Latest Duchenne Podcast Episodes
Nutrition and Duchenne
Take On Duchenne - North America - December 15, 2023 08:00 - 40 minutes ★★★★★ - 6 ratingsIn this podcast episode we are discussing the topic of Nutrition and Duchenne with our guest speaker, Dr. Kindann Fawcett, Behavioral Health Scientist, Dietitian and Caregiver to her son with Duchenne Muscular Dystrophy. Our conversation with Dr. Kindann Fawcett explores; · the importance ...
A Scientist’s Quest to Solve Duchenne Muscular Dystrophy
Take On Duchenne - North America - August 16, 2023 15:46 - 26 minutes ★★★★★ - 6 ratingsDr. Ellen Welch is the Chief Scientific Officer at PTC who has been researching and tackling Duchenne for more than 20 years. In this episode, Dr. Welch reflects on scientific advances in the last two decades and how it has contributed to progress in the Duchenne space. She also explains...
A Mother and Carrier of Duchenne Muscular Dystrophy Shares Her Journey
Take On Duchenne - North America - May 01, 2023 11:00 - 22 minutes ★★★★★ - 6 ratingsA Mother and Carrier of Duchenne Muscular Dystrophy Shares Her Journey Elizabeth’s journey with DMD began when her son was diagnosed at the age of five. In this episode, Elizabeth reflects on the diagnosis of her son, her daughter’s and her own carrier diagnosis, family life, her coping mech...
Cardiomyopathy Associated with Duchenne Muscular Dystrophy
Take On Duchenne - North America - March 07, 2023 17:00 - 22 minutes ★★★★★ - 6 ratingsCardiomyopathy Associated with Duchenne Muscular Dystrophy In this episode with Dr. Linda Cripe, we learn more about cardiomyopathy associated with Duchenne Muscular Dystrophy (DMD). We discuss care consideration and management strategies especially pertinent for manifesting DMD carriers and wh...
Women & Duchenne
Take On Duchenne - North America - November 18, 2022 15:39 - 33 minutes ★★★★★ - 6 ratingsWomen & Duchenne We are dedicating this episode to ‘Women & Duchenne’ in honor of World Duchenne Awareness Day which takes place every September 7. Tune in to hear from three incredible women: a clinical expert, a mother who is also a carrier and caregiver, and a scientist share their knowledge...
The Continuum of the Disease with a Focus on Cardiopathology
Take On Duchenne - North America - June 28, 2022 14:07 - 29 minutes ★★★★★ - 6 ratingsThis episode is dedicated to discussing Duchenne Muscular Dystrophy (DMD) continuum of disease with a focus on cardiopathology. Hear from our expert guest speaker, Dr. Villa about the importance of continuing standard of care guidelines to support cardiac health. Chet Villa, MD is a Pediatri...
DMD: Continuum of Disease and Importance of Continuation of Care
Take On Duchenne - North America - June 13, 2022 12:00 - 24 minutes ★★★★★ - 6 ratingsThis episode is dedicated to discussing Duchenne Muscular Dystrophy (DMD) continuum of disease and importance of continuation of care. Hear from our expert guest speaker, Dr. Mayer about the recommended DMD standard of care guidelines with regards to ongoing patient management and care. Osc...
Transition to Adult Care in DMD, the Social Perspective
Take On Duchenne - North America - January 31, 2022 15:53 - 22 minutes ★★★★★ - 6 ratingsAs more and more boys and young men with DMD are transitioning into adulthood, there is an increasing emphasis on quality of life and psychosocial management. In this episode, we are joined by Sarah Stoney, licensed social worker from Children’s Hospital of Philadelphia for a discussion about co...
Transition to Adult Care in DMD
Take On Duchenne - North America - December 15, 2021 01:24 - 21 minutes ★★★★★ - 6 ratingsDr. Elman is an adult neurologist at the University of Pennsylvania, in this episode she shares her experience and important considerations for a successful transition to adult care in Duchenne muscular dystrophy (DMD). In the last decade, improvements in DMD care and therapeutic strategies h...
Evolving Care in Duchenne Muscular Dystrophy (DMD)
Take On Duchenne - North America - October 14, 2021 17:53 - 20 minutes ★★★★★ - 6 ratingsIn this episode, our guest speaker Dr. Diana Castro, Associate Professor of Pediatrics, Neurology and Neurotherapeutics at the University of Texas Southwestern shares her extensive clinical knowledge and discusses the clinical, diagnostic and medical landscape in DMD, as well as management appro...
