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Heart to Heart with Anna

451 episodes - English - Latest episode: 26 days ago - ★★★★ - 13 ratings

Revitalize your spirit and connect with the vibrant congenital heart defect (CHD) community through 'Heart to Heart with Anna,' the pioneering podcast that has been inspiring and informing listeners since 11-12-13. Join us as we dive deep into the personal journeys, triumphs, and challenges of Survivors, their loved ones, esteemed medical professionals, and other remarkable individuals within the CHD community.

With unwavering dedication, our heartfelt conversations bring to light the stories that need to be heard. Gain invaluable insights, expert advice, and a sense of empowerment as we explore the multifaceted world of CHD. Our mission is to uplift, educate, and enrich the lives of every member of this incredible community.

Embark on a transformative listening experience where compassion and understanding thrive. Discover the resilience and unwavering spirit that reside within each person touched by CHD. Together, let's build a community where support and knowledge flourish, bringing hope to the forefront.

Tune in to 'Heart to Heart with Anna' and embark on a remarkable journey that will leave you inspired, enlightened, and connected to the beating heart of the CHD community.

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Episodes

Sameer’s Legacy: The Genesis Foundation - Helping Children with Heart Defects in India

March 02, 2021 17:00 - 32 minutes - 22.5 MB

How can a couple survive the loss of their precious son? What can be done when an entire country seems to be neglecting the needs of its most vulnerable residents? How can people make a difference in their community? Today's Guest, Jyoti Sagar, answers those questions and so much more! Jyoti Sagar and his wife Prema lost their son Sameer, who was born on December 20, 1983, to a congenital heart defect over 30 years ago.  Devastated by the loss of their son, after some time they began worki...

Dhillon’s Gift: A CHD Legacy

February 22, 2021 17:00 - 33 minutes - 22.9 MB

In this touching episode of "Heart to Heart with Anna," grandmother Beverly Foster shares with Anna her heart journey with her grandson, Heart Warrior Dhillon. From diagnosis through today, Dhillon's spirit remains steadfast and everyone knows exactly what he would want them to do. Thus, Beverly and her family felt the need to create a special legacy in Dhillon's name. The result? Dhillon's Gift. Links mentioned in the program: UNC's webpage about Dhillon's Gift Dhillon's Heart Journey CH...

Classic Fontan Survivor Post-Cardiac Transplant!

February 16, 2021 17:00 - 29 minutes - 20.5 MB

How can a child with a complex congenital heart defect survive multiple surgeries resulting in a funky anatomy and then have a successful heart transplant experience? What was it like to be a child with a congenital heart defect in the 1970s when open-heart surgery for children was something new? Why would a Heart Warrior experience Survivor's Guilt? Leslie Castro is a 47-year-old former single ventricle patient from Pennsylvania. She was born with tricuspid atresia, pulmonary stenosis, and...

Heart Family Living with Plastic Bronchitis

February 09, 2021 21:00 - 38 minutes - 26.8 MB

What is plastic bronchitis? What are the red flags that lead to a diagnosis of plastic bronchitis and how is it diagnosed? More importantly, what can be done about it? Today’s guest will answer those questions for us and more! Molly Fee is a mom of two boys and lives SE of Pittsburg. Her 9-year-old younger son, Marshall, was born with hypoplastic left heart syndrome or HLHS. Marshall had his Fontan Procedure at age 4, and also has a repaired tricuspid valve. About 18 months ago, Marshall wa...

L’Arte di Riparare il Cuore

February 02, 2021 18:00 - 14 minutes - 10.3 MB

Nino Barbalace es il conduttore della versione in Italiano del Programma di "Cuore a cuore con Anna." La puntata di oggi è intitolata “L’Arte di Riparare il Cuore”, e la nostra ospite è Gabriella Ricciardi. Inizieremo la puntata di oggi conoscendo meglio Gabriella ed il suo costante amore per l’arte nella Prima Parte. Nella Seconda Parte, parleremo del percorso che ha Gabriella ha intrapreso per diventare un Cardiochirurgo Pediatrico e, nella Parte Finale, parleremo di come il suo talento a...

