Latest Fibrosis Podcast Episodes
CF in Brazil, and one outstanding advocate
Living With Cystic Fibrosis - April 08, 2024 04:00 - 57 minutes ★★★★★ - 20 ratingsWe’re going to Brazil for this podcast. Brazil is famous for some soccer players; you remember Pele and others. It’s the largest country in South America, it has 4 times zones…60 percent of the amazon rainforest is in Brazil, their flag has 27 stars on it and they speak Portuguese there. And t...
From Chronic Fatigue to Chronic Optimism
Sickboy - April 03, 2024 04:10 - 59 minutes ★★★★★ - 463 ratingsIsobel's journey isn't just about battling Postural Orthostatic Tachycardia Syndrome (POTS) and Chronic Fatigue Syndrome (CFS); it's a deep dive into resilience and self-discovery amidst the challenges of chronic illness. Facing skepticism and navigating a world not built for her, she shares the...
Gut pain and CF, Dr. Jorge Machicado
Living With Cystic Fibrosis - April 01, 2024 04:00 - 23 minutes ★★★★★ - 20 ratingsSo many people with cystic fibrosis have gut pain. It is often times, debilitating. Dr. Matthew DiMagno and Dr. Jorge Machicado are working to find answers to the suffering of people with CF, and others without. Dr. Machicado is a Clinical Assistant Professor in the Division of Gastroenterology...
Homologous Recombination Repair (HRR) Testing and Targeted Therapy in Prostate Cancer
CCO Oncology Podcast - March 28, 2024 16:28 - 48 minutesIn this episode, Colin C. Pritchard, MD, PhD, a pathologist, and Heather H. Cheng, MD, PhD, a medical oncologist, discuss optimal biomarker testing to guide treatment decisions in advanced prostate cancer, with topics including: Rationale for targeting PARP in prostate cancer with ARI combinat...
Dump Truck Dysplasia: HPV In Your Butt
Sickboy - March 27, 2024 04:10 - 1 hour ★★★★★ - 463 ratingsForget everything you thought you knew about the birds and the bees because this episode dives deep into the world less spoken of, yet equally vital: anal health. Dr. Gary Bucher, a pioneer in HIV medicine and an advocate for HPV-related disease awareness, illuminates the shadowy misconceptions ...
Win Like A Girl - Maureen Electa Monte
Living With Cystic Fibrosis - March 25, 2024 04:00 - 49 minutes ★★★★★ - 20 ratingsMaureen Electa Monte and I go ... way back! When she was an engineer, and doing photography, she photographed our first Portraits of cystic fibrosis black and white calendar in 2003. The wives of the Detroit Tigers, pretty much all of them pregnant, played in our first celebrity softball game. T...
A New Year Means a New Heart with Jennifer Schilling
Pre to Post Transplant - March 22, 2024 03:28 - 56 minutes ★★★★★ - 29 ratingsIn this episode, Jennifer Schilling shares her experience as a caregiver to her son Connor. From his childhood struggles with Hypoplastic Left Heart Syndrome to a life-changing heart transplant on New Year's Day, their journey is one of resilience and hope. Download the app - My Med Schedule P...
Herniated Discs & Healing Arts
Sickboy - March 20, 2024 04:10 - 1 hour ★★★★★ - 463 ratingsWho knew that a backache could lead you on a journey through the depths of sorrow and the heights of artistic creation? Meet Rhonda, a spirited soul entangled in the web of chronic pain and depression due to a misdiagnosed herniated disc. But Rhonda's story isn't just one of suffering; it's a te...
Real-world Perspectives on Novel HER2-Targeted and TROP-2–Directed Therapies in Advanced Breast Cancer
CCO Oncology Podcast - March 18, 2024 14:38 - 36 minutesIn this podcast episode, Sara M. Tolaney, MD, MPH, and Melinda Telli, MD, delve into the critical aspects of the current therapeutic landscape for patients with unresectable or metastatic HER2-low, hormone receptor–positive, and triple-negative breast cancer, including: Challenges with the path...
Mindfullness and CF with Aliyah Novellie
Living With Cystic Fibrosis - March 18, 2024 04:00 - 30 minutes ★★★★★ - 20 ratingsAliyah Novelli was diagnosed with cystic fibrosis as an infant. Today, she's paying it forward as a social worker at Jefferson Adult CF center in Philadelphia. Aliyah is full of enthusiasm about her new program: mindfulness. The CF Foundation awarded her with a CF Impact grant to get it sta...
