Latest Cystic Podcast Episodes
Erectile Data: How a Ring Can Save Your Life
Sickboy - June 26, 2024 04:10 - 1 hour ★★★★★ - 463 ratingsWho knew a ring could hold the secret to unlocking better health and pleasure? Buckle up folks, This week Dr. Elliot Justin, CEO and founder of FirmTech, introduces the world's first objective monitor for men's erectile fitness—a discreet, wearable cock ring that tracks nocturnal erections to pr...
Remembering Matt McCloskey of Take a Breather
Living With Cystic Fibrosis - June 24, 2024 04:00 - 37 minutes ★★★★★ - 20 ratingsShortly after we did this podcast Matt died from complications of cystic fibrosis. With permission from his sisters, and dear friend Jennifer Bleecher (featured in this podcast) we are now airing this podcast to shine a light about what a great man Matt was. He speaks in this podcast about conc...
Thicc Boy With a Thick Heart - Hypertrophic cardiomyopathy (HCM)
Sickboy - June 19, 2024 04:10 - 1 hour ★★★★★ - 463 ratingsNot all tackles happen on the field. Che Morales, once on the brink of a promising CFL career, found his life upended by a surprising diagnosis. What started as shortness of breath, initially thought to be COVID, led to the shocking discovery of Hypertrophic Cardiomyopathy (HCM). This episode de...
The Fearless Vagina: Ellen Dolgen
Living With Cystic Fibrosis - June 17, 2024 04:00 - 1 hour ★★★★★ - 20 ratingsAs people with cystic fibrosis live longer, with a life expectancy currently at about 56 years old, many women with CF will be going through menopause. I recently spoke to doctors at a hospital gathering, and recommended they speak to women with CF about menopause. They agreed. It's time. The...
The Domestic Assault That Shocked The World - Denise Chong
Sickboy - June 12, 2024 13:10 - 1 hour ★★★★★ - 463 ratingsThey say the pen is mightier than the sword, but sometimes, it illuminates the darkness within. In this episode, the fellas are joined by Denise Chong, the best selling author, to chat about her latest book, Out of Darkness. This gripping narrative follows the harrowing journey of Rumana Monzur,...
Dr. Caleb Bupp, Rare Genius (in our opinion)
Living With Cystic Fibrosis - June 10, 2024 04:00 - 43 minutes ★★★★★ - 20 ratingsDr. Caleb Bupp. In my opinion. A scientific star. He is a most humble human, but has every right to brag, but he never would. I do believe he's a genius. You will love this podcast. We talk about rare disease, his family and how he discovered and helped families who had no rare disease answer...
“I was fat shamed by the Dalai Lama”: Johann Hari on Ozempic
Sickboy - June 05, 2024 04:10 - 1 hour ★★★★★ - 463 ratingsOH OH OH OZEMPIC! You knOooOooOoow, never believe it’s not so. This week the fellas get to check off a long time dream guest. Johann Hari, a wildly successful and beloved author and journalist, who pops by the studio to do a deep dive into the new form of weight loss drugs that are taking the wo...
Episode 186- Q&A! Fasting Before Labs, Reversing Insulin Resistance When Thin, How To Fast With Sleep Issues, Meal Plans and Recipes in My Program
Optimal Metabolism - June 04, 2024 07:00 - 39 minutes ★★★★★ - 137 ratingsIt is always an honor to answer questions asked directly from my podcast listeners! I tackled topics like how long you should fast before lab testing, how to reverse insulin resistance when already at a healthy weight, should you practice intermittent fasting while simultaneously struggling with...
Cambrey Vasconez White - rare mutations
Living With Cystic Fibrosis - June 03, 2024 04:00 - 38 minutes ★★★★★ - 20 ratingsCambrey Vasconez White is the mother of toddler Rowland, who has Cystic Fibrosis. If you listened to our podcast with Vicky Maldonado, they have similar struggles. Cambrey is also working to find an equitable approach to rare mutations in the U.S. and Canada. These two women connected, as you...
CYSTIC FIBROSIS IS NOT YET CURED!
Sickboy - May 29, 2024 04:10 - 1 hour ★★★★★ - 463 ratingsClarification: The median age of survival in Canadians born with cystic fibrosis is 60 years of age. The median age of death in Canadians with CF is 37 years of age. When science fiction becomes a medical reality, the journey is anything but simple. Kelly Grover, CEO of Cystic Fibrosis Canada, ...
