I'm Aware That I'm Rare: the phaware® podcast
987 episodes - English - Latest episode: 13 days ago - ★★★★★ - 14 ratingsI'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world.
Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early diagnosis and treatment can mean the difference between life and death.
Topics range from the importance of early diagnosis and global PH awareness, to the impact of clinical trials to how patient support and advocacy are paramount to battling this disease.
Learn more about PH at www.phaware.global
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Episodes
Jody Petry Transcript
March 10, 2017 10:00Jody Petry is not just a pulmonary hypertension patient, but she is also a caregiver to her daughter, who suffers from this rare, chronic illness. My name is Jody Petry, and I'm from Milwaukee, Wisconsin. I am a PH patient diagnosed about three years ago. My daughter, who's 12, was diagnosed about seven years ago. My own path to diagnosis was noticing shortness of breath and increased fatigue with activity. I'm adopted, but I have medical records from when I was an infant, and the disch...
Episode 40 - Jody Petry
March 09, 2017 10:00 - 4 minutes - 4.77 MBJody Petry is not just a pulmonary hypertension patient, but she is also a caregiver to her daughter, who suffers from this rare, chronic illness. Learn more about pulmonary hypertension at phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, instragram, youtube & linkedin #phaware
Sound Bath Guided Mediation Transcript
March 07, 2017 10:00In this episode, Eric Mellgren and Jennifer Schaefer discuss and perform a Sound Bath Guided Mediation. A Sound Bath is a form of guided meditation that can help relieve anxiety and stress. The vibrations and tones are created with “singing” bowls made of quartz crystal or synthesized ambient tones all tuned to 432 Hz. Click to watch Eric perform the Sound Bath. Eric: I'm Eric Mellgren with Vigilant Healing Solutions. Jennifer: I'm Jennifer Schaefer with jenniferwellness.com and I'm ...
Episode 39 - Sound Bath Guided Meditation
March 06, 2017 10:00 - 27 minutes - 25.2 MBIn this episode, Eric Mellgren and Jennifer Schaefer discuss and perform a Sound Bath Guided Mediation. A Sound Bath is a form of guided meditation that can help relieve anxiety and stress. The vibrations and tones are created with “singing” bowls made of quartz crystal or synthesized ambient tones all tuned to 432 Hz. Click to watch Eric perform the Sound Bath. Click the Bonus tab to listen to Jennifer's Guided Mediation only. Learn more about pulmonary hypertension at phaware365.global. ...
UCSF's CPVD Conference Transcript
March 03, 2017 10:00Over the past decade, great strides have been made in the understanding of the pathobiology of pulmonary vascular disease, and from these findings new therapeutic options have emerged. It is increasingly clear that pulmonary vascular pathology is integral to a number of childhood disorders. At the 11th International Conference Neonatal & Childhood Pulmonary Vascular Disease, chair's Jeffrey R. Fineman, MD and Ian Adatia, MBChB, FRCP will bring together international experts to explore th...
Episode 38 - UCSF's CPVD Conference
March 02, 2017 10:00 - 5 minutes - 5.31 MBOver the past decade, great strides have been made in the understanding of the pathobiology of pulmonary vascular disease, and from these findings new therapeutic options have emerged. It is increasingly clear that pulmonary vascular pathology is integral to a number of childhood disorders. At the 11th International Conference Neonatal & Childhood Pulmonary Vascular Disease, chair's Jeffrey R. Fineman, MD and Ian Adatia, MBChB, FRCP will bring together international experts to explore the...
Patricia Weltin Transcript
February 28, 2017 10:00Patricia Weltin is the founder of The Rare Disease United Foundation (www.rarediseaseunited.org), a non-disease specific, community-based organization, working at a state-level on legislation that has a direct impact on people living with a rare disease, providing support locally, and establishing relationships at local hospitals and medical schools. RDUF has also created groundbreaking programs like their Beyond the Diagnosis Art Exhibit, which travels around the country to medical schools ...
