I'm Aware That I'm Rare: the phaware® podcast
987 episodes - English - Latest episode: 13 days ago - ★★★★★ - 14 ratingsI'm Aware That I'm Rare: the phaware® podcast is devoted to raising global pulmonary hypertension awareness with dynamic stories from PH patients, caregivers and medical professionals from around the world.
Through this series of impactful, insightful and, most importantly, hopeful stories from members of the global pulmonary hypertension community, we hope to further the global #phaware conversation as well as to capture, engage and enable misdiagnosed and undiagnosed PH patients because early diagnosis and treatment can mean the difference between life and death.
Topics range from the importance of early diagnosis and global PH awareness, to the impact of clinical trials to how patient support and advocacy are paramount to battling this disease.
Learn more about PH at www.phaware.global
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Episodes
Cheryl Wegener - phaware® interview 401
January 31, 2023 16:00In this interview, recorded on the 3rd anniversary of her daughter Madison's passing, Cheryl Wegener, discusses how life has changed in the three years since Madison lost her battle with PH on January 19, 2020 and why they continue to fight this terrible disease in her honor. You can also read more about Madison on her CaringBridge page. My name's Cheryl Wegner. I currently live in Fenton, Michigan. I became a part of the pulmonary hypertension club, I suppose, in 2012 when my daughte...
Episode 401 - Cheryl Wegener
January 30, 2023 22:38 - 14 minutes - 8.33 MBIn this episode, recorded on the 3rd anniversary of her daughter Madison's passing, Cheryl Wegener, discusses how life has changed in the three years since Madison lost her battle with PH on January 19, 2020 and why they continue to fight this terrible disease in her honor. You can also read more about Madison on her CaringBridge page. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/d...
Dale Dedrick - phaware® interview 400
January 25, 2023 16:00Dale Dedrick is a retired orthopedic surgeon who was diagnosed with lupus and pulmonary hypertension. In this episode, Dale, former United States Paralympic Equestrian Team member, discusses an infection that resulted in a partial amputation of her foot and why it's important "to get back on the horse." My name is Dale Dedrick. I am in Chelsea, Michigan, which is just north and a little west of Ann Arbor, Michigan, which is west of Detroit. I was diagnosed with pulmonary hypertension eith...
Episode 400 - Dale Dedrick
January 24, 2023 16:00 - 12 minutes - 8.89 MBDale Dedrick is a retired orthopedic surgeon who was diagnosed with lupus and pulmonary hypertension. In this episode, Dale, former United States Paralympic Equestrian Team member, discusses an infection that resulted in a partial amputation of her foot and why it's important "to get back on the horse." Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: inf...
Roslyn Rivera, RN, BSN - phaware® interview 399
January 17, 2023 20:00Roslyn Rivera, RN, BSN is the Fetal and Pediatric Cardiology Outpatient Nurse Coordinator at the UCLA Children’s Heart Center. Since 2013, Roslyn has volunteered with Camp del Corazon, a nonprofit organization offering year-round activities for children and young adults with CHD. She holds the role of Nurse Coordinator and as an Advisor for their adult CHD program called PACE. Roslyn discusses the work of Camp del Corazon and its lasting impact on children and families affected by CHD a...
Episode 399 - Roslyn Rivera, RN, BSN
January 16, 2023 16:00 - 10 minutes - 7.12 MBRoslyn Rivera, RN, BSN is the Fetal and Pediatric Cardiology Outpatient Nurse Coordinator at the UCLA Children’s Heart Center. Since 2013, Roslyn has volunteered with Camp del Corazon, a nonprofit organization offering year-round activities for children and young adults with CHD. She holds the role of Nurse Coordinator and as an Advisor for their adult CHD program called PACE. In this episode, Roslyn discusses the work of Camp del Corazon and its lasting impact on children and families a...
Hilary DuBrock, MD - phaware® interview 398
January 10, 2023 20:00Pulmonologist and PH clinician from the Mayo Clinic, Hilary DuBrock, MD discusses portopulmonary hypertension, a type of pulmonary arterial hypertension that develops in the setting of portal hypertension and liver disease. Dr. Hilary DuBrock: Hi. I'm Dr. Hilary DuBrock, and I'm a pulmonologist and a PH clinician at Mayo Clinic in Rochester, Minnesota, and today I'm going to talk about portopulmonary hypertension. Portopulmonary hypertension, which we often abbreviate as POPH, is a ty...