Episode 185- Weight Loss and Healing Modalities You're Missing Out On With Kiera Lea
Optimal Metabolism - May 28, 2024 08:22 - 1 hour ★★★★★ - 137 ratingsKiera Lea specializes in quantum health and light biology. She believes in the healing power of nature, through practices like viewing the sunrise, grounding, deuterium depleted water, and other principles of nature to transform one’s health and wellbeing. In this episode we discussed Kiera’s co...
Brandi Berry, Chidlren's Special Health Care Services Prgrm
Living With Cystic Fibrosis - May 27, 2024 04:00 - 39 minutes ★★★★★ - 20 ratingsDid you know most states have programs for CF families, and they don’t have to do with your income? Michigan has one of the best programs in the Country. It’s called Children’s Special Healthcare and acts as a secondary insurance to pediatric and adult patients. Brandi Berry tells us all about i...
From Daring Dreams to Digestive Drama - Crohn's Disease
Sickboy - May 22, 2024 04:10 - 1 hour ★★★★★ - 463 ratingsThis week is all about 4 things. Ambition, Resiliency, Adventure and Poop! Our guest Bradley lives with Crohn's disease and despite facing huge health challenges (including a horrific and lengthy hospital admission) he’s done some wildly impressive things. Bradley crossed the Sahara Desert, swam...
Episode 184- A Deep Dive Into Optimizing HRT with Dr. Greg Brannon
Optimal Metabolism - May 21, 2024 07:31 - 1 hour ★★★★★ - 137 ratingsDr. Greg Brannon utilizes hormone replacement therapy to help females in perimenopause and menopause experience a smoother transition. We discussed what hormone replacement therapy is, how long therapy is used, hormone testing, and the comparison between cortisol and sex hormones. We heavily foc...
Dr. Bhanu Jena, another CF modulator on the horizon?
Living With Cystic Fibrosis - May 20, 2024 04:00 - 35 minutes ★★★★★ - 20 ratingsA new CF modulator could be on the horizon. Professor Dr. Bhanu Jena is exciting to tell us all about it. Dr. Jena was born in a small town in Odisha, India. He got his love for science and medicine from his father and grandfather. He majored in Chemistry, Zoology, and Botany at BJB College in...
Black Man in a White Coat Fighting For Mental Health
Sickboy - May 15, 2024 13:35 - 1 hour ★★★★★ - 463 ratingsHumor isn't just medicine for the soul; it's also a scalpel that dissects the complex anatomy of our mental and physical health. This week Jer and Tay are joined by best-selling author and psychiatrist, Dr. Damon Tweedy. From discussing the stigmas that shadow mental health in marginalized com...
Episode 183- Opening Up About Recent Struggles and Putting New Protocols in Place
Optimal Metabolism - May 14, 2024 11:25 - 47 minutes ★★★★★ - 137 ratingsEveryday I am amazed by the complexity of the human body. As a lifelong learner, I too am learning the body's overall wellbeing is influenced not only by optimal nutrition- or lack thereof- it also thrives in response to appropriate light patterns, circadian rhythm, hormone production, exercise,...
The Final 10 percent
Living With Cystic Fibrosis - May 13, 2024 04:00 - 38 minutes ★★★★★ - 20 ratingsApproximately 10 percent of the CF population is waiting for a CF modulator drug that will help them by correcting the underlying condition of their disease. Current modulator drugs help more common CF mutations. Emily Kramer Golinkoff is one of the people who doesn't have a CF modulator that ...
From Transplant List to Baby Bliss with Alyssa Hicks
Pre to Post Transplant - May 09, 2024 04:02 - 1 hour ★★★★★ - 29 ratingsIn this episode, Alyssa Hicks shares her journey about her kidney transplant. She talks about all the challenges she had to overcome throughout her journey, one being having a baby while on dialysis. With so many other obstacles, she is here to tell her inspirational story. Visit the Pre to ...
The NHL Has A Head Trauma Problem
Sickboy - May 08, 2024 04:10 - 1 hour ★★★★★ - 463 ratingsWhen the game ends but the battle just begins, former NHL player Daniel Carcillo lays bare the hard-hitting truth about sports concussions and the healing journey beyond the rink. Carcillo joins the fellas for a compelling chat surrounding his intense struggle with mental health following repeti...
