Team Vasculitis: Thriving through Life with Chronic Illness
227 episodes - English - Latest episode: 7 months ago - ★★★★★ - 8 ratingsLife with any chronic illness is a lonely struggle. I don’t have to tell you that. That’s why I’m here. I want you to know that you are NOT alone. I want you to feel seen, heard, and supported. Here, we’re in it together. Here, you have someone who understands. Here, I remind you that you are part of a Team… and by supporting one another and collaborating together, we can do more than survive. We can thrive.
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Episodes
Ep 176 - We Need to Be Honest with One Another
March 07, 2023 07:02 - 13 minutes - 12.8 MBAs chronically ill patients we are gaslit all of the time by basically everyone who isn’t also chronically ill. If you’ve been here a while, you know that we need more awareness and understanding. We need to be able to have open conversations about our reality and our care. Today I talk about something affecting me... as a conversation starter and an example of what need to be talking about and how we need to have the space to be honest with one another. Please don't forget to click that...
Ep 175 - What You Need to Know About Living with a Rare Disease
February 28, 2023 07:00 - 10 minutes - 9.86 MBLiving with a rare disease is incredibly challenging. Not only are you fighting your own body, but you're also fighting a medical system not equipped to help you, insurance that cares only about their bottom line, society that will label you many derogatory things, media that never properly represents you and loved ones who don’t know how to show up for you. It’s a HARD thing to negotiate even on the best days. Today I put together a list of 10 things you need to know about living with a...
Ep 174 - Please Don't Assume I'm Miserable because I have a Chronic Illness
February 21, 2023 07:07 - 16 minutes - 15.1 MBWe talk about the dark hard stuff a LOT because it needs to be said. Our silent suffering hurts us more than it helps us in literally every aspect of our lives and our care. The problem with us highlighting this conversation and VERY IMPORTANT aspect of our lives, is that in the lack of understanding in the world the pendulum swings the other way and people end up thinking we are always suffering or if you have a chronic illness you are always in a bad place. This is not accurate. Join...
Ep 173 - Interview with Kay Prokop: Chronic Illness and Fitness
February 16, 2023 07:08 - 48 minutes - 44.2 MBDo you work out? Is it safe? What if you're in a flare? When it comes to our health it can be overwhelming to figure out what's right and what will hurt you. Today Kay and I talk about how she approaches things with her clients and how she handles things herself as she navigates her own health journey. Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email Connect with Kay: Instagram: https://instagra...
Ep 172 - Well Crap... I'm Having a Flare of my Chronic Illness
February 14, 2023 07:06 - 17 minutes - 16 MBWhat I really wanted to share is what this flare has been doing to me mentally and emotionally… because that’s where we need the most support and understanding and it’s where there is the least amount of discussion… You can find all kinds of scientific papers on the increases of dosage. But what it does to us outside of the clinical medical world is rarely talked about… So - here goes… Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamva...
Ep 171 - Interview with Life + Love Coach Ariane Olshansky: Navigating Committed Relationships and Chronic Illness
February 09, 2023 07:03 - 1 hour - 76.6 MBRelationships are SO HARD! Throw in onset of a chronic illness... and WOW. Right? Today I sit down to talk with Life and Relationship Coach Ariane Olshansky about how important understanding your energy is and how to navigate onset or a flare without losing the connection and intimacy. We don't just talk about it from what the patient needs, but also how to allow the partner to process and go through all of the feelings too. This is Part One! We will be discussing Dating when you have a ...
Ep 170 - Rare Disease Awareness
February 07, 2023 07:05 - 16 minutes - 15.2 MBIt's February! Which means it is Rare Disease Awareness Month if you're listening to this in real time! If not - this episode is full of important facts and insight into struggles that Rare Disease patients deal with. From being labled "drug seekers" to no being able to afford travel to appointments or treatments and so much more. Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email
Ep 169 - Interview with Dr. Michelle Arietta DC - Chiropractic Care and Chronic Illness
February 03, 2023 01:10 - 54 minutes - 49.7 MBIntroducing Dr. Michelle Arietta DC! She is a licensed chiroprator and has been helping people achieve their health goals for 20 years. I personally worked with her and saw imporved sleep, less neuropathy in my legs, and so much more! I had a nerve study done and the doctor told me there were signs of regeneration, then asked if I was seeing a chiropractor! In this conversation we cover why chiropractic is so important and why I don't consider it "alternative" at all! Connect with Dr. Mi...
