Because We Are Strong
123 episodes - English - Latest episode: almost 2 years ago - ★★★★★ - 9 ratingsWelcome to the because we are a strong podcast. A podcast inspired by stories of struggle and strength. A place where you can feel safe enough to share every part of your rare story. The good, the bad, the happy, and anything in between. Many times those in the rare disease community feel isolated from the rest of the world. Rare disease comes with its own set of unique challenges, ones that are hard for the outside world to understand. Through our stories, we can bridge the gap between a lack of knowledge and understanding. Your story has the potential to touch and reach those who can relate and who otherwise feel alone. Together through our struggles, we can show our strength.
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Episodes
INTERVIEW: Manisha The Patient Doctor
June 15, 2021 14:00 - 27 minutes - 19.1 MBWelcome back to another episode of Because We Are strong. This week we are sitting down with Manisha, the Patient Doc and author of Butterflies, Boards and Blessings: A Doctor’s Journey to Thriving with Lupus. The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE ...
INTERVIEW: Felicia Distad & Fight Like a Mama
June 09, 2021 19:00 - 38 minutes - 26.4 MBHey Peeps! Welcome back to another episode of the Because We Are Strong podcast ! Where every week we sit down with chronic illness warriors across the globe in the hopes that sharing their stories will help bridge the gap between rare diseases and the rest of the world. This week we are chatting with Felicia, a Mother, Wife, Book Nerd, Podcaster, Vasculitis Warrior and Chronic Illness Advocate. Through her struggles with her health, she has learned how important it is to keep going, to advo...
INTERVIEW: Chardell & Stronger For Ben
June 02, 2021 13:00 - 36 minutes - 24.9 MBWelcome back for another episode of Because We are Strong. Today we are sitting down with Chardell, a registered dietician and mother of 3. One of Chardell’s children has Phelan-McDermid Syndrome (22q13 deletion). Currently, she is helping special needs parents take better care of their families with healthy eating. Meet Chardell: Chardell Buchanan is a Registered Dietitian and mom to three children, one of whom has Phelan-McDermid Syndrome or 22q13 Deletion. Currently, she is helping spe...
INTERVIEW: Patti M. Hall & Loving Large
May 25, 2021 04:00 - 59 minutes - 41.1 MBThis week we are sitting down with Patti, a writer, book coach, rare disease advocate, and author of loving large, a mother's rare disease memoir. Meet Patti: I'm an author, writing coach, and publishing project manager, and a proud #memoiraholic. I adore non-fiction and especially the memoir and personal narrative genre. I'm an architect of story. I help people design and build books. I love the way that books are constructed — their infrastructure begins from the scaffolding of an outl...
INTERVIEW: Carly Flumer
May 18, 2021 04:00 - 27 minutes - 19 MBThe CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much. Support the show
INTERVIEW: Autumn Prince & UCD
May 13, 2021 04:00 - 19 minutes - 13.3 MBHey Peeps! Welcome back for another episode of Because we are strong! Today we are sitting down with Autumn, who has a rare medical condition called UCD also known as UCD. Autumn is 28 years old and was diagnosed with UCD when she was a young infant. The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/fin...
INTERVIEW: Jason
May 11, 2021 04:00 - 36 minutes - 25.2 MBThe CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much. Support the show
INTERVIEW: Gerry L. & PHN
May 06, 2021 04:00 - 33 minutes - 23.3 MBRARE. WE ARE A BRAND WITH A PURPOSE. Behind every RARE. product is a mission to spread awareness around rare diseases and advocate for those struggling silently with them everyday. We want to make the invisible – visible. And that’s why we created RARE. To Learn More head over to www.findyourrare.com Support the show (https://www.patron.com/findyourrare)
INTERVIEW: Gerry Langan. & PHN
May 06, 2021 04:00 - 34 minutes - 23.9 MBThis week on the BECAUSE WE ARE STRONG PODCAST we featured Gerry a mom and PHN warrior; meet Gerry In 2018, I was diagnosed with Idiopathic Pulmonary Arterial Hypertension. Since diagnosis, I have felt the draw to share my story so that you can find hope and inspiration from it. PH patients and chronic illness patients alike fight battles every day, some in complete silence. I am here to tell you that your story is a great story of battle and I hope I can encourage you every step of the ...
