Heart to Heart with Anna
456 episodes - English - Latest episode: 7 days ago - ★★★★ - 14 ratingsRevitalize your spirit and connect with the vibrant congenital heart defect (CHD) community through 'Heart to Heart with Anna,' the pioneering podcast that has been inspiring and informing listeners since 11-12-13. Join us as we dive deep into the personal journeys, triumphs, and challenges of Survivors, their loved ones, esteemed medical professionals, and other remarkable individuals within the CHD community.
With unwavering dedication, our heartfelt conversations bring to light the stories that need to be heard. Gain invaluable insights, expert advice, and a sense of empowerment as we explore the multifaceted world of CHD. Our mission is to uplift, educate, and enrich the lives of every member of this incredible community.
Embark on a transformative listening experience where compassion and understanding thrive. Discover the resilience and unwavering spirit that reside within each person touched by CHD. Together, let's build a community where support and knowledge flourish, bringing hope to the forefront.
Tune in to 'Heart to Heart with Anna' and embark on a remarkable journey that will leave you inspired, enlightened, and connected to the beating heart of the CHD community.
Homepage Apple Podcasts Google Podcasts Overcast Castro Pocket Casts RSS feed
Episodes
Cardiac Athlete™ Spotlight: Barry Stone
October 03, 2017 04:00 - 14 minutes - 10.2 MBSend us a Text Message. Barry Stone is a very special Cardiac Athlete™. At 74 years old he is a triathlete who has loved athletics all his life. Tune in to hear him share about his life, his challenges, what it was like to be told he had a "heart murmur" in his 30s and what they did about it as well as other problems that cropped up over the years. You'll hear his advice for Cardiac Athletes and how he feels about cardiac rehabilitation. We appreciate it when people support Hearts Unite the ...
Cardiac Athlete™ Spotlight: Benjamin Lee
September 26, 2017 04:00 - 20 minutes - 14 MBSend us a Text Message. Join us on Heart to Heart with Anna this week for another spotlight on Cardiac Athletes. Today we’re talking with athlete Benjamin Lee who went from living a "normal" life as an athlete for over two decades before discovering he had a potentially fatal heart defect. Join us as we discover how he went from being a healthy athlete to having to make some major changes in his life and what those changes were.Benjamin Lee is a preacher, an author and a motivational speaker...
Cardiac Athlete™ Spotlight: Lisa Johnson
September 19, 2017 04:00 - 20 minutes - 14.2 MBSend us a Text Message. Join us on Heart to Heart with Anna this week for another spotlight on Cardiac Athletes. Today we’re talking with athlete Lisa Johnson who went from training in gymnastics, Olympic weightlifiting and crossfit to heart surgery and finding out she had both a congenital defect and autoimmune disease. It’s a fascinating story about triumph, loss and struggle and Lisa is quite the heroine!Lisa Johnson will be participating in the 2nd book in the Cardiac Athlete series by L...
Cardiac Athlete™ Spotlight: Tim Howard
September 12, 2017 04:00 - 15 minutes - 11 MBSend us a Text Message. This week, and for the next several weeks, Heart to Heart with Anna will be a Spotlight on a Cardiac Athlete. You can learn more about Cardiac Athletes, you can visit this website: http://cardiacathletes.com/This week's spotlight is on Tim Howard. Join us as Anna interviews Tim about his cardiac disease, how he responded to his doctors and what it means to him to be a Cardiac Athlete.Tim Howard will be participating in the 2nd book in the Cardiac Athlete series by Lar...
Progrès dans la compréhension du foie chez les Patients de Fontan
September 05, 2017 04:00 - 28 minutes - 19.5 MBSend us a Text Message. This is our first Heart to Heart with Anna episode entirely in French for our French-speaking Heart Community. Today's topic deals with the Fontan heart and liver involvement.La procédure de Fontan a été utilisée depuis les années 1970 pour traiter les personnes avec une physiologie du ventricule unique--également connu sous le nom d’un cœur options. Il a également été utilisé dans les dernières décennies pour traiter le syndrome d’hypoplasie du coeur gauche (hCG) ou ...
