Team Vasculitis: Thriving through Life with Chronic Illness
227 episodes - English - Latest episode: 7 months ago - ★★★★★ - 8 ratingsLife with any chronic illness is a lonely struggle. I don’t have to tell you that. That’s why I’m here. I want you to know that you are NOT alone. I want you to feel seen, heard, and supported. Here, we’re in it together. Here, you have someone who understands. Here, I remind you that you are part of a Team… and by supporting one another and collaborating together, we can do more than survive. We can thrive.
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Episodes
Ep 76 - Messy and Mindful Moment: Re-Prioritizing for Success
September 20, 2021 16:04 - 8 minutes - 18.7 MBLife is crazy. We never seem to catch up on our to do lists, right? Add in a few kids and BAM nothing is ever without at least an element of chaos! Today I talk about how I handle that and something VERY important I want you to remember! You can always watch the video of this here: http://www.instagram.com/marketlikeamama Go to the IGTV Option. Choose Messy and Mindful Series!
Ep 75 - Chronic Illness and Travel
September 14, 2021 04:30 - 19 minutes - 44.1 MBTravelling has a laundry list of stressful aspects to it. When you add complications and considerations due to chronic illness, it can be exhausting just to make a functional plan. Today I share with you my anxiety, my raw honesty about all my concerns about an upcoming trip. Know you aren't alone my friend.
Ep 74 - Messy and Mindful Moment: Burnout
September 13, 2021 17:13 - 8 minutes - 18.8 MBAs a busy mom, working adult, and especially as a business owner it can be REALLY difficult to shut off our running to do list. It's so important though! Here I give you a few of my tips and a story about one time I needed to listen to my own advice. Find the IGTV video: http://www.instagram.com/marketlikeamama
Ep 73 - Shout Out to YOU for Getting it Done!
September 07, 2021 04:41 - 8 minutes - 19.9 MBFeel like it's been one thing after another, after another, after another, after another and another and another? Man, it's been freaking HARD right now. But my friend. You are getting it done and you're doing an amazing job! Don't believe me? Listen to this episode!
Ep 72 - Messy and Mindful Moment: Practice Makes You More Comfortable
September 06, 2021 16:41 - 9 minutes - 22.7 MBHow many things can you look at in your life right now, today and say - man. I remember how scared I was to start, but look at me now? Maybe it’s cooking and feeling comfortable in the kitchen. Maybe it’s taking up karate as an adult. Maybe it’s launching that business you’ve dreamed of. Whatever it is, sure there are going to be mistakes. There are going to be failures of multiple levels… and of course the more important to you this is, the bigger it is, the more you are going to be afraid ...
Ep 71 - Let's Talk About Sex... Being Touched Out and Resenting Your Partner
August 31, 2021 04:30 - 12 minutes - 27.4 MBAnyone else feel like they just cannot stand anyone else to touch them as their perfect tiny humans climb on you, crawl on you, pull on you and more? Man, it is EXHAUSTING. Then your husband comes up and wants to hug on you and expects you to want to get naked and enjoy it. hahahahaha Right? Well, it is possible. It takes work. Today I talk about the work I did and how it has helped in my relationship with my husband and my overall happiness.
Ep 69 - Messy and Mindful Moment: Boundaries
August 30, 2021 17:38 - 7 minutes - 17.5 MBToday I talk about why it is important to not only set and maintain your own boundaries, but to honor other's boundaries without being upset with them. You can watch the IGTV on this episode at: http://www.instagram.com/marketlikeamama
Ep 69 - Wegener's Vasculitis Series with Emily Kyne
August 26, 2021 04:30 - 1 hour - 168 MBMeet the amazing and fantastic Emily! This woman has been a constant source of inspiration for me for years, and I was BEYOND excited that she said yes to be on this podcast. She shares her journey fighting to stay alive and maintain a high powered finance career while being an amazing wife, step mom AND inspiring others! Emily's Instagram: http://www.instagram.com/eckyne
Ep 68 - Let's Talk About Sex... and Hormones
August 24, 2021 04:30 - 18 minutes - 42.9 MBOkay friend! It's time to get really real. Don't worry, I keep it clean and straight forward. Mostly I talk about hormonal issues and how a few changes made me go from an exhausted... okay, we can have sex if you want but I probably won't orgasm. To trying to jump my husband like when we were first together. Tune in to see what I did to make that change happen. Alisa: here Aviva: here
Ep 67 - Messy and Mindful Moment: Joy in Chaos
August 23, 2021 17:10 - 6 minutes - 14.6 MBToday did NOT go according to plan. Welcome to the Messy and Mindful Moment happening in the MESS! I had a whole plan about what I wanted to talk with you about, and that went out the window when my big girl reminded me that I'm actually doing an awesome job! Here's your Monday morning mindset moment!