The Art of Repairing the Heart

February 02, 2021 17:00 - 22 minutes - 15.5 MB

What kind of career field can a woman passionate about art and science enter into to satisfy both of her needs to be creative? What attracted Gabriella Ricciardi to the field of cardiothoracic surgery for tiny broken hearts? Exactly how can artistic talents be of value to a surgeon of babies with broken hearts? Today’s show is 'The Art of Repairing the Heart' and our Guest is Gabriella Ricciardi. Gabriella Ricciardi is an artist and cardiothoracic surgeon from Torre Annunziata, Italy. She h...

A Heart Mom’s Journey While Choosing Joy

January 26, 2021 17:00 - 33 minutes - 23.2 MB

Do Heart Moms who have babies with heart defects have an easier time of things? Why would a Heart Mom write a book? What might entice a Heart Mom to start a podcast? Answers to these questions and more are in this week's episode of "Heart to Heart with Anna." Nicole Groenewald is a Heart Mom to Henry who has HLHS. At the time that Nicole found out about Henry's diagnosis, she felt like she might never be happy again. Her husband had been ill, and the Groenwalds had already filed for bankrup...

Mom to an Adult Heart Warrior in India

January 19, 2021 17:00 - 29 minutes - 20.5 MB

What is the situation like for people with congenital heart defects in India? What happens to our Heart Warriors as they grow up? What does the Heart Community need to do in order to have a sense of justice for those born with broken hearts? Sajani Nair lives in Calicut, India, and is the mother of Yadhu Krishna, a young man living with congenitally corrected transposition of the great arteries (CCTGA). Since he was diagnosed, Sajani and her family faced an uphill battle for her son as they...

Still Waiting for a Heart

January 12, 2021 17:00 - 32 minutes - 22.5 MB

What is it like to be an adult with a congenital heart defect whose heart has given out? What does a typical journey on the road to transplant like? Does it look anything like what we see portrayed on television or in movies? Lorrie Hill grew up in Texas, mostly Houston and Dallas. She was born with a single ventricle heart and has had three open-heart surgeries in her 24 years, including a pulmonary artery band and bidirectional Glenn shunt. She was listed for a heart transplant on Februar...

A Family Dealing with Tetralogy of Fallot

January 05, 2021 17:00 - 33 minutes - 22.8 MB

Do you have a child with tetralogy of Fallot (ToF)? Do you wonder what that child's life might be like? Do you ever worry about how you will help your child move beyond childhood into adulthood where your child will be in charge of his/her own healthcare? Deborah Meisten and her husband are the parents of a baby who was born with tetralogy of Fallot (TOF). Deborah and her husband are in healthcare. She is a pediatric nurse practitioner and her husband is a pediatrician. Their son is now 16 ...

Advancements in Understanding the Psychology of Living with a CHD

November 11, 2020 16:00 - 36 minutes - 25 MB

For decades the medical profession was engrossed in finding a way to help babies born with congenital heart defects to survive infancy and early childhood. It seemed relatively rare for babies born with complex congenital heart defects to become adults. Now there are more adults alive with congenital heart defects than infants being born with such birth defects. Therefore, a great deal of the focus of the medical field has shifted from that of "survival" to "quality of life." How can those i...

Update on Keith Flynn: Finally on the List!

September 29, 2020 16:00 - 31 minutes - 21.6 MB

Loyal Listeners of "Heart to Heart with Anna" will remember Keith Flynn from 2019 when he came on the show to talk about his need for a heart and liver transplant. He graciously agreed to periodically return to let everyone know what it's like to be on the list waiting for organs and to share his experience with us. It's been about a year since we heard from Keith. In this episode, he shares with Anna what has transpired in the last year -- which has most notably been complicated by COVID-1...

New Transplant Guidelines and Transplant Alternatives with Dr. Ali Zaidi!