Discovering Hidden Talents in our Heart Warriors
August 29, 2017 04:00 - 33 minutes - 22.9 MBSend us a Text Message. Today Jessica Gutierrez-Rodriguez talks with us about how she has discovered her single-ventricle heart warrior's hidden talents. She also shares with us Marianne's early years and some of the challenges she's had to overcome. Jessica shares how she has come to discover her daughters' hidden talents and how she and her family have worked to foster her daughters' talents. She gives advice to all parents about what they can do to help their Heart Warriors find something...
Educating Twin Heart Warrior Toddlers
August 22, 2017 04:00 - 30 minutes - 21.1 MBSend us a Text Message. The importance of early childhood education (ECI) cannot be denied. At-risk children who are given ECI tend to do better and many can even start kindergarden with their peers. Today's program features Roxanne Montalvo-Tsai, a heart mom to a healthy little boy and twin girls who were both born with tetralogy of Fallot. Enjoy today's program as Roxanne shares with Anna how she worked to provide little Jasmine and Selena with all of the assistance she could while they we...
You’re Never Too Old to Dream a New Dream: Education for Heart Parents
August 15, 2017 04:00 - 33 minutes - 23.3 MBSend us a Text Message. For many parents, after they have a child with a critical congenital heart defect their world completely stops for a time. Some parents become paralyzed with fear. They are afraid to move forward because while pursuing their own dreams, their baby could become sick and perhaps even die! This makes it very difficult for parents because in pursuing their dreams, they might feel they are behaving selfishly, even if that isn't the case. Today Marta Montero shares with Ann...
Special Education Accommodation and Individualized Health Care Plans
August 08, 2017 04:00 - 34 minutes - 23.6 MBSend us a Text Message. It's back-to-school time and "Heart to Heart with Anna" wants to make sure that Heart Parents are prepared to send their Heart Warriors back to school! Enjoy today's program with Lisa O'Connor, a special education advocate. Lisa shares with Anna some of the accommodations that many children with special needs have and how Heart Warriors need an Individualized Health Care Plan. Tune in to hear Lisa share her experience working with special needs families so you can be ...
Moving From High School to Adulthood
August 01, 2017 04:00 - 31 minutes - 21.7 MBSend us a Text Message. What happens when our Heart Warriors age out of high school but are not ready for college or trade school? What can parents do to prepare their children for adulthood when cognitively they may not be where their peers are? Join us today as Kathy Keller shares her experiences and advice with us! Kathy's Heart Warrior, Garrett, was born with hypoplastic left heart syndrome and has had strokes, plastic bronchitis a heart transplant and has benefitted from many special pr...
One Heart Warrior’s Educational Experience Down Under
July 25, 2017 04:00 - 32 minutes - 22.3 MBSend us a Text Message. Season 10 of Heart to Heart with Anna is focused on educational issues but almost all of the programs have dealt with Heart Warriors in the United States. Join us with this program as we go Down Under to talk with an Australian Heart Warrior and what she experienced growing up with a congenital heart defect. Did Megan have the same kind of experiences her American counterparts had? What advice does Megan have for others in the Heart Community? What kind of things did ...
The Faces of Special Education
July 18, 2017 04:00 - 33 minutes - 23.1 MBSend us a Text Message. Join us in this episode as we investigate a world filled with acronyms and letters (504 Plans, IEPs, ARDs). Special Education Instructor and Heart Mom Marie O'Donnell demystifies the world of special education as she explains what different kind of special education plans are, who can benefit from them and how the plans for children born with congenital heart defect can change over time. Discover what Marie has learned from being both a parent of a special needs child...
Homeschooling and Self-Advocacy
July 11, 2017 04:00 - 32 minutes - 22.4 MBSend us a Text Message. The number of families in the United States and around the world who are choosing to homeschool seems to be on the rise. There are a number of countries where it is illegal to homeschool but in the countries where it is not illegal, it is a viable option and often reaps great rewards for the children and the families as a whole. For many people, homeschooling is more than an educational option -- it's a lifestyle choice. Homeschoolers frequently have more opportunitie...