Episode 37 - Patricia Weltin
February 27, 2017 10:00 - 7 minutes - 6.77 MBPatricia Weltin is the founder of The Rare Disease United Foundation (www.rarediseaseunited.org), a non-disease specific, community-based organization, working at a state-level on legislation that has a direct impact on people living with a rare disease, providing support locally, and establishing relationships at local hospitals and medical schools. RDUF has also created groundbreaking programs like their Beyond the Diagnosis Art Exhibit, which travels around the country to medical schools a...
Episode 37 - Patricia Weltin
February 27, 2017 10:00 - 7 minutes - 6.76 MBPatricia Weltin is the founder of The Rare Disease United Foundation (www.rarediseaseunited.org), a non-disease specific, community-based organization, working at a state-level on legislation that has a direct impact on people living with a rare disease, providing support locally, and establishing relationships at local hospitals and medical schools. RDUF has also created groundbreaking programs like their Beyond the Diagnosis Art Exhibit, which travels around the country to medical schools a...
Jacqueline R. Szmuszkovicz, MD Transcript
February 24, 2017 10:00Dr. Szmuszkovicz works in Los Angeles, CA and specializes in Pediatric Cardiology. She provides comprehensive care to patients with cardiovascular problems. Dr. Szmuszkovicz is affiliated with Children’s Hospital Los Angeles, Hollywood Presbyterian Medical Center and LAC USC Medical Center. My name is Jackie Szmuszkovicz. I'm a pediatric cardiologist. I work in Los Angeles at Children's Hospital Los Angeles, which is affiliated with the University of Southern California. I came to Chi...
Episode 36 - Jacqueline R. Szmuskovicz, MD
February 23, 2017 10:00 - 4 minutes - 4.36 MBDr. Szmuszkovicz works in Los Angeles, CA and specializes in Pediatric Cardiology. She provides comprehensive care to patients with cardiovascular problems. Dr. Szmuszkovicz is affiliated with Children’s Hospital Los Angeles, Hollywood Presbyterian Medical Center and LAC USC Medical Center. Learn more about pulmonary hypertension at phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, instragram, youtube & linkedin #phaware #phawa...
Kim M. Kerr, MD Transcript
February 21, 2017 14:28Kim M. Kerr, MD, is a board-certified pulmonologist. Her clinical and research interests are in chronic thromboembolic pulmonary hypertension (CTEPH) and critical care. She is involved in both inpatient and outpatient clinical trials studying pulmonary vascular disease and critical care medicine. Dr. Kerr is Clinical Professor of Medicine and the Medical Director of the Thornton Intensive Care Unit. Dr. Kerr discusses her work in the diagnosis and treatment of patients with CTEPH and the im...
Episode 35 - Kim M. Kerr, MD
February 20, 2017 10:00 - 6 minutes - 5.95 MBKim M. Kerr, MD, is a board-certified pulmonologist. Her clinical and research interests are in chronic thromboembolic pulmonary hypertension (CTEPH) and critical care. She is involved in both inpatient and outpatient clinical trials studying pulmonary vascular disease and critical care medicine. Dr. Kerr is Clinical Professor of Medicine and the Medical Director of the Thornton Intensive Care Unit. Dr. Kerr discusses her work in the diagnosis and treatment of patients with CTEPH and the imp...
Roham T. Zamanian, MD Transcript
February 17, 2017 10:00Dr. Zamanian is the Director of the Adult Pulmonary Hypertension (PH) Program at Stanford University Medical Center. He currently directs the Vera Moulton Wall Center clinical database and biobank and focuses his research on clinical characterization and impact of novel risk factors such as methamphetamine use, and biomarkers, such as insulin resistance, in pulmonary arterial hypertension. Beyond industry clinical trials and registries, Dr. Zamanian has re-focused the research mission of t...
Episode 34 - Roham T Zamanian, MD
February 16, 2017 10:00 - 5 minutes - 5.17 MBDr. Zamanian is the Director of the Adult Pulmonary Hypertension (PH) Program at Stanford University Medical Center. He currently directs the Vera Moulton Wall Center clinical database and biobank and focuses his research on clinical characterization and impact of novel risk factors such as methamphetamine use, and biomarkers, such as insulin resistance, in pulmonary arterial hypertension. Beyond industry clinical trials and registries, Dr. Zamanian has re-focused the research mission of the...