Episode 398 - Hilary DuBrock, MD
January 09, 2023 16:00 - 8 minutes - 7.65 MBIn this episode, pulmonologist and PH clinician from the Mayo Clinic, Hilary DuBrock, MD discusses portopulmonary hypertension, a type of pulmonary arterial hypertension that develops in the setting of portal hypertension and liver disease. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: [email protected] #phawaremd
Hilary DuBrock, MD - phaware® interview 397
December 20, 2022 16:00Pulmonologist and PH clinician from the Mayo Clinic, Hilary DuBrock, MD reflects on the impact the COVID-19 pandemic has had on her clinical pulmonary hypertension practice both in the outpatient and the inpatient setting. Hillary DuBrock, MD: Hi, I'm Hillary DuBrock, and I'm a pulmonologist and PH clinician at Mayo Clinic in Rochester, Minnesota. Today I'd like to talk to you about a reflection on the impact of the COVID-19 pandemic on our clinical pulmonary hypertension practice. ...
Episode 397 - Hilary DuBrock, MD
December 19, 2022 16:00 - 7 minutes - 7.43 MBIn this episode, pulmonologist and PH clinician from the Mayo Clinic, Hilary DuBrock, MD reflects on the impact the COVID-19 pandemic has had on her clinical pulmonary hypertension practice both in the outpatient and the inpatient setting. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: [email protected] #phawaremd
Becky Mack - phaware® interview 396
December 13, 2022 16:00In this episode, pulmonary hypertension patient, Becky Mack discusses navigating her rare disease diagnosis right after losing her husband to cancer. She also shares her story of adoption and motherhood. My name's Becky Mack, and I live in San Diego. I am a pulmonary arterial hypertension patient. My entire life I've had difficulty and had trouble breathing. I’ve always had lung things, but was never really diagnosed with anything. As I got older it got worse. I was, as is common with pu...
Episode 396 - Becky Mack
December 12, 2022 16:00 - 10 minutes - 8.43 MBIn this episode, pulmonary hypertension patient, Becky Mack discusses navigating her rare disease diagnosis right after losing her husband to cancer. She also shares her story of adoption and motherhood. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: [email protected]
Cat Macera - phaware® interview 395
December 06, 2022 16:00Pulmonary hypertension patient, Cat Macera, discusses her diagnosis that happened during Covid and how her background in the medical field helped her become a strong advocate for herself and others. My name is Cat Macera, and I'm from upstate New York. My connection to pulmonary hypertension is I am a patient, and now a very strong advocate. In 2020, I was actually taken to the hospital by an ambulance because I had difficulty breathing. I couldn't make maybe five steps, and I was so w...
Episode 395 - Cat Macera
December 05, 2022 16:00 - 7 minutes - 7.38 MBIn this episode, pulmonary hypertension patient, Cat Macera, discusses her diagnosis that happened during Covid and how her background in the medical field helped her become a strong advocate for herself and others. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: [email protected]
Annie Whitaker - phaware® interview 394
November 29, 2022 16:00PHA Australia CEO, Annie Whitaker, gives a raw account of her connection to pulmonary Hypertension as carer to her son Tim, who lost the PH War in 2006. Annie discusses how one promise to her son has helped her work through grief. Good day from Australia. My name is Annie Whitaker, Annie Boxsell Whitaker on Facebook. I've been in the land of pulmonary hypertension for 23 years online and personally. So much has happened. Where do I start? Maybe where I am now and then I'll go to the start...
