I'm Aware That I'm Rare: the phaware® podcast
958 episodes - English - Latest episode: 25 days ago - ★★★★★ - 14 ratingsI'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world.
Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early diagnosis and treatment can mean the difference between life and death.
Topics range from the importance of early diagnosis and global PH awareness, to the impact of clinical trials to how patient support and advocacy are paramount to battling this disease.
Learn more about PH at www.phaware.global
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Episodes
Episode 462 - Sandeep Sahay, MD
April 01, 2024 15:00 - 8 minutes - 7.27 MBIn this episode, Dr. Sandeep Sahay, a pulmonologist at Houston Methodist Hospital, discusses the concept of disease modification in the treatment of pulmonary hypertension (PH). He explains how traditional PH therapies focus on vasodilation, reducing pressure in the pulmonary artery by dilating blood vessels. However, newer therapies, such as sotatercept, work in different ways to reduce smooth muscle proliferation and thickness of the artery walls. Dr. Sahay suggests that if a drug is label...
UNISUS PAH Clinical Trial - phaware® interview 461
March 26, 2024 15:00SPECIAL EDITION Jonathan Hudson is a Global Trial Leader in Pulmonary Hypertension at Janssen Research & Development and is accompanied by colleague Josephine Garcia-Ferrer, Ph.D and Medical Manager. Jonathan and Josephine discuss Pulmonary Arterial Hypertension (PAH), the importance of clinical trials, what they entail, and share information on Janssen’s UNISUS Study for adults with PAH. Learn more about UNISUS Study with the Janssen Global Trail Finder. Steve Van Wormer: He...
Episode 461 - UNISUS PAH Clinical Trial
March 25, 2024 15:00 - 16 minutes - 9.45 MBSPECIAL EDITION: Jonathan Hudson is a Global Trial Leader in Pulmonary Hypertension at Janssen Research & Development and is accompanied by colleague Josephine Garcia-Ferrer, Ph.D and Medical Manager. Jonathan and Josephine discuss Pulmonary Arterial Hypertension (PAH), the importance of clinical trials, what they entail, and share information on Janssen’s UNISUS Study for adults with PAH. Learn more about UNISUS Study with the Janssen Global Trial Finder. Learn more about pulmona...
Dr. Lewis Romer - phaware® interview 460
March 19, 2024 15:00Dr. Lewis Romer discusses his work on the PPHNet's Kids MoD PAH Trial: Mono- vs. Duo-Therapy for Pediatric PAH patients. The Kids Mod PAH study is a research project funded by the NIH that aims to determine the best initial therapy for children with newly diagnosed pulmonary hypertension. The study compares the effectiveness of one medication (sildenafil) versus a combination of two medications (sildenafil and bosentan) in improving the quality of life and functional class of these childr...
Episode 460 - Lewis Romer, MD
March 18, 2024 15:00 - 10 minutes - 7.61 MBDr. Lewis Romer discusses his work on the PPHNet's Kids MoD PAH Trial: Mono- vs. Duo-Therapy for Pediatric PAH patients. The Kids Mod PAH study is a research project funded by the NIH that aims to determine the best initial therapy for children with newly diagnosed pulmonary hypertension. The study compares the effectiveness of one medication (sildenafil) versus a combination of two medications (sildenafil and bosentan) in improving the quality of life and functional class of these childre...
Morris Salem, MD - phaware® interview 459
March 12, 2024 15:00In this episode, Dr. Morris Salem, a pediatric cardiologist, discusses his involvement with Camp del Corazon, a camp for children with congenital heart disease. Dr. Salem emphasizes the importance of addressing the emotional well-being of these patients, in addition to their physical health. He believes that the camp helps boost their self-confidence and allows them to have normal experiences. Dr. Salem also mentions the positive impact the camp has on parents, some of whom become involved...
Episode 459 - Morris Salem, MD
March 11, 2024 15:00 - 7 minutes - 7.5 MBIn this episode, Dr. Morris Salem, a pediatric cardiologist, discusses his involvement with Camp del Corazon, a camp for children with congenital heart disease. Dr. Salem emphasizes the importance of addressing the emotional well-being of these patients, in addition to their physical health. He believes that the camp helps boost their self-confidence and allows them to have normal experiences. Dr. Salem also mentions the positive impact the camp has on parents, some of whom become involved i...