Interview: Jessica Hatch & Hatching For Health
May 04, 2021 04:00 - 36 minutes - 25.4 MBThe CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much. Support the show
INTERVIEW: Melody Olander & But You Don't Look Sick
April 27, 2021 04:00 - 48 minutes - 33.3 MBHi! My name is Melody Olander and I’m the founder of the community and non-profit “But You Don’t Look Sick.” This community started by sharing my own story living with CIDP, POTS and EDS. I hope by sharing my story it helps someone feel less alone. Connect with Melody: Website: www.butudontlooksick.com Insta: @butyoudontlooksickofficial Podcast: Real Talk With Melody The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control...
INTERVIEW: Jenifer Tharani & Growing Up with a Chronic Warrior Mom
April 22, 2021 04:00 - 25 minutes - 17.7 MBJenifer Tharani, MS RD (Registered Dietitian) Jenifer Tharani has completed master’s in human nutrition from Texas State University, San Marcos TX and training in dietetics from Emory University Hospital, Atlanta, GA. She is a member of College of Dietitians of Ontario and registered with the Commission of Dietetic Registration. She is multilingual and fluently speaks second languages like Hindi and has worked in different settings which has given her experience treating people of all ages...
INTERVIEW: Brenna LeVine & Aidan's Journey
April 20, 2021 04:00 - 33 minutes - 23.3 MBThis episode is in loving honor to Aidan John LeVine 2016-2020 Hey Peeps! Welcome back for another episode of Because We are Strong. This week we are sitting down with Brenna. Brenna is the mother of two boys, 1 in heaven and one still here on earth. Brenna's son Aiden had nonverbal autism & dyspraxia who passed away from a rare internal hernia that doesn’t have a name. She is using her voice and platforms to raise awareness for grieving mothers so that no other parent has to go through wha...
INTERVIEW: Sydni Dupre & FA
April 13, 2021 04:00 - 32 minutes - 22.5 MBI am a 20 year old with a rare neuromuscular diesease called Friedreich's Ataxia. I have a tough life being wheelchair bound and lining with this disability, but I am still just a typical young adult who loves makeup and fashion! Please provide any links or notes you would like listed in the show notes of your episode.: TikTok- sydnidupre Instagram- sydnindupre Youtube- Sydni Dupre The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water ...
INTERVIEW: Sydni & FA
April 13, 2021 04:00 - 31 minutes - 21.8 MBI am a 20 year old with a rare neuromuscular diesease called Friedreich's Ataxia. I have a tough life being wheelchair bound and lining with this disability, but I am still just a typical young adult who loves makeup and fashion! Please provide any links or notes you would like listed in the show notes of your episode.: TikTok- sydnidupre Instagram- sydnindupre Youtube- Sydni Dupre RARE. WE ARE A BRAND WITH A PURPOSE. Behind every RARE. product is a mission to spread awareness around rar...
INTERVIEW: Terri Gortner & Batten Disease
March 30, 2021 04:00 - 46 minutes - 32.1 MBHey Peeps ! We're back again for another real and raw episode of Because We are strong. This week we are sitting down with Terri, a mother of two. Her children Claire and Josef both have CLN2 Batten Disease. CLN2 is an inherited disease that is passed down through families that primarily affects the nervous system. Children with CLN2 are born with this condition, however, signs and symptoms typically begin between ages 2 and 4. Connect with Terri @cureforclaire Cureforclaire.com The CUBE ...
INTERVIEW: Terri Gortner & Batten Disease
March 30, 2021 04:00 - 46 minutes - 32.1 MBHey Peeps ! We're back again for another real and raw episode of Because We are strong. This week we are sitting down with Terri, a mother of two. Her children Claire and Josef both have CLN2 Batten Disease. CLN2 is an inherited disease that is passed down through families that primarily affects the nervous system. Children with CLN2 are born with this condition, however, signs and symptoms typically begin between ages 2 and 4. Connect with Terri @cureforclaire Cureforclaire.com The CUBE ...
