Latest Ileostomy Podcast Episodes
Accommodations for IBD in College With Sari Grossman
About IBD - March 28, 2023 04:00 - 44 minutes ★★★★★ - 25 ratingsWhat happens when your professional life and your IBD overlap? Sari Grossman is a research scientist, Crohn's disease patient, and advocate for patients with chronic illnesses. She shares her experience with Crohn's disease, including her family history of IBD, diagnosis at a young age, her unus...
Up and Adam: A Patient's Experience on Winning with IBD
About IBD - March 14, 2023 05:00 - 29 minutes ★★★★★ - 25 ratingsIs it possible for kids to look at their touchpoints with medical care as empowering experiences? Adam Finkelstein, a medical student and author, shared his experiences of living with IBD from a young age, and how he coped with surgeries and doctor's appointments as a child. Adam provides tips f...
Living with IBD: How Caitlin McGinnis, LCSW Supports Mental Health
About IBD - February 28, 2023 05:00 - 28 minutes ★★★★★ - 25 ratingsCaitlin McGinnis, LCSW was diagnosed with ulcerative colitis at the age of 22 and had her entire colon removed. This experience prompted her to become a social worker and specialize in providing mental health support for patients with various digestive health issues. Through her own experiences ...
CDPATH: A Prognostic Tool for Crohn's Disease
About IBD - February 14, 2023 05:00 - 26 minutes ★★★★★ - 25 ratingsAre we getting close to predicting how Crohn's disease might change over time? Dr. Corey Siegel, co-director of the Inflammatory Bowel Disease Center at the Dartmouth Hitchcock Medical Center in Lebanon, New Hampshire, and Jessica Caron, a patient key opinion leader who lives with Crohn's, discu...
The Plant-Based Crohn’s and Colitis Cookbook
About IBD - January 31, 2023 05:00 - 37 minutes ★★★★★ - 25 ratingsFor years we were told that diet doesn’t matter in inflammatory bowel disease (IBD). We know now that diet is important in IBD. What’s still not clear is how we should be thinking about it in terms of management. Helena Murphy is a photographer, yoga teacher, and Crohn’s disease patient who brou...
Pelvic Health With Amanda Olson, DPT, PRPC
About IBD - January 24, 2023 05:00 - 28 minutes ★★★★★ - 25 ratingsCaring for pelvic health is important for people of all genders who live with an inflammatory bowel disease (Crohn’s disease or ulcerative colitis). Dr. Amanda Olson, who holds a doctorate in physical therapy and is the President and Chief Clinical Officer for Intimate Rose, has dedicated her pr...
Amber's Year in Books 2022
About IBD - December 26, 2022 13:01 - 25 minutes ★★★★★ - 25 ratingsWhat did you read over the past year? If you made a reading goal: did you hit it? The books I read this year ranged from self-help to true crime to science fiction. Hear more about some of the books I enjoyed in 2022 (and in the year after I was diagnosed with ulcerative colitis) and if you’ll w...
Recovering from Medical Catatonia
About IBD - December 13, 2022 05:00 - 37 minutes ★★★★★ - 25 ratingsFor some people living with Crohn’s disease or ulcerative colitis, the disease puts roadblocks in the way when it comes to going to school, having a career, and participating in sports. For Lauren Thibodeau, a diagnosis of ulcerative colitis led to a complication of medical catatonia, which dera...
Understanding Resilience With Mara Shapiro
About IBD - November 21, 2022 01:02 - 35 minutes ★★★★★ - 25 ratingsDoes living with Crohn’s disease or ulcerative colitis make a person more resilient? And is resilience something that should be a part of management plan for people with inflammatory bowel disease (IBD) or other chronic illnesses? Mara Shapiro, healthcare journalist and Crohn’s disease patient, ...