Brittany Valim - phaware® interview 458
March 05, 2024 16:00Brittany Valim shares her experience with pulmonary hypertension and her journey towards a heart and double lung transplant. She now lives a fulfilling life as a mother, student, and aspiring nurse. Brittany encourages others to embrace life and ride the wave, appreciating the rarity of their experiences. Hello, my name is Brittany Valim. I am 34 years old, and I was diagnosed with pulmonary hypertension in 2010. In 2009, I decided to go on a big hike, they're called the Punch Bowls in S...
Episode 458 - Brittany Valim
March 04, 2024 16:00 - 13 minutes - 7.9 MBIn this episode, Brittany Valim shares her experience with pulmonary hypertension and her journey towards a heart and double lung transplant. She now lives a fulfilling life as a mother, student, and aspiring nurse. Brittany encourages others to embrace life and ride the wave, appreciating the rarity of their experiences. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware ...
Cam Wells - phaware® interview 457
February 27, 2024 16:00Stroke survivor and journalist, Cam Wells, discusses his mission to change the way disability stories are portrayed in the media. Cam also discusses his work in the disability community, including his involvement with the Italian Canadian HandiCapable Association, which provides sports and recreation opportunities for people with disabilities. Cam believes that disabilities and rare conditions affect everyone in some way and advocates for inclusivity and respect. #RareDiseaseDay My...
Episode 457 - Cam Wells
February 26, 2024 16:00 - 13 minutes - 7.9 MBIn this episode, stroke survivor and journalist, Cam Wells, discusses his mission to change the way disability stories are portrayed in the media. Cam also discusses his work in the disability community, including his involvement with the Italian Canadian HandiCapable Association, which provides sports and recreation opportunities for people with disabilities. Cam believes that disabilities and rare conditions affect everyone in some way and advocates for inclusivity and respect. #Rar...
Harm Bogaard, MD - phaware® interview 456
February 20, 2024 16:00Harm Bogaard, MD, Ph.D., FAHA is a pulmonologist at the Amsterdam UMC. In this episode, he discusses the use of magnetic resonance imaging (MRI) in monitoring pulmonary hypertension patients. Dr. Bogaard explains that MRI is a valuable tool for assessing the function and structure of the right heart, which is crucial in determining the prognosis and long-term outcomes of patients with pulmonary hypertension. My name is Harm Bogaard. I'm a pulmonologist here in Amsterdam in the Netherland...
Episode 456 - Harm Bogaard, MD
February 19, 2024 16:00 - 6 minutes - 5.96 MBHarm Bogaard, MD, Ph.D., FAHA is a pulmonologist at the Amsterdam UMC. In this episode, he discusses the use of magnetic resonance imaging (MRI) in monitoring pulmonary hypertension patients. Dr. Bogaard explains that MRI is a valuable tool for assessing the function and structure of the right heart, which is crucial in determining the prognosis and long-term outcomes of patients with pulmonary hypertension. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltria...
Dawn Clarke - phaware® interview 455
February 13, 2024 16:00Pulmonary hypertension patient, Dawn Clarke, a resident of the Mississaugas of the Credit First Nation in Southern Ontario. Despite her rare disease diagnosis, Dawn decided to focus on her mental health and explore her creative passions. She emphasizes the importance of looking after all aspects of one's well-being, including physical, mental, emotional, and spiritual health. She encourages others to find their purpose and make positive changes in their lives, even in the face of challenge...
Episode 455 - Dawn Clarke
February 12, 2024 16:00 - 14 minutes - 8.71 MBPulmonary hypertension patient, Dawn Clarke, a resident of the Mississaugas of the Credit First Nation in Southern Ontario. Despite her rare disease diagnosis, Dawn decided to focus on her mental health and explore her creative passions. She emphasizes the importance of looking after all aspects of one's well-being, including physical, mental, emotional, and spiritual health. She encourages others to find their purpose and make positive changes in their lives, even in the face of challenges...