The impact of Personal Health Budgets
Your Health in Your Hands - PHBs - for iPod/iPhone - July 11, 2014 11:04 - 25 minutesIn this discussion three people involved in implementing Personal Health Budgets, or PHBs, explain what they’re going to mean for healthcare in England. PHBs are the next major step towards personalising healthcare. They’ve been designed to allow people more choice and control over the money spen...
Transcript -- The impact of Personal Health Budgets
Your Health in Your Hands - PHBs - for iPod/iPhone - July 11, 2014 11:04 - application/pdfTranscript -- In this discussion three people involved in implementing Personal Health Budgets, or PHBs, explain what they’re going to mean for healthcare in England. PHBs are the next major step towards personalising healthcare. They’ve been designed to allow people more choice and control over ...
How Personal Health Budgets work
Your Health in Your Hands - PHBs - for iPod/iPhone - July 11, 2014 11:02 - 25 minutesIn this discussion practitioners tell us how Personal Health Budgets, or PHBs, will be rolled out. The movement towards personalisation started in the 1970s. Since 2009 a variety of trials have taken place across England, mainly for people living with long term conditions. From 2014 more and more...
Transcript -- How Personal Health Budgets work
Your Health in Your Hands - PHBs - for iPod/iPhone - July 11, 2014 11:02 - application/pdfTranscript -- In this discussion practitioners tell us how Personal Health Budgets, or PHBs, will be rolled out. The movement towards personalisation started in the 1970s. Since 2009 a variety of trials have taken place across England, mainly for people living with long term conditions. From 2014...
Case study 4: Motor Neurone Disease
Your Health in Your Hands - PHBs - for iPod/iPhone - July 11, 2014 11:01 - 6 minutesIn this case study we hear from Martin Harrison who was diagnosed with motor neurone disease in 2004. He lives in Thornaby-on-Tees in North Yorkshire with his wife and two daughters.
Transcript -- Case study 4: Motor Neurone Disease
Your Health in Your Hands - PHBs - for iPod/iPhone - July 11, 2014 11:01 - application/pdfTranscript -- In this case study we hear from Martin Harrison who was diagnosed with motor neurone disease in 2004. He lives in Thornaby-on-Tees in North Yorkshire with his wife and two daughters.
Case study 3: Schizophrenia
Your Health in Your Hands - PHBs - for iPod/iPhone - July 11, 2014 11:00 - 6 minutesIn this case study we hear from Andrew Voice. He has schizophrenia and spent 20 years in and out of asylums before finding a place to live independently in Bexhill. He got a PHB which allowed him to set up a social enterprise offering things like music sessions and yoga to people living with ment...
Transcript -- Case study 3: Schizophrenia
Your Health in Your Hands - PHBs - for iPod/iPhone - July 11, 2014 11:00 - application/pdfTranscript -- In this case study we hear from Andrew Voice. He has schizophrenia and spent 20 years in and out of asylums before finding a place to live independently in Bexhill. He got a PHB which allowed him to set up a social enterprise offering things like music sessions and yoga to people li...
Case study 2: Duchenne’s Muscular Dystrophy
Your Health in Your Hands - PHBs - for iPod/iPhone - July 11, 2014 10:54 - 6 minutesIn this case study we hear from Mathew O’Sullivan. He’s 25 years old and has a form of muscular dystrophy called Duchenne’s. He lives near Reading with his girlfriend Lizzie who has cerebral palsy. They manage their personal health budgets in tandem. Mathew breathes using a respirator and needs 2...
Transcript -- Case study 2: Duchenne’s Muscular Dystrophy
Your Health in Your Hands - PHBs - for iPod/iPhone - July 11, 2014 10:54 - application/pdfTranscript -- In this case study we hear from Mathew O’Sullivan. He’s 25 years old and has a form of muscular dystrophy called Duchenne’s. He lives near Reading with his girlfriend Lizzie who has cerebral palsy. They manage their personal health budgets in tandem. Mathew breathes using a respirat...
Case study 1: Alzheimer's Disease
Your Health in Your Hands - PHBs - for iPod/iPhone - July 11, 2014 10:53 - 6 minutesIn this case study we hear from Jonathan Fitzpatrick. He was diagnosed with Alzheimer’s in his 50s. Now 68 after a short spell in a care home he lives at home in Oxfordshire with his wife Anna.
Transcript -- Case study 1: Alzheimer's Disease
Your Health in Your Hands - PHBs - for iPod/iPhone - July 11, 2014 10:53 - application/pdfTranscript -- In this case study we hear from Jonathan Fitzpatrick. He was diagnosed with Alzheimer’s in his 50s. Now 68 after a short spell in a care home he lives at home in Oxfordshire with his wife Anna.
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