Learning about the Function of the Heart
July 04, 2017 04:00 - 33 minutes - 23.4 MBSend us a Text Message. What happens when you expect a perfectly healthy baby but after delivery you discover your baby has a heart defect -- one that will require open-heart-surgery to fix? How can ordinary parents learn about the function of the heart? What should they teach their children about their heart defects? Who can help parents to learn about heart defects? What kind of support is available for parents of children with broken hearts?Tune in to hear Katina Robalino discuss this imp...
Special Education Transitions for Heart Warriors
June 27, 2017 04:00 - 34 minutes - 23.7 MBSend us a Text Message. It is a commonly known fact in the congenital heart defect (CHD) community that now there are more adults alive with CHDs than babies being born. That means we have more people reaching adulthood than ever before and that means that more people than ever before have had to make the transitions from infancy to adulthood with a special heart. What does that mean for children born with critical congenital heart defects?What special struggles might they face? How can pare...
Continuing Education Through Conferences and Support Groups
June 20, 2017 04:00 - 31 minutes - 21.8 MBSend us a Text Message. This season we're focusing on education for Heart Warriors and today's show exemplifies how learning is a life-long process. Today's show deals not only with how Heart Warriors can continue their eduation about congenital heart defects (CHDs), but how the entire CHD community can continue to become better education about heart issues. Perhaps even more importantly, today's episode speaks directly to how the CHD community can grow by having families and the professiona...
Homeschooling a Special Needs Heart Warrior
June 13, 2017 04:00 - 32 minutes - 22.1 MBSend us a Text Message. The United States Department of Education reports that homeschooling continues to grow with an estimated 1,770,000 homeschooled students in 2013. That is 3.4% of the school-aged population! This is an increase of 61.8% over the previous ten years. There are many reasons parents choose to homeschool their children but one obvious reason to homeschool a child with a congenital heart defect is to minimize a medically fragile child's exposure to germs and diseases. That's...
How Military Families Deal with Having a Child with a CHD (Encore Presentation)
June 06, 2017 04:00 - 57 minutes - 39.8 MBSend us a Text Message. Military families lead a very different life than civilian families do. Military families come from all walks of life and, when their children are diagnosed with heart defects, the challenges can vary according to location, branch of service, and of course separations that come at the most unexpected times. Despite these challenges, military families try their best to find ways to balance all aspects of their lives with a positive attitude. When a child is born to a m...
Physical Education for Heart Warriors
May 30, 2017 04:00 - 31 minutes - 21.3 MBSend us a Text Message. Many years ago, when people were diagnosed with congenital heart defects, their doctors warned parents about the dangers of allowing their children to cry, to become upset or to exert themselves. What have doctors learned from those early pioneers in the realm of congenital heart disease (CHD)? How has the medical world come to view CHD Warriors' needs to take part in physical activities? What kind of activities are common amongst children who survive childhood with f...
Encore Presentation of Cardiac Athletes: Beating Heart Disease Around the World
May 23, 2017 04:00 - 33 minutes - 23.1 MBSend us a Text Message. Cardiac athletes are all around us. There are athletes who develop heart problems or who discover, after they have been athletes for a while, that there heart has some imperfections that may require surgery and there are people who were born with heart defects who have a great desire to become an athlete and to enjoy the benefits of regular exercise. Lars Andrews, a cardiac physiologist, has created a website and an organization to eradicate heart disease. His organiz...
Strokes and TIAs in the CHD Patient
May 16, 2017 04:00 - 29 minutes - 20.3 MBSend us a Text Message. People who are born with congenital heart defects (CHDs) are at greater risk for having a TIA (mini-stroke or transient ishcemic attack) or stroke. A stroke occurs when there is bleeding into the brain (hemorrhagic stroke) or a blood clot blocking blood going into (or through) the brain -- which is called an ischemic stroke. Many people who have CHDs have rhythm problems and these electrical problems with the heart can lead to TIAs or strokes. Additionally, some peopl...