INTERVIEW: Morgan Villano & Ichthyosis
March 24, 2021 04:00 - 33 minutes - 22.9 MBWe are back for another Because We are Strong episode this week. We are chatting with Morgan, the mother of a rare disease fighter and a mom on a mission to raise awareness about her daughter's condition. Morgans daughter Addison has Lamellar Ichthyosis, a rare genetic skin disorder that is present at birth and occurs in about 1 in 200,000 people. Support Addison & FIRST with these limited edition tees ➡️https://findyourrare.com/collections/rare-aware-apparel/products/we-dont-sweat-it-sh...
INTERVIEW: Morgan Villano & Ichylosis
March 24, 2021 04:00 - 32 minutes - 22.2 MBWe are back for another Because We are Strong episode this week. We are chatting with Morgan, the mother of a rare disease fighter and a mom on a mission to raise awareness about her daughter's condition. Morgans daughter Addison has Lamellar Ichthyosis, a rare genetic skin disorder that is present at birth and occurs in about 1 in 200,000 people. Support Addison & FIRST with these limited edition tees ➡️https://findyourrare.com/collections/rare-aware-apparel/products/we-dont-sweat-it-sh...
BONUS: Avalon Foundation Youth Advisory Board #kc4k
March 11, 2021 05:00 - 21 minutes - 15 MB#KC4K Advisory Board We are committed to being kid driven & lead; while adult monitored & guided. Our youth advisory board is dedicated to creating self-awareness of an individual’s own abilities and power to be able to make a positive impact on the world through the pillars of Leadership, Compassion, Commitment, and Contribution (LCCC). Our program is designed to help our youth develop lifelong leadership skills, cultivate compassion and commitment, teach them to personally contribute to ...
INTERVIEW: Avalon & The Avalon Foundation
March 09, 2021 05:00 - 31 minutes - 21.8 MBThis week on Because We Are Strong we are sitting down with Avalon & Deb the mother-daughter duo who started the Avalon Foundation. _________________________________________________________________________________ Living with a rare disease has shaped who I am and what I am passionate about. It has given me the opportunity to build my own resilience and strength of character while discovering my passion for philanthropy and advocacy. I am inspired by the ability to affect another person...
Chronically Chatty: Jake Mayers & The Worthy Program
March 04, 2021 05:00 - 42 minutes - 29.5 MBThis week on because we are strong we sat down with Jake Mayer a lyme warrior who took his journey and created change for himself and his community. I’ve endured over 13 years of Chronic Illness while living a fulfilled life. Not only have I shown people it’s possible to live life in the face of Lyme Disease, but I’ve dedicated myself to helping them do the same. That’s why I started a coaching business to help people regain control of their life and wellness. People with Chronic Lyme Dise...
Interview: Sarah Krieger & Fritz & Friends
March 03, 2021 15:00 - 29 minutes - 20 MBMeet Sarah and the Krieger Family: On February 9, 2017, our life was turned upside down when our youngest son Fritz, was diagnosed with Duchenne Muscular Dystrophy. As we digested such devastating news, we found ourselves feeling weak and helpless. It was in those dark days of diagnosis, our community came alongside us and gave us strength. We experienced strength like no other, and it involved things like hugs, tears, prayers, hot meals, kind words, special notes; never physical muscle. I...
INTERVIEW: Dr. Michelle Fryan & Relationships
February 23, 2021 13:00 - 42 minutes - 29.2 MBThis week we have a fun lighthearted episode to share with you, but one that is necessary in this community. This week we are sitting down with Dr. Fynan, a licensed mental health counselor with a phd in clinical sexology ! Michelle is passionate about supporting singles in shifting their mindset around dating, sex, and relationships, especially if the disability is present. Meet Dr. Fryan>>I’m a clinical sexologist who is passionate about supporting singles in shifting their mindset aroun...
INTERVIEW: Ella Balasa & Cystic Fibrosis
February 23, 2021 13:00 - 27 minutes - 19 MBElla Balasa is a patient advocate and a person living with cystic fibrosis. Diagnosed at 18 months old, cystic fibrosis (or “CF”) is a life-limiting, invisible, chronic, and rare lung disease. Since early childhood, Ella has had countless hospitalizations to receive intravenous antibiotics to treat the lung infections that are the hallmark of the disease. These infections deteriorate the lung tissue over time, reducing function, and ultimately leading to failure requiring a double lung tra...