Serving in the Navy With Crohn’s Disease, With Daniel Rausa, DO
About IBD - November 08, 2022 05:00 - 27 minutes ★★★★★ - 25 ratingsWhen it comes to people with Crohn’s disease or ulcerative colitis serving in the military, the usual policy is that the two things are incompatible. The reason being that people living with an inflammatory bowel disease (IBD) need care and treatments that are incompatible with being deployed. H...
To J-pouch or not to J-pouch?
Ostomingle The Podcast - October 03, 2022 11:00 - 39 minutesWe're joined by Jess Mann and Adam Keam in this episode to discuss all things J-pouch, the good, the bad and the ugly. Having had two different experiences, we chat about the positives and negatives of living with a J-pouch, as well as a few unexpected occurrences! Have a question for us or a t...
Pregnancy with a stoma
Ostomingle The Podcast - October 03, 2022 11:00 - 33 minutesThinking about growing your family in the future? Currently pregnant? We're joined by Krystal Miller to discuss her 3 stoma pregnancy experiences and give a heavily pregnant Renee her tips and tricks! Have a question for us or a topic you want us to discuss? Get in touch and follow us on Instag...
Stomas of all shapes and sizes
Ostomingle The Podcast - October 03, 2022 11:00 - 24 minutesWelcome to our first episode! Stomal Therapy Nurse and fellow ostomate Sam Abarca joins us today to teach us about all the different types of ostomies and the different circumstances that lead to stoma surgeries. You’ll also get to know your hosts as we share a little about our own journey’s to ...
Support Systems- parents, siblings, friends, partners and strangers
Ostomingle The Podcast - October 03, 2022 08:00 - 30 minutesThis special episode shines a light on the people who make up our support systems, whether mothers and fathers, siblings, partners or friends; having a strong support system is vital in all walks of life- but when someone is chronically ill or suffering, who is supporting your supporters? Have ...
Bags Bags Plugs and Tapes
Ostomingle The Podcast - September 05, 2022 09:00 - 36 minutesRenee and Jess are joined by Coloplast Ostomy supply representative Bernadette in this episode to learn about finding the right product for your particular stoma and the different styles available. Have a question for us or a topic you want us to discuss? Get in touch and follow us on Instagram...
Recovering and Starting to Exercise with your stoma
Ostomingle The Podcast - September 05, 2022 09:00 - 22 minutesSo you've got your stoma, now the fun begins! Getting moving post-op can be challenging but it's so important to improving the quality of your life moving forward! Join us as we talk about the recovery period and getting your abdominals working again! Have a question for us or a topic you want ...
Mental health
Ostomingle The Podcast - September 05, 2022 09:00 - 35 minutesMental health is a huge topic to tackle and one that is so important for estimates and us all! Join Renee and Jess as they discuss their mental health journeys and the ups and downs they faced pre and post surgery. If anything in today's episode effects you, please reach out to your family, fri...
Tips, Tricks and Stoma Hacks
Ostomingle The Podcast - September 05, 2022 09:00 - 25 minutesWe talk about all the stoma supplies, tips and tricks that we, and ostomates around the world swear by! Tune in for a few of our favourite precast and for a very special announcement by our sponsor Ability Adaptive Wear on their new product launching soon! Have a question for us or a topic you...
Welcome to Ostomingle the Podcast
Ostomingle The Podcast - September 03, 2022 12:00 - 35 secondsJoin Renee and Jess, two young estimates as they delve into all things Ostomy from surgery to love and travel. Ostomingle the Podcast asks all the questions you want to know to special guests and gets the inside scoop on living life as an ostomate. Have a question for us or a topic you want us ...
The Shit People Have Said
Ostomingle The Podcast - September 03, 2022 12:00 - 26 minutesWe asked you all to share the conversations you've had with strangers or family and friends about your stomas and we got the good, the bad and the ugly! Tune in for some incredible stories as we continue to conversation on medical education with the greater community! Have a question for us or ...