September 22, 2020 16:00 - 33 minutes - 22.7 MB

Why did the statuses for being listed for a heart transplant change in 2018? Why would someone born with a congenital heart defect need a transplant and how do they compare to adults born with healthy hearts who suddenly need a heart transplant regarding where they would fall on "the list"? What are some of the devices used as a bridge to transplant? How do those devices play into the new criteria for heart transplantation? Dr. Ali Zaidi answers these questions and more in this episode of "H...

Heart Warrior from Venezuela to the USA

September 15, 2020 16:00 - 31 minutes - 21.6 MB

What was it like to be born in 1965 with a severe congenital heart defect in Venezuela? What kind of care was available there? What was a parent to do? Tune in to this week's episode of "Heart to Heart with Anna" to hear Belen Blanton talk with Anna about her heart journey, how she made it to the USA, and why she has started a nonprofit organization to help children with congenital heart defects in her native country - Venezuela. Here is the foundation Belen has started for children with C...

Children’s HeartLink: Healing Hearts Worldwide with Bistra Zheleva

September 08, 2020 16:00 - 33 minutes - 22.8 MB

Do you know how many children are born every single year around the world with the most common birth defect? What percentage of children born with this condition actually live in a country where appropriate care is available? What are non-government organizations (NGOs) doing to bridge the gap between in care for these most vulnerable people? Tune in to this episode of "Heart to Heart with Anna" to meet Bistra Zheleva - an advocate for children born in low-resource countries who need live-s...

In Memory of David Franco: Beloved Son, Father, Brother, and Friend

September 01, 2020 16:00 - 37 minutes - 25.9 MB

David Franco was born on December 19, 1966, with congenitally corrected transposition of the great arteries (or cc-TGA). David was actually a pioneer as an early cc-TGA Survivor. He was an avid athlete, an advocate for the congenital heart defect (CHD) community, and a devout Catholic. David passed away after over 5 decades of living with his funky heart. He passed due to complications from his CHD on March 12, 2020 - during a coronavirus-complicated world so some family members weren't even...

Working in the NICU When You're a Heart Mom

August 24, 2020 16:00 - 32 minutes - 22.2 MB

What is it like to be a physician assistant working in the NICU and then having your firstborn son admitted to the same NICU? Meagan Sheakoski talks to Anna about her experience with Anna after giving birth to a son who had an unknown birth defect. It wasn't until after her son was born that a problem presented itself. Meagan shares what it was like to go from being the expert in the NICU to being the mother of a premature son wondering what was going to happen next. In this episode of "Hea...

Aging Care of a Fontan Patient

August 18, 2020 16:00 - 31 minutes - 21.4 MB

Texas Reardon is a Heart Warrior. Whitney is his wife of 10 years. Born with a host of congenital heart defects, Texas explains to Anna, in this episode of "Heart to Heart with Anna," about his complicated medical history, and some consequences he's had to face due to falling out of medical care for years. Whitney shares her story, with Anna, about the adjustments she's had to make to help her husband live optimally given his condition. Tune in to hear about the kinds of consequences Texas h...

In Search of Support for Tetralogy of Fallot Parents and Survivors

August 11, 2020 16:00 - 29 minutes - 20.6 MB

Ten years ago, Chelsea King discovered that the twins she carried had a potentially deadly secret. The months that followed were full of doctor's appointments, a move to another city, bed rest, and concern. Tune in to hear Chelsea King talk with Host Anna Jaworski about what it was like for her to go from diagnosis through surgeries, and into 2020. Since Chelsea's twin was born with two major congenital defects (tetralogy of Fallot and Duane's Syndrome), she has had many medical procedures a...

D-TGA and a Mustard Procedure Survivor!

August 04, 2020 16:00 - 27 minutes - 19.2 MB

Barbara Ann Angarone is an adult born with a rare congenital heart defect known as dextro-transposition of the great arteries or d-TGA. She had an operation known as the Mustard Procedure. In this episode of "Heart to Heart with Anna," Barbara shares with Anna what it was like growing up with d-TGA, her medical history and complications, and what it was like for her to decide to get pregnant and start her family. How difficult was it for her? What complications arose after her first pregnanc...

Life as a d-TGA Pioneer!