Episode 394 - Annie Whitaker
November 28, 2022 16:00 - 26 minutes - 15.2 MBIn this episode, PHA Australia CEO, Annie Whitaker, gives a raw account of her connection to pulmonary Hypertension as carer to her son Tim, who lost the PH War in 2006. Annie discusses how one promise to her son has helped her work through grief. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: [email protected]
Stacey McCarthy - phaware® interview 393
November 22, 2022 16:00Pulmonary hypertension patient, Stacey McCarthy discusses her 13 year journey with PH and her struggles as a single mom. Now over a decade later, Stacey is a coordinator for the UCSD PH Support Group, is involved in a long-term study with the NIH and is a patient advocate for Janssen. My name is Stacey McCarthy. I live in San Diego, California. I am connected to the PH community as a patient. I've had pulmonary hypertension since 2009, so for 13 years. I was a waitress for many years,...
Episode 393 - Stacey McCarthy
November 21, 2022 16:00 - 10 minutes - 7.27 MBIn this episode, pulmonary Hypertension patient, Stacey McCarthy discusses her 13 year journey with PH and her struggles as a single mom. Now over a decade later, Stacey is a coordinator for the UCSD PH Support Group, is involved in a long-term study with the NIH and is a patient advocate for Janssen. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: info...
Katie Coman - phaware® interview 392
November 15, 2022 16:00Attorney Katie Coman discusses losing her husband to complications following a bone-marrow transplant. Two years later, while still in mourning, this single-mother from Long Beach, California was diagnosed with Ideopathic Pulmonary Hypertension. My name is Katie Coman. I'm 39 years old. I live in Long Beach, California. I was diagnosed with pulmonary arterial hypertension in March of 2020. I'm an attorney. I graduated law school in 2008, which was a recession time actually. I got my fir...
Katie Sample - phaware® interview 392
November 15, 2022 16:00Attorney Katie Sample discusses losing her husband to complications following a bone-marrow transplant. Two years later, while still in mourning, this single-mother from Long Beach, California was diagnosed with Ideopathic Pulmonary Hypertension. My name is Katie Sample. I'm 39 years old. I live in Long Beach, California. I was diagnosed with pulmonary arterial hypertension in March of 2020. I'm an attorney. I graduated law school in 2008, which was a recession time actually. I got my f...
Episode 392 - Katie Coman
November 14, 2022 16:00 - 15 minutes - 11 MBIn this episode, attorney Katie Coman discusses losing her husband to complications following a bone-marrow transplant. Two years later, while still in mourning, this single-mother from Long Beach, California was diagnosed with Ideopathic Pulmonary Hypertension. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: [email protected]
Episode 392 - Katie Sample
November 14, 2022 16:00 - 15 minutes - 11 MBIn this episode, attorney Katie Sample discusses losing her husband to complications following a bone-marrow transplant. Two years later, while still in mourning, this single-mother from Long Beach, California was diagnosed with Ideopathic Pulmonary Hypertension. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: [email protected]
Evelyn Melendez - phaware® interview 391
November 08, 2022 16:00Former pulmonary hypertension patient, Evelyn Melendez discusses her recent lung transplant surgery and her road to recovery. My name is Evelyn Melendez, and I'm from Bethlehem, Pennsylvania. I had pulmonary hypertension for 19 years until May 12th of 2022 when I got the call, and I was ready to get a transplant. I was diagnosed with idiopathic pulmonary hypertension when I was 15 years old. So we don't know how I got it. I went through many different medications, mainly IV. After a whi...
Episode 391 - Evelyn Melendez
November 07, 2022 16:00 - 11 minutes - 8.3 MBIn this episode, former pulmonary hypertension patient, Evelyn Melendez discusses her recent lung transplant surgery and her road to recovery. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Follow us on social @phaware Engage for a cure: www.phaware.global/donate #phaware Share your story: [email protected]
Paige Zils and Lindsey Doolan - phaware® interview 390
November 03, 2022 15:00In this episode, pulmonary hypertension patient and @PHatStanford #RaceAgainstPH 2022 Pediatric PH Courage Award recipient, Paige Zils (10) and her mother Lindsey Doolan, discuss Paige's PH diagnosis and the importance of a great care team. Don't miss the 22nd Annual Race Against PH at November 22 hosted by the Vera Moulton Wall Center for Pulmonary Vascular Disease at Stanford. Click here to learn more. Lindsey: Hi, this is Lindsey. Paige: I'm Paige. Lindsey: I am Paige's mom,...
