Don't Get Lippy artwork

Don't Get Lippy

34 episodes - English - Latest episode: 3 months ago -

Opening up conversation and talking about all things to do with the Cleft Lip and Palate condition from stress in pregnancy to bullying, from surgery to self confidence.

Whether you are cleft affected, a family member or a health professional, this podcast will include personal stories, advice and information to support and empower.

Thanks for joining us!

Medicine Health & Fitness Education cleft cleft lip cleft palate maxillofacial craniofacial mental health bullying cleft lip and palate speech and language perinatal mental health
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Episodes

Your Story: Katie Manning (@cleftwarriorwoman)

February 12, 2024 12:01 - 1 hour - 41.8 MB

Welcome to the first Don't Get Lippy Podcast episode of 2024! We're starting with a 'Your Story' from Katie Manning, who's cleft journey is one to hear! Katie shares her story about her cleft journey and how she got to where she is now. I hope you love this episode as much as I enjoyed interviewing Katie! Katies details: Website: www.katiemanning.co.uk Instagram: @cleftwarriorwoman

5 Year Recap & Personal Episode

November 14, 2023 13:25 - 27 minutes - 18.2 MB

It's been 5 years since Will was born and Don't Get Lippy started, so I wanted to do a recap and personal episode! If you want to know any more about what I have spoken about and you'd like links, let me know! I would love to hear what you think about this episode too!

Your Story: Stav Papaspyrou (@stavpapaspyrou)

October 19, 2023 13:06 - 28 minutes - 17.9 MB

I talked with the lovely Stav about her experience growing up cleft affected in a Greek-Cypriot family. Stav exudes confidence and all round loveliness and I think her story is one that parents of Cleft Affected young people may be interested to hear! Can you count how many times both Stav and I say 'crack on'...! And those were the ones I didn't edit out! Haha! As ever, feedback, follows and shares are greatly appreciated.

Life with a Cleft with Allisha (@allisha.pelletier)

August 24, 2023 13:36 - 30 minutes - 21.8 MB

Thank you to Allisha for joining me for an episode to talk about her journey, career and current mission! Allisha's links and Kick-Starter Fundraiser: Instagram: @allisha.pellitier The H Word Series: @thehwordseries Kick Starter: https://www.kickstarter.com/projects/thehwordseries/the-h-word

Don't Get Lippy Life Update!

May 22, 2023 12:57 - 15 minutes - 11.6 MB

It's been a while! Catch up with me on a 15 minute life update, see where we're at and come back for the next episode soon! @dontgetlippyuk

How is a Cleft Palate Repaired? A Q&A With a UK Cleft Surgeon

February 18, 2023 19:56 - 1 hour - 81.1 MB

I am grateful to have had the opportunity to chat with Mr O'Neill again - this time about Cleft Palate Surgery!  I have tried to ask all of the questions I wish I knew before my son's surgery and with the time we had we went from the very beginning of what is the function of a palate to techniques used during surgery.  I hope this episode will help people who are cleft affected who are intrigued by cleft surgery and what they may have had done, for parents, friends and family to learn more...

How is a Cleft Lip Repaired? A Q&A with a UK Cleft Surgeon

February 08, 2023 20:27 - 1 hour - 64.3 MB

I am SO pleased to finally put this episode up on my Podcast!  I recorded these episodes with Mr O'Neill (who I actually call Dr Tom the whole way through this episode *embarrassed face!*) in 2021.  I asked Mr O'Neill everything from defining a cleft lip, pre-assessments, how surgery is performed to his top tip for cleft parents.  This was an honest, insightful and heartwarming episode - it was more than I could have hoped for. This episode will be perfect for newly diagnosed parents, thos...