Ep 168 - [PEP TALK] Build a Life You Love with Your Chronic Illness
January 31, 2023 07:02 - 13 minutes - 12.4 MBI get it. Your whole life did a 180 when you got sick. You had to step away from dreams and goals and there is a chance you’ll never get those back. You even see people achieving these incredible levels of health as they get into remission… but you’re not there so you feel this huge range of emotions… sadness, fear, anger, brokenness, resentment and whatever else bubbles up. It can be so demoralizing to see person after person share their story of how they achieved health after diagnosis and...
Ep 167 - A Love Letter to my Chronically Ill Friend
January 24, 2023 07:05 - 9 minutes - 10.6 MBIt seems like right now so many people are struggling in this community. So if you’ve been feeling that way, you aren’t alone. My DMs have been flooded by people sharing stories of everything from physical issues, to emotional issues, to monetary issues, and everything in between. So I thought, what you might need to hear the most is some love and support that doesn’t shy away from the dark or push you into the bright shiny side that you’re not really ready for… Here it is… a love letter...
Ep 166 - Interview with Possible PAN Vasculitis Warrior Danielle Roszkowski-Rayo- A Story of Vaccine Injury
January 19, 2023 14:44 - 54 minutes - 61.8 MBOpen your mind and heart before you listen to this episode! Look, we all know this is a hot topic and can be EXTREMELY devisive. Giving Danielle a platform to speak about what is happening to her, her process, and the harm that comes from complete dismissal is the right thing to do. Her story is real. So as you listen, hear her. Don't put other viewpoints on her. She shares how she went from a happy, healthy human to someone who has been hospitalized multiple times, and has permanant d...
Ep 165 - Imagine Being Loved, Just as You Are - Chronic Illness or Not
January 17, 2023 07:09 - 17 minutes - 15.6 MBThink about what a difference it would make in your life if doctors actually believed you when you shared your symptoms. What if you didn’t have to wait until things got worse and you were in a critical place before they looked at your holistically for a diagnosis? I know people who have permanent hearing damage, kidney damage, lung damage, heart damage and more that was absolutely without any doubt due to a delay in diagnosis. What would the world be like for us, and what effort would be...
Ep 164 -Life with Chronic illness Makes Things Different - NOT LESS
January 10, 2023 07:04 - 12 minutes - 11.8 MBLife is DIFFERENT when you have a chronic illness. Different. Not less. It takes time to see it and it takes time to build it… and it’s true. If you are feeling like life is LESS now... this one is for you my friend! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email
Ep 163 - Chronic Illness Broken Beauty Deserves Acceptance, Not Grace
January 03, 2023 07:00 - 12 minutes - 11.4 MBGrace is a cop out. There, I said it. So what do I suggest instead? ACCEPTANCE. Listen to this episode to bring yourself into your most aligned state on your journey of self love! Join us on Instagram: https://www.instagram.com/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email
TV - Ep 162 - What You Need to Know about the 23 and Me ANCA Vasculitis Rare Disease Study
December 27, 2022 07:00 - 13 minutes - 12.4 MBWhen many people started messaging me with questions and asking for my thoughts on the 23 and Me Research Study on ANCA Vasculitis, I of course took a look. I read everything on their website and had questions. So I emailed them and asked those questions and promised to share them with you. I want to point out these are basics for ANY rare disease research study they will do and in the literature they provided they have worked on a handful of studies with the pharma company GSK that has ...
Ep 161 - Why Functional Medicine is Vital for Chronic Illness
December 20, 2022 16:09 - 13 minutes - 12.4 MBIt is not considered a conventional path to healing, but research shows that functional medicine for chronic illness can help you get to the root cause of the problem. Functional medicine is a type of healthcare that focuses on the whole person and factors such as antecedents, mediators and triggers that have led you to where you are today, which is why it can help to create the conditions for your body to heal naturally. In today's episode I go over why you need a functional practioner on...
Ep 160 - What I've Learned from a Decade of Chronic Illness
December 16, 2022 14:51 - 11 minutes - 10.6 MBI’ve been at this a while and have had the amazing privilege to talk to so many people who have been through their chronic illness journey longer, all of whom I have learned so much from. I have also had the honor to speak to dozens of newly diagnosed people. Which has given me a unique perspective and reminder of how far I have come. You might already know this, but there are some realities and truths we as a group come to. Today I am going to share with you my top seven things I have lea...