The Emotional Toll of Living with Congenital Heart Disease
May 09, 2017 04:00 - 32 minutes - 22.2 MBSend us a Text Message. Today's podcast deals with a topic that all Heart Parents know all too well -- the emotional impact of having a child with a congenital heart defect. Our expert Guest, Yarrow Gillis, talks candidly with Anna about what it's like to have a child born with a critical congenital heart defect, what it's like to have to go through surgeries, the feelings of isolation many parents experience and a possible amazing solution to some of the problems that parents face! Tune in ...
A Heart Warrior’s Early Onset Menopause
May 02, 2017 04:00 - 27 minutes - 19.2 MBSend us a Text Message. Now that more Heart Warriors are surviving to adulthood than ever before, there is a growing cohort of individuals actually entering middle age. So for the first time ever, there is a group of female Heart Warriors who are actually experiencing the consequences of aging. What happens when female Heart Warriors enter menopause? Are there special considerations that need to be taken for Heart Warriors who are peri-menopausal, menopausal or post-menopausal? What symptoms...
Heart Warrior Mom Raising Children to Adulthood
April 25, 2017 04:00 - 30 minutes - 20.8 MBSend us a Text Message. Guest Host, Rita Scoggins, interviews Heart Warrior, Laura Ryan, today about what it was like to raise two children. Laura Ryan is a congenitally corrected transposition of the great arteries and DILV (or double inlet left ventricle) Heart Warrior. Rita Scoggins is a Heart Mom to a single ventricle Heart Warrior. They talk about what it means to raise children and what special challenges Laura faced raising her two sons Jed and Liam. What differences are there between...
A View From the Other Side of the Bed
April 11, 2017 04:00 - 29 minutes - 20.3 MBSend us a Text Message. Today's show features two Heart Warriors -- Guest Host Carol Raimondi and Guest Roslyn Rivera. Both of these Heart Warriors decided to go into nursing. Tune in to hear why Carol (a cc-TGA Heart Warrior) and Roslyn (an partial atrio-ventricular septal defect and mitral valve replacement Survivor) became nurses, how the job made them view their own heart defects and what changes had to be made in their lives over time regarding the stress and strain of being a nurse. No...
Advancements in Pulmonary Hypertension
April 04, 2017 04:00 - 31 minutes - 21.8 MBSend us a Text Message. Dr. Wayne Franklin is a pediatric cardiologist specializing in the care of adults with congenital heart defects, and especially those adults with pulmonary hypertension. Today he talks to Anna about the advancements made regarding pulmonary hypertension, what the warning signs are and who is at risk as well as what he sees for the future regarding those who develop PH or PAH (pulmonary arterial hypertension). Find out what percentage of adults with congenital heart d...
Advancements in Stem Cell Therapies and Research for HLHS Heart Warriors
March 28, 2017 04:00 - 38 minutes - 26.6 MBSend us a Text Message. Dr. Timothy Nelson is the director of the Todd and Karen Wanek Family Program for HLHS at Mayo Clinic. Dr. Nelson and his team are specifically interested in the cause of hypoplastic left heart syndrome (HLHS) and finding ways to delay and prevent heart failure for individuals with HLHS. To better understand and treat this congenital heart disease, the program has taken a multifaceted approach that includes research into stem cells, genetics, imaging tools, and the cr...
Advancements in Treatments for HLHS Heart Warriors
March 21, 2017 04:00 - 35 minutes - 24.2 MBSend us a Text Message. Hypoplastic left heart syndrome (HLHS) is a critical congenital heart defect -- meaning that surgery within the first year of life is necessary to survive. Several decades ago, HLHS was uniformly fatal (except in some very rare cases) and most infants died within the first month of life. Since the 1980s there have been efforts made to save babies with HLHS. The results have been amazing. Now the success rate for babies born with HLHS is at an all-time high. What advan...