Ep 66 - Don't Waste Time Waiting
August 17, 2021 04:30 - 15 minutes - 35.8 MBWomen can have everything. They just can't have it all in the same season. Words I live by. I have had some crazy seasons. Once that stripped me bare to my soul and I had to fight non-stop to get back from. The biggest lesson I have learned is that when your current season comes to an end you feel it deep in your heart. When you feel that - don't wait. Don't pause. Don't worry. JUMP into the next season.
Ep 65 - Mom Boss Series with Trauma Coach Jessica V
August 12, 2021 04:30 - 43 minutes - 99.1 MBMeet the amazing Jessica This badass woman decided she wanted to do better. She wanted to give her daughter more. She wanted to give her a parent that could support her and lift her to her best self, not one that perpetuated the difficult moments. Through her own journey she realized how intensely our own trauma affects our children and found her calling in helping other parents heal and break the cycle. Find Jessica: Instagram here Website here
Ep 64 - Raising Kids to Have a Healthy Relationship with Food
August 10, 2021 04:30 - 16 minutes - 37.8 MBAnyone who has ever been in charge of a child long enough that they had to provide a meal has experienced the struggle. Don't worry. You're doing so much better than you think you are, if you want reassurance and a few pro tips. Today's episode will give you both!
Ep 63 - When the Ceiling Falls In... Literally
August 03, 2021 04:30 - 12 minutes - 28.9 MBIn the hard times, you take a deep breath, and just do the damn thing. Does it absolutely suck? Of course. Do you fall apart and cry in the stress overload? Yep. Do you make it through like the badass champion you are? ABSOLUTELY! If you need a reminder of the warrior you are. This episode is for you!
Ep 62 - Dead Parent's Club
July 27, 2021 04:30 - 23 minutes - 54.2 MBLooking for a raw, vulnerable episode? That's today's episode. Today I share with you about my dad. About losing him, about how it changed me, and about how it's okay to still be broken by a loss; even 20 years later. *WARNING* I cry. My husband literally said, "you were crying so much." As he overheard me recording. But this hard truth is important. I want you to know you are not alone.
Ep 61 - Chronic Illness: Wegener's Vasculitis Series with Cassie May
July 22, 2021 04:30 - 43 minutes - 99.7 MBMeet Cassie! This brave, strong, incredible woman has been fighting for her life since she was a teenager. Dealing with onset of a rare disease well on a mission trip, and all of the extra challenges it added to her life head on. She has come out stronger and more brave, and says, "I have Vasculitis. What's your excuse?" Even through all of that, instead of it making her angry and bitter, she is working to have a career in nursing and help give back to the world. Find Cassie: here
Ep 60 - Abelism in Health Care
July 20, 2021 04:30 - 14 minutes - 32.7 MBI have zero idea on how to take on a system and get changes like staffing made. You have to start somewhere though, and my complaints as well as other's are brushed off and filed away as “responded to.” When it comes to health care, challenges with access to care, doctors who will believe you, and the right medications will literally end up costing people their lives.
Ep 59 - Raising Positive and Grateful Kids
July 13, 2021 04:30 - 20 minutes - 46.9 MBDo you practice gratitude? Are you teaching your children in an intentional way or just leading by example? A few years ago I decided to be very intentional and it has been REALLY paying off. Tune in today to hear what we do, how we do it, and what research we did in our journey. The Whole Brained Child by Dr. Dan Siegel Emotional Intelligence Info: here Gratitude for older kids and teens: here
Ep 58 - Wegener's Vasculitis Series with Sara McDermott
July 08, 2021 05:00 - 1 hour - 150 MBToday I want you to meet Sara! As like so many others I have had the honor to speak to about their journeys with Vasculitis, her story is fully of similarities and major differences. She not only battled this disease, but necratizing facitiis as well! Find Sara at: Instagram: here Website/blog: here
Ep 57 - Don't Be the Person Afraid to Have the Hard Conversations
July 06, 2021 05:00 - 23 minutes - 54.5 MBTalk to one another. Even if it’s uncomfortable. Remember that what you say, no matter how clear you try to be, may be misinterpreted by the receiver, and be prepared to talk it out for clarification. Over communication is better than lack of communication. Always. Warning: I drop one F bomb. You'll understand when you get there.