Linda Wimmer - phaware® interview 454
February 06, 2024 16:00New Jersey patient, Linda Wimmer, shares her experience with idiopathic pulmonary arterial hypertension. Linda discusses the various medications and lifestyle changes she has had to make to manage her condition. She also mentions dealing with depression and anxiety, as well as the challenges of accepting help from others. My name is Linda Wimmer, and I'm from Morris County, New Jersey. I was diagnosed with idiopathic pulmonary arterial hypertension in 2014. I knew something was wrong...
Episode 454 - Linda Wimmer
February 05, 2024 16:00 - 11 minutes - 9.32 MBNew Jersey patient, Linda Wimmer, shares her experience with idiopathic pulmonary arterial hypertension. Linda discusses the various medications and lifestyle changes she has had to make to manage her condition. She also mentions dealing with depression and anxiety, as well as the challenges of accepting help from others. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware...
PHenomenal Hope 2023 - phaware® interview 453
January 30, 2024 16:00Drs. Patricia George and Harrison "Hap" Farber from Team PHenomenal Hope discuss takeaways and learning from PHenomenal Hope 2023. This symposium offered a combination of oral presentations, expert panel discussions, and poster sessions in an environment that encourages collaboration and a deeper exploration of patient-centered research. They also discuss Team PH's 2024 Research Award program, looking for topics that will help expand access to care and improve clinical status by looking...
Episode 453 - PHenomenal Hope 2023
January 29, 2024 14:00 - 12 minutes - 7.23 MBIn this episode, Drs. Patricia George and Harrison "Hap" Farber from Team PHenomenal Hope discuss takeaways and learning from PHenomenal Hope 2023. This symposium offered a combination of oral presentations, expert panel discussions, and poster sessions in an environment that encourages collaboration and a deeper exploration of patient-centered research. They also discuss Team PH's 2024 Research Award program, looking for topics that will help expand access to care and improve clinical st...
Lia Barros, NP - phaware® interview 452
January 23, 2024 16:00Lia Barros, a nurse practitioner at the University of Washington, discusses the role of nurse practitioners in caring for patients with pulmonary hypertension. She emphasizes the importance of nurse practitioners in meeting the unique needs of patients with pulmonary hypertension and suggests that adopting collaborative care models can improve patient outcomes. My name is Lia Barros and I'm a nurse practitioner at the University of Washington in the Pulmonary Vascular Disease Program. I ...
Episode 452 - Lia Barros, NP
January 22, 2024 16:51 - 14 minutes - 8.49 MBLia Barros, a nurse practitioner at the University of Washington, discusses the role of nurse practitioners in caring for patients with pulmonary hypertension. She emphasizes the importance of nurse practitioners in meeting the unique needs of patients with pulmonary hypertension and suggests that adopting collaborative care models can improve patient outcomes. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a c...
Sam Rayner, MD - phaware® interview 451
January 16, 2024 16:00Dr. Sam Rayner is an assistant professor and pulmonary hypertension specialist at the University of Washington. In this episode, he discusses the different ways physicians can get involved in pulmonary hypertension research. He explains that he is a physician scientist, dividing his time between patient care and scientific research focused on PH. My name's Sam Rayner. I'm an assistant professor and pulmonary hypertension specialist at the University of Washington. I'm a physician scient...
Episode 451 - Sam Rayner, MD
January 15, 2024 16:00 - 9 minutes - 8.67 MBDr. Sam Rayner is an assistant professor and pulmonary hypertension specialist at the University of Washington. In this episode, he discusses the different ways physicians can get involved in pulmonary hypertension research. He explains that he is a physician scientist, dividing his time between patient care and scientific research focused on PH. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phawa...
Harm Bogaard, MD - phaware® interview 450
January 09, 2024 16:00Harm Bogaard, MD, Ph.D., FAHA is a pulmonologist at the Amsterdam UMC. In this episode, he discusses the role of genetic testing in the treatment of patients with pulmonary hypertension at its role in clinical research. My name is Harm Bogaard. I'm a pulmonologist here in Amsterdam in the Netherlands. I work at the National Expert Center for pulmonary hypertension patients. We have a clinic, obviously, with patients mainly with idiopathic and hereditary PAH. We also have a chronic thrombo...
