Latest Vonwillebranddisease Podcast Episodes
World of Promise Rare Disease Day with Dr Ala Stanford March 2023
World of Promise - March 14, 2023 15:02 - 27 minutes ★★★★★ - 15 ratingsDr. Ala Stanford has a long list of accomplishments. She is the first black female pediatric surgeon trained entirely in the United States. She is the founder of the Black Doctors COVID-19 Consortium. She opened the Ala Stanford Center for Health Equity in 2021 to offer primary care and behavio...
Celebrating Rare Disease Day with Jodi Taub
World of Promise - February 16, 2023 19:05 - 22 minutes ★★★★★ - 15 ratingsOn Feb. 28, Rare Disease Day recognizes and celebrates the more than 300 million people around the world living with one of more than 7,000 rare diseases. In honor of Rare Disease Day, the World of Promise podcast hosts a special guest this month. Jodi Taub is a therapist based in New York C...
How Project Healing Waters Serves Veterans and Current Military, an interview with David Folkerts
World of Promise - September 20, 2022 13:00 - 26 minutes ★★★★★ - 15 ratingsProject Healing Waters Fly Fishing is a nonprofit organization whose mission is to use the sport of fly-fishing and associated activities as a means of physical and emotional recovery for disabled veterans and wounded, injured and ill military service members. In 2020, some employees at CSL Behr...
World Hemophilia Day and Expanding Access to Therapies for People with Bleeding Disorders
World of Promise - April 13, 2022 13:18 - 18 minutes ★★★★★ - 15 ratingsMegan Adediran, President of the Hemophilia Foundation of Nigeria and Durhane Wong-Rieger, President and CEO of the Canadian Organization for Rare Disorders, join the podcast to talk about the importance of finding new and innovative ways to expand access to life-saving therapies for people livi...
When’s the Right Time to Tell that Special Someone About Your Rare Disease?
World of Promise - February 25, 2022 19:04 - 13 minutes ★★★★★ - 15 ratingsWhen it comes to dating and starting a new romantic relationship, people who live with rare and serious diseases face some unique questions. When is the right time to tell that special person about my condition? And how do you bring the topic up to a potential romantic partner? On a new episo...
Listen: The Future of Flu Vaccines
World of Promise - December 15, 2021 02:15 - 16 minutes ★★★★★ - 15 ratingsOn a new episode of World of Promise, host Anthony Farina is joined by Stefan Merlo, Vice President of Commercial Development at Seqirus, and Roberta Duncan, the vaccine company's Vice President, mRNA Program Lead, to discuss what’s next in terms of flu vaccine technology. They discuss the poten...
The Importance of Pandemic Preparedness
World of Promise - August 16, 2021 21:53 - 15 minutes ★★★★★ - 15 ratingsCOVID-19 has offered the biotech industry many lessons. Among the lessons that stands out to Lorna Meldrum is the importance of being prepared for both seasonal flu and the potential for a pandemic outbreak. Meldrum is Vice President of Commercial Operations, International Markets and Pandemic...
The Safety of Vaccines
World of Promise - June 24, 2021 17:43 - 9 minutes ★★★★★ - 15 ratingsAmidst the development and rollout of COVID-19 vaccines around the globe, conversations around vaccine safety are at an all-time high. On a new episode of the World of Promise podcast, Gregg Sylvester, Chief Medical Officer and Head of Medical Affairs for leading vaccine producer Seqirus, sits...
How Technology is Changing Vaccines
World of Promise - May 27, 2021 20:01 - 15 minutes ★★★★★ - 15 ratingsInnovation was key to creating effective vaccines in the fight against COVID-19. Now, those innovations are being studied for the creation of leading edge influenza vaccines, explains Ethan Settembre, VP, R&D for Seqirus. He talks about how Seqirus is leveraging existing cell and adjuvant techno...
Adapting to Change: World Hemophilia Day 2021
World of Promise - April 07, 2021 23:28 - 20 minutes ★★★★★ - 15 ratingsThe theme for this year’s World Hemophilia Day on April 17 is “Adapting to Change.” The day raises awareness for hemophilia and other bleeding disorders. This episode features Dr. Glenn Pierce, Vice President, Medical, for the World Federation of Hemophilia and Dr. Roshni Kulkarni, professor and...