Mindfullness and CF with Aliyah Novelli
Living With Cystic Fibrosis - March 18, 2024 04:00 - 30 minutes ★★★★★ - 20 ratingsAliyah Novelli was diagnosed with cystic fibrosis as an infant. Today, she's a licensed social worker practicing as a child and family therapist at The Center for Change and Growth in Ardmore, PA. Aliyah is full of enthusiasm about her new program: mindfulness. The CF Foundation awarded her w...
The Art of Digital Healing: Common Language
Sickboy - March 13, 2024 04:10 - 1 hour ★★★★★ - 463 ratingsIn a world where health meets digital narrative, Dr. Mike Lang and Kristy Wolfe turn the mic to the unsung heroes of healthcare: storytelling. This episode dives deep into the heart of healthcare, illuminated by the guiding lights of digital storytelling. Dr. Lang, a filmmaker and health researc...
CF Mom Vicky Maldonado talks Ultra Rare CF mutations
Living With Cystic Fibrosis - March 11, 2024 04:00 - 38 minutes ★★★★★ - 20 ratingsCanadian, Vicky Maldonado is the mother of a young boy living with a rare genetic form of CF. Sebastian is 6 years old, and a twin. The road to diagnosis was challenging. Sebastian was diagnosed with two rare CF genes after repeated respiratory infections and two hospitalizations. “We were told ...
Beyond Shelter: The Future of Housing and Health
Sickboy - March 06, 2024 05:10 - 1 hour ★★★★★ - 463 ratingsThey say home is where the heart is, but what if too many hearts are left without a home? In a riveting dialogue with Zach Churchill, Opposition leader and MLA for Yarmouth, the boys dive deep into the complex world of homelessness and the urgent cry for affordable housing. As the fabric of Nova...
All of Us - Science, Innovation and YOU.
Living With Cystic Fibrosis - March 04, 2024 05:00 - 39 minutes ★★★★★ - 20 ratingsA better future for health for: All of Us! Dr. Josh Denny is the All of Us Research program, CEO. A program that comes from the National Institute of Health. The Bonnell Foundation is all about Science and Innovation! And he has a CF connect via his father! The goal of All of Us is to enroll ...
Unwittingly Getting Swole: Hereditary Angioedema
Sickboy - February 28, 2024 09:10 - 1 hour ★★★★★ - 463 ratingsMaybe it’s steroids? Maybe she’s born with it? Wait… no, she’s definitely born with it. It’s HAE. How fitting is it that Rare Disease Day falls on a fairly rare day, Feburary 29th! In this episode, the fellas sit down with Jordyn Campbell, who not only shares her eye-opening journey with heredit...
Escaping the List with Natasha England, pt. 2
Pre to Post Transplant - February 28, 2024 05:32 - 42 minutes ★★★★★ - 29 ratingsIn Part 2 of this episode, Natasha continues to share her journey with battling alcoholism and needing a liver transplant. She talks about the work she put into changing her lifestyle and how that led to being unlisted. Visit the website to leave a comment or request to be on the show: ww...
CF Trust, U.K. with Belinda Cupid
Living With Cystic Fibrosis - February 26, 2024 05:00 - 40 minutes ★★★★★ - 20 ratings(Please follow us wherever you get your podcasts, rate us and/or comment. Thank you) Part of the Bonnell mission, while doing these podcasts, is to raise awareness and shine the light on other Foundations who are also doing great things. Today we’re going to tell you about the CF Trust in the ...
Escaping the List with Natasha England, pt. 1
Pre to Post Transplant - February 22, 2024 13:59 - 37 minutes ★★★★★ - 29 ratingsIn this episode, Natasha shares her journey with battling alcoholism and needing a liver transplant. She talks about the work she put into changing her lifestyle and how that led to being unlisted. Visit the website to leave a comment or request to be on the show: www.PreToPostTX.com
Help Us Find A Kidney For Ellie
Sickboy - February 21, 2024 05:10 - 1 hour ★★★★★ - 463 ratingsIn this heart-tugging episode, the fellas dive into a tale of resilience, love, and the complexities of kidney transplantation with one ultimate goal - finding a Kidney for our dear friend, Ellie. Ellie is a rockstar nurse battling kidney disease. She opens up about her journey through kidney fa...