Jeffrey Fineman, MD Transcript
February 14, 2017 10:00Dr. Jeffrey Fineman is a pediatric critical care specialist, or intensivist, and the division chief of Critical Care at UCSF Benioff Children’s Hospital, San Francisco. He also is an investigator of the Cardiovascular Research Institute. His research has led to new therapies for pulmonary hypertension, including a drug called inhaled nitric oxide, which was approved by the U.S. Food and Drug Administration. Fineman's research has focused on diseases related to pulmonary circulation. In part...
Episode 33 - Jeff Fineman, MD
February 13, 2017 10:00 - 6 minutes - 6.32 MBDr. Jeffrey Fineman is a pediatric critical care specialist, or intensivist, and the division chief of Critical Care at UCSF Benioff Children’s Hospital, San Francisco. He also is an investigator of the Cardiovascular Research Institute. His research has led to new therapies for pulmonary hypertension, including a drug called inhaled nitric oxide, which was approved by the U.S. Food and Drug Administration. Fineman's research has focused on diseases related to pulmonary circulation. In parti...
Dunbar Ivy, MD Transcript
February 10, 2017 10:00Dunbar Ivy, MD is currently the Section Head of Pediatric Cardiology and the Director of the Pediatric Pulmonary Hypertension Program at the University of Colorado. He has published over 100 medical articles, primarily focusing on pulmonary hypertension in children. He discusses the importance of Pediatric Pulmonary Hypertension Guidelines, the work of the Pediatric Pulmonary Hypertension Network (PPHNet.org) and how a PH Research app could change patient care. I'm Dunbar Ivy. I curre...
Episode 32 - Dunbar Ivy, MD
February 09, 2017 10:00 - 9 minutes - 8.43 MBDunbar Ivy, MD is currently the Section Head of Pediatric Cardiology and the Director of the Pediatric Pulmonary Hypertension Program at the University of Colorado. He has published over 100 medical articles, primarily focusing on pulmonary hypertension in children. He discusses the importance of Pediatric Pulmonary Hypertension Guidelines, the work of the Pediatric Pulmonary Hypertension Network (PPHNet.org) and how a PH Research app could change patient care. Learn more about pulmonary h...
Episode 32 - Dunbar Ivy, MD
February 09, 2017 10:00 - 9 minutes - 8.43 MBDunbar Ivy, MD is currently the Section Head of Pediatric Cardiology and the Director of the Pediatric Pulmonary Hypertension Program at the University of Colorado. He has published over 100 medical articles, primarily focusing on pulmonary hypertension in children. He discusses the importance of Pediatric Pulmonary Hypertension Guidelines, the work of the Pediatric Pulmonary Hypertension Network (PPHNet.org) and how a PH Research app could change patient care. Learn more about pulmonary h...
Steven Abman, MD Transcript
February 07, 2017 10:00Dr. Steven Abman is Professor of Pediatrics and Director of the Pediatric Heart Lung Center (PHLC) at the University of Colorado Denver Anschutz School of Medicine and Children’s Hospital Colorado. Dr. Abman founded and continues to serve as Director of the Pediatric Pulmonary Hypertension Network (PPHNet), a multicenter clinical research and care group consisting of 10 leading PH centers from throughout North America, and initiated and led a joint American Heart Association/American Thorac...
Episode 31 - Steven Abman, MD
February 06, 2017 10:00 - 7 minutes - 7.36 MBDr. Steven Abman is Professor of Pediatrics and Director of the Pediatric Heart Lung Center (PHLC) at the University of Colorado Denver Anschutz School of Medicine and Children’s Hospital Colorado. Dr. Abman founded and continues to serve as Director of the Pediatric Pulmonary Hypertension Network (PPHNet), a multicenter clinical research and care group consisting of 10 leading PH centers from throughout North America, and initiated and led a joint American Heart Association/American Thoraci...
Mark Nicolls, MD Transcript
February 03, 2017 10:00Dr. Mark Nicolls specializes in the treatment of lung transplant patients. He has practiced pulmonary and critical care medicine for more than 18 years. He discusses the importance of clinical trails including his work in the LIBERTY Phase 2 Study; the goal of which is to block LTB4 production as a novel and potentially disease modifying treatment for PAH. For more information about the LIBERTY Study, click here. My name is Mark Nicolls. I am the chief of pulmonary critical care at Stanfo...
