Diego. I used to run a lot. Years and years ago back in like '99, part of 2000, I was a meter reader for San Diego Gas and Electric and I was noticing on my routes, my heart was like going really fast and I thought it was anxiety from the dogs. So this is like 2000, I notice something's wrong and shortly after that, I started passing out. When that happens, it's like, what's going on? Why am I passing out? So, you go see your doctor. Your doc...
Episode 147 - Julie Scott
April 19, 2018 12:00 - 4 minutes - 4.2 MBJulie Scott is a pulmonary hypertension patient from San Diego. She is also a co-leader of the San Diego PH Support Group on facebook. In this episode Julie discusses her diagnosis and details why she participates in multiple PH clinical trials. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, instagram, youtube & linkedin Engage for a cure: www.phaware.global/donate #phaware
Wendy Jackson - phaware® interview 146
April 17, 2018 12:00Wendy Jackson is a long term survivor of pulmonary hypertension. She was diagnosed with CTEPH 30 years ago. In this episode, Wendy discusses her road to diagnosis and her positive mindset, attributed to all the therapies available thanks to PH research. My name is Wendy Jackson, and I live in Dallas, Texas. I am a CTEPH patient, and have been for 30 years. In 1985, it was suggested to me, at the age of 21, that I probably should get on birth control pills. After being on them for six ...
Episode 146 - Wendy Jackson
April 16, 2018 12:00 - 9 minutes - 9.04 MBWendy Jackson is a long term survivor of pulmonary hypertension. She was diagnosed with CTEPH 30 years ago. In this episode, Wendy discusses her road to diagnosis and her positive mindset, attributed to all the therapies available thanks to PH research. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, instagram, youtube & linkedin Engage for a cure: www.phaware.global/donate #pha...
Ashley Abuel, RN - phaware® interview 145
April 13, 2018 12:00Ashley Abuel, RN, BSN is the outpatient fetal/pediatric cardiology nurse manager for the Children's Heart Center at UCLA Mattel Children's Hospital. Ashley has also assisted in the coordination and development of a non-profit medical clinic created to serve uninsured/underserved pediatric patients. In this episode, she discusses working with the inpatient team to help provide a smooth transition for patients and families as they are discharged from the hospital and adjust to outpatient car...
Episode 145 - Ashley Abuel, RN
April 12, 2018 12:00 - 8 minutes - 7.95 MBAshley Abuel, RN, BSN is the outpatient fetal/pediatric cardiology nurse manager for the Children's Heart Center at UCLA Mattel Children's Hospital. Ashley has also assisted in the coordination and development of a non-profit medical clinic created to serve uninsured/underserved pediatric patients. In this episode, she discusses working with the inpatient team to help provide a smooth transition for patients and families as they are discharged from the hospital and adjust to outpatient care...
Mark S. Sklansky, MD - phaware® interview 144
April 10, 2018 12:00Dr. Mark S. Sklansky leads the UCLA Division of Pediatric Cardiology in providing comprehensive, collaborative, state-of-the-art and compassionate evaluation and management of fetal and pediatric patients with a wide range of congenital and acquired forms of heart disease. The UCLA Division of Pediatric Cardiology offers a full spectrum of clinical and academic programs, including fetal cardiology, general pediatric cardiology, state-of-the-art cardiovascular imaging/echocardiography, inter...
Episode 144 - Mark S. Sklansky, MD
April 09, 2018 12:00 - 7 minutes - 6.91 MBDr. Mark S. Sklansky leads the UCLA Division of Pediatric Cardiology in providing comprehensive, collaborative, state-of-the-art and compassionate evaluation and management of fetal and pediatric patients with a wide range of congenital and acquired forms of heart disease. The UCLA Division of Pediatric Cardiology offers a full spectrum of clinical and academic programs, including fetal cardiology, general pediatric cardiology, state-of-the-art cardiovascular imaging/echocardiography, interv...
Nancy Frede, RN - phaware® interview 143
April 06, 2018 12:00Nancy Frede, RN is a mother of a PH patient (Camille Frede) surviving 24 years since diagnosed. Nancy is a nurse, which is an advantage in managing healthcare issues with her daughter. Transplant is a new area for them both, but their support system with pulmonary hypertension has helped get them over many hurtles. Nancy is dedicated to helping others along their journey since children with PH are surviving longer. My name is Nancy Frede, and I have a daughter, Camille, who has pulmonary ...