Advancements in Pregnancy for Congenital Heart Defect Survivors
March 07, 2017 05:00 - 31 minutes - 21.8 MBSend us a Text Message. The field of pediatric cardiology and that of congenital heart disease has changed a great deal in the last couple of decades. Once upon a time, people born with critical congenital heart defects were called "blue babies" or "cardiac cripples" and were expected to die in infancy or in early childhood. Now that there are more adults alive with congenital heart defects, than babies born each year, everything is changing. One of the biggest changes to occur has happened...
The Advancements of Family-Centered Care
February 28, 2017 05:00 - 38 minutes - 26.5 MBSend us a Text Message. This episode features two very special Guests -- Michelle Steltzer is a nurse and the sister of a Heart Warrior born with a single ventricle heart in the 1970s. Susan Romanesko is Michelle and Greg's mother. She talks with Anna about what it was like to give birth to a Heart Warrior in the 1970s, and how, as an infant and even into adulthood, medical technology and treatments seemed to be just a step ahead of where her son, Greg, needed to be in order to save her son...
Advancements in Electrophysiology
February 21, 2017 05:00 - 37 minutes - 25.7 MBSend us a Text Message. Wilson Lam is a board certified cardiologist who specializes in adult congenital cardiology and rhythm disorders. In this program Dr. Lam outlines the advancements which have been made in the field of electrophysiology. He shares with Anna the changes that have occurred in life-saving devices such as implantable cardioverter-defibrillators or ICDs and pacemakers, the new medications changing the lives of those who were dependent on Coumadin and talks about new monitor...
The Roadmap to Success For Complex CHD Survivors Part 2
February 14, 2017 05:00 - 33 minutes - 23.4 MBSend us a Text Message. Last week we met Dr. Gil Wernovsky, a renowed pediatric cardiologist who has dedicated 30 years to treating babies born with congenital heart defects. We talked about a new approach that he designed by working collaboratively with doctors, nurses and parents. What he created was a "roadmap" for treating those babies born with the most complex heart defects. Last week we talked about why he created the roadmap, how it was similar to a maintenance program that is used f...
The Roadmap to Success For Complex CHD Survivors Part 1
February 07, 2017 05:00 - 37 minutes - 25.8 MBSend us a Text Message. Renowned pediatric cardiologist, author and researcher Gil Wernovsky, M.D., shares his experiences and proposal for a new way to treat those born with complex congenital heart defects with Anna. He shares his holistic vision for treatment of this unique popluation in down-to-earth, logical terms with Anna. He describes what team members are needed, why it's important to have a more generalized view of treatment, now that more members of this population are surviving t...
Advancements in Understanding the Liver in Fontan Patients Part 2
January 31, 2017 05:00 - 29 minutes - 20.1 MBSend us a Text Message. The Fontan Procedure has been used since the 1970s to treat people with a single ventricle physiology -- also known as a univentricular heart. It has also been used in the last few decades to treat hypoplastic left heart syndrome (HLHS) or hypoplastic right heart syndrome (HRHS). Now there are enough long-term survivors of the Fontan Procedure for the medical establishment to know what kinds of consequences having such a radical physiology poses. When the heart's sole...
Advancements in Understanding the Liver in Fontan Patients Part 1
January 25, 2017 05:00 - 31 minutes - 22 MBSend us a Text Message. The Fontan Procedure has been used since the 1970s to treat people with a single ventricle physiology -- also known as a univentricular heart. It has also been used in the last few decades to treat hypoplastic left heart syndrome (HLHS) or hypoplastic right heart syndrome (HRHS). Now there are enough long-term survivors of the Fontan Procedure for the medical establishment to know what kinds of consequences having such a radical physiology poses. When the heart's sole...