Episode 30 - Mark Nicolls, MD
February 02, 2017 10:00 - 10 minutes - 10.2 MBDr. Mark Nicolls specializes in the treatment of lung transplant patients. He has practiced pulmonary and critical care medicine for more than 18 years. He discusses the importance of clinical trails including his work in the LIBERTY Phase 2 Study; the goal of which is to block LTB4 production as a novel and potentially disease modifying treatment for PAH. For more information about the LIBERTY Study, click here. Learn more about pulmonary hypertension at phaware365.global. Never miss an e...
Lisa Raulston Transcript
January 31, 2017 10:00PH patient Lisa Raulston shares her pulmonary hypertension story and how persistence and research led her from misdiagnosis to ultimately discovering she had CTEPH. Lisa Raulston, I'm from Cleveland, Texas. My connection to pulmonary hypertension and CTEPH. I was diagnosed, actually I've had a misdiagnosis. I was diagnosed with PAH in September of last year, but my pulmonologist did not do the testing that I researched and read that you needed to have a right-heart cath and a V/Q scan ...
Episode 29 - Lisa Raulston
January 30, 2017 10:00 - 4 minutes - 4.64 MBPH patient Lisa Raulston shares her pulmonary hypertension story and how persistence and research led her from misdiagnosis to ultimately discovering she had CTEPH. Learn more about pulmonary hypertension at phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, instragram, youtube & linkedin #phaware #CTEPH
Candy Morehouse Transcript
January 27, 2017 10:00PH patient, Candy Morehouse shares her amazing story of a bypass surgery that led to a pulmonary hypertension diagnosis after spending 26 days in a coma. My name is Candy Morehouse and I'm from Queensbury, New York. In 2014, I worked 60 hours a week, and I started having chest pain. They tested me, they decided that I had clogged arteries in my heart, left side of my heart. They did heart cath, they sent me for bypass surgery, I went for bypass. During the bypass, no one knew that I h...
Episode 28 - Candy Morehouse
January 26, 2017 10:00 - 4 minutes - 4.4 MBPH patient, Candy Morehouse shares her amazing story of a bypass surgery that led to a pulmonary hypertension diagnosis after spending 26 days in a coma. Learn more about pulmonary hypertension at phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, instragram, youtube & linkedin #phaware
Billie Keith Transcript
January 24, 2017 10:00Billy Keith is a mother on a mission. She discusses her daughter Brooke road to a pulmonary hypertension diagnosis, why Dr. Robyn Barst is her angel and why advocating on behalf of children with PH is so important. My name is Billie Keith from Mason City, Iowa. My daughter Brooke basically, she had some chest pain one day. Pulled some rib cartilage and had a chest x-ray. It showed that her heart was enlarged and I actually work in radiology. I supervise an imaging clinic, and I had a c...
Episode 27 - Billie Keith
January 23, 2017 10:00 - 9 minutes - 8.96 MBBilly Keith is a mother on a mission. She discusses her daughter Brooke's road to a pulmonary hypertension diagnosis, why Dr. Robyn Barst is her angel and why advocating on behalf of children with PH is so important. Learn more about pulmonary hypertension at phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, instragram, youtube & linkedin #phaware
Episode 27 - Billie Keith
January 23, 2017 10:00 - 9 minutes - 8.96 MBBilly Keith is a mother on a mission. She discusses her daughter Brooke's road to a pulmonary hypertension diagnosis, why Dr. Robyn Barst is her angel and why advocating on behalf of children with PH is so important. Learn more about pulmonary hypertension at phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, instragram, youtube & linkedin #phaware
Bill O’Donnell Transcript
January 20, 2017 10:00Boston native, Bill O'Donnell discusses the 15+ year journey his daughter Shannon has had with pulmonary hypertension. Bill shares his thoughts on the role of a being a pediatric caregiver and how battling PH is like running a marathon. Please also take a moment to read the letter he gave Shannon on her 15 year diagnosis anniversary (Bonus Content). I'm Bill O'Donnell and I'm from Medford, Massachusetts. I have a daughter that has Idiopathic pulmonary hypertension (PH). She was diagno...