Taking Risks, Overcoming Doubts: Two Top Biotech Leaders Share Their Experiences and Offer Career Advice in Honor of Women's History Month
World of Promise - March 29, 2021 19:52 - 21 minutes ★★★★★ - 15 ratingsIn honor of Women's History Month, this episode features two CSL leaders. Karen Neave, Senior Vice President and Chief Risk Officer, and Antje Michel, General Counsel, share their career journeys, the obstacles they've overcome and offer advice for other women working in biotechnology. During th...
The Case for Career Development: CSL's Chief Human Resources Officer Explains Why the Biotechnology Company Wants Employees to Invest in Themselves
World of Promise - March 03, 2021 20:54 - 7 minutes ★★★★★ - 15 ratingsTo thrive in the fast-moving field of biotechnology, embrace learning and career development, Elizabeth Walker, Executive Vice President and Chief Human Resources Officer for CSL, says on a this episode. As head of human resources for one of the world’s largest biotechnology companies, Walker sa...
The Connection Between Influenza and COVID-19
World of Promise - January 28, 2021 20:10 - 18 minutes ★★★★★ - 15 ratingsIn 2020, COVID-19 dominated the headlines and much of the focus for people who work in biotechnology. While the global pandemic continues, there is hope in the vaccines currently being distributed throughout the world. At the same time, seasonal influenza remains a concern. On a new episode of...
What Does Digital Transformation Mean for Rare Disease Patients?
World of Promise - January 05, 2021 21:11 - 18 minutes ★★★★★ - 15 ratingsFor more than 30 years, Mark Hill has worked in the digital technology space for large, global biotech and pharmaceutical companies. Now, he is Chief Digital Information Officer for CSL, the world’s third largest biotechnology company. On a new episode of the “World of Promise” podcast, Mark sit...
Ep. 12 - The Life I Choose w/ Preston Boling, April Driesse and John Christen
BloodStream Journeys - December 14, 2020 20:56 - 27 minutesOur theme this month is “The Life I Choose.” So often, with a chronic condition, it can feel like nothing is within our control. That can be challenging physically, mentally, emotionally. Our stories this month dive into those challenges, as well as the empowerment that comes by taking charge ...
Discussing the Increased Demand for Flu Vaccines in 2020
World of Promise - November 13, 2020 16:08 - 11 minutes ★★★★★ - 15 ratingsOn this episode of "World of Promise," host Anthony Farina interviews Steve Marlow, General Manager of Seqirus, one of the world's leading flu vaccine businesses. Steve also has 20 years of experience in biotech and he talks about the increased demand for flu vaccines during this year's Northern...
Ep. 11 - One Woman’s Journey w/ Nicole Angeles
BloodStream Journeys - November 10, 2020 22:05 - 36 minutesNicole Angeles might be a name some of you recognize. She’s been a contributor here before, and has been very open with her vWD Journey, particularly as it related to becoming a mother. This month we take a deep dive into Nicole’s story, hearing from her at three extremely pivotal points along...
Ep. 10 - Get Back Up w/ Mike Hargett, Sherri Greiner and Steven Riedle
BloodStream Journeys - October 12, 2020 10:00 - 29 minutesThis month’s episode features the stories of community members who have been through the ringer with health and personal challenges, but somehow through it all they were able to listen to that little voice inside that told them to Get Back Up. Program Notes: Want to follow more of our Jo...
Marking International Plasma Awareness Week with CSL Plasma's Willy Pardinas
World of Promise - October 06, 2020 19:52 - 16 minutes ★★★★★ - 15 ratingsThis week is International Plasma Awareness Week, and in honor of the week, Willy Pardinas, General Manager and Vice President of CSL Plasma sits down with “World of Promise” podcast host Anthony Farina to discuss the importance of plasma donation to people around the world living with rare and...
Ep. 9 - Hemophilia: The Zoomsical! w/ Mary Laughlin, Ashleigh Nicole Chapman and Sam Zhang
BloodStream Journeys - September 14, 2020 10:00 - 26 minutesOn July 31st, something happened in the hemophilia community that had never happened before. A group of teens came together to perform a musical about hemophilia on - where does everything in our life happen these days? You guessed it. ZOOM! This month’s episode features the first-hand experie...
Suffering in Silence: Assessing Rare Disease Awareness and Management in Asia-Pacific - A Conversation with Jesse Quigley Jones of the Economist Intelligence Unit
World of Promise - July 21, 2020 22:00 - 22 minutes ★★★★★ - 15 ratingsAround the globe, one of the biggest challenges rare disease patients face is getting a timely and accurate diagnosis of their condition. A new report by the Economist Intelligence Unit – the research and analysis division of the Economist Group and the world leader in business intelligence ...