A Nurse’s Perspective: Changes in Care over the last 30 Years: Part 2
January 17, 2017 05:00 - 34 minutes - 24 MBSend us a Text Message. Deena Barber has been a nurse for over 30 years. Over that time she has seen many changes in care for those born with congenital heart defects (CHDs). Tune in today to hear her discuss some of the most impactful advancements that have led to a change in the CHD population from being mostly comprised of babies to now having the greater percentage of the population being adult survivors. In Part 2 we'll be discussing the changes that have occurred regarding specific hea...
A Nurse’s Perspective: Changes in Care over the last 30 Years: Part 1
January 17, 2017 05:00 - 33 minutes - 23.3 MBSend us a Text Message. Deena Barber has been a nurse for over 30 years. Over that time she has seen many changes in care for those born with congenital heart defects (CHDs). Tune in today to hear her discuss some of the most impactful advancements that have led to a change in the CHD population from being mostly comprised of babies to now having the greater percentage of the population being adult survivors. We appreciate it when people support Hearts Unite the Globe podcasts. Thank you to ...
Stem Cells for an HLHS (hypoplastic left heart syndrome) Heart
January 03, 2017 05:00 - 30 minutes - 20.9 MBSend us a Text Message. Jennifer Gutman is the mother of a son born with hypoplastic left heart syndrome. In today's show Jennifer talks with Anna about finding out about her son's condition after having lost a sibling to the same condition 30 years earlier. She also shares her advice with other parents considering saving umbilical cord blood for future surgeries. She informs Anna how her son's pediatric cardiologist feels about this state-of-the-art procedure. Tune in today to hear Jennifer...
Encore Presentation of "This is NOT the Trip I Planned For!"
October 04, 2016 04:00 - 28 minutes - 19.4 MBSend us a Text Message. Chris Perez is a Heart Dad from North Carolina. His son Nolan was born in 2012 with Hypoplastic Left Heart Syndrome. For almost 3 years he's written a blog called Half Heart. Whole Life: an HLHS Dad's blog, where he lays out the life of a Heart Dad with honesty and humor. On today's episode, Chris will be presenting an update to the well-known essay "Welcome to Holland." This essay has been read by many since it was written in 1987: today Chris will give it a fres...
Rerun of "Failure to Thrive : Oral Aversions & Nutrition for CHD Survivors"
October 04, 2016 04:00 - 1 hour - 43.3 MBSend us a Text Message. One of the problems many of our CHD children suffer from is "Failure to Thrive" and because the children with critical congenital heart defects usually have surgery within the first days or months of their lives, they may develop oral aversion (very probably because of being intubated for extended periods of time). Because many of our children have oral aversion, they frequently do not like foods of certain textures. This can make feeding our CHD children a great chal...
Encore Presentation of "Ruling the World . . . One Cookie at a Time"
September 27, 2016 04:00 - 29 minutes - 20.3 MBSend us a Text Message. Today's episode of Heart to Heart with Anna features Guest Host, Chris Perez (a.k.a. the HLHS Dad) and shows how a heart mom - inspired by her daughter's determination - has begun a successful small business. The guest for this exciting episode is Jessie Wimmer, who is a heart mom from Charlotte, NC. She has two beautiful children: Noah and Sparrow, who was born with a congenital heart defect. Jessie will tell us about the miracle she - and doctors - witnessed in he...
Compassion Fatigue: Silent Enemy, Soul Sickness
September 19, 2016 04:00 - 29 minutes - 20.3 MBSend us a Text Message. Is the stress of caring for a child with a serious medical condition wearing you down? Do you find yourself being snappy with others? Is negativity showing through? Tune in to hear Guest Host, Chris Perez (a.k.a. HLHS Dad) interview Daniel Miles, the Assistant Director of Spiritual Education at Carolinas Medical Center, as he shares his wisdom and advice with us. We appreciate it when people support Hearts Unite the Globe podcasts. Thank you to our newest supporters ...