Episode 143 - Nancy Frede, RN
April 05, 2018 12:00 - 7 minutes - 6.82 MBNancy Frede, RN is a mother of a PH patient (Camille Frede) surviving 24 years since diagnosed. Nancy is a nurse, which is an advantage in managing healthcare issues with her daughter. Transplant is a new area for them both, but their support system with pulmonary hypertension has helped get them over many hurtles. Nancy is dedicated to helping others along their journey since children with PH are surviving longer. Learn more about pulmonary hypertension at www.phaware365.global. Never mis...
Camille Frede, RN - phaware® interview 142
April 03, 2018 12:00Camille Frede, RN is from Grand Rapids Michigan. She was diagnosed with pulmonary hypertension at the age of four. Camille became a nurse because she wanted to give back to her community and advocate for her patients. She uses the gift of being a patient herself to mirror her empathy for others. This interview was conducted while Camille was in the hospital awaiting a heart/lung transplant. After 48 days in the hospital and 23 on ECMO, she received the call on 3/25/18. My name is Camill...
Episode 142 - Camille Frede, RN
April 02, 2018 12:00 - 6 minutes - 6.18 MBCamille Frede, RN is from Grand Rapids Michigan. She was diagnosed with pulmonary hypertension at the age of four. Camille became a nurse because she wanted to give back to her community and advocate for her patients. She uses the gift of being a patient herself to mirror her empathy for others. This interview was conducted while Camille was in the hospital awaiting a heart/lung transplant. After 48 days in the hospital and 23 on ECMO, she received the call on 3/25/18. Learn more about ...
Rachel Abraham - phaware® interview #141
March 30, 2018 12:00Rachel Abraham is a freshman at American University in Washington DC who was diagnosed shortly after her birth. She is originally from Mamaroneck, New York and believes that just because she has PH doesn't mean that her lungs can stop her from being a stage manager and doing what she loves. In this episode Rachel shares her experience and tips for patients transitioning to life at college. I'm Rachel Abraham. I'm 18 years old from Westchester, New York, and I have had pulmonary hypertensi...
Episode 141 - Rachel Abraham
March 29, 2018 12:00 - 6 minutes - 5.84 MBRachel Abraham is a freshman at American University in Washington DC who was diagnosed shortly after her birth. She is originally from Mamaroneck, New York and believes that just because she has PH doesn't mean that her lungs can stop her from being a stage manager and doing what she loves. In this episode Rachel shares her experience and tips for patients transitioning to life at college. Learn more about pulmonary hypertension at www.phaware365.global. Never miss an episode with the phaw...
Claire Parker, PNP - phaware® interview #140
March 27, 2018 12:00Claire Parker is a pediatric nurse practitioner at UCSF Benioff Children's Hospital who specializes in the treatment of pediatric pulmonary hypertension, a type of high blood pressure affecting the lungs and heart. Claire also participates in several clinical trials for medications used to treat pulmonary hypertension. She often serves as a moderator for the nursing workshop at the International Conference Neonatal and Childhood Pulmonary Vascular Disease. In this episode, Claire discusse...
Episode 140 - Claire Parker, PNP
March 26, 2018 12:00 - 5 minutes - 5.41 MBClaire Parker is a pediatric nurse practitioner at UCSF Benioff Children's Hospital who specializes in the treatment of pediatric pulmonary hypertension, a type of high blood pressure affecting the lungs and heart. Claire also participates in several clinical trials for medications used to treat pulmonary hypertension. She often serves as a moderator for the nursing workshop at the International Conference Neonatal and Childhood Pulmonary Vascular Disease. In this episode, Claire discusses...
Sandeep Sahay, MD - phaware® interview #139
March 23, 2018 12:00 - 667 KB application/pdfSandeep Sahay is an Assistant Professor and pulmonary hypertension specialist from Houston Methodist Hospital. Dr. Sahay is a CHEST Foundation PAH clinical research grant recipient and he has been highly active in creating patient education materials for PAH and CTEPH patients and medical professionals. In this episode, Dr. Sahay discusses CHEST and the CHEST Foundation. Hello, I'm Sandeep Sahay, and I'm a pulmonary hypertension specialist at the Houston Methodist Hospital. I work at one ...