Episode 390 - Paige Zils and Lindsey Doolan
November 02, 2022 15:00 - 13 minutes - 9.39 MBIn this episode, pulmonary hypertension patient and @PHatStanford #RaceAgainstPH 2022 Pediatric PH Courage Award recipient, Paige Zils (10) and her mother Lindsey Doolan, discuss Paige's PH diagnosis and the importance of a great care team. Don't miss the 22nd Annual Race Against PH at November 22 hosted by the Vera Moulton Wall Center for Pulmonary Vascular Disease at Stanford. Click here to learn more. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrial...
Yolanda Villalon - phaware® interview 389
November 01, 2022 15:00In this episode, pulmonary hypertension patient and Stanford's Race Against PH 2022 Adult PH Courage Award recipient, Yolanda Villalon, discusses her devastating diagnosis and the impact on finding the right support group. Don't miss the 22nd Annual Race Against PH at November 22 hosted by the Vera Moulton Wall Center for Pulmonary Vascular Disease at Stanford. Click here to learn more. #raceagainstph @phaatstanford My name is Yolanda Villalon. I'm from Hollister, California. I was dia...
Episode 389 - Yolanda Villalon
October 31, 2022 15:00 - 12 minutes - 8.66 MBIn this episode, pulmonary hypertension patient and Stanford's Race Against PH 2022 Adult PH Courage Award recipient, Yolanda Villalon, discusses her devastating diagnosis and the impact on finding the right support group. Don't miss the 22nd Annual Race Against PH at November 22 hosted by the Vera Moulton Wall Center for Pulmonary Vascular Disease at Stanford. Click here to learn more. #raceagainstph @phaatstanford Learn more about pulmonary hypertension trials at www.phaware.global/cl...
Graydon Cawein - phaware® interview 388
October 25, 2022 15:00In this episode, pulmonary hypertension patient and Stanford's Race Against PH 2021 Adult PH Courage Award recipient, Graydon Cawein, discusses his long road to his rare disease diagnosis, survivor's guilt, and the importance of finding an expert treatment center. Don't miss the 22nd Annual Race Against PH at November 22 hosted by the Vera Moulton Wall Center for Pulmonary Vascular Disease at Stanford. Click here to learn more. #raceagainstph @phaatstanford My name is Graydon Cawein. I ...
Episode 388 - Graydon Cawein
October 24, 2022 15:00 - 6 minutes - 6.56 MBIn this episode, pulmonary hypertension patient and Stanford's Race Against PH 2021 Adult PH Courage Award recipient, Graydon Cawein, discusses his long road to his rare disease diagnosis, survivor's guilt, and the importance of finding an expert treatment center. Don't miss the 22nd Annual Race Against PH at November 22 hosted by the Vera Moulton Wall Center for Pulmonary Vascular Disease at Stanford. Click here to learn more. #raceagainstph @phaatstanford Learn more about pulmonary hyp...
Roslyn Rivera, RN, BSN - phaware® interview 387
October 18, 2022 15:00Roslyn Rivera, RN, BSN is the Fetal and Pediatric Cardiology Outpatient Nurse Coordinator at the UCLA Children’s Heart Center. Since 2013, Roslyn has volunteered with Camp del Corazon, a nonprofit organization offering year-round activities for children and young adults with CHD. She holds the role of Nurse Coordinator and as an Advisor for their adult CHD program called PACE. Roslyn discusses the work of Camp del Corazon and its lasting impact on children and families affected by CHD a...
Episode 387 - Roslyn Rivera, RN, BSN
October 17, 2022 15:00 - 10 minutes - 7.62 MBRoslyn Rivera, RN, BSN is the Fetal and Pediatric Cardiology Outpatient Nurse Coordinator at the UCLA Children’s Heart Center. Since 2013, Roslyn has volunteered with Camp del Corazon, a nonprofit organization offering year-round activities for children and young adults with CHD. She holds the role of Nurse Coordinator and as an Advisor for their adult CHD program called PACE. In this episode, Roslyn discusses the work of Camp del Corazon and its lasting impact on children and families a...