July 28, 2020 16:00 - 36 minutes - 25.4 MB

Jeffrey Romine is a CHD survivor, nurse, and patient advocate. Thirty years ago he was born with dextro-transposition of the great arteries,d-TGA, and was the first patient in his hometown of Wichita, Kansas to receive the arterial switch operation (ASO). Afterward, he had two more surgeries during childhood to repair pulmonary stenosis. He is a licensed practical nurse and is currently studying to become a registered nurse. Until recently, he was a patient care technician and cardiac monito...

Coronavirus and MIS-C

July 21, 2020 16:00 - 32 minutes - 22.1 MB

Heart Mom and Registered Nurse, Lori Irvin, joins Anna in this July 2020 episode to talk about COVID-19 and a complication that happens in some children called "MIS-C." Lori joins Anna to talk about the challenges and concerns surrounding coronavirus for families with a child who has a congenital heart defect (or CHD) and offers her perspectives and guidance for staying safe, as well as providing information on what we know about symptoms and treatment for Multisystem Inflammatory Syndrome i...

Raising Awareness of Heterotaxy Syndrome

July 14, 2020 16:00 - 33 minutes - 23 MB

Heterotaxy Syndrome is a rare congenital disorder which usually includes a complex congenital heart defect. In this episode of "Heart to Heart with Anna," Faith Earnest, a heterotaxy syndrome survivor, shares with Anna what she has uncovered with her research, what her life has been like growing up with this rare congenital syndrome, and what she believes others with heterotaxy syndrome need to know. Other Heart to Heart with Anna Episodes involving heterotaxy syndrome: Ivemark Syndrome: Y...

Celebrating 60 Years with a Complex Heart

July 07, 2020 16:00 - 29 minutes - 20.6 MB

Born in 1960, Kimberly Russell was diagnosed as a "blue baby" and wasn't expected to survive infancy. Kimberly Russell's care for her complex heart was always just a step behind what was necessary to keep her alive. In 2020, Kimberly is preparing to celebrate her 60th birthday with a complex congenital heart defect and she wants to give back to the community which has honored her life. As an author, speaker, and ambassador for the CHD community, Kimberly is holding contests, raising awarenes...

Congenital Heart Defects in a Family

June 30, 2020 16:00 - 31 minutes - 21.6 MB

Daphne Davis-Patrick is a mother, a grandmother, a nurse, and an author. She joins Anna in this episode of "Heart to Heart with Anna" to share her cardiac journeys as multiple members of her family have had to deal with living with congenital heart defects. Along this journey, Daphne's family discovered a hereditary defect that has affected two of her granddaughters and her son-in-law. The loss of her son, Joval, and the discovery of her family's other congenital heart defects led Daphne to ...

Ivemark Syndrome: Yesterday and Today

June 23, 2020 16:00 - 28 minutes - 19.8 MB

Biörn Ivemark is credited with the discovery of Ivemark Syndrome in 1955. According to the National Organisation for Rare Disorders, Ivemark Syndrome is comprised of: 1) an absent or underdeveloped spleen, 2) cardiovascular anomalies and 3) abnormal placement of the organs in the chest and or abdomen. Julia Mayfield is an adult born with this rare genetic condition called Ivemark Syndrome. Julia is joined on this episode of "Heart to Heart with Anna" by Biörn Ivemark's grandson, Richard I...

A Wish-Made Friendship

June 16, 2020 16:00 - 33 minutes - 23.2 MB

Brandon Lane Phillips and Jeremy Miller are unlikely friends. Brandon was born with tetralogy of Fallot and lived with his family in Louisiana. Jeremy was a child actor, perhaps best known for his portrayal of Ben Seaver on the hit 1980s sitcom "Growing Pains." The two men met when Brandon, at age 11, had a wish granted to him and he had a chance to meet Jeremy on the set of "Growing Pains" and theirs has been a friendship to transcend the years. On this episode of "Heart to Heart with Anna...

