Latest Htcs Podcast Episodes
Ep. 18: Career Counselor Episode - w/ Don Molter - August 27, 2018
Ask The Expert - A BloodStream Media Podcast - August 27, 2018 05:55 - 38 minutes ★★★★★ - 13 ratingsSummer is already coming to a close and for many families that means their kids are heading back to school or off to college. It’s an exciting time, but what if you aren’t ready for college or you don’t feel like that’s the right path for you? How do you go about finding a career that fits your ...
Ep. 17: Mental Health - w/ Debbie de la Riva - July 23, 2018
Ask The Expert - A BloodStream Media Podcast - July 23, 2018 07:23 - 1 hour ★★★★★ - 13 ratingsMental illness in the bleeding disorders community is a challenging topic to discuss, but given that approximately one-third of people with a chronic illness experience symptoms of depression, it’s clearly a topic in need of more attention. This month’s guest is Debbie de le Riva, community advo...
Ep. 16: Nutrition - w/ Tracy Mann - June 25, 2018
Ask The Expert - A BloodStream Media Podcast - June 25, 2018 07:11 - 31 minutes ★★★★★ - 13 ratingsOne of the easiest ways to keep our bodies healthy on a day to day basis is by eating well, but it’s also one of the hardest commitments to make. After a long hard day of work or school, it’s so easy to swing into a fast food restaurant or pop in a frozen pizza, even when we know we should go fo...
Ep. 15: Adoption - w/ Shari Luckey - May 28, 2018
Ask The Expert - A BloodStream Media Podcast - May 27, 2018 07:15 - 34 minutes ★★★★★ - 13 ratingsIn many developing countries, children that are born with chronic medical conditions are placed in orphanages. With limited hope for care in these situations one of the best hopes for these children is to be adopted. In this month’s Ask The Expert episode, we visit with Shari Luckey, the Adoptio...
Ep. 14: Physical Therapy Episode - w/ Sharon Funk - April 22, 2018
Ask The Expert - A BloodStream Media Podcast - April 22, 2018 18:20 - 44 minutes ★★★★★ - 13 ratingsThere are many different healthcare providers that make up the the comprehensive care model at hemophilia treatment centers around the United States and much of the developed world. Physicians, nurses, social workers, physical therapists and many other healthcare professionals are all crucial te...
Ep. 13: Gene Therapy Episode - w/ Dr. Marilyn Manco-Johnson - March 26, 2018
Ask The Expert - A BloodStream Media Podcast - March 26, 2018 05:14 - 31 minutes ★★★★★ - 13 ratingsThe concept of gene therapy has been floating around the hemophilia community for decades, but with recent success in clinical trials, we appear to be getting closer to having an FDA approved treatment. In this episode, we focus on understanding terminology and types of gene therapy, potential b...
Ep. 12: Community Advocates - w/ Rich Pezzillo - February 26, 2018
Ask The Expert - A BloodStream Media Podcast - February 25, 2018 04:47 - 37 minutes ★★★★★ - 13 ratingsAdvocacy has long been a hot topic in the bleeding disorders community, but beyond office visits with state and federal legislators, what does it actually entail? If you have ever wondered about how you can become or grow as an advocate, this episode is for you! In this month’s episode of the ...
Ep. 11: Inhibitors and New Therapies - w/ Dr. Guy Young - January 22, 2018
Ask The Expert - A BloodStream Media Podcast - January 21, 2018 17:00 - 44 minutes ★★★★★ - 13 ratingsThe management of inhibitors continues to be one of the greatest challenges facing researchers, clinicians, and patients with hemophilia. Thankfully we seem to have taken a giant step forward vis-a-vie the introduction of Hemlibra, the first and only subcutaneous treatment option for patients of...
Ep. 10: Across The Globe - w/ Laurie Kelley - December 25, 2017
Ask The Expert - A BloodStream Media Podcast - December 25, 2017 11:33 - 41 minutes ★★★★★ - 13 ratingsFor the last 27 years, Laurie Kelley has dedicated herself to educating and improving the lives of families impacted by hemophilia, hemophilia and inhibitors, and von willebrand disease, both here in the United States and internationally throughout the developing world. So as we say goodbye to 2...