Karri Reynolds - phaware® interview 386
September 27, 2022 15:00CTEPH patient, Karri Reynolds spent years bouncing from specialist to specialist due to her failing health. She details how self-advocating led and a desperate facebook post led to her being diagnosed at age 40 (by a pediatric cardiologist)! My name is Karri Reynolds. I'm 46 years old. I received a diagnosis of pulmonary hypertension when I was 40 years old, so about six years ago. I had a lot of misdiagnoses in the process. I found in my situation, that the importance of self-advocacy wa...
Episode 386 - Karri Reynolds
September 26, 2022 15:00 - 16 minutes - 11.9 MBCTEPH patient, Karri Reynolds spent years bouncing from specialist to specialist due to her failing health. In this episode, she details how self-advocating led and a desperate facebook post led to her being diagnosed at age 40 (by a pediatric cardiologist)! Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.pha...
Chandani Dezure, MD - phaware® interview 385 (Part 2)
September 20, 2022 15:00Board certified pediatrician and mother to a young child with idiopathic PAH, Chandani DeZure, MD, shares advice & tips for parents navigating this rare diagnosis and offers a unique perspective from both the patient/caregiver and physician side. My name is Chandani DeZure. I'm a board certified pediatrician. I’m also a caregiver to a child with pulmonary hypertension who just turned four years old. I wanted to share some tips and advice that I've picked up along our journey as both a par...
Episode 385 - Chandani DeZure, MD Part 2
September 19, 2022 15:00 - 7 minutes - 7.24 MBIn this episode, board certified pediatrician and mother to a young child with idiopathic PAH, Chandani DeZure, MD, shares advice & tips for parents navigating this rare diagnosis and offers a unique perspective from both the patient/caregiver and physician side. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: ww...
Chandani Dezure, MD - phaware® interview 384 (Part 1)
September 13, 2022 19:00In this episode, Chandani DeZure, MD, a board certified pediatrician and mother to a young child with idiopathic PAH, shares the heart-wrenching journey of her son's rare disease diagnosis during the height of the COVID crisis. She details physical and emotional toll it has taking on her son and family. My name's Dr. Chandani DeZure. I'm a Board Certified Pediatrician and a caregiver to a child with PH who just turned four years old. My son Ryan was diagnosed in July 2020 when he was two...
Episode 384 - Chandani DeZure, MD Part 1
September 12, 2022 15:00 - 9 minutes - 9.1 MBIn this episode, Chandani DeZure, MD, a board certified pediatrician and mother to a young child with idiopathic PAH, shares the heart-wrenching journey of her son's rare disease diagnosis during the height of the COVID crisis. She details physical and emotional toll it has taking on her son and family. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram...
Shannon O'Donnell - phaware® interview 383
September 06, 2022 15:00Pulmonary Hypertension patient Shannon O'Donnell was diagnosed with PH at age six. Shannon discusses the importance of PH kids getting to attend summer camps geared to children impacted with rare disease, including Paul and Joanne Newman's The Hole In the Wall Gang Camp and Serious Fun Network. My name is Shannon O'Donnell. I'm from Boston, Massachusetts. I would like to talk about the importance of going to camp either as a pulmonary hypertension patient individually, or as a family. I ...
Episode 383 - Shannon O'Donnell
September 05, 2022 15:00 - 6 minutes - 6.27 MBPulmonary Hypertension patient Shannon O'Donnell was diagnosed with PH at age six. Shannon discusses the importance of PH kids getting to attend summer camps geared to children impacted with rare disease, including Paul and Joanne Newman's The Hole In the Wall Gang Camp and Serious Fun Network. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube...
Larissa Domenichelli - phaware® interview 382
August 30, 2022 15:00Pulmonary hypertension patient, Larissa Domenichelli discusses her rare disease diagnosis and why she feels like a 73 year old trapped in a 37 year old's body. My name is Larissa Domenichelli. I'm from Cloverdale, California. My connection with pulmonary hypertension is I was diagnosed in November of 2020. I was in heart failure. Little did I know it was about six or seven months, just progressively short of breath. Feeling faint. It all started when I was working as a dialysis tech. You ...
