Episode 274 - Shannin Strom-Henry
I'm Aware That I'm Rare: the phaware® podcast
English - August 19, 2019 16:00 - 12 minutes - 13.3 MB - ★★★★★ - 14 ratingsHealth & Fitness Government awareness cteph pah research advocacy asthma breathlessness caregiver clinicaltrials earlydiagnosis Homepage Download Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
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Pediatric PH Caregiver Shannin Strom-Henry discusses her daughter Zoe's congenital diaphragmatic hernia and pulmonary hypertension diagnosis. She describes how being a rabid researcher, collaborating with her PH care team and the power of parent online support is helping Zoe (11) lead as normal a life as possible.
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