How to broach the subject of bullying

February 09, 2022 11:01 - 17 minutes - 14.5 MB

Want some ideas on how to broach the subject of bullying with your young person? Here are my few suggestions to get the ball rolling!  Jen X @dontgetlippyuk

How to talk to your child/young person about their Cleft

January 19, 2022 12:12 - 11 minutes - 9.99 MB

Oh hi, only another month has passed since I last uploaded.. whoops!  This episode follows on from my one in December 2021, so make sure you give that a listen too if you haven't done already!  We know there is only one wrong way to talk to your child about their cleft.. and that is by not doing it at all! The way you can talk to them about it?  Lots of ways!  I have covered some ideas and things to consider on your journey as a parent and caregiver and I hope they help!  Jen XX @dontge...

Should you talk to your child/young person about their Cleft?

December 15, 2021 12:10 - 13 minutes - 11.2 MB

A couple of months ago I did a few polls on my Instagram and asked followers to answer questions around talking to your child/young person about their cleft.  I asked parents and caregivers to answer certain questions and cleft affected individuals to answer others.  The answers gave me some interesting insight from both sides and confirmed my thinking that there is only one wrong way to go about talking to your young person... This is one episode of a few that I will be doing around talkin...

Freebie: Self Worth Soundtrack for people who are Cleft Affected

November 20, 2021 20:03 - 22 minutes - 28 MB

I wanted to follow up on the last episode with a freebie for people who are cleft affected.   Backstory:  I approached a friend of mine who is a hypnotherapist, I explained to her the concept of Don't Get Lippy and what my aims were to support and empower the Cleft Community.  I asked if she would be able to create something for me and after sharing some experiences with her, she created three hypnotherapy scripts - meditation soundtracks if the idea of hypnotherapy is too out there! - and ...

Actions & Recommendations for someone who is being bullied

November 18, 2021 20:51 - 19 minutes - 15.8 MB

If you're cleft affected and being bullied or concerned about bullying, these are my recommendations and actions you could take. I hope this episode helps someone! Jen X @dontgetlippyuk 

My Bullying Experiences

November 15, 2021 14:30 - 17 minutes - 17.6 MB

Two episodes in one day?  You lucky devil! This episode is a look at my personal experiences of being bullied, how that affected me and how I feel bullying should be dealt with.   Any feedback, reviews and shares are gratefully received.  Jen XX @dontgetlippyuk

Anti-Bullying Week 2021

November 15, 2021 11:20 - 3 minutes - 3.04 MB

It's Anti-Bullying Week 2021.  I'll be sharing more about my experiences and how I overcame them, my top tips for people being bullied and parents of cleft affected children who may encounter bullying and how and what they can do to help.

An Introduction to Jen @ Don't Get Lippy

November 07, 2021 14:02 - 27 minutes - 23.3 MB

I've realised I've never introduced my own story on my podcast, so here is a 30 min rambler episode talking about my home life, education and work life - all of which has shaped who and how I am today.   If you have time to rate or review the podcast, I would be so grateful!  Do you have a subject you want me to cover or chat about?  Let me know!  Want to be on the podcast?  Get in touch!  Jen X @dontgetlippyuk

Your Cleft Story: Haley

August 11, 2021 16:00 - 36 minutes - 25.1 MB

Join myself and Haley as we talk through her journey with her beautiful daughter, Cerys, in New Zealand! We talk about thoughts and feelings after diagnosis, Cerys' hearing journey and what is next for her! Resources mentioned: QLD Mouth Music: https://www.childrens.health.qld.gov.au/service-speech-pathology-my-mouth-music/ Miccio Cards:  http://www.speech-language-therapy.com/pdf/miccio4s.pdf Please note: Use links at your discretion.  Don't Get Lippy does not own the rights to the lin...

Don't Get Lippy Global

July 27, 2021 20:00 - 19 minutes - 13.2 MB

This episode gives you an insight into Don't Get Lippy Global! My why, my website and the membership area.... Plus a little offer to you! (Offer ends Friday 30th July 2021). Apologies for another episode of me sniffling away, I aim to be well for the next one! Haha! Thank you, as always! Jen XX www.dontgetlippyglobal.com @dontgetlippyuk @dontgetlippyglobal

Recap 2021!