Episode 450 - Harm Bogaard, MD
January 08, 2024 16:00 - 11 minutes - 7.93 MBHarm Bogaard, MD, Ph.D., FAHA is a pulmonologist at the Amsterdam UMC. In this episode, he discusses the role of genetic testing in the treatment of patients with pulmonary hypertension at its role in clinical research. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: [email protected] #phawareMD
Sharon Tokonitz - phaware® interview 449
December 29, 2023 16:00Six years ago, Canadian pulmonary hypertension patient Sharon Tokonitz was rushed to the hospital with a massive bilateral unprovoked pulmonary embolism. She discusses her road to recovery from being bedridden to returning to an active life thanks to pulmonary rehab. My name is Sharon Tokonitz. I live in Kingston, Ontario, Canada, which is 100 miles south of Ottawa, the capital of Canada. I ended up, September 11, 2017, going into the hospital by ambulance, with a massive bilateral unpro...
Episode 449 - Sharon Tokonitz
December 28, 2023 16:00 - 5 minutes - 5.63 MBSix years ago, Canadian pulmonary hypertension patient Sharon Tokonitz was rushed to the hospital with a massive bilateral unprovoked pulmonary embolism. She discusses her road to recovery from being bedridden to returning to an active life thanks to pulmonary rehab. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: [email protected] @phacanada
Saire Gonzalez, RN and Kimberly Hudson, RN - phaware® interview 448
December 22, 2023 16:00Kimberly Hudson and Saire Gonzalez are registered nurses with CVS Specialty Pharmacy who work with patients with pulmonary hypertension (PH). They provide support, education, and guidance to patients who are newly diagnosed with PH and help them navigate their drug therapies and lifestyle changes. They also highlight the role of caregivers and the availability of support groups for both patients and caregivers. @CVSHealth Kimberly Hudson, RN: Hello, my name is Kim Hudson. I'm a nurse wi...
Episode 448 - Saire Gonzalez, RN and Kimberly Hudson, RN
December 21, 2023 17:07 - 10 minutes - 7.54 MBKimberly Hudson and Saire Gonzalez are registered nurses with CVS Specialty Pharmacy who work with patients with pulmonary hypertension (PH). They provide support, education, and guidance to patients who are newly diagnosed with PH and help them navigate their drug therapies and lifestyle changes. They also highlight the role of caregivers and the availability of support groups for both patients and caregivers. @CVSHealth Learn more about pulmonary hypertension trials at www.phaware.glob...
Raymond L. Benza, MD - phaware® interview 447
December 19, 2023 16:00Dr. Raymond Benza, a Professor of Medicine at the Icahn School of Medicine at Mount Sinai, discusses dual therapy in the treatment of pulmonary hypertension (PH) through the concept of risk stratification. Good day everyone. My name is Dr. Raymond Benza. I am a Professor of Medicine at the Icahn School of Medicine at Mount Sinai in New York. I am a Pulmonary Hypertension physician and researcher in risk stratification and genomics of the disease. Today, we're here to speak about the con...
Episode 447 - Raymond L. Benza, MD
December 18, 2023 16:00 - 5 minutes - 5.51 MBIn this episode, Dr. Raymond Benza, a Professor of Medicine at the Icahn School of Medicine at Mount Sinai, discusses dual therapy in the treatment of pulmonary hypertension (PH) through the concept of risk stratification. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: [email protected] #phawareMD @IcahnMountSinai @RaymondBenzaMD
Nancy Halnon, MD - phaware® interview 446
December 12, 2023 16:00Pediatric cardiologist, Nancy Halnon, MD, discusses treatment goals for pulmonary hypertension, the various routes of administration and the importance of using combination therapy to improve survival. Hello, I'm Dr. Nancy Halnon. I'm a pediatric cardiologist at Mattel Children's Hospital at UCLA and I take care of a lot of kids who have pulmonary hypertension. I want to talk a little bit about the treatments that we use. I'll start with what the goals are for the treatment. It's not li...