Ep 159 - Stop Telling Yourself Lies Just Because You Have a Chronic Illness
December 07, 2022 13:49 - 8 minutes - 20.1 MBWhen someone asks you how things are, you think of the list of things you aren’t doing. You think of the list of things you have “failed” at. Then you end up feeling all kinds of things when people tell you how amazed they are by you. You wonder how they could think that, you know they’re just being nice because you aren’t being amazing… you are FAILING at EVERYTHING. Right? WRONG! Listen to today's episode for the boost you need! Connect with others: http://www.instagram.com/teamvascu...
Ep 158 - What is Team Vasculitis All About? Chronically Ill Friend, I'm Glad You Asked!
November 29, 2022 07:02 - 10 minutes - 23.9 MBWhen I started it was just a feeling and an idea. I switched to posting chronic illness content in November and through November and December thought about what I wanted to build. I thought about Rare Diseases, but honestly it overwhelmed me even though I have a rare disease. Of course rare diseases are welcome here, they are chronic illnesses after all. Just something about it was too much. Then when I decided what it would kind of look like to get started, I fully launched everything in Fe...
Ep 157 - I want to be told Even with my Chronic Illness, I am ENOUGH!
November 22, 2022 07:00 - 7 minutes - 6.94 MBOne of the messages we get from very well meaning people is that we can do anything. They want us to know that we can still live full lives. We can still have dreams and goals. Which is good, we do need the reminder. We also don’t want to be told that we can do anything. In a roundabout way it is saying that we aren’t doing enough. The message is to dream bigger, do more. The message we need the most often is actually what I can do right now is enough. Right now in this moment I am doing e...
Ep 156 - Your Symptoms May Not Be the Same if You're Chronically Ill
November 15, 2022 07:00 - 9 minutes - 20.8 MBI am sure you have had friends get the same flu, or the same cold and mostly they have the same symptoms. Right? People focus on how similar their experiences are. Mainstream wise, it makes sense. A certain set of symptoms is used to create a picture of what a disease is, how it is diagnosed, and then you get treatment based on that assessment. Sometimes the treatment varies depending on severity. When it comes to chronic illness, things aren’t that different. We have symptoms that when pr...
Ep 155 - Don't Worry. We know You're Not Faking Your Chronic Illness
October 25, 2022 05:00 - 10 minutes - 24.3 MBA recent article came out about how the spoonie movement is toxic and we make one another worse, not better. How social media sucks us in and turns our support of one another into obsession that hurts us. So let me start with what a bunch of crap. Total and complete crap. Absolute bull shit. It also very clearly illustrated the ableism of the world around us. So many people just… believe it. Which is INSANE to me. Even before I was personally sick, I could see how there are things we go ...
Ep 154 - Chronic Illness is Misunderstood. Let's Change That.
October 11, 2022 05:04 - 12 minutes - 28.8 MBFrom the perspective of the rest of the world we don’t do enough. We “should” be able to function more or we should be able to get better. BuzzFeed writes articles about how we are choosing this and our amazing community is actually encouraging us to stay sick.... I find this unacceptable. Find out what I plan on doing about it! Listen NOW! Join Our Community: http://www.instagram.com/teamvasculitis Check Out Our Webpage + Join Our Email List: http://teamvasculitis.com
Ep 153 - Big Changes when You're Chronically Ill
September 06, 2022 04:30 - 13 minutes - 29.8 MBSo much has been going on for my family and I. We have had some major life changes and it has been a PROCESS. In this episode I share with you what's been happening and a few things I did to manage it without pushing myself too far. Instagram: http://www.instagram.com/teamvasculitis Website: http://teamvasculitis.com
Ep 152 - EMPOWERED with Kara Kauffman a Manifestation Mentor + Life Coach
August 27, 2022 06:00 - 32 minutes - 74.8 MBWelcome to EMPOWERED A series that brings to you resources to empower yourself to live a full life. Meet Kara! She helps you master manifestation to attract more: Health, Wealth and Love. In this conversation Kara shares about her personal journey with anxiety and how understanding her body gave her the tools to get where she could take on her life and build it with joy and intentionality! Connect with Kara: httpshttps://www.instagram.com/iamkarakauffman Raise Your Vibe Guide: http...