INTERVIEW: Nikki McIntosh & Rare Mamas
February 23, 2021 05:00 - 43 minutes - 29.8 MBNikki is immersed in the world of spinal muscular atrophy, rare disease, and special needs and has become a fierce advocate for these communities. Nikki has spearheaded various charitable events reaching families, sponsors, and donors, to raise funds for medical research. She has spoken in front of live groups of hundreds of people to share her family’s story and promote the need for further medical research and funding. Nikki, her son Miles, and the McIntosh family have been interviewed an...
INTERVIEW: Linds K & USP9X
February 20, 2021 05:00 - 23 minutes - 16.6 MBHey peeps were back for another week of Because We are Strong, where through other peoples stories we try to raise awareness and bridge the gap between rare disease & chronic illness and the rest of the world. This week we are sitting down with Lindsay - a mother of 3 year old twins Logan and Luna. Ever since birth her son Logan has had issues and started therapy at 6 months of age. He has several diagnoses as well as a variant of unknown significance on the USP9X gene. We are excited to sit...
INTERVIEW: Marcus, Jane & See Rare Run
February 18, 2021 05:00 - 37 minutes - 26.1 MBOur rare disease story began in 2014 when Marcus was diagnosed with a neurological disease known as Trigeminal Neuralgia. Running has proven to be a positive outlet while we continue to navigate the difficult world of rare diseases. We founded SeeRareRun in 2019 to combine our passion for running with our desire to spread positivity to others in the rare disease community. Links are below: Website: https://www.seerarerun.org/ Direct link to sign up for our race: https://runsignup.com/Race...
INTERVIEW: Ivorie Nicole & Bilateral Renal Agenesis
February 16, 2021 05:00 - 39 minutes - 27.4 MBTonight we are sitting down with a mother who was faced with an incredibly difficult decision and one that didn't come without criticism. When Ivorie Nicole became pregnant with her little girl River she was over the moon. The feeling of excitement and joy quickly halted when she received the news that her daughter had bilateral renal agenesis. Bilateral Renal Agenesis is the absence of both kidneys at birth. It is a genetic disorder characterized by a failure of the kidneys to develop. We h...
INTERVIEW: Oliver Collins & FOP
February 09, 2021 05:00 - 49 minutes - 34.3 MBIn Loving Memory Of Oliver Collins 1993-2021 "A zebra earned his wings; fly free Ollie" Welcome back to another episode of Because We are Strong, where we attempt to bridge the gap between the rare disease and chronic illness community and the rest of the world. Today we are chatting with Oliver, a disability advocate and a 27-year-old lawyer from Australia who hopes to show people that having a disability shouldn’t hold you back from achieving anything you set your mind to. Connect with ...
Minisode: Stephanie Cherry
February 04, 2021 14:00 - 19 minutes - 13.7 MBThis special rare disease day minisode is featuring Stephanie Cherry. My name is Stephanie Cherry and I am a native of Fairfield, Ca. I have two younger sisters, a fiancée, and almost two-year-old son. I’ve been working for the Solano County Sheriff’s Office for approximately 9 years. For the agency, I worked as a Correctional Officer for over 4 years and as a Deputy for going on 5 years. I started writing poetry as a young child which turned into me writing and performing music. My overall...
Minisode: Stephanie Cherry
February 04, 2021 14:00 - 19 minutes - 13.7 MBThis special rare disease day minisode is featuring Stephanie Cherry. My name is Stephanie Cherry and I am a native of Fairfield, Ca. I have two younger sisters, a fiancée, and almost two-year-old son. I’ve been working for the Solano County Sheriff’s Office for approximately 9 years. For the agency, I worked as a Correctional Officer for over 4 years and as a Deputy for going on 5 years. I started writing poetry as a young child which turned into me writing and performing music. My overall...
Those RARE. Girls: Kind Like Lacey Edition
February 03, 2021 19:00 - 17 minutes - 11.8 MBMeet Lacey ! A sister to two siblings with their own unique set of needs and a fierce advocate for rare disease and inclusivity. Lacey uses her voice and her determination to try and make the world a better place for every rare fighter out there. The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourr...