Episode 446 - Nancy Halnon, MD
December 11, 2023 16:00 - 18 minutes - 10.7 MBIn this episode, pediatric cardiologist, Nancy Halnon, MD, discusses treatment goals for pulmonary hypertension, the various routes of administration and the importance of using combination therapy to improve survival. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: [email protected] #phawareMD @UCLAMCH
Angela Bates, MD - phaware® interview 445
December 05, 2023 16:00In this episode, Angela Bates, MD from Stollery Children’s Hospital, discusses the importance of incorporating quality of life into the management strategies for pediatric pulmonary hypertension patients. Dr. Bates also talks about the importance of allowing patients to engage in activities they enjoy, even with limitations imposed by their condition, and the need for a multidisciplinary team to provide comprehensive care. My name is Dr. Angela Bates. I am a pediatric cardiac intens...
Episode 445 - Angela Bates, MD
December 04, 2023 16:00 - 12 minutes - 8.72 MBIn this episode, Angela Bates, MD from Stollery Children’s Hospital, discusses the importance of incorporating quality of life into the management strategies for pediatric pulmonary hypertension patients. Dr. Bates also talks about the importance of allowing patients to engage in activities they enjoy, even with limitations imposed by their condition, and the need for a multidisciplinary team to provide comprehensive care. Learn more about pulmonary hypertension trials at www.phawar...
Vinicio de Jesus Perez, MD - phaware® interview 444
November 28, 2023 16:00In this episode, Vinicio de Jesus Perez, MD discusses some of the most recent clinical developments in the field of pulmonary hypertension, highlighting new and ongoing clinical trials that are of great interest to the medical community as well as caregivers and patients looking forward to novel ways of treating their condition. Good day to everybody. My name is Dr. Vinicio de Jesus Perez. I'm an associate professor and staff physician at the Pulmonary Hypertension Center of Excellence lo...
Episode 444 - Vinicio de Jesus Perez, MD
November 27, 2023 16:00 - 17 minutes - 10.5 MBIn this episode, Vinicio de Jesus Perez, MD discusses some of the most recent clinical developments in the field of pulmonary hypertension, highlighting new and ongoing clinical trials that are of great interest to the medical community as well as caregivers and patients looking forward to novel ways of treating their condition. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #ph...
Peter Leary, MD - phaware® interview 443
November 21, 2023 16:00Peter Leary, MD talks about factors that might lead to over-treatment, under-treatment, or "just-right" treatment and emphasizes that guidelines are important but there is no "one-size fits all" approach to treatment of pulmonary hypertension. Peter Leary is the director of the pulmonary vascular disease program at the University of Washington. He also has a PhD in epidemiology and is very interested in clinical and translational research for patients with pulmonary hypertension locally,...
Episode 443 - Peter Leary, MD
November 20, 2023 16:00 - 11 minutes - 9.33 MBIn this episode, Peter Leary, MD talks about factors that might lead to over-treatment, under-treatment, or "just-right" treatment and emphasizes that guidelines are important but there is no "one-size fits all" approach to treatment of pulmonary hypertension. Peter Leary is the director of the pulmonary vascular disease program at the University of Washington. He also has a PhD in epidemiology and is very interested in clinical and translational research for patients with pulmonary hyper...
Sanjay Mehta, MD - phaware® interview 442
November 14, 2023 16:00In this episode, PHA Canada Board Director, Sanjay Mehta, MD discusses the recently updated 2022 ESC/ERS Guidelines for the diagnosis and treatment of pulmonary hypertension, the gaps in understanding and the reasons why. Hi everyone. I'm Dr. Sanjay Mehta. I'm a respirologist, or pulmonologist for some of you in the US, and I have an interest in pulmonary hypertension. I've had the great honor and fortune of looking after PH patients now for 30 years of my career, largely here in London...
Episode 442 - Sanjay Mehta, MD
November 13, 2023 16:00 - 27 minutes - 16.2 MBIn this episode, PHA Canada Board Director, Sanjay Mehta, MD discusses the recently updated 2022 ESC/ERS Guidelines for the diagnosis and treatment of pulmonary hypertension, the gaps in understanding and the reasons why. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: [email protected] @phacanada #phawareMD
Karina Macias - phaware® interview 441
November 09, 2023 16:00Pulmonary hypertension pediatric care partner, Karina Macias, discusses her son Tito's PH journey and why she dedicated her life to becoming a certified nurse assistant. Tito was named Stanford's Race Against PH 2023 Pediatric PH Courage Award recipient. #raceagainstph @phaatstanford My name's Karina Macias, and I am from Central Point, Oregon. I have two kids. My first son is Alexis, a 17-year-old. My second son is Tito, who's 15 at the moment, and he's the one with pulmonary hyperten...