Ep 151 - Chronic Illness Flares Happen and They're NOT Your Fault
August 23, 2022 04:30 - 7 minutes - 17.7 MBEven if you’re doing the best you can. Even if you’re doing all the things to the best of your ability, if your disease is one of the ones that can flare… then at some point it probably will. It’s this cloud following you around ready to shut out the sunshine, and take away the joy. Join us on Instagram: http://www.instagram.com/teamvasculitis PLEASE CONSIDER LEAVING A REVIEW!
Ep 150 - EMPOWERED with Brooklyn Dykins Mindset + Mindfulness Coach
August 20, 2022 04:40 - 33 minutes - 76 MBWelcome to EMPOWERED A series that brings to you resources to empower yourself to live a full life. Meet Brooklyn! She helps you release stress and live with ease through yoga, meditation + breathwork. Our conversation filled me up and delievered so much information I had never heard. You are not going to want to miss this. Connect with Brooklyn: https://www.instagram.com/brooklynb.yoga/ Clarity Call Link: https://calendly.com/brooklynb_yoga/free-clarity-call?month=2022-08 Get a ...
Ep 149 - Ashton Kutcher HAD Vasculitis?
August 16, 2022 04:30 - 14 minutes - 32.4 MBWhen the clip came out where Ashton said he had vasculitis, it sent the community talking. One of the things is excitement that he is advocating, but is he? Another thing was frusteration that he used the past tense of "had." I talk about all of this as well as share some basic vasculitis info in this episode. Ashton's Charity Thorn: https://www.thorn.org/ Team Vasculitis Instagram: http://www.instagram.com/teamvasculitis Vasculitis Community: https://www.facebook.com/groups/88338...
Ep 148 - EMPOWERED with Sarah Hines a Self Empowerment Coach
August 13, 2022 06:00 - 43 minutes - 99.6 MBWelcome to EMPOWERED A series that brings to you resources to empower yourself to live a full life. Meet Sarah Hines! She helps you feel better about yourself, prioritize yourself, learn to set boundaries, enjoy life more, and know your worth is not determined by your size! She is my go to when I need a smile as I am scrolling social media and I know you will love her message as much as I do! Connect with Sarah: https://www.instagram.com/thesarahhines/ Self Love Bingo - A Game to enc...
Ep 147 - Is it Your Chronic Illness or Something Else?
August 09, 2022 05:44 - 10 minutes - 24.9 MBSomething all chroncially ill people struggle with is figuring out if their symptoms are their disease, or if they are something else. In this episode I break down how to figure it out, and why it's very important to learn and understand your body! Join the community: Instagram: https://www.instagram.com/teamvasculitis/ Facebook: https://www.facebook.com/groups/teamvasculitis Join the Email List: https://teamvasculitis.com/team-vasculitis-email
Ep 146 - Of Course You've Changed Since You Became Chronically Ill
August 02, 2022 04:30 - 13 minutes - 31.8 MBOur lives change so dramatically when we become chronically ill. We just don’t have the capacity we used to. Where you might have always been everyone’s go to “yes” person happy to jump in and help or save the day for anyone and everyone you knew, now you have to become someone else and if you are dealing with guilt about it, this episode is for you! Join us at Team Vasculitis on Instagram http://www.instagram.com/teamvasculitis Join the Facebook Community https://www.facebook.com/gr...
Ep - 145 The Mental Health Struggle when You're Chronically Ill is REAL!
July 26, 2022 04:07 - 13 minutes - 31.2 MBSo what exactly does depression do to you? Well, it can affect how you feel, think, and handle daily activities, such as working, sleeping, and handling self-care… I know you’re making the same correlation that I am - wow, that sounds just like my chronic illness! Depression is one of the leading reasons chronically ill patients don't get the care they need. Listen to this episode to find out more! http://www.instagram.com/teamvasculitis http://teamvasculitis.com My 4 step Fullproof ...
Ep 144 - Your Chronic Illness Doesn't Mean You Deserve Less
July 19, 2022 04:30 - 17 minutes - 40.6 MBHow often do you stop yourself from accepting or even going after things you want because of what "might" happen? How often do you let yourself believe that you deserve less because of your illness? I get it, I do it too... and yet, you don't actually deserve less. So let's talk about it! Instagram: http://www.instagram.com/teamvasculitis Join the Team Vasculitis Email List: https://teamvasculitis.com/team-vasculitis-email Never Forget a Question at Your Doctor's Appointment Again: ht...