Living with HLHS & Evolving Diagnoses

June 09, 2020 20:00 - 31 minutes - 22 MB

Annie Ulchak is a unique Heart Warrior. Born in Lima, Peru in  1979 with nomenclature HLHS, she came to the United States for life-saving surgery, after she was adopted. She joins Anna on this episode of "Heart to Heart with Anna" to talk to her about what her medical journey has been like, what complications she has encountered as an adult, and how she has taken control of her medical life. In the 3rd segment, Annie mentions creating a medical history that Heart Warriors can keep with them...

Becoming an Author while Raising Children with Special Needs

June 02, 2020 16:00 - 34 minutes - 23.5 MB

Sandra Wallis is the author of "Not What I Bargained For: My Journey Raising Four Incredible Kids, Including Two With Severe Medical Conditions." She joins Anna in this episode of "Heart to Heart with Anna" to talk about what it was like for her to raise two children with special needs and how she because an author. With one child born with spina bifida and another born with gastrointestinal pseudo-obstruction, Sandra certainly had her hands full! Tune in to hear how Sandra faced seemingly i...

Living with the Sorrow of Losing a Child: Finding Joy Again

May 26, 2020 16:00 - 30 minutes - 20.8 MB

Sandra Harper Lamgo has a very special story. She talks with Anna about what it was like for her to grow her family and how one loss, in particular, changed her husband's and her life forever. Undiagnosed hypoplastic left heart syndrome resulted in a tragedy that Sandra never could have predicted. Tune in to hear what happened to Sandra and her family, how the loss of her son, William, has affected her life, and the unexpected outcome of losing a child. To be put on the waiting list for San...

Learning about Goldenhar Syndrome

May 19, 2020 17:00 - 43 minutes - 29.6 MB

Bonnie Hunt is a mother of three children, including a medically complex child, who has spent a lot of time in hospitals and doctors’ offices. Greg has Goldenhar Syndrome, as well as LPA ring-sling complex. She is from the Canadian Prairies and is familiar with many hospitals in the country. She is a devoted mother and advocate for families dealing with Goldenhar Syndrome.  Bonnie joins Anna to talk about what Goldenhar Syndrome is and how this rare birth defect has affected her family. She...

Heart Warrior Doctor-Nurse Team: Treating Pediatric Cardiology Patients

May 12, 2020 16:00 - 37 minutes - 26.1 MB

Brandon Lane Phillips, M.D. and Chris Donald, RN are a unique doctor-nurse duo. Both of these professionals work with children born with heart defects -- just as both of them were born with heart defects themselves. In this episode of "Heart to Heart with Anna," this medical pair talks with Anna about how they met, why they work together, and why they choose to work with families like their own. Recorded during COVID-19, these medical professionals also talk about how viruses affect them and...

Remembering David Franco and Silent Cries

May 05, 2020 15:00 - 33 minutes - 23.4 MB

Silent Cries is an internationally acclaimed documentary created by the father of a son with hypoplastic left heart syndrome for the congenital heart defect community. David Franco was an instrumental part of the team that helped to create this documentary. In this episode of "Heart to Heart with Anna," we meet three other members of the team responsible for the documentary. Phillip Wolf, Nicole Vickery, and Dr. Greg Johnson share with Anna about how they came to know David, how they became ...

The Bionic Man of Table Tennis

April 28, 2020 19:00 - 34 minutes - 23.6 MB

Navin P. Kumar is an extraordinary person who has met medical challenges head-on with a positive attitude and a smile. As a child of the 1970s born with a rare, severe congenital heart defect, Navin has endured multiple open-heart surgeries. He was operated on by cardiac surgeon legend Denton Cooley and feels he owes a debt of gratitude to many for his survival. In this episode of "Heart to Heart with Anna," Navin shares with Anna what kind of surgeries he has undergone, what challenges he ...

How Parents’ Relationships are Affected by Having a Child with a CHD

April 22, 2020 17:00 - 59 minutes - 40.8 MB

According to the American Psychological Association, “Marriage and divorce are both common experiences. In Western cultures, more than 90% of people marry by age 50. Healthy marriages are good for couples’ mental and physical health. They are also good for children; growing up in a happy home protects children from mental, physical, educational, and social problems. However, about 40-50% of married couples in the United States divorce.” I scoured the Internet for statistics on families of ch...