IBD and Biomarkers: What You Need to Know With Andres Hurtado-Lorenzo, PhD
About IBD - July 11, 2022 04:00 - 29 minutes ★★★★★ - 25 ratingsWhat if we knew which patients would have severe Crohn’s disease or ulcerative colitis? And which wouldn’t? How about if we could tell which drug would work best in which patient? Knowing these things would change how inflammatory bowel disease (IBD) is diagnosed and treated. Plus, more importan...
Don’t Google Your Symptoms With CJ Papuro
About IBD - June 27, 2022 04:00 - 32 minutes ★★★★★ - 25 ratingsThere aren’t as many men who are vocal in the inflammatory bowel disease (IBD) space as there are women. Crohn’s disease and ulcerative colitis affect men as often as they do women, but fewer men seem comfortable being public about their disease. That’s why Carlos “CJ" Cabrera, who also go...
The Restroom Access Act
About IBD - June 19, 2022 04:00 - 30 minutes ★★★★★ - 25 ratingsHave you ever been out in public and needed a toilet — but there wasn’t one available? This has happened to everyone who lives with an inflammatory bowel disease (IBD, Crohn’s disease or ulcerative colitis), which is why so many of us have “bathroom accident” stories. Needing to use the bathro...
Cannabis and IBD
About IBD - June 06, 2022 04:00 - 48 minutes ★★★★★ - 25 ratingsThere are significant unmet needs for IBD patients that include pain control, sleep disturbances, anxiety, and depression. Some patients turn to medical cannabis for these symptoms. But is that a good idea, does it work, and what should patients and their doctors know about medical cannabis? To ...
How Physical Therapy Can Help People With IBD
About IBD - May 23, 2022 04:00 - 37 minutes ★★★★★ - 25 ratingsWhen you think of Crohn’s disease or ulcerative colitis, you might not think of physical therapy. But physical therapy and pelvic floor therapy can be integral to helping with function, pain, and having better bowel movements. To learn more, I connected with Nancy Cullinane, who is a Board-Certi...
How to Be Happy & Healthy With IBD: The Psychosocial Impact of IBD
About IBD - May 16, 2022 04:00 - 34 minutes ★★★★★ - 25 ratingsThere are tools available to address the psychosocial impact of inflammatory bowel disease (IBD). Learn what’s available to you from Dr Jessica Naftaly, a GI behavioral health fellow at the University of Michigan and Amy Bugwadia, higher education coordinator for Generation Patient, Teaching Ass...
How to Be Happy & Healthy With IBD: Reducing the Day-to-Day Burden
About IBD - May 02, 2022 04:00 - 35 minutes ★★★★★ - 25 ratingsWhether in remission or not, the day-to-day of life with IBD can be challenging. Living with Crohn’s disease or ulcerative colitis, even when feeling well, might mean making lifestyle changes, going to doctor’s appointments, and taking medications. Many people are diagnosed young, at a time when...
How to Be Happy & Healthy With IBD: Common Misconceptions About IBD
About IBD - April 18, 2022 04:00 - 39 minutes ★★★★★ - 25 ratingsMyths and misconceptions about IBD are common. Even amongst patients, there’s things that take time and education to understand because the things that swirl around in the public consciousness are not always true. To help understand why we can’t get rid of some of these common misconceptions, Am...
How to Be Happy & Healthy With IBD: Tips for Navigating Health Insurance
About IBD - April 04, 2022 04:00 - 41 minutes ★★★★★ - 25 ratingsPeople who live with chronic illness don’t get training on how to deal with health insurance. Yet it is a major part of living with conditions such as Crohn’s disease or ulcerative colitis. Plus, it not only affects patients living with IBD, but our doctors and other healthcare providers are als...
How to Be Happy & Healthy With IBD: Discussing IBD With Family and Friends
About IBD - March 21, 2022 04:00 - 42 minutes ★★★★★ - 25 ratingsPeople who live with Crohn’s disease or ulcerative colitis don’t want to feel like a burden. They may feel guilty about changing or canceling plans. Sometimes, people with IBD may not even want to make plans in the first place. A strong support system can help overcome these issues and help pati...