Ep 143 - Acknowledging that onset of a chronic illness when you're young is different
July 12, 2022 04:30 - 13 minutes - 31 MBI really want to acknowledge that when you’re young and you deal with these diseases it is devastating in a way that, although we can come together in understanding with most who have chronic illnesses, is different for people who have lived a full life cannot understand. Instagram: http://www.instagram.com/teamvasculitis Hack Your Health: https://bit.ly/3c3lz1l
Ep 142 - Chronic Illness Truth No One Tells You
July 05, 2022 04:30 - 12 minutes - 29.1 MBHere’s a hard truth you need to be warned about and no one really does. You aren’t going to be able to fully process what “chronic illness” means when you get your diagnosis. You just aren't. Your brain can’t process forever. The forever you face is different than anything else you have faced in your life. Most of the things in your life you either actively choose to stay in the forever, or you can walk away. Listen to this to find out what no one else is telling you! Join our Community:...
Ep 141 - Vasculitis Interview with IGA Vasculitis Warrior Hannah Thais
June 30, 2022 04:30 - 40 minutes - 92.1 MBMeet Hannah! IgA Vasculitis Warrior. IgA Vasculitis was formerly known as Henoch-Schönlein purpura. Like so many of us she had to fight for people to believe that something was wrong with her. She was young, health conscious, and fit - so how could she be sick, right? She shares her symptoms, journey, and more. Follow Hannah: Tiktok: www.tiktok.com/@hannahthaiss Instagram: www.Instagram.com/Januarymornings Clothing brand: whocaresworld.com Instagram for Who ...
Ep 140 - The Truth About Chronic Illness and Remission
June 28, 2022 04:30 - 13 minutes - 30.8 MBI so badly wanted it to go like this: Get a diagnosis, get the treatment, heal, get in remission, continue on with my life. I think many of us get into that mindset because we don’t know any better. But we need to know the truth. So here it is... Team Vasculitis Instagram: http://www.instagram.com/teamvasculitis
Ep 139 - Get Support for Your Chronic Illness from... ANIMALS
June 21, 2022 04:30 - 8 minutes - 20.5 MBAnimals may be the best way for us to get support mentally and emotionally. There are studies out there that show evidence that having a pet can help reduce your blood pressure and loneliness. Join the Waitlist: https://bit.ly/3sViLcp Sign up for the email list: https://teamvasculitis.com/team-vasculitis-email Connect with the community: http://www.instagram.com/teamvasculitis
Ep 138 - Chronic Illness Survival Tip: Don't Waste Energy
June 14, 2022 04:30 - 10 minutes - 23.3 MBIt has been a long decade since I was diagnosed. It’s been a struggle to make it through all of the things. It’s been heartbreaking and soul shattering, filled with several identity crises. It’s also been joyful and peaceful. It’s given me a perspective that allows me to find more fulfillment than I ever did before. I no longer waste much energy wondering or worrying what most people think of me. Not that I use that to just blast through life, but I use it to allow myself to focus on who and...
Ep 137 - You Deserve to go from Barely Surviving to THRIVING with Chronic Illness
June 07, 2022 04:30 - 9 minutes - 21.6 MBI have spent so much time over the past year thinking about you. Trying to figure out what it is that I can do to provide more support and more value to you. So, what can I do to help you? I kept coming back to that question. How can I do more to help you? What can I create to improve your life? Join the community: Http://www.instagram.com/teamvasculitis Join the Chronic Illness Survival Kit Waitlist: https://bit.ly/3xoVL8f
Ep 136 - How Often Do You Wish You Were Healthy?
May 31, 2022 04:30 - 9 minutes - 21.3 MBOnce you have a chronic illness, every single day you face multiple things that remind you that you are not a “normal” or “healthy” person. Sometimes it’s the medication you have to take. It could be the supplements you have found help your body function. It might be how much planning you have to do just to get through your day, or the things you don’t even try to do because you know what it will cost you. Join the Email List: https://teamvasculitis.com/team-vasculitis-email Join the ...
