Latest Htcs Podcast Episodes

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Ep 40 - TO THE FUTURE w/ Patrick James Lynch

Ask The Expert - A BloodStream Media Podcast - June 29, 2020 06:00 - 55 minutes ★★★★★ - 13 ratings
Our guest for this month is Believe Limited CEO and Bloodstream host, Patrick James Lynch. Ask the Expert is headed in a new direction and Patrick joins us to share what the future will hold for the Bloodstream Media network. Even though this will be the final episode of Ask the Expert, we are e...

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Ep. 39 - w/ Dr. Len Valentino (Part 2) - Get to Know the Expert

Ask The Expert - A BloodStream Media Podcast - May 28, 2020 09:30 - 22 minutes ★★★★★ - 13 ratings
Join us for our “Get to Know the Expert” episode of Ask the Expert! Having the opportunity to know our national leaders in a personal way is an honor and a treat for any community. Join us on today’s episode to get to know CEO the National Hemophilia Foundation, Dr. Len Valentino! We’ll learn ho...

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Ep. 39 - w/ Dr. Len Valentino (Part 1) - Become an Expert

Ask The Expert - A BloodStream Media Podcast - May 25, 2020 09:00 - 32 minutes ★★★★★ - 13 ratings
The National Hemophilia Foundation announced new leadership in Dr. Len Valentino weeks before the COVID-19 outbreak and his unique position to guide our community during this unprecedented time has been welcome. Dr. Valentino joins us on Ask the Expert this month to share a bit of his story and ...

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ATE - Ep. 38 - w/ Sharon Meyers (Part 2) - Get to Know the Expert

Ask The Expert - A BloodStream Media Podcast - April 30, 2020 06:00 - 20 minutes ★★★★★ - 13 ratings
Join us for our “Get to Know the Expert” episode of Ask the Expert! Having the opportunity to know our national leaders in a personal way is an honor and a treat for any community. Join us on today’s episode to get to know CEO of Hemophilia Federation of America (HFA), Sharon Meyers, as she begi...

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ATE - Ep. 38 - w/ Sharon Meyers, HFA (Part 1) - Become an Expert

Ask The Expert - A BloodStream Media Podcast - April 27, 2020 06:00 - 37 minutes ★★★★★ - 13 ratings
During this period of unprecedented turmoil and uncertainty, the bleeding disorder community has found comfort in the Hemophilia Federation of America’s (HFA) messaging and voice. Newly-minted CEO of HFA, Sharon Meyers, joins us to share the behind the scenes work HFA has done to prepare stateme...

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ATE - Ep. 36 - w/ Brian Ragaishis (Part 2) - Get to Know the Expert

Ask The Expert - A BloodStream Media Podcast - March 26, 2020 05:41 - 19 minutes ★★★★★ - 13 ratings
Join us for our “Get to Know the Expert” episode featuring Brian Ragaishis! Brian is a teenager with vWD who created the website Live Smart, Play Smart, a community where other teens affected by bleeding disorders can share their story. In today’s episode, we hear about what it was like for Bria...

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ATE - Ep. 37 - w/ Brian Ragaishis (Part 2) - Get to Know the Expert

Ask The Expert - A BloodStream Media Podcast - March 26, 2020 05:41 - 19 minutes ★★★★★ - 13 ratings
Join us for our “Get to Know the Expert” episode featuring Brian Ragaishis! Brian is a teenager with vWD who created the website Live Smart, Play Smart, a community where other teens affected by bleeding disorders can share their story. In today’s episode, we hear about what it was like for Bria...

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ATE - Ep. 37 - w/ Brian Ragaishis- Live Smart, Play Smart

Ask The Expert - A BloodStream Media Podcast - March 23, 2020 06:00 - 24 minutes ★★★★★ - 13 ratings
So much of our community programming and education is focused around teenagers and yet oftentimes our teenagers seem like mysteries to us. What is it like being a teen with a bleeding disorder and what would make their lives easier? To celebrate Bleeding Disorders Awareness Month we asked teen, ...

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ATE - Ep. 36 - w/ Dr. Jonathan Roberts (Part 2) - Get to Know the Expert

Ask The Expert - A BloodStream Media Podcast - February 27, 2020 16:06 - 19 minutes ★★★★★ - 13 ratings
In our first month of Ask the Expert’s new format we welcome you to our extended conversation with Dr. Jonathan Roberts, a hematologist with the Bleeding and Clotting Disorders Institute. In this bonus episode, we continue our conversation with Dr. Roberts where we learn how growing up with hemo...

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ATE - Ep. 36 - w/ Dr. Jonathan Roberts

Ask The Expert - A BloodStream Media Podcast - February 24, 2020 15:30 - 30 minutes ★★★★★ - 13 ratings
Growing up with hemophilia shaped how Dr. Jonathan Roberts encourages his patients every day. As the Associate Medical Director of the Bleeding and Clotting Disorder Institute, Dr. Roberts as had the opportunity to give back to the community he is personally connected to. Join us for a unique As...