Teens and the Coronavirus

April 21, 2020 16:00 - 35 minutes - 24.7 MB

Zach Frey and Eva Gambon are teenagers born with hypoplastic left heart syndrome living in the world during the coronavirus pandemic of 2020. Zach, a senior in high school, and Eva, a 7th grader, share their experiences with living during the coronavirus -- how it has affected them and what they believe their future looks like. Frank Jaworski is a CRNA (certified registered nurse anesthetist) who is also the father of a son with a critical congenital heart defect. Frank will debunk some myth...

Anniversary of a Heart Documentary

April 14, 2020 16:00 - 30 minutes - 20.9 MB

Ten years ago two strangers met at a camp for children born with heart defects and became fast friends. The seed of a project was also planted at that time. In this episode of "Heart to Heart with Anna," we'll meet Producer, Director, and Sound Technician James Eric and Heart Warrior Jeni Bust as they share with Anna what it was like to create a documentary about Jeni's life. James Eric is a heart patient, a director and the producer of Journey’s Beginning, a documentary about Jeni Busta a...

Coronavirus and the CHD Community

April 07, 2020 16:00 - 30 minutes - 21.3 MB

The coronavirus pandemic has changed our world. We are experiencing social distancing, lockdowns, and fear such as we, in this generation, have never known before. In this episode of "Heart to Heart with Anna," two members of the congenital heart defect (CHD) community join Anna to discuss how the coronavirus has affected their lives. We'll hear from returning Guest, Ann Koplow, a therapist who has experience working with this virus on a number of levels. She will share her struggles and he...

Waiting for a Heart

March 31, 2020 17:00 - 34 minutes - 23.7 MB

Lorrie Hill is a 23-year-old Heart Warrior. Living with a single ventricle heart, she has learned a great deal about the heart, her heart's idiosyncracies, and the importance of exercise in staying healthy. In this episode of "Heart to Heart with Anna," Lorrie talks to Anna about what it has been like for her to live with a heart riddled with complex defects, how her heart defect has influenced her career choices, and what the future holds for her... while waiting for a heart transplant. If...

Panel Discussion on Labels or Terms Used in the Heart Community

March 11, 2020 16:00 - 36 minutes - 25.2 MB

This panel discussion includes four adults who were born with congenital heart defects and one parent of a twin daughter who was born with a heart defect. Host, Anna Jaworski, is the mother of an adult son who was born with a congenital heart defect. Together, these six women talk about some of the different terms and labels that are commonly used in the congenital heart defect community. How do terms and labels affect those born with congenital heart defects? Do terms define a person? Do l...

Heart Warrior Choosing Adoption

March 03, 2020 17:00 - 30 minutes - 20.7 MB

Owen Brenna Isaacson was born with a complex congenital heart defect who has had multiple open-heart surgeries, pacemakers implanted, cardioversions and ablations. Despite the medical challenges she has faced, she has been able to lead a fairly normal life. After marrying the love of her life, she and her husband George have decided to start preparing for the growth of their family. In this episode, Brenna shares with Anna how she and George came to decide on adoption as the method for them...

Heart Warrior Choosing Adoption

March 03, 2020 17:00 - 30 minutes - 20.7 MB

Owen Brenna Isaacson was born with a complex congenital heart defect who has had multiple open-heart surgeries, pacemakers implanted, cardioversions and ablations. Despite the medical challenges she has faced, she has been able to lead a fairly normal life. After marrying the love of her life, she and her husband George have decided to start preparing for the growth of their family. In this episode, Brenna shares with Anna how she and George came to decide on adoption as the method for them...

Nurse Burnout in the CHD Community Part 2

February 25, 2020 17:00 - 47 minutes - 32.4 MB

This episode of "Heart to Heart with Anna" is a continuation of the episode on nurse burnout. Part 1 of this two-part series dealt with identifying what kind of people tend to be attracted to working in the field of congenital heart defects, what qualities tend to be at-risk for burnout, and what keeps people in the field despite the difficulties. In Part 2 we'll look at what nurses can do to help themselves if they start to feel stressed, depressed or burned out. We'll learn what hospitals ...