Ep 56 - The Power of Vulnerability
June 29, 2021 05:00 - 16 minutes - 38.6 MBTo be vulnerable is to be courageous, because vulnerability stands defiantly in the face of fear, accepting the uncertainty of possible attack or and being totally compromised. To refuse or deny your own vulnerability is to close yourself off to life and all of its opportunities out of fear, not strength. Brene Brown TedTalk Gareth Cook's article: here
Ep 55 - Chronic Illness: Lupus with Courtney Smith
June 24, 2021 05:00 - 55 minutes - 127 MBMeet my amazing friend Courtney! This lady has been fighting for a diagnosis and has been left to find her own answers. So she decided to become her own nutritionist and do her own deep dive into her symptoms. She is a true warrior! Find Courtney on: Instagram: here Podcast: here
Ep 54 - Self Confidence and You
June 22, 2021 05:00 - 11 minutes - 26.5 MBWhen was the last time you trusted yourself? Having low self esteem can actually hurt you in more ways than you are aware of. It doesn’t just affect your relationships, and your job, but it can also affect your health. The challenge is that issues with confidence and self esteem are most often deep rooted in our identity from some kind of trauma. Which means the work it takes to even first decide that you DESERVE to be a happy, healthy, confident person can take work. That work needs to ha...
Ep 53 - Summer Survival Tips for Moms
June 15, 2021 04:30 - 11 minutes - 25.3 MBOnce you become a parent, summer can easily go from one of the most magical and exciting times of the year, to one of the most stressful, exhausting and seemingly never ending. Now, I can’t promise if you do these things it won’t ever feel those ways, but it will feel more manageable most of the time. Tune in for tips to make summer more fun for the whole family!
Ep 52 - Mom Boss Series with Alisha Mendez
June 10, 2021 04:30 - 46 minutes - 106 MBMeet the amazing Alisha! From coaching women how to find their inner fire, to chasing kids and encouraging us to find the Magic and Madness in Motherhood, I promise you'll love this awesome Mama as much as I do! Find out how she manages and what she does to be the Expert Hot Mess Mom! Find Alisha: Instagram here Website here
Ep 51 - The Power of Decluttering
June 08, 2021 04:30 - 14 minutes - 32.4 MBClutter! Does the word just stress you out too? Thinking about it stresses me out. Clutter on the floor and I think about all the times someone has tripped over things. Thankfully we haven’t had any major injuries due to it, but we have had several close calls. My kids especially love to leave books on the floor and that totally drives me crazy. I say at least five times a day, “We do not leave books on the floor.” If clutter is stressing you out, tune in! I have tips!
Ep 50 - Just Do the Thing
June 01, 2021 04:30 - 13 minutes - 30.8 MBLet me know if this sounds like you… You come up with an idea. It sits there in the back of your mind and pops back up from time to time. Sometimes you even look things up on how to make it a reality. Maybe you even took the next step of buying a few things to get started. Then those things end up shuffled around your house because they’re just sitting there in the way. At some point you might even put them in an extra closet “until you're ready” as you promise yourself that “someday” this...
Ep 49 - It's Okay to Outgrow Friends
May 25, 2021 05:00 - 15 minutes - 34.8 MBHave you ever felt like it takes work to be friends with someone? Maybe you have to pretend that you like things you don't or you hold back and don't let yourself shine when they're around. In today's episode I talk about how not only NORMAL it is, but how NECESSARY it is to move on from some friends as we ourselves grow.
Ep 48 - How We Keep Our Love Alive
May 18, 2021 06:00 - 16 minutes - 37.9 MBAs the hustle of life becomes overwhelming it can be easy to slip from romantic partners to business partners. There are, of course, hundreds of ways to stay connected and in love with your partner. Today I share a few that my husband and I use. Warning - yes, sex is mentioned!
Ep 47 - Chronic Illness: HSP Vasculitis with Kelly Wasko
May 13, 2021 06:00 - 39 minutes - 91.1 MBToday I talk with the amazing Kelly Wasko. She shares her story about onset of HSP Vasculitis. Traditionally onset is during childhood, but in Kelly's case that's not what happened. Her struggle to be heard, the emotional turmoil of diagnosis, and the strain of medication... she holds nothing back. Follow Kelly on Instagram: here
Ep 46 - The Power of Women Working Together
May 11, 2021 06:00 - 15 minutes - 35.5 MBAs women, we are uniquely qualified to collaborate and change the world together. In today's episode I share with you a few ways that the world is truly a better place when women stand together and help one another shine.