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ATE - Ep. 36 - w/ Dr. Jonathan Roberts (Part 1)

Ask The Expert - A BloodStream Media Podcast - February 24, 2020 15:30 - 30 minutes ★★★★★ - 13 ratings
Growing up with hemophilia shaped how Dr. Jonathan Roberts encourages his patients every day. As the Associate Medical Director of the Bleeding and Clotting Disorder Institute, Dr. Roberts as had the opportunity to give back to the community he is personally connected to. Join us for a unique As...

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Ep. 35: New Year’s Resolutions Watch-Outs - w/Debbie de la Riva

Ask The Expert - A BloodStream Media Podcast - January 27, 2020 16:00 - 43 minutes ★★★★★ - 13 ratings
As we begin the new year many of us are encouraged to follow through on goals we have set for ourselves, but the stress involved with sticking to it and following through can affect our mental and emotional well-being. Debbie de la Riva from Mental Health Matters Too stops by to share some thing...

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Ask The Expert - 34: vWD Research Update - w/ Dr. Christopher Ng, M.D.

Ask The Expert - A BloodStream Media Podcast - December 23, 2019 06:09 - 59 minutes ★★★★★ - 13 ratings
von Willebrand disease is the most common bleeding disorder affecting 1% of our population and yet, it is the most unknown. Research for von Willebrand disease (vWD) continues to be elusive for patients and physicians alike causing frustration and emotional toil for those affected. On this episo...

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Ep. 34: vWD Research Update - w/ Dr. Christopher Ng, M.D.

Ask The Expert - A BloodStream Media Podcast - December 23, 2019 06:09 - 59 minutes ★★★★★ - 13 ratings
von Willebrand disease is the most common bleeding disorder affecting 1% of our population and yet, it is the most unknown. Research for von Willebrand disease (vWD) continues to be elusive for patients and physicians alike causing frustration and emotional toil for those affected. On this episo...

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Ask The Expert - 33: Paradigm Shift in Hemophilia Treatment w/ - Dr. Michael Wang, M.D.

Ask The Expert - A BloodStream Media Podcast - November 25, 2019 12:00 - 52 minutes ★★★★★ - 13 ratings
As we enter into a new phase of hemophilia treatments and products, the questions continue to grow and become more complicated by the day. Check out the latest episode of Ask the Expert, where we welcome Dr. Michael Wang, M.D. from the University of Colorado Hemophilia and Thrombosis center to d...

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Ep. 33: Paradigm Shift in Hemophilia Treatment w/ - Dr. Michael Wang, M.D.

Ask The Expert - A BloodStream Media Podcast - November 25, 2019 12:00 - 52 minutes ★★★★★ - 13 ratings
As we enter into a new phase of hemophilia treatments and products, the questions continue to grow and become more complicated by the day. Check out the latest episode of Ask the Expert, where we welcome Dr. Michael Wang, M.D. from the University of Colorado Hemophilia and Thrombosis center to d...

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Ep. 32: Surprise Billing 101 w/ Miriam Goldstein and Sonji Wilkes - October 28, 2019

Ask The Expert - A BloodStream Media Podcast - October 28, 2019 13:02 - 56 minutes ★★★★★ - 13 ratings
Imagine doing your due diligence for an upcoming medical procedure by double checking your facility and providers are in-network with your insurance plan, only to later find out that a provider treating you (e.g., an anesthesiologist or radiologist) does not participate in your health plan’s net...

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Ep. 31: MyBDC w/ Michelle Witkop and Maria Santaella - September 23, 2019

Ask The Expert - A BloodStream Media Podcast - September 23, 2019 04:12 - 1 hour ★★★★★ - 13 ratings
As a member of the rare disease community, bleeding disorder patients and their families are used to taking surveys, signing up for clinical trials, and/or sharing our thoughts about what it is like living with a bleeding disorder. So what makes this new initiative from the National Hemophilia F...

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Ep. 30: Hemophilia Foundation of Michigan - Camp Bold Eagle Team - August 26, 2019

Ask The Expert - A BloodStream Media Podcast - August 26, 2019 07:24 - 1 hour ★★★★★ - 13 ratings
Hemophilia Foundation of Michigan’s Camp Bold Eagle is turning 50 this year! Camp Bold Eagle is the longest running summer camp for kids and teens with bleeding disorders in the United States and to celebrate this incredible accomplishment and to relish in the joy of summer camp, Ask the Expert ...

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Ep. 29: Does Treatment Adherence Mean Healthy Joints? w/ - Cindy Bailey, Ph.D - July 22, 2019

Ask The Expert - A BloodStream Media Podcast - July 22, 2019 04:01 - 50 minutes ★★★★★ - 13 ratings
  Is a healthy joint an active joint or a stagnant joint? How many bleeds does it take to create damage? How does treatment adherence compliment our activity levels and joint health? Join us for the latest episode of Ask the Expert where nationally recognized physical therapist, Cindy Bailey, ...