June 24, 2021 10:00 - 13 minutes - 9.46 MB

Hello Beautiful Listener! Well, I am a terrible podcaster, aren't I?! No active uploads since November 2020.... Apologies.  This episode includes my confession session, what we're currently up to and an intro to Don't Get Lippy Global. As ever, thank you for downloading and listening to these episodes, I'm truly grateful!  You can find more of me here: @dontgetlippyuk & @dontgetlippyglobal Speak soon!  Jen x

Your Cleft Story - Geri

November 06, 2020 19:00 - 30 minutes - 19 MB

I was lucky enough to speak with Geri, a Mum of three who shared her story of her youngest child being born with a cleft lip and palate.  Geri spoke about the diagnosis, how she dealt with explaining to her older children why Arthur would need surgery and gives her advice on those early days.  You can learn more about Geri & The Botten Bunch on Instagram @the.botten.bunch.

Your Cleft Story - Geri

November 06, 2020 19:00 - 30 minutes - 19 MB

I was lucky enough to speak with Geri, a Mum of three who shared her story of her youngest child being born with a cleft lip and palate.  Geri spoke about the diagnosis, how she dealt with explaining to her older children why Arthur would need surgery and gives her advice on those early days.  You can learn more about Geri & The Botten Bunch on Instagram @the.botten.bunch.

Bully Who? E-Book By Iva Ballou of Real Sophisticated Joy

October 04, 2020 04:00 - 15 minutes - 10.2 MB

I sat down and chatted with Miss Iva (Founder and CEO of Real Sophisticated Joy) after she released her E-Book 'Bully Who?'.  A great resource for people who are being bullied, may have been the bully and parents of children that could fall either side of the coin.   Find the E-book at: https://realsophisticatedjoy.com/product/e-book See more of Iva: https://www.instagram.com/realsophisticatedjoy/

Smile Train Episode 1 - Susannah Schaefer (President & CEO)

September 15, 2020 03:00 - 26 minutes - 17.7 MB

A couple of weeks ago, I had the privilege of getting to know Susannah Schaefer (President & CEO of Smile Train), the work she has done with Smile Train, what Smile Train as a global charity is aiming for and a couple of stories of cleft patients she has met during her time with the charity. As much as we are on our own journey here, my family and I support our cleft community in the developing world and are keen to learn more about how we can help.  You can see more of what Smile Train do ...

Life with a Cleft with Cecelia (@cleftglow)

September 01, 2020 10:00 - 35 minutes - 24.1 MB

On this episode, I spoke with Cecelia from @cleftglow.  A cleft affected Mother of three, who's first born son was also born with a cleft lip and palate.  We talk about her travels, how she met her husband, what it was like growing up and how she empowers her son to be confident in his own skin.  Cecelia's energy and how she views the cleft condition is so encouraging.  I really hope you love this chat! 

Your Cleft Story - Audrey

August 04, 2020 16:00 - 37 minutes - 25.9 MB

A mother of two, originally from the Philippines and founder of Huro Kids, Audrey tells me her Cleft journey with her son, Roman.  We talk about ignoring health professional's calls, about the first person she thought of at diagnosis and giving back to the Cleft community with Huro Kids. Found out more about Huro Kids via the website & Audrey's Instagram. 

Life with a Cleft with Iva (@realsophisticatedjoy)

July 25, 2020 13:00 - 31 minutes - 21.2 MB

On this episode, I spoke with Iva Ballou from @realsophisticatedjoy, a cleft affected confidence coach who talks about her experience of bullying, the pivotal moment that helped changed her mindset and how her faith has been a constant through her journey.  I hope you enjoy!  Iva's website:  www.realsophisticatedjoy.com

Your Cleft Story - Alyssa

July 20, 2020 09:00 - 30 minutes - 21 MB

Alyssa is a gorgeous Mum to two wonderful boys, Jack & Jett.  She is our 2 in 1400 Mum, as both boys were born with clefts - although with varying severities and completely different outcomes.  This was such an interesting chat, including Mother's intuition to days that she didn't expect to happen.  TRIGGER WARNING:  Please listen at your discretion - Medical complications & difficult situations discussed during this episode.  You can follow Alyssa on Instagram: @alyssammessick.