Ep. 9: The Great Outdoors- w/ Pat Torrey - November 27, 2017
Ask The Expert - A BloodStream Media Podcast - November 27, 2017 06:38 - 37 minutes ★★★★★ - 13 ratings“I can’t do that.” “That’s not for me.” “I’m not able to do that.” Thinking about the outdoors and outdoor activities can be intimidating for people living with a bleeding disorder. But should they be? Are the outdoors and experiential education in the outdoors really off-limits to people with...
Ep. 8: Preparing for the Holidays - w/ Eric Iglewski - October 23, 2017
Ask The Expert - A BloodStream Media Podcast - October 23, 2017 22:50 - 31 minutes ★★★★★ - 13 ratingsFood, family, food, travel, more food, money, more food still- the holidays can be a really stressful time! On this episode, social worker Eric Iglewski from the Mary M. Gooley Hemophilia Center in Rochester, New York joins Ask The Expert to talk through important considerations for people with ...
Ep. 7: Aging with Hemophilia- w/ Randy Curtis - September 25, 2017
Ask The Expert - A BloodStream Media Podcast - September 25, 2017 10:28 - 22 minutes ★★★★★ - 13 ratingsIn this episode Randy Curtis, the Hemophilia Council of California’s Board President and longtime community activist, joins Ask The Expert to answer questions on aging with hemophilia, and the how he and peers in the Baby Boomer and Generation-X populations view this historic point in treatment ...
Ep. 6: Back to School - w/ Carrie Koenig - August 28, 2017
Ask The Expert - A BloodStream Media Podcast - August 27, 2017 23:01 - 37 minutes ★★★★★ - 13 ratingsIn this episode Carrie Koenig, the Hemophilia Federation of America’s (HFA) Families Program Manager, identifies the most important considerations for parents and families preparing for back-to-school season. What should parents of children with bleeding disorders be thinking about? What resourc...
Ep. 5: ISTH Recap - w/ Dr. Steven Pipe - July 24, 2017
Ask The Expert - A BloodStream Media Podcast - July 24, 2017 04:55 - 38 minutes ★★★★★ - 13 ratingsIn this episode, Dr. Steven Pipe, a pediatric hematologist out of the University of Michigan who is also the chair of the National Hemophilia Foundation’s Medical and Scientific Advisory Council (MASAC) discusses the major takeaways from the International Society of Thrombosis and Hemostasis’ (I...
Ep. 4: Healthcare Legislation and Advocacy - w/ Katie Verb - June 27, 2017
Ask The Expert - A BloodStream Media Podcast - June 27, 2017 18:49 - 36 minutes ★★★★★ - 13 ratingsIn this episode, Katie Verb, the Director of Policy and Government Relations for the Hemophilia Federation of America, answers questions on health care legislation, advocacy, and the extraordinarily-troubling Better Care Reconciliation Act (BCRA) that has been drafted by Senate Republicans in an...
Ep. 3: Women with Bleeding Disorders - w/ Dr. Robert Sidonio - May 22, 2017
Ask The Expert - A BloodStream Media Podcast - May 21, 2017 23:59 - 41 minutes ★★★★★ - 13 ratingsIn this episode Dr. Robert Sidonio, an Assistant Clinical Professor of Pediatrics at Emory University Hospital and the Clinical Director of Hemostasis/Thrombosis at the Children’s Hospital of Atlanta, answers questions on and about women with bleeding disorders. Dr. Sidonio is a leading expert i...
Ep. 2: Questions for your Pediatric Hematologist Part 2 - w/ Dr. Arash Mahajerin - February 27, 2017
Ask The Expert - A BloodStream Media Podcast - February 27, 2017 17:52 - 40 minutes ★★★★★ - 13 ratingsIn this episode, pediatric hematologist Dr. Arash Mahajerin is back to answer listener-submitted questions on the future of portacaths for kids with hemophilia, what to do when mysterious bruising or joint pain begins to show, and marijuana- is it a legitimate form of medication, or not? His ans...
Ep. 1: Questions for your Pediatric Hematologist - w/ Dr. Arash Mahajerin - January 30th, 2017
Ask The Expert - A BloodStream Media Podcast - January 30, 2017 02:59 - 37 minutes ★★★★★ - 13 ratingsIn this - our first! - episode, Dr. Arash Mahajerin, a pediatric hematologist at the Children's Hospital of Orange County (California) and Assistant Clinical Professor at the University of California, Irvine, answers listener-submitted questions about all things bleeding disorders in the first e...
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