Episode 182- Alternative Cancer Treatments and the New Biology of Water with Dr. Thomas Cowan
Optimal Metabolism - May 07, 2024 07:37 - 1 hour ★★★★★ - 137 ratingsDr. Thomas Cowan is a practitioner in the field of alternative health and author of six best-selling books. His teachings are navigated by new biology principles such as the biology of water and the relationship of exclusion zone water to cancer. In this episode we delve into holistic cancer tre...
Dr. Mitch Drumm - CF Pioneer (and hero to CF community)
Living With Cystic Fibrosis - May 06, 2024 04:00 - 44 minutes ★★★★★ - 20 ratingsLiving legends. One of them is Dr. Mitch Drumm. He was part of the team with Dr. Francis Collins who discovered the gene that cause CF. They were all at the University of Michigan. You’ll hear the connection Laura and Mitch have, and they didn’t know it until this podcast! Dr. Drumm is a living ...
Dr. Mitch Drum - CF Pioneer
Living With Cystic Fibrosis - May 06, 2024 04:00 - 44 minutes ★★★★★ - 20 ratingsLiving legends. One of them is Dr. Mitch Drumm. He was part of the team with Dr. Francis Collins who discovered the gene that cause CF. They were all at the University of Michigan. You’ll hear the connection Laura and Mitch have, and they didn’t know it until this podcast! Dr. Drumm is a living ...
What Happens When One Conjoined Twin Dies?
Sickboy - May 01, 2024 04:10 - 39 minutes ★★★★★ - 463 ratingsIn a dance designed for two, what happens when the music stops for one? This week Jer and Tay go OG FGF mode. After introducing the newest member of the team, Haeley, Jer delves into the complex world of conjoined twins, particularly focusing on the rare and heartbreaking scenario where one twin...
Episode 181- Reversing Prediabetes and Becoming "Postdiabetic" with Eric Edmeades
Optimal Metabolism - April 30, 2024 07:12 - 1 hour ★★★★★ - 137 ratingsEric Edmeades is the coauthor of the newly published book, Postdiabetic, and has a passion for helping those with metabolic illness heal and achieve postdiabetic vitality. Along with being an author and continual learner, Eric also serves as a leadership speaker and entrepreneur. It was so fun ...
Dr Ryan Hadley - Lung Transplants
Living With Cystic Fibrosis - April 29, 2024 04:00 - 27 minutes ★★★★★ - 20 ratingsDo you know what is needed before you have a lung transplant? Or even how it works? More and more adult CF clinics are explaining the details to adult patients, but if you're a CF parent, there is a lot you may not know. We welcome Dr. Ryan Hadley. Dr. Hadley is at Corewell health in Grand R...
Legally Blind or Faking It? - Retinitis Pigmentosa
Sickboy - April 24, 2024 04:10 - 1 hour ★★★★★ - 463 ratingsSometimes, the world we see isn't just defined by light and shadows, but by the stories we tell and the voices we hear. Mara Hutchinson offers the fellas a candid glimpse into her life with Retinitis Pigmentosa (RP), a rare eye disease that affects the retina. She’s lived a journey marked not ju...
Episode 180- Healing the Gut to Overcome Inflammation and Weight Loss Resistance with Risa Groux
Optimal Metabolism - April 23, 2024 07:00 - 1 hour ★★★★★ - 137 ratingsRisa Groux is a Functional Nutritionist and Certified Autoimmune Coach who is passionate about nutrition and healing the root cause of disease. Risa specializes in health challenges like diabetes, autoimmune disease, cancer, digestion, thyroid, and hormone imbalances. In this episode we delve in...
Laura and Beth talk about what makes a Foundation work!
Living With Cystic Fibrosis - April 22, 2024 04:00 - 40 minutes ★★★★★ - 20 ratingsEveryone always asks me "What does it take to run a Foundation?" So I thought I would explain some of the different aspects of funny and challenging parts of running a Foundation. Please join me with my friend Beth Vanstone who asks me all sorts of questions about what running a Foundation is ...
The Platinum Rule: Advance Care Planning
Sickboy - April 17, 2024 08:10 - 59 minutes ★★★★★ - 463 ratingsLife is a storyboard, and every chapter counts, especially those we write in advance. Karine Diedrich, the Director of Advance Care Planning at the Canadian Hospice Palliative Care Association (CHPCA) unravels the threads of advance care planning—a blueprint for future healthcare that aligns dee...
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