Ep 135 - Why You Need to Track Your Chronic Illness Symptoms
May 24, 2022 04:30 - 11 minutes - 26.8 MBYou might be missing what is actually going on with your body because you’re so used to it that you may be experiencing sensations that you aren’t registering or conversely, you might be thinking you are experiencing sensations that you actually are NOT feeling. This episode breaks down how you can prevent this issue! Join the Community: http://www.instagram.com/teamvasculitis Check out the website + join the email list: http://teamvasculitis.com
Ep 134 - Vasculitis Interview with Behcet's Disease Warrior August Rocha
May 19, 2022 15:56 - 54 minutes - 126 MBMeet August! This amazing human spends so much of his time spreading not only awareness for the Trans, Asian, and Disabled communities but joy and light too. He has Behcet's Disease and as a Vasculitis warrior he supports others through their process. Connect with August: https://www.instagram.com/withlove_august/ https://www.tiktok.com/@withloveaugust Connect with Team Vasculitis: https://www.instagram.com/teamvasculitis/ https://www.tiktok.com/@teamvasculitis http://teamvascu...
Ep 133 - Let's Talk Chronic Illness and Mental Health
May 17, 2022 04:30 - 10 minutes - 23.3 MBToday we dig into the struggles that all chronically ill people have to face with their mental health. With or without a diagnosis, you face a life change that many around you won't ever understand. You can't meet cultural standards of productivity. You can't show up as a loved one the way you used to. You may not even be able to do any of the things that you used to, and so you face an identity crisis on top of everything else. Join the Community at: http://www.instagram.com/TeamVasculit...
Ep 132 - What You Need to Know About Exercise and Vasculitis
May 10, 2022 04:30 - 10 minutes - 23.6 MBWhen you're struggling to find balance, we often look to all of the different ways you can help your body heal. The messages of how exercise can help are prevalent... for healthy people. The question is, how safe and healthy is exercise for someone with Vasculitis? Listen to get all the must have information! Join others who get it: http://www.instagram.com/teamvasculitis Get all the information and join the newsletter: http://teamvasculitis.com
Ep 131 - Stop Medical Gaslighting by Checking Your After Visit Summary and Notes
May 03, 2022 04:30 - 18 minutes - 43.3 MBTake note of your after visit summaries and your office visit notes. I go into great detail in this episode about my own case because I want to illustrate on how many levels doctors can get your information wrong. I know how difficult it can be when you have serious issues going on to also keep up with these kinds of things. For all the details listen to today’s episode streaming anywhere you listen to podcasts. Link is in bio! If reading is more comfortable for you, check out the blog on ...
Ep 130 - How to Prepare for a Doctors Appointment when You're Chronically Ill
April 26, 2022 04:30 - 8 minutes - 18.6 MBDoctors appointments are overwhelming. You have so many questions, and only one small chance to get them answered. If you prepare ahead of time, you an set up a system that makes sure you your doctor is ready with answers for you, and you are ready to hear them. Instagram: http://www.instagram.com/teamvasculitis Website: http://teamvasculitis.com Patreon: http://www.patreon.com/teamvasculitis
Ep 129 - Chronically Ill or not - Rest is Productive
April 19, 2022 04:30 - 14 minutes - 32 MBThe challenge we have to overcome is that we have spent our entire lives, especially if you live in the United States, being told to do more, be more, aspire to more. Then… you get sick, and you can barely do anything. Depending on where you are in your journey, you may not be able to do much of anything and that’s where our new education on the dark side of hustle culture starts. Connect at: http://www.instagram.com/teamvasculitis Sign up for the Email List at: http://teamvasculit...
Ep 128 - We Need to ELEVATE Patient Voices and the Vasculitis Foundation and the Medical Community Aren't Doing that. So WE NEED TO
April 12, 2022 04:30 - 17 minutes - 38.9 MBWE AS A COMMUNITY should have a voice so the things we need are researched and that’s where groups like the Vasculitis Foundation could increase how they support us exponentially by INCLUDING us. Your thoughts. Your journey. We, as a community, need to know your truth. No matter how THEY see it. From onset due to vaccination. To sexism and ableism from our medical staff. To medical gaslighting and on and on. I have stories, and many of you have shared stories with me, that your medical...
Ep 127 - Moms Supporting Moms. Interview with Chronic Illness Advocate Melinda Martin from Hey Momme
April 07, 2022 04:30 - 31 minutes - 72 MBMeet Melinda!!! Her story is similar to mine - she went through trials as a mom with chronic illness and was raising kids with disabilities. Then she realized there was no support for her - for us. So, she decided to change that by creating it herself!!! I love what she's doing! Her mission and her message are SO important. Follow Melinda at: https://www.instagram.com/heymomme http://www.heymomme.com Follow Team Vasculitis at: https://www.instagram.com/teamvasculitis Support...