Long-Term Consequences of a Fontan Physiology
September 19, 2016 04:00 - 33 minutes - 23.2 MBSend us a Text Message. The Fontan Procedure was first described in 1971 as a treatment for tricuspid atresia. In the last 45 years, the Fontan Procedure has grown and changed and is currently used to save the lives of people born with a number of single ventricle diagnoses -- including tricuspid atresia, hypoplastic left (and right) heart syndrome, common-inlet left ventricle or double-inlet left ventricle. Survivors of this procedure are increasing as the surgical techniques, mediations us...
Rethinking Transition Care for CHD Survivors
September 18, 2016 04:00 - 35 minutes - 24.5 MBSend us a Text Message. When teens become young adults, so many changes occur. For teens with congenital heart defects (CHDs), the changes that occur are often magnified. With the changes that happen in the body as children become adults, there are other changes that happen, too. Oftentimes, CHD Survivors had surgery over a decade earlier and some of those early surgeries may need attention. Suddenly, these Survivors have many decisions to make, yet they may not feel equiped to do so. How ca...
Insurance Issues and Financial Planning in the Congenital Heart Defect Community
September 06, 2016 04:00 - 36 minutes - 25.4 MBSend us a Text Message. Do you wonder what a financial planner does and if you can even afford one? Can you afford NOT to have one? What kind of emotional issues are common with chronic illness? How can anyone afford to have congenital heart disease and anything else happen to them? Tune in for answers to these questions and many more thanks to Certified Financial Planner, Laura Redfern and child and adult psychotherapist, Austin Wilmot, M.S.W. We appreciate it when people support Hearts Un...
Growing up with an ACHD Parent
September 06, 2016 04:00 - 29 minutes - 20 MBSend us a Text Message. Misty Castaneda was born with a heart defect known as tetralogy of Fallot. Told she'd never be able to have children, she was surprised at 19 to discover she was pregnant. Now, 19 years later, Misty has a 19-year-old daughter of her own. Misty has undergone multiple challenges in raising her daughter. Her daughter has had to witness her mother undergo surgery to replace a heart valve and to have a new transcatheter Melody Valve® inserted in her heart. Misty and Milen...
Transitioning from Teen to Adult
September 06, 2016 04:00 - 31 minutes - 21.8 MBSend us a Text Message. How does a teen with congenital heart defect transition to being an adult with a congenital heart defect? What can go wrong? What kinds of things can parents do to help the transition go more smoothly? What makes transitioning so difficult? Two adults born with congenital heart defects, Sarah Clark and Nicole Vickery, share their life experiences with Anna and offer advice to listeners. We appreciate it when people support Hearts Unite the Globe podcasts. Thank you to...
The Natural Course of Congenital Heart Defects
September 06, 2016 04:00 - 30 minutes - 21.3 MBSend us a Text Message. What is the natural course of congenital heart disease? What obstacles do adult congenital heart defects Survivors (ACHDers) faces as they age? What transition challenges do ACHDers have to deal with? As Nurse Program Coordinator of the Akron Children's Hospital Adult Congenital Heart Disease Program, Deena Barber has the privilege of managing and coordinating the specialized care of adult congenital heart patients at Akron Children’s Hospital. Tune in to hear Deena B...
The Road Forward in ACHD Research: Where We Are Now and Where We Need to Be
September 06, 2016 04:00 - 32 minutes - 22.7 MBSend us a Text Message. Dr. Ari Cedars is a cardiologist at Baylor University medical Center in Dallas, Texas. He is a physician and the director of the Center for Adults with Congenital Heart Disease (or ACHD). He trained in Adult Congenital Heart Disease at Washington University in Saint Louis. He is passionate about research in the realm of adults with congenital heart disease, especially since it is a growing population with increasingly complex needs. He believes that doctors and patien...
Adult CHD Survivors with Neurological Problems
July 25, 2016 04:00 - 32 minutes - 22.2 MBSend us a Text Message. Due to the complexity of the surgeries needed to help people with complex congenital heart defects, it is not uncommon for some survivors to suffer some neurological insults resulting in cognitive delays or even permanent neurological damage. How do parents of children with heart defects and neurological problems cope? What can parents do as their children become adults but are not able to function as adults? What kind of considerations need to be made for these child...