INTERVIEW: Brooke Raasch & PKU
January 26, 2021 05:00 - 44 minutes - 30.3 MBWere sitting down again this week to chat and listen to Brooke's story. Brooke is a mother to two children, one of which has a rare disorder called PKU. PKU is an inherited metabolic disease affecting the brain through increased levels of a substance called phenylalanine (Phe) in the blood. PKU infants in the US are diagnosed in the first few days of life through the federally mandated newborn screening program. This is important because the damage caused by toxic levels of Phe in the first...
INTERVIEW: Jasmin Bridges & Living With Luke
January 22, 2021 19:00 - 44 minutes - 30.7 MBThe CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much. Support the show
INTERVIEW: Veronica and Crohns Disease
January 19, 2021 05:00 - 49 minutes - 33.8 MBHey Peeps ! it's Kristine and I'm flying solo tonight; however, this disease is one that hits both tt and I very deeply. so I am super excited to sit down with veronica. Veronica has been a chronic illness warrior for over 15 years. She has been battling Crohn's disease for 15 years. Crohn’s disease is a type of inflammatory bowel disease. It causes inflammation of your digestive tract, which can lead to abdominal pain, severe diarrhea, fatigue, weight loss, and malnutrition. Crohn’s diseas...
INTERVIEW: Veronica and Crohns Disease
January 19, 2021 05:00 - 49 minutes - 33.8 MBHey Peeps ! it's Kristine and I'm flying solo tonight; however, this disease is one that hits both tt and I very deeply. so I am super excited to sit down with veronica. Veronica has been a chronic illness warrior for over 15 years. She has been battling Crohn's disease for 15 years. Crohn’s disease is a type of inflammatory bowel disease. It causes inflammation of your digestive tract, which can lead to abdominal pain, severe diarrhea, fatigue, weight loss, and malnutrition. Crohn’s diseas...
INTERVIEW: Nicole Riely
January 07, 2021 05:00 - 34 minutes - 23.5 MBThe CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much. Support the show
INTERVIEW: Nicole Riely
January 07, 2021 05:00 - 34 minutes - 23.5 MBThe CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much. Support the show (https://www.patron.com/findyourrare)
INTERVIEW: Taylor Kane & Remember The Girls
January 05, 2021 14:00 - 45 minutes - 31.3 MBTaylor Kane is a 22-year-old rare disease advocate and founder of Remember The Girls, an organization dedicated to women with X-linked disorders. Taylor is passionate about fighting gender bias in healthcare, especially for women with rare conditions. Connect with Taylor: PURCHASE YOUR COPY OF RARE LIKE US! Taylors 2 minute rare disease challenge: https://www.youtube.com/watch?app=desktop&v=5DET6Alw3bA&feature=youtu.be Instagram/Twitter: @rarelikeher / @rarelikeusbooks taylorkane.com ...
INTERVIEW: Autumn Cullen & Whole Story Meals
January 05, 2021 05:00 - 42 minutes - 29 MBHey peeps! Theresa couldn't make it this week so You're stuck with me! Don't get too excited! This week I am sitting down with Autumn who has five children. 4 boys and 1 girl. Her daughter Story Grace is legally blind and deaf and is unable to walk, talk, or eat by mouth. Autumn uses hiking as a way of bonding with her children as well as therapy but she found it difficult to hike as well as bring along everything needed for her daughter. Her daughter is tube fed and the blended food for her...
INTERVIEW: Whitney Guerrero & The Pink Zebra Club
December 29, 2020 05:00 - 1 hour - 52 MBWhitney is a digital marketing and technology consultant and founder of The Pink Zebra Club. She has 3 children who she loves fiercely: a spunky toddler at home and two beautiful children in heaven. When her first daughter Olivia was born with a severe and life-limiting neuromuscular disease, she began speaking openly online about her family’s journey with undiagnosed rare disease, child loss, and living through grief. Since then, she has walked through pregnancy after loss, parenting after ...