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Ep. 28: Gender Bias in Healthcare w/ - Christie VanHorne - June 24, 2019

Ask The Expert - A BloodStream Media Podcast - June 24, 2019 06:18 - 56 minutes ★★★★★ - 13 ratings
Did you know that women are twice as likely as men to be diagnosed with a mental health condition when presenting cardiovascular symptoms? Or that, on average, it takes women ten years to be diagnosed with endometriosis? On the latest episode of Ask the Expert, we dive into this topic and the lo...

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Ep. 27: Creator and Founder of "Parents Empowering Parents" - Danna Merritt - May 27, 2019

Ask The Expert - A BloodStream Media Podcast - May 27, 2019 17:47 - 1 hour ★★★★★ - 13 ratings
The latest episode of Ask the Expert features a conversation with Danna Merritt, a chronic disease social worker with over 50 years experience counseling parents of a child with a serious medical condition. Danna is creator and founder of Parents Empowering Parents (PEP), a decades long parentin...

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Ep. 26: Value of Board Services w/ Jorge de la Riva - April 22, 2019

Ask The Expert - A BloodStream Media Podcast - April 22, 2019 05:23 - 42 minutes ★★★★★ - 13 ratings
Are you considering board service with your local chapter or a national organization? Maybe you are currently serving on a board and know the unique struggle this volunteer position can face. Join us for a special Ask the Expert episode as we sit down with Jorge de la Riva, former board chair of...

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Ep. 25: Do Our Stories Actually Matter w/Bruce Barnum - March 25, 2019

Ask The Expert - A BloodStream Media Podcast - March 25, 2019 06:04 - 48 minutes ★★★★★ - 13 ratings
Ever wonder what happens after you meet with a legislator and their staff? Ever wonder what they do with your courageous, compelling stories? Can you actually affect policy changes by advocating? Do your stories even matter? Join us for a special episode of Ask the Expert as we pull back the cur...

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Ep. 24: Copay Accumulator Adjustment Programs Episode w/ Kollet Koulianos - February 25, 2019

Ask The Expert - A BloodStream Media Podcast - February 25, 2019 13:16 - 1 hour ★★★★★ - 13 ratings
  Do you use copay cards to access your clotting factor? What if those cards were used by your insurance company but didn’t go towards your deductible or out-of-pocket max so you end up with a huge bill for your factor? This is called Copay Accumulator Adjustment Programs and they are the late...

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Ep. 23: Global Health w/ Chris Bombardier - January 28, 2019

Ask The Expert - A BloodStream Media Podcast - January 28, 2019 08:31 - 34 minutes ★★★★★ - 13 ratings
New Ask the Expert host, Amy Board, sits down with previous ATE host Chris Bombardier! We ask Chris about his next adventure as the executive director of Save One Life and the future of the organization. Save One Life is a global non-profit founded by Laurie Kelley serving individuals and famili...

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Ep. 22: Travel w/ Donnie Akers - December 24, 2018

Ask The Expert - A BloodStream Media Podcast - December 24, 2018 06:45 - 51 minutes ★★★★★ - 13 ratings
This month on Ask the Expert, community advocate Donnie Akers joins Chris to discuss the in’s and out’s of traveling with your bleeding disorder, such as navigating the airport with your medication, what rights you have as a person with mobility challenges and where to go if you run into trouble...

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Ep. 21: The Importance of Art - w/ Justin Levesque - November 26, 2018

Ask The Expert - A BloodStream Media Podcast - November 26, 2018 06:25 - 44 minutes ★★★★★ - 13 ratings
In this episode of the Ask The Expert podcast, we interview Justin Levesque about the influence his bleeding disorder has had on his work as an artist, discuss how art can be used to express the challenges we face living with a bleeding disorder and how that unique experience can lead to powerfu...

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Ep. 20: Women with Bleeding Disorders - w/ Tammy Davenport - October 29, 2018

Ask The Expert - A BloodStream Media Podcast - October 29, 2018 05:55 - 35 minutes ★★★★★ - 13 ratings
Imagine having all the symptoms, and even the diagnosis of hemophilia, but you constantly hear that it’s impossible for you to have the condition. You undergo surgery without having factor available, suffer from bleeds and are placed in life-threatening situations, despite the fact that your fac...

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Ep. 19: The Model Volunteer - w/ Maryann May - September 24, 2018

Ask The Expert - A BloodStream Media Podcast - September 24, 2018 00:32 - 29 minutes ★★★★★ - 13 ratings
Non-profit organizations couldn’t function without the critical work of VOLUNTEERS. Whether on the national or local level, volunteers help communities CONNECT. Volunteers serve on boards of directors, chair committees to organize fundraisers and events, stuff mailers to potential donors, and ev...

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