Episode 26 - Bill O'Donnell
January 19, 2017 10:00 - 6 minutes - 5.76 MBBoston native, Bill O'Donnell discusses the 15+ year journey his daughter Shannon has had with pulmonary hypertension. Bill shares his thoughts on the role of a being a pediatric caregiver and how battling PH is like running a marathon. Please also take a moment to read the letter he gave Shannon on her 15 year diagnosis anniversary (Bonus Content). Learn more about pulmonary hypertension at phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on fac...
Debbie Crandall Transcript
January 17, 2017 10:00PH patient, Debbie Crandall discusses the power of positivity, why pulmonary hypertension awareness is so important and why she is an eternal optimist. My name is Debbie Crandall and I'm from Cape Coral, Florida. I had liver issues. I didn't know. Thought I had bronchitis for two days. Went to the hospital to get antibiotics and they kept me. Turns out I was full of fluid. My liver decided it was done, but where the cirrhosis is ... This is the way they explained it, caused pulmonar...
Episode 25 - Debbie Crandall
January 16, 2017 10:00 - 5 minutes - 4.93 MBPH patient, Debbie Crandall discusses the power of positivity, why pulmonary hypertension awareness is so important and why she is an eternal optimist. Learn more about pulmonary hypertension at phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, instragram, youtube & linkedin #phaware
Marcie McGregor Transcript
January 13, 2017 10:00PH patient Marcie McGregor shares her pulmonary hypertension diagnosis story. Marcie discusses the importance of a strong support system and how advocating for yourself is monumental. My name is Marcie McGregor and I am from Aiken, South Carolina. About seven years ago, I started getting tired a lot easier and noticing that I couldn't practice softball with my daughter like I could before. I started getting more and more short of breath. I went to a pulmonologist, and he told me I had a...
Episode 24 - Marcie McGregor
January 12, 2017 10:00 - 4 minutes - 4.18 MBPH patient Marcie McGregor shares her pulmonary hypertension diagnosis story. Marcie discusses the importance of a strong support system and how advocating for yourself is monumental. Learn more about pulmonary hypertension at phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, instragram, youtube & linkedin #phaware
Michael Bonar Transcript
January 10, 2017 10:00Pulmonary hypertension patient Michael Bonar discusses his diagnosis that stemmed from an incident during high school band practice and how he is his own advocate now that he's attending college. My name is Michael Bonar and I am from Boise, Idaho. My story was kind of an interesting one. It started when I was in my junior year of high school and we were in the middle of a marching band practice; I was in marching band at the time. I had pain on the left side of my chest, it was rea...
Episode 23 - Michael Bonar
January 09, 2017 10:00 - 4 minutes - 4.61 MBPulmonary hypertension patient Michael Bonar discusses his diagnosis that stemmed from an incident during high school band practice and how he is his own advocast not that he's attending college. Learn more about pulmonary hypertension at phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, instragram, youtube & linkedin #phaware
Jennica Clasby Transcript
January 06, 2017 10:00Pediatric pulmonary hypertension caregiver, Jennica Clasby shares her family's story. Jennica discusses the challenges of moving across country to sea level and leaving their support system behind in Colorado. My name is Jennica Clasby from Arlington, Washington. I have a daughter, 9-year-old Brooklyn Clasby who was diagnosed with Idiopathic Pulmonary Arterial Hypertension (IPAH) when she was 3 years old. She was immediately started on treatment, she was already in severe heart failure ...
Episode 22 - Jennica Clasby
January 05, 2017 10:00 - 5 minutes - 5.25 MBPediatric pulmonary hypertension caregiver, Jennica Clasby shares her family's story. Jennica discusses the challenges of moving across country to sea level and leaving their support system behind in Colorado. Learn more about pulmonary hypertension at phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, instragram, youtube & linkedin #phaware
Nicole Dempsey Transcript
January 02, 2017 13:00Canadian Nicole Dempsey is an awareness ambassador for PHA Canada. Diagnosed with pulmonary hypertension only a few years ago, Nicole describes the road that led to her PH diagnosis and how this rare disease impacts her family life and parenting. My name is Nicole Dempsey and I'm from Cambridge, Ontario, Canada. I was diagnosed in December 2013 and it was a year of hardships, but not knowing what the problem was. I was 39. I was a mom of two young girls and I was working as a school...