Episode 441 - Karina Macias
November 08, 2023 16:00 - 10 minutes - 9 MBIn this episode, pulmonary hypertension pediatric care partner, Karina Macias, discusses her son Tito's PH journey and why she dedicated her life to becoming a certified nurse assistant. Tito was named Stanford's Race Against PH 2023 Pediatric PH Courage Award recipient. #raceagainstph @phaatstanford Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: info...
Mitesh Thakrar, MD - phaware® interview 440
November 07, 2023 20:00Mitesh Thakrar, MD is a Clinical Associate Professor at the University of Calgary and the current Deputy Medical Director of the Southern Alberta Transplant Program. In this episode, Dr. Thakrar discusses titration of pulmonary arterial hypertension therapeutics. My name is Mitesh Thakrar. I'm a pulmonary physician based in Calgary, Alberta, Canada. I've been a pulmonary hypertension specialist and a lung transplant specialist now for about 12 years there. I work primarily at the Peter L...
Episode 440 - Mitesh Thakrar, MD
November 06, 2023 16:00 - 13 minutes - 9.27 MBMitesh Thakrar, MD is a Clinical Associate Professor at the University of Calgary and the current Deputy Medical Director of the Southern Alberta Transplant Program. In this episode, Dr. Thakrar discusses titration of pulmonary arterial hypertension therapeutics. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: [email protected] @phacanada #phawareMD
Sarah Sizemore - phaware® interview 439
October 31, 2023 15:00Former pulmonary hypertension patient, Sarah Sizemore discusses life 1 year post-lung transplant surgery. My name is Sarah Sizemore. I'm 22 now, and I live in South Carolina. My connection with pulmonary hypertension is I was diagnosed with idiopathic pulmonary hypertension since age four until I was transplanted on October 31st of 2022. I was on IV Remodulin. I was on several oral pills for pulmonary hypertension. My symptoms started to become unmanageable, and I was maxed down on all t...
Episode 439 - Sarah Sizemore
October 30, 2023 15:00 - 8 minutes - 6.39 MBFormer pulmonary hypertension patient, Sarah Sizemore discusses life 1 year post-lung transplant surgery. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: [email protected]
Kristina Kudelko, MD - phaware® interview 438
October 28, 2023 15:00Kristina Kudelko, MD, is the Director of Education and Stanford's Vera Moulton Wall Center. She discusses the 23rd annual #RaceAgainstPH, how it raises awareness and funds for this devastating rare disease and the importance of PH Courage Award winners. Don't miss the 23rd Annual Race Against PH at November 5 hosted by the Vera Moulton Wall Center for Pulmonary Vascular Disease at Stanford. Click here to learn more. #raceagainstph @phaatstanford My name is Kristina Kudelko and I’m a c...
Episode 438 - Kristina Kudelko, MD
October 27, 2023 18:37 - 6 minutes - 6.18 MBKristina Kudelko, MD, is the Director of Education and Stanford's Vera Moulton Wall Center. She discusses the 23rd annual #RaceAgainstPH, how it raises awareness and funds for this devastating rare disease and the importance of PH Courage Award winners. Don't miss the 23rd Annual Race Against PH at November 5 hosted by the Vera Moulton Wall Center for Pulmonary Vascular Disease at Stanford. Click here to learn more. #raceagainstph @phaatstanford Learn more about pulmonary hypertension...
Steve Smith - phaware® interview 437
October 24, 2023 15:00Pulmonary hypertension patient, Steve Smith discusses the importance of a good support team and how he tackled anxiety and his passion for musical theater. My name is Steve Smith. I'm from Sterling, Colorado, a really small, rural community in the northeast corner of the state. I was diagnosed with PAH, (pulmonary arterial hypertension), in 2018. The process of the diagnosis took a long time. I think I was really frustrated and searching for answers as much as five years earlier. I would...