Ep 45 - Can Women "Have it All"?
May 04, 2021 06:00 - 12 minutes - 28.5 MBToday's society is full of pressure. Pressure to do or be or even want what other's tell us. Many times these pressures even contradict one another. No matter how hard we push, it so often feels like we're failing and somehow we need to be able to do just preform better. I found a message a couple of years ago, right after I had my second child, that I repeat to myself. It brings me peace as I navigate trying to "have it all." Hopefully, it will do the same for you.
Ep 44 - Acceptance Not Grace
April 27, 2021 06:00 - 9 minutes - 22.6 MBToday I share with you a revelation I had about how to really work on loving myself. Accepting me for who I am - in the moment. Instead of beating myself up for not being different, and asking for forgiveness and grace. To give credit where credit is due. The idea to think this way in more places in my life than I already was came from Amy Porterfield's Talking Body podcast and her coach Corinne Crabtree. It was a huge WOAH moment for me. Maybe it will be for you too! Amy Poterfield: I...
Ep 43 - I Need a Pump Up. Maybe You Do too!
April 20, 2021 06:00 - 13 minutes - 30.6 MBThis has been a REALLY hard season for me. I thought it might be for you too. So today I'm going to remind both of us of that life is good. Also, I am reminding you of how absolutely freaking AMAZING you are. Really, you are. Listen to this episode and I'll explain how I know. Today... today we focus on your strength, power and joy.
Ep 42 - Mom Boss Series with Monika Larson
April 15, 2021 06:00 - 38 minutes - 88.8 MBMeet the amazing Monika! She got a science degree from UC Davis and the dream job that went with it. Then as life happened it wasn't a great fit any more. As things sometimes happen, the right path found her. Now she helps others find success in a creative and passionate way as she manages Mom life and all the things! You can find Monika on Instagram here
Ep 41 - Health in Your 30s - What You Need to Know
April 13, 2021 06:00 - 31 minutes - 70.9 MBWhen was the last time your doctor ran a lipid panel? Do you know if you ovulate? What's the number 1 killer of women world wide? Wow, what we don't know. Am I right? There are so many things that we should be aware of and I feel like no one told me. I see my doctors more regularly than most because of my illness, and still - no one told me. So today my friend, I am going to tell you four things you need to know right now today. I'm also going to mention several things to keep in mind. ...
Ep 40 - When Doctors Don't Have Answers
April 06, 2021 06:00 - 29 minutes - 68.2 MBFull disclosure: I recorded this at 4:30am when my head was full of frustration and my heart was very heavy. But I needed you to know. You CANNOT give up. You CANNOT stop asking questions. You CANNOT stop fighting. No matter how amazing your medical team is. It's not their life, it's yours. So it's up to you... and that is a heavy burden to carry sometimes. I cried the whole day before I recorded this because of the anger and frustration. It's never easy to fight this fight, because yo...
Ep 39 - Stay at Home Moms are Ambitious, Hard Working and Worthy
March 30, 2021 06:00 - 26 minutes - 60.6 MBDo you stay at home with the kids? Do you go to work? Do you work part time while the kids are in school? Do you work crazy hours and barely see your family? You do what's best for YOU and YOUR FAMILY. Period. No judgements here. The problem is "everyone" has to weigh in and often what they say about Moms is awful, no matter what we do. Today, I'm telling you a little bit about my choice. To be at home... for now.
Ep 38 - Friendship in Your 30s
March 23, 2021 06:00 - 13 minutes - 30.3 MBAre you struggling with making friends? Maybe you have AMAZING friends, but you can't remember the last time you actually saw them in person. If most of your time is spent rescheduling, postponing, and straight up cancelling - I feel you. Friendship as your responsibilities increase is hard. Who has time for a girl's night out when the toddler is going through a growth spurt, and the baby is teething. Maybe it's more between work, volunteering, and whatever other personal commitments you h...
Ep 37 - Chronic Illness Series: ALS with Allie Schmidt
March 18, 2021 06:00 - 55 minutes - 126 MBMeet Allie Schmidt. She was young, too young to have ALS. So she had to fight to be listened to and has had to continue fighting as this disease has changed her life. Mom to a now 1 year old son. She has seen how the world is too slow to make room being adaptive for those outside of the "normal." This prompted her to launch her blog focusing on resources for those living with disabilities. You can find her: Website: Disability Dame Instagram: Disability_Dame
Ep 36 - 1% is All it Takes
March 16, 2021 06:00 - 18 minutes - 42.9 MBEver felt like, man... I am just not making any progress. I'm just drowning. I have this list of dreams and goals, but all I see is a mess. Today I talk about how to help you find your way to progress, and remind you - you ARE making progress. It's not about perfect. It's not about doing it all. It's about making a choice, setting a goal, and taking steps forward. Even if sometimes you make five steps back next.