Episode 21 - Nicole Dempsey
January 02, 2017 10:00 - 4 minutes - 4.76 MBCanadian Nicole Dempsey is an awareness ambassador for PHA Canada. Diagnosed with pulmonary hypertension only a few years ago, Nicole describes the road that led to her PH diagnosis and how this rare disease impacts her family life and parenting. Learn more about pulmonary hypertension at phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, instragram, youtube & linkedin #phaware
Lynn Bastian Transcript
December 29, 2016 13:00Lynn Bastian is a long-term pulmonary hypertension survivor. Though she was diagnosed over ten years ago, Lynn discusses how she continues to learn all she can about this progressive, rare disease and why it’s import for patients to educate family, friends and medical professionals and make them #phaware. My name is Lynn Bastian and I'm from Montgomery, Illinois, which is southwest of Chicago. I was diagnosed ten and a half years ago with Idiopathic Pulmonary Hypertension, and have fou...
Episode 20 - Lynn Bastian
December 29, 2016 10:00 - 5 minutes - 5.19 MBLynn Bastian is a long-term pulmonary hypertension survivor. Though she was diagnosed over ten years ago, Lynn discusses how she continues to learn all she can about this progressive, rare disease and why it’s import for patients to educate family, friends and medical professionals and make them #phaware. Learn more about pulmonary hypertension at phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, instragram, youtube & linkedin...
Kalena Sawyer Transcript
December 26, 2016 13:00Pulmonary hypertension patient, Kalena Sawyer is always spreading the word about her rare, life-threatening illness. Because PH is an invisible disease, Kalena wants people everywhere – especially medical professionals to become #phaware. My name is Kalena Sawyer and I'm from Okemos, Michigan. It was May of 2013 and I could not breathe. I thought I had asthma and went to the hospital. Did an EKG. I was admitted to the hospital and they took some x-rays. They gave me Lasix. We went at 3:0...
Episode 19 - Kalena Sawyer
December 26, 2016 10:00 - 4 minutes - 11.5 MBPulmonary hypertension patient, Kalena Sawyer is always spreading the word about her rare, life-threatening illness. Because PH is an invisible disease, Kalena wants people everywhere – especially medical professionals to become #phaware. Learn more about pulmonary hypertension at phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, instragram, youtube & linkedin #phaware
Lindsey and Josh Belt Transcript
December 22, 2016 13:00In January of 2013, Lindsey and Josh Belt’s 5 year-old son Joel was diagnosed with a severe lung disease called idiopathic pulmonary hypertension (PH). Since Joel's diagnosis, the Belts have been on a mission to spread the message of HOPE! In 2013 & 2014, they hosted Color PHor A Cure 5K to raise awareness for pediatric PH research. The passionate desire to spread hope and raise awareness for PH also led the couple to create The Anchored In Hope Shop.Learn more about pulmonary hypertension ...
Episode 18 - Lindsey and Josh Belt
December 22, 2016 10:00 - 6 minutes - 6.31 MBIn January of 2013, Lindsey and Josh Belt’s 5 year-old son Joel was diagnosed with a severe lung disease called idiopathic pulmonary hypertension (PH). Since Joel's diagnosis, the Belts have been on a mission to spread the message of HOPE! In 2013 & 2014, they hosted Color PHor A Cure 5K to raise awareness for pediatric PH research. The passionate desire to spread hope and raise awareness for PH also led the couple to create The Anchored In Hope Shop. Learn more about pulmonary hypertensi...
Jenn Lalonde Transcript
December 19, 2016 13:00Canadian pulmonary hypertension patient, Jenn Lalonde discusses her road to diagnosis, the need for PH awareness and how she is using writing as a therapeutic tool that not only benefits her but others as well. Learn more about pulmonary hypertension at phaware365.global. Never miss an episode with the phaware® podcast app. Follow us @phaware on facebook, twitter, instragram, youtube & linkedin #phaware I'm Jenn Lalonde and I'm from Ontario, Canada. I was diagnosed in 2003. I was pro...