Ep. 8 - When I Was 12 w/ Malia Jackson, Myles Ganley and Nichelle Stigger
BloodStream Journeys - July 13, 2020 10:00 - 30 minutesEarly adolescence is such a vulnerable and formative time, and the things we go through often shape the way we approach the rest of our life - for better or worse. This month’s episode features 3 stories that are quite varied, but share one strong common thread: a life-changing experience at th...
Ep 40 - TO THE FUTURE w/ Patrick James Lynch
Ask The Expert - A BloodStream Media Podcast - June 29, 2020 06:00 - 55 minutes ★★★★★ - 13 ratingsOur guest for this month is Believe Limited CEO and Bloodstream host, Patrick James Lynch. Ask the Expert is headed in a new direction and Patrick joins us to share what the future will hold for the Bloodstream Media network. Even though this will be the final episode of Ask the Expert, we are e...
Super Bowl MVP Santonio Holmes Discusses His Family's Battle Against Sickle Cell Disease
World of Promise - June 16, 2020 03:25 - 21 minutes - Video ★★★★★ - 15 ratingsSantonio Holmes is remembered for many things by football fans, including his “perfect catch” in Super Bowl XLIII, which earned him that game’s MVP trophy. But after retirement from football, Holmes is still working on building his legacy. He’s doing so through the III & Long Foundation, an o...
Ep. 7 - Moving Forward While Standing Still w/ Trevor Martin, Nicole Angeles and Julian Borjas
BloodStream Journeys - June 08, 2020 10:00 - 33 minutesIn a lot of ways, it feels like the whole world is at a standstill. We can’t make plans, we can’t see loved ones, it’s almost like we’re frozen in place. But this month’s episode is a great reminder of how we can safely move forward while standing still. Our 3 contributors are finding ways forw...
Why We Do Clinical Trials
World of Promise - June 02, 2020 20:11 - 9 minutes ★★★★★ - 15 ratingsOn May 20, people who work in biotechnology celebrated Clinical Trials Day, a day that highlights the important role clinical trials play in developing therapies for our patients. This year, as the COVID-19 pandemic continues to impact people around the world, clinical trials are as important...
Ep. 39 - w/ Dr. Len Valentino (Part 2) - Get to Know the Expert
Ask The Expert - A BloodStream Media Podcast - May 28, 2020 09:30 - 22 minutes ★★★★★ - 13 ratingsJoin us for our “Get to Know the Expert” episode of Ask the Expert! Having the opportunity to know our national leaders in a personal way is an honor and a treat for any community. Join us on today’s episode to get to know CEO the National Hemophilia Foundation, Dr. Len Valentino! We’ll learn ho...
Ep. 39 - w/ Dr. Len Valentino (Part 1) - Become an Expert
Ask The Expert - A BloodStream Media Podcast - May 25, 2020 09:00 - 32 minutes ★★★★★ - 13 ratingsThe National Hemophilia Foundation announced new leadership in Dr. Len Valentino weeks before the COVID-19 outbreak and his unique position to guide our community during this unprecedented time has been welcome. Dr. Valentino joins us on Ask the Expert this month to share a bit of his story and ...
Ep. 6 - Against All Odds w/ Seth Rojhani, Carson McCabe and Brandon Schrom
BloodStream Journeys - May 11, 2020 07:00 - 26 minutesThis month we hear from 3 young men who have accomplished incredible things Against All Odds. Their Journeys from child to young adult have shattered the expectations of what many might think possible, and remind all of us that we’re capable of much more than we may sometimes believe. W...
ATE - Ep. 38 - w/ Sharon Meyers (Part 2) - Get to Know the Expert
Ask The Expert - A BloodStream Media Podcast - April 30, 2020 06:00 - 20 minutes ★★★★★ - 13 ratingsJoin us for our “Get to Know the Expert” episode of Ask the Expert! Having the opportunity to know our national leaders in a personal way is an honor and a treat for any community. Join us on today’s episode to get to know CEO of Hemophilia Federation of America (HFA), Sharon Meyers, as she begi...
Related Vonwillebranddisease Topics
- Hemophilia 3
- Bleedingdisorders 2
- Vwd 2
- Healthcare 2