Episode 382 - Larissa Domenichelli
August 29, 2022 15:00 - 7 minutes - 6.89 MBIn this episode, pulmonary hypertension patient, Larissa Domenichelli discusses her rare disease diagnosis and why she feels like a 73 year old trapped in a 37 year old's body. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #phaware #ClinicalTrials Share your story: [email protected]
Tina Gardner - phaware® interview 381
August 23, 2022 15:00Pulmonary hypertension patient, Tina Gardner had never heard of PH when her mom was diagnosed in 1994. 28 years later, she's all too familiar with the disease after she, her nephew, her niece as well as her great nephew have been diagnosed with this rare disease. Tina discusses the importance of support groups, especially ones like the one she created for families impacted by heritable pulmonary arterial hypertension. I'm Tina Gardner. I am in Bedford, Pennsylvania, and I have familial ...
Episode 381 - Tina Gardner
August 22, 2022 15:00 - 9 minutes - 9.2 MBPulmonary hypertension patient, Tina Gardner had never heard of PH when her mom was diagnosed in 1994. 28 years later, she's all too familiar with the disease after she, her nephew, her niece as well as her great nephew have been diagnosed with this rare disease. In this episode, Tina talks about the importance of support groups, especially ones like the one she created for families impacted by heritable pulmonary arterial hypertension. Learn more about pulmonary hypertension trials at ...
Nicole Hogan - phaware® interview 380
August 16, 2022 15:00Pulmonary hypertension patient, Nicole Hogan was diagnosed in 2018. Four years later she is still grappling with her rare disease prognosis. PH has changed her life. Now she advocates for herself and the community to help make PH history. My name is Nicole Hogan, and I'm from San Fernando Valley. I was diagnosed with pulmonary arterial hypertension February 8th of 2018 at USC Keck Medical Center in Los Angeles, California. I was having a hard time walking up stairs, or just from room to r...
Episode 380 - Nicole Hogan
August 15, 2022 15:00 - 6 minutes - 6.39 MBPulmonary hypertension patient, Nicole Hogan was diagnosed in 2018. Four years later she is still grappling with her rare disease prognosis. PH has changed her life. Now she advocates for herself and the community to help make PH history. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #...
Carol Templeton - phaware® interview 379
August 09, 2022 15:00CTEPH patient, Carol Templeton details her complex surgery, called pulmonary thromboendarterectomy (PTE), which involves the removal of chronic clots from the lung vessel and the impact it had on her as the adoptive mom to her 18 month old daughter. My name is Carol Templeton, and I'm from Los Angeles, California. I was diagnosed with CTEPH (Chronic thromboembolic pulmonary hypertension) in 2007. Before that, I didn't have any lung issues. A couple years before, I had a blood clot in my ...
Episode 379 - Carol Templeton
August 08, 2022 15:00 - 10 minutes - 10.1 MBIn this episode, CTEPH patient, Carol Templeton details her complex surgery, called pulmonary thromboendarterectomy (PTE), which involves the removal of chronic clots from the lung vessel and the impact it had on her as the adoptive mom to her 18 month old daughter. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure:...
Kaitlyn Thompson - phaware® interview 378
August 02, 2022 15:00Pulmonary hypertension patient, Kaitlyn Thompson describes coming to terms with the difficult reality of not being able to carry a pregnancy due to her PH, as well as detailing an emotional recent near death experience. My name is Kaitlyn Thompson. I'm from Maryland. I was diagnosed with pulmonary hypertension when I was nine. Before that, I had had heart problems. I've had two open heart surgeries. I had one when I was three and one when I was six. My pulmonary hypertension diagnosis is ...
Episode 378 - Kaitlyn Thompson
August 01, 2022 15:00 - 11 minutes - 10.4 MBIn this episode, pulmonary hypertension patient, Kaitlyn Thompson describes coming to terms with the difficult reality of not being able to carry a pregnancy due to her PH, as well as detailing an emotional recent near death experience. Learn more about pulmonary hypertension trials at www.phaware.global/clinicaltrials. Never miss an episode with the phaware® podcast app. Follow us @phaware on Facebook, Twitter, Instagram, YouTube & Linkedin Engage for a cure: www.phaware.global/donate #ph...