Nurse Burnout in the CHD Community Part 1

February 18, 2020 17:00 - 31 minutes - 21.7 MB

Anna Jaworski is joined by a panel of nurses to discuss a very important topic in this episode of "Heart to Heart with Anna." Deena Barber, Christy Sillman and, Roslyn Rivera share their experiences with Anna about nurse burnout, why nurses who serve the congenital heart defect (CHD) community are at risk, why people might be attracted to become a nurse in the CHD community, and exactly what nurse burnout looks like. This program is the first of a two-part series investigating this importan...

A Scar Behind the Scrubs

February 11, 2020 17:00 - 30 minutes - 21.1 MB

Nauman Shahid is currently a 33-year-old male who knows that the right things came together for his survival. Nauman’s parents were told that tetralogy of Fallot (TOF) had no cure in Pakistan in 1987 and that any chance of survival would be in either the USA, India or Australia. He came to the USA for treatment and repair of his TOF. Growing up he has had to face his share of challenges, multiple surgeries. But all this created a burning desire for him to pursue a degree in medicine. He earn...

Continuing Education for Understanding the Liver in Fontan Patients

February 04, 2020 17:00 - 35 minutes - 24.6 MB

Dr. Fred Wu returns to "Heart to Heart with Anna" for an update on the Fontan-Liver connection that we have come to understand in the last ten years. What are the factors that contribute to Fontan-Associated-Liver Disease? Who is at risk? What symptoms are present in patients who might have liver disease? What can we do to prevent Fontan-Associated-Liver Disease? Tune in to discover answers to these questions and much, much more! Articles that Dr. Wu mentioned in our episode: Diagnosis an...

End-of-Life Financial Planning: Considerations for the Members of the Congenital Heart Defect Community

January 28, 2020 17:00 - 36 minutes - 25.4 MB

Laura Redfern, CFP® earned her Certified Financial Planner™ designation in 2011, after working for over 10 years in the financial services industry.  Having a background in investment management and retirement planning, Laura was attracted to comprehensive financial planning and the opportunity to serve clients in a more significant way.  Laura has a passion for educating individuals on financial topics and speaking in “real world” terms to inspire individuals to become confident in making...

The Mental Health of a Heart Mom

January 21, 2020 17:00 - 34 minutes - 23.7 MB

Heart Mom veterans and dear friends, Helen Simpson and Anna Jaworski discuss a concern they have regarding the mental health needs of women whose babies have been identified with congenital heart defects and need surgery. As mothers of young adults with congenital heart defects, they talk about their own stories of diagnosis and treatment of their children's conditions and how it made them feel, how they dealt with their children's hospital stays and what they believe could help both mothers...

Doctor Burnout in the Congenital Heart Defect Community

January 14, 2020 17:00 - 39 minutes - 27.1 MB

Doctor Burnout is not a new phenomenon but this episode of Heart to Heart with Anna tackles the topic from a unique perspective. How can members of the congenital heart defect (CHD) community come together to acknowledge that doctor burnout does exist and work together to offer some solutions to reduce some of the stress?    Dr. Ami Bhatt and Dr. William Novick join Anna to discuss this important topic. What shift in framework is being taught to residents and fellows in some parts of the Uni...

Turning the Tables: David Simpson Interviews Anna and Frank Jaworski

January 07, 2020 17:00 - 31 minutes - 21.6 MB

After 250 episodes and 6 years of broadcasting, Guest Host David Simpson turns the tables on Host Anna Jaworski and becomes the interviewer. David Simpson is a former Guest on "Heart to Heart with Anna" and he and his wife Helen had a chance to meet up with Anna in person when Frank and Anna were visiting Scotland and England. Tune in to hear these old friends reminisce about the early days of being heart parents, going through open-heart surgeries with their children, and then becoming advo...

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