Life with a Cleft with Matilda (@barbieinthecitymua)

July 13, 2020 19:00 - 45 minutes - 31.2 MB

I had the opportunity to speak to Matilda to talk about her life after being born with a unilateral cleft lip and palate.  She went from being a 'hating the world' kind of girl to a successful hairdresser and make up artist.  Her attitude is one to learn from.

Your Cleft Story - Julia

April 27, 2020 20:00 - 21 minutes - 14 MB

I had the pleasure of chatting this week with Julia who is based in the USA!  We spoke about her concerns of telling family about her son's cleft diagnosis, the ups and downs of her pregnancy and finding surgeons in LA!

Your Cleft Story - Teresa & Ciaran

March 31, 2020 19:00 - 37 minutes - 24.9 MB

I had wonderful evening chatting with this gorgeous husband and wife duo in Ireland about their situation.  James was born with a unilateral cleft lip and palate and they are currently pregnant with their second baby who has also been diagnosed with a cleft. We talk about their outlook on the cleft condition, Adam Bighill, signs and burgers!  Unfortunately, reception was a little off so please bear with the audio, not to mention my lack of editing knowledge and a quick Irish accent! I wou...

Your Cleft Story - Felicity

March 29, 2020 18:00 - 29 minutes - 20.5 MB

In this episode I talk to Felicity, Mama to Zac, who talks about his cleft diagnosis at 20 weeks, the anticipation around feeding and how she found telling her family about their news. Please bear with the reception on this podcast! From the UK to Jersey we had a bit of trouble throughout the chat but I hope it doesn't pull away from the important story! This podcast is based around the Cleft Lip and Palate condition, for more information on Don't Get Lippy, please visit the website or fi...

Feeding a baby with a Cleft Lip and Palate

March 16, 2020 21:00 - 31 minutes - 21.7 MB

Feeding Will was a massive learning curve for us.  The level of stress is not something I would like to revisit but I think it's important to reflect on that time.   I decided to sit down and just talk through some of the bits I remember from those early days.  On second listen, this chat seemed quite negative and that's because it was so stressful for us. I feel like it is important to acknowledge that there are SO many successful feeding stories out there and this was just our journey. I...

What is a Cleft Lip and Palate

February 22, 2020 17:00 - 19 minutes - 13.2 MB

In this episode, I give my own interpretation of what a Cleft Lip and Palate is! 

Life with a Cleft with Clare

December 30, 2019 16:00 - 59 minutes - 41 MB

Welcome to the Don't Get Lippy Podcast! My name is Jen.  I was born with a bilateral cleft lip and palate.  My son, Will, was also born with the same condition in 2018.  In early 2019 I created Don't Get Lippy, a business to inform and educate, support and empower those who are affected by the condition. In this episode, I chat with Clare, a retired Forensic Psychiatrist (who prefers not to be linked) to find about the type of cleft she was born with, where life has taken her and she off...

Life with a Cleft with Nathan Abbott (@freestyle4smile)

December 30, 2019 16:00 - 49 minutes - 33.7 MB

Welcome to the Don't Get Lippy Podcast! My name is Jen.  I was born with a bilateral cleft lip and palate.  My son, Will, was also born with the same condition in 2018.  In early 2019 I created Don't Get Lippy, a business to inform and educate, support and empower those who are affected by the condition. In this episode, I chat with Nathan Abbott (@freestyle4smile) to find about the type of cleft he was born with, how other people have affected his life and how he hasnow  channelled his ...