Those RARE. Girls: End Of The Beginning
December 26, 2020 05:00 - 31 minutes - 21.5 MBConnect with us: findyourrare.com @findyourrare @largerthanbws @thatrare.girl The CUBE and OOLER systems are two really cool gadgets that fit over the top of your mattress and use water to control the temperature of your bed. Right now Chili is offering my audience a really great deal. When you go to Chilisleep.com/findyourrare20, you can get 20% off the CUBE all sleep systems with findyourrare20. I hope you’ll check out Chili and see why I love their products so much. Support the show
INTERVIEW: Brooke of Babble on Brooke
December 22, 2020 05:00 - 1 hour - 44.9 MBBabbleOnBrooke is an Inspirational Speaker, Biz + Life Coach, and Invisible Disabilities Advocate who combines her entertainment background and 9-year spinal injury recovery journey, "From Hollywood To Housebound To Healing" to empower others. Follow Brooke on any social media, including Instagram, Twitter, Facebook and Tik Tok @BabbleOnBrooke! www.BabbleOnBrooke.com BabbleOnBrooke is an Inspirational Speaker, Biz + Life Coach, and Invisible Disabilities Advocate who combines her entertain...
INTERVIEW: Brooke of Babble on Brooke
December 22, 2020 05:00 - 1 hour - 44.9 MBBabbleOnBrooke is an Inspirational Speaker, Biz + Life Coach, and Invisible Disabilities Advocate who combines her entertainment background and 9-year spinal injury recovery journey, "From Hollywood To Housebound To Healing" to empower others. Follow Brooke on any social media, including Instagram, Twitter, Facebook and Tik Tok @BabbleOnBrooke! www.BabbleOnBrooke.com BabbleOnBrooke is an Inspirational Speaker, Biz + Life Coach, and Invisible Disabilities Advocate who combines her entertain...
INTERVIEW: Pamela Price & We Care When
December 16, 2020 17:00 - 33 minutes - 22.9 MBAbout Pamela Award Show Executive Producer | Journalist | Competitive Athlete | Dance Teacher Mentored by PR/Media mogul Michele Elyzabeth, Pamela Price is the Vice President of LATF USA, a daily lifestyle/entertainment news site, as well as the Executive Producer of the acclaimed annual award show, the Hollywood Beauty Awards, known as the ‘Oscars of Beauty’ and the Daytime Beauty Awards, which celebrates ‘Science behind Beauty.’ From the office to the outdoors, Pamela is a competitive ...
INTERVIEW: Stephanie Stavros & Get Loud CF
December 08, 2020 14:00 - 53 minutes - 37 MBStephanie was born with Cystic Fibrosis, a genetic disease that primarily leads to irreparable damage of the lungs. In spite of the considerable challenges, Stephanie continued her successful career as a designer all while being a devoted wife and loving mother. Unfortunately, CF started to have a greater impact on her life, forcing her to leave her career so that she could focus on her health. Through much introspection and painful self-acceptance, Stephanie made the courageous decision to...
INTERVIEW: Terry & Cure SPG50
December 01, 2020 05:00 - 42 minutes - 29.6 MBSupport the show (https://www.patron.com/findyourrare)
INTERVIEW: Terry Pirovolakis & Cure SPG50
December 01, 2020 05:00 - 45 minutes - 31.3 MBMy name is Terry Pirovolakis and on April 2nd my life changed forever. My son Michael was diagnosed with a terrible neurodegenerative disease that will take away his ability to use his limbs and mind. My goal is to cure my son and as many children as I can of this terrible disease. Connect with Terry: @cure_spg50 on Instagram Help the cause: https://CureSPG50.org https://ca.gofundme.com/f/cure-michael-curespg50-spg50 You can also help our Cure SPG50 by shopping at RARE. and choosing Cur...
Those RARE. Girls: Thankfully RARE.
November 26, 2020 05:00 - 15 minutes - 10.7 MB2020 a year no one could have predicted. One we honestly weren’t sure how to be thankful for. But once we sat down and thought about it we realized despite the ridiculousness of 2020, without it we wouldn’t have accomplished some of what we have. Sometimes it’s important to acknowledge and be thankful for the struggles. After all, they can get you to where you are ultimately headed but it’s okay to acknowledge that it sucks along the way! Happy Thanksgiving and thank you for being here >>...