Healthwell again open to CF patients
Living With Cystic Fibrosis - February 19, 2024 05:00 - 19 minutes ★★★★★ - 20 ratingsThis is our third podcast with Alan Klein, the Chief Development Officer Healthwell. As a reminder Healthwell was paying about $25 million each year for CF co-pays in therapeutics. But because of the lack of funding from their corporate sponsors they stopped helping existing patients and couldn’...
ANNOUNCEMENT: Sickboy is Evolving - The Future of the Podcast
Sickboy - February 16, 2024 05:10 - 36 minutes ★★★★★ - 463 ratingsThis is it. The end of Sickboy... as you've come to know it that is. This is the final FGF episode but fear not! We're not going anywhere. We're just evolving. It’s been almost ten years and hundreds of episodes since we sat down and recorded our first episode, which is crazy. For those of you w...
Sperm Superfoods: Eating Your Way to a Baby
Sickboy - February 14, 2024 05:10 - 1 hour ★★★★★ - 463 ratingsAre those late-night snacks whispering secrets about your swimmers? In this episode, the fellas dive deep into the world of baby-making, but not in the way you might think. They sit down with Lisa Hendrickson-Jack and Lily Nichols, the brilliant minds behind "Real Food for Fertility," a book on h...
When You're Drowning, Become A Fish: Caring For A Child With Cancer
Sickboy - February 12, 2024 09:10 - 1 hour ★★★★★ - 463 ratingsIn a world where the only thing scarier than a monster under the bed is a diagnosis you can't pronounce, Sam Taylor steps into the Sickboy studio to unravel the tale of her journey as a caregiver for her 12 year old daughter Ellie, who is battling rhabdomyosarcoma, a type of sarcoma. Amid the whi...
The extraordinary, Nick Kelly.
Living With Cystic Fibrosis - February 12, 2024 05:00 - 44 minutes ★★★★★ - 20 ratings(Please consider subscribing to our podcast and rating it. It helps us with promotion. Thank you) What a treat for all of us today. Nicholas Kelly is in the house. I've wanted him on our podcast for a while. Nick was diagnosed with CF when he was 3 months old. Nick has so many accomplishme...
Period Pads From The Future?!
Sickboy - February 09, 2024 05:10 - 44 minutes ★★★★★ - 463 ratingsWho knew your period could be your personal health detective? Picture this: A period pad that does more than just catch blood—it catches diseases, too! Enter the Q-pad, a brainchild of biotech innovation that's transforming the way we approach personal health screenings. With over a thousand twea...
Patient to Pioneer: Emmy's Research in Healthcare Transitions
Sickboy - February 07, 2024 05:10 - 51 minutes ★★★★★ - 463 ratingsA new generation of bright minds is storming academia, and Emmy Schuler is leading the charge, armed with innovative ideas to mend the cracks in our fractured healthcare system. This week on Routine Checkup, the boys dive into the world of psychosocial support with Emmy Schuler, a Master's studen...
Karen McEwan and Laura bond over chronic illness
Living With Cystic Fibrosis - February 05, 2024 11:00 - 45 minutes ★★★★★ - 20 ratingsKaren McEwan’s daughter, Elana, is 20 years old. It’s been a complex journey from birth to today. Elana suffers from a rare, incurable disease called Primary Ciliary Dyskinesia (PCD). This is the first podcast that is not about cystic fibrosis specifically, although you will see the connection...
Reclaiming Femininity: MRKH and Women's Health
Sickboy - February 05, 2024 05:10 - 1 hour ★★★★★ - 463 ratingsImagine a world where your very identity is challenged by your body—this is where Rima Zigaitis reshapes the narrative. In today's episode, the boys sit down with Rima Zigaitis, a beacon of hope and empowerment for women grappling with life-altering diagnoses. Founder of Sumaavi Coaching, Rima's ...
BREAKING NEWS: Sex Dreams, Lupus Genes, and Rabbit Queens
Sickboy - February 02, 2024 05:10 - 55 minutes ★★★★★ - 463 ratings"BREAKING NEWS - You heard it here first! Your laptop is killing your sperm! Strap in (or strap-on in taylors case?) for a wild ride on Feel Good Friday as the boys dive headfirst into a world where science fiction meets reality, sweaty naked dreams blur into revelations, and history takes a hop ...
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