Ep 35 - Feeling that Extreme Mom Burn Out
March 09, 2021 07:00 - 18 minutes - 41.8 MBIf you've been a Mom for 5 hours or 5 years... or however long, you know what it is to feel overwhelmed as a parent. So many Moms have been talking about how hard it is recently. Today I share with you about one of my worst days as a Mom and want you to know that you ARE NOT ALONE in the hard dark overwhelming time.
Ep 34 - No One Deserves Access to You
March 02, 2021 01:07 - 18 minutes - 42.6 MBDo you ever feel like the social construct of obligation to stay connected with everyone is overwhelming? If you feel like it's too much, if it takes away from your mental, emotional or even physical health it's absolutely the right thing to do to DISCONNECT from them. We forget in today's world of technology that we do not have obligations to ANYONE as far as access to us or to our lives. In today's episode I share more about this and encourage you to take care of yourself first!
Ep 33 - Chronic Illness: Wegener's Vasculitis Series with Jane L. Edwards
February 25, 2021 07:00 - 52 minutes - 119 MBLike so many other rare diseases, Wegener's Vasculitis effects everyone just a bit differently. In today's episode of my Chronic Illness series, author, mother, and friend Jane shares her journey with this difficult and potentially fatal disease. You can find Jane: Instagram: @jane.l.edwards You can find her book here: https://www.amazon.com/Chronic-illness-learning-behind-smile/dp/1075727863
Ep 32 - My Journey with Wegener's Part 2
February 23, 2021 07:00 - 30 minutes - 47.7 MBWegener's Vasculitis - that's what my Rheumatologist told me I had. It wasn't easy to hear, and it was more difficult to live with. In my first episode about my journey (see podcast episode 4 - My Journey with Wegener's Vasculitis Part 1) I shared onset and diagnosis. Today I share with you those next couple of years. The treatments. The side effects. The emotional turmoil. I put on 140lbs in a year. Do I break up with my boyfriend or sentence him to life with someone non-functional? How...
Ep 31 - Chronic Illness: Wegener's Vasculitis Series with Nicole Boynton
February 18, 2021 07:00 - 1 hour - 96 MBToday I talk with my good friend Nicole about her journey with Wegener's. Nicole is a Mom of two girls. She navigated onset of her disease with being a Mom of very tiny (her youngest was 18mo at onset!) humans. She is also a podcaster and entrepreneur. I am once again amazed by the similarities and differences in our journeys. You can find out more about Nicole below: Instagram: @SimplyWholeMoms Podcast: Simply Whole Moms Website: http://www.simplywholemoms.com Nicole has a 4 part ser...
Ep 30 - Chronic Illness: You're Still You... But Not
February 16, 2021 07:00 - 20 minutes - 32.9 MBYou start by not feeling great. Then these random things happen. Before you know it, you can't function like yourself any more. You might get a diagnosis that changes everything... but you're still you. Right? Been there! Today I get really vulnerable in sharing some of my story as well as some universal chronic illness truths that will help you feel less alone.
LET THEM PLAY CA
February 14, 2021 05:05 - 8 minutes - 20.2 MBToday I share the story my sister wrote about my nephew. It is about the emotional toll the pandemic is having on our children. Our children are 10x more likely to die from suicide than from Covid-19. San Francisco has sued their school system over the lockdowns due the dramatic increase in suicide among school aged children there. Please listen. Please share. Please get these children back with their teams and in their classrooms
Ep 29 - Chronic Illness: Wegener's Vasculitis Series with Nikki Bagley
February 11, 2021 18:49 - 45 minutes - 68.2 MBToday my good friend Nikki shares how she first beats cancer and then moves on to what will be her diagnosis of Wegener's. Once again, I am amazed at how similar and yet different each of our journeys are with this disease. You can find her on Instagram: @nicolealison
Ep 28 - Chronic Illness: Understanding Your Chronically Ill Loved One
February 09, 2021 07:00 - 18 minutes - 30.3 MBIt can be really hard for the people around those who are chronically ill to know how to best show up for them. It can also be really hard to know what to say. Today I remind you, you are still the person you have always been. You are the person that people have loved. It